NO ONE UNDERSTANDS!

30 May 2009

Posted by futurenursewithibs

it makes me so angry that no one even though no matter how hard I try to show them evidence from the internet believes me that how I am feeling is not all in my head. Yes I do agree that my anxiety does make my disease worse, however it is not the cause of my IBS-D&C
I am so depressed that I can not leave my house because of my stomach and I am so frustrated. As I sit here typing my stomach is hurting me and going crazy, but everyone thinks its all in my head. Hello people...... doesn't any one read, it has been proven that IBS is not caused by the brain. It is a physical disorder of the intestines. I am completely alone in this world right now. My father is telling me get it out of your head and you can go out. All I do is sit and cry when someone says its in my head, I am so sick and tired of people telling me that. My feelings are real, the pain is real, the urge of having to go to the bathroom right now is real. I am so sick of living like this, i do not know how people have lived a long time like this. I have been living like this for only a couple of weeks now. I having been dealing with IBS since I was little but it was never this bad, where I could not leave the house. I really think it has something to do with my gallbladder being removed. It didn't get this bad until about two weeks after my gallbladder was removed. UGHHHHHHHHHHHH it completely sucks. I never should have had my gallbladder removed. Why can anything with me be normal. There are plenty of people out there that have their gallbladders removed and not a problem, but my luck of course it has to aggravate my IBS to a point of no return. I just want to be normal, I just want to be able to leave the house and go to see a friend, I just want to be able to drive down the street to a restaurant or a doctor's office with out have the feeling of having to go to the bathroom right away. I feel so bad, I have put my mother under so much stress because of this. She has me and my grandmother and my father pulling her in all directions. I am 23 years old and should be able to take care of myself, and not want my mommy, however when i am sick and feeling the way I am feeling i want my mommy and I complain to her. I have no one else to go to, and she is my mother, I am her only child, she needs to understand what it is I am feeling, but she seems to think it is in my head as well. I thinking I am going to start printing everything I read about IBS and the brain connection out and have her sit down and read them in front of me. Who knows is what I am sending her she is even reading. Something now she says she knows that its not in my head, but the anxiety is, but it things that she says that makes me feel that she is just saying it because she is tired of hearing me. UGHHHH i hate life right now.

Share This Entry:

Back to futurenursewithibs' Blog →

10 Comments On This Entry

I know its not in your head. Its the IBS thats causing the depression and anxiety because you are wondering how your life is ever going to be normal again. I dont want to b rude by suggesting this, but maybe you should try discussing with your Dr something to relieve anxiety? It wont be a cure, it might help with the bowel spasms, but the goal is to help you gain perspective. My friend who is an ER nurse spoke very harshly to me about how i was feeling. I didn't really wan2 hear it but she made me face up to some stuff. Im trying to take each day as it comes, and some arent as bad as others.

I really hope this helps, and i do understand/

GracieMet, 31 May 2009 - 01:18 PM

Reply
Report

Believe me I know how u feel, I have anxiety too, I thank God my sister understands, when we are out getting groceries or shopping and I get sick, she doesn't get mad. I feel so bad that my family has to go thru this with me. I cry alot and while I was in the hospital I cried. My doctor takes my hand and he started praying for me. He goes I am going to take care of you. I am very fortunate to have a good Gastro doc. As for my co-workers, there are some who believe I fake this and others know, they take care of me while I am at work.

Kerrij34, 03 June 2009 - 02:46 PM

Reply
Report

I do understand. It's not it your head. As for needing your Mom, I just spent nearly five days home alone (my husband was away) with a serious "episode" and I think I called out for my mommy a few times! You have to reach for your inner strength right now. Hang in there.

ndshope, 07 June 2009 - 10:42 AM

Reply
Report

I do understand. It's not it your head. As for needing your Mom, I just spent nearly five days home alone (my husband was away) with a serious "episode" and I think I called out for my mommy a few times and I'm 39! You have to reach for your inner strength right now. It's ok to cry, but remember not to cry too much as it can upset your tummy more. Hang in there.

ndshope, 07 June 2009 - 10:44 AM

Reply
Report

wow did you just type that for me, i have the same issues, although for much longer which im sad to say to you, i had my gallbladder out being told everything would be better, and it only got worse, i have developed social anxiety because i can never leave my house or go out to eat or even do something fun with my kids, if my family wants to eat before we do our event for the day, then i have to just sit along side and not eat, what ever i eat goes right through me, i call it insta poops, but it affects my whole family and that just make it worse for me, i have even believed everyone that its all in my head and gone a head and ate what they wanted me to and i showed them, i was instantly in the bathroom cramping all the way home, i would like to say that the best time i have ever had with my ibs being better was when i was pregnant, although i can not stay pregnant and do not want anymore kids im not sure what to do about that, but i do understand what you are saying, and you are not crazy, just need to relax and do what the drs say, take fiber, take an anxiety med,

mgay, 08 June 2009 - 12:52 PM

Reply
Report

I totally understand how you feel. I had my gall bladder removed about 18 months ago. My IBS got so bad I was having multiple attacks everyday. It did however subside after about a month or two. I'll share with you what I found to be the best thing I ever tried for IBS. Following the surgery I was on Percocet for the post op pain. I found that 1 dose or even just half a dose would stop an attack in it's tracks. I felt one coming on about 2 weeks after the surgery and took a dose and within 30 mins I was fine. I was lucky, my dr. was all for trying anything that worked. I kept my refills within the required time span and found that I could make a 30 day supply last at least 45. After about a month or so the frequency of my attacks slowed and I could spread a 30 day supply over at least 2 month by taking only half doses. Discuss it with your Dr and see what they think. But you are right, it is not in your head. Your urges, pain, all of it, it's real. I suggest you print out all of the comments you recieve to your post and show those to your family. I have lived with IBS for well over a decade. It is a real disorder with real consequences to daily life. It is miserable, it is chronic, and anyone with a loved one with this problem should acknowledge it and be totally supportive. People need to understand that millions of people can't all be wrong. Our lives are greatly hampered by this disorder and their lack of cooperation and understanding only makes things worse.

indychik, 13 June 2009 - 04:59 AM

Reply
Report

Unfortunately I am where you are right now, with people thinking it's in my head, but you DON'T just wake up one day saying "OH I THINK I AM GOING TO BE AFRAID OF BEING AWAY FROM A TOILET TODAY" No it just comes to you, and then the anxiety and depression comes into the picture. #1 it makes you very anxious to find your self running off to the bathroom, then from too many times of that you become pretty much home bound, then of course that causes you to feel very depressed. Although it's not in our heads, it is a good idea to seek counseling to help deal with the anxiety and depression that can accompany this problem. I personally do not prefer to take meds for the anxiety that comes with this problem, but I think I am to the point that I just need some help calming down for a few months, and maybe in that time of calmness I can search for affective ways to control this problem.

I hope that you find a solution for this problem:)

nickieAZ, 13 June 2009 - 05:41 AM

Reply
Report

mgay, on Jun 8 2009, 12:52 PM, said:

Mgay-

I read your reply and you and I are the same. I had my gallbladder out and my ibs was never the same. They told me you can live without your gallbladder but they never said how life would be aft it was removed.

I also feel sorry for my family, I can't go to some of the places they want to go to because the car ride would be to long. My family also wants to eat before doing things. I don't mind sitting there while they eat Im use to it now. It just bothers them sometimes(but I think they are getting use to it now).

The only time my symptoms went away and stayed away for awhile was when I got pregnant. They did come back and its hard im trying to get use to having ibs-D again.

Sherr, 15 June 2009 - 03:53 PM

Reply
Report

I can understand the frustration as well, but there is hope and there is a system that works for IBS-D. I am a healthcare administrator and have seen every doctor and I also had my gallbladder taken out about 8 months ago. It seemed the older I got, age 44, the worse the symptoms were appearing. I thought I would just have to live with it also - I was wrong, I have been symptom free for 2 months now, and I am so happy. Email me at deniselhoffman@cox.net and I will share with you the system I use - it is an all natural product backed by a great company that is legit, backed by the FTC. It is a probiotic that has 7 patents and then has the necessary essentials to help your system. It is awesome - you have to try it - I have 4 friends on it that have also been diagnosed and they are seeing tremendous results as well. I can also share with you some studies done by Chiropractors who tested their patients, and the results were great. Email me, this does not have to stop your life or what you eat.

Denise

litlbear51, 21 June 2009 - 06:38 AM

Reply
Report

Poor futurenursewithibs, my prayer is with you, either you believe in prayer or not. After all these years, nobody would understand the pain we go thru unless they have actually experienced themselves. Remeber those days when menstrual pain was believe to be all in-your-head? When doctors doesn't know what is wrong, and most doctors (not all) doesn't want to admit they don't know, they will just tell you it is all in your head. Yes, pain signal comes from our head, so even soldier in their tour got their limp cut blow off and feel pain is also in their head!!

I can't really help you on your pain, all I can say is, there are thousands of people who understand. "But Jesus, said unto them, A prophet is not without honour, but in his own country, and among his own kin, and in his own house." So just let your family be. We cannot force people to understand us, we can only understand them.

I cry, I pray, I meditate, I learned to say "f it" to people at work or life (including my parents) who put me in stressful situation, yes I just say 'f it' and walk away. I learn to release myself and try to not let others get to me. If they do, like my parents, I just walk away and ignore them. Oh, and I persist with my doctors, show them you mean it. Sometimes when you bug them enough, they will eventually do something, like sent you to a better doctor who might know more then they.

Hope you feel better soon.

cleung, 29 June 2009 - 10:23 AM