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Hey everyone,
I want to thank everyone that has been responding to my posts, it really helps to know that I am not the only one going through all this. Well, I have had another attack that sent me to the hospital this time in an ambulance it was so bad. The attack came out of no where and the next thing I know I was sitting on the toilet in excruciating pain double over in a cold sweat dripping with abdominal pain and back pain to the point I thought I was dying. My body had started to go numb and I thought for sure I was about to pass out! I made my mom call 911 at that point, cause I thought there was something seriously wrong since my other attacks had never felt like that. My mom had given me hyomax which is an antispasmodic I was given the last time I left the hospital and thank god it had started to kick in before the EMTS had gotten there. In other words I probably didn't need to go to the hospital however I still went and got checked out and was released 3 hours later. Since than I saw the gatstro doctor again And after all the millions of tests he has run and with everything coming out negative he has officially said it looks like that I have severe IBS. He is totally perplexed since nothing is coming out positive. Now every time I start to have the pain he said I should talk pepto and the hyomax, and that should take care of it. He did not want to put me on any other meds since I am already on cymbalta and paxil and both of those are supposed to help with IBS as well. He also has me on nexium and prevalite which keeps my stools formed.
As of right now I am completely living in fear of leaving the house and totally have become a shut in. My mom is so fed up with me that I am not fighting this illness and that I won't go out, my relationship with her is becoming strained. I made her cancel her vacation plans because she was driving 12 hours away and I was scared to be alone with her that far away in case I have another attack. Whenever she is home she is running errands and is never home home, and I hate being home alone, since I always am I get so lonely. I have isolated myself from friends that I only have about 1 or 2 that call me still even though I say no to going out. BY the way they know my problem and what is going on. However I do not think that anyone that does not have this disorder personally can really understand what it is like to live with it.
Others seem to ask themselves why she can't just move on with her life. So what she had an attack now move on. BUT I CAN'T!!!!!! I had to drop out of an amazing nursing school for the fall because of all the health issues I have been having and am so depressed about that. People that have graduated high school with me are now graduating with their masters degree's and I have not even gotten through my undergrad yet!!! It's so embarrassing and annoying since I have not stopped taking classes this whole time. I have so many credits but none in one single area to get a degree since I was doing nursing, and no other nursing school will take any other nursing school's classes for credit.
Stress definitely makes IBS worse. When I start to get the attacks I have to try to calm myself down or I start to have a panic attack. I have been given Xanax to take when needed, and that totally zonks me out. I am making an appt. to see a nutritionist, to get a list of what I can and can not eat or what will make an attack come on and what is safe.
I am also seeing my gyno at the end of this month and am going to talk to her about checking me for endometriosis. I am on birth control because I use to get really bad periods and now I do not get my period at all because of the type of birth control that I am on. My mom seems to think that it has something to do with not getting my period that I am getting these attacks since they seem to come once a month. I have read that IBS symptoms are the same as endometriosis, so we will see. However I am so scared of the gyno because even having a regular exam is extremely painful for me, so to ask her to look into endo or other causes that might be giving me the attacks is petrifying!!!!!!!!
I WILL UPDATE SOON...........UNTIL THEN HOPE EVERYONE FEELS BETTER
FUTURENURSEWITHIBS
I want to thank everyone that has been responding to my posts, it really helps to know that I am not the only one going through all this. Well, I have had another attack that sent me to the hospital this time in an ambulance it was so bad. The attack came out of no where and the next thing I know I was sitting on the toilet in excruciating pain double over in a cold sweat dripping with abdominal pain and back pain to the point I thought I was dying. My body had started to go numb and I thought for sure I was about to pass out! I made my mom call 911 at that point, cause I thought there was something seriously wrong since my other attacks had never felt like that. My mom had given me hyomax which is an antispasmodic I was given the last time I left the hospital and thank god it had started to kick in before the EMTS had gotten there. In other words I probably didn't need to go to the hospital however I still went and got checked out and was released 3 hours later. Since than I saw the gatstro doctor again And after all the millions of tests he has run and with everything coming out negative he has officially said it looks like that I have severe IBS. He is totally perplexed since nothing is coming out positive. Now every time I start to have the pain he said I should talk pepto and the hyomax, and that should take care of it. He did not want to put me on any other meds since I am already on cymbalta and paxil and both of those are supposed to help with IBS as well. He also has me on nexium and prevalite which keeps my stools formed.
As of right now I am completely living in fear of leaving the house and totally have become a shut in. My mom is so fed up with me that I am not fighting this illness and that I won't go out, my relationship with her is becoming strained. I made her cancel her vacation plans because she was driving 12 hours away and I was scared to be alone with her that far away in case I have another attack. Whenever she is home she is running errands and is never home home, and I hate being home alone, since I always am I get so lonely. I have isolated myself from friends that I only have about 1 or 2 that call me still even though I say no to going out. BY the way they know my problem and what is going on. However I do not think that anyone that does not have this disorder personally can really understand what it is like to live with it.
Others seem to ask themselves why she can't just move on with her life. So what she had an attack now move on. BUT I CAN'T!!!!!! I had to drop out of an amazing nursing school for the fall because of all the health issues I have been having and am so depressed about that. People that have graduated high school with me are now graduating with their masters degree's and I have not even gotten through my undergrad yet!!! It's so embarrassing and annoying since I have not stopped taking classes this whole time. I have so many credits but none in one single area to get a degree since I was doing nursing, and no other nursing school will take any other nursing school's classes for credit.
Stress definitely makes IBS worse. When I start to get the attacks I have to try to calm myself down or I start to have a panic attack. I have been given Xanax to take when needed, and that totally zonks me out. I am making an appt. to see a nutritionist, to get a list of what I can and can not eat or what will make an attack come on and what is safe.
I am also seeing my gyno at the end of this month and am going to talk to her about checking me for endometriosis. I am on birth control because I use to get really bad periods and now I do not get my period at all because of the type of birth control that I am on. My mom seems to think that it has something to do with not getting my period that I am getting these attacks since they seem to come once a month. I have read that IBS symptoms are the same as endometriosis, so we will see. However I am so scared of the gyno because even having a regular exam is extremely painful for me, so to ask her to look into endo or other causes that might be giving me the attacks is petrifying!!!!!!!!
I WILL UPDATE SOON...........UNTIL THEN HOPE EVERYONE FEELS BETTER
FUTURENURSEWITHIBS
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my urges and attacks are maybe two times a week and dont sound half as bad as yours but i struggle to cope myself, so i feel for you having to cope with yours,
ive had the same problem that you say you have , people saying that ibs has nothing to do with the food you eat or your gut just that its 'all in your mind'.
i believe that to an extent your mind does effect it because , i dont know about you but when im nervous or if i worry that im going somehwhere and im panicking thinking 'im gonna have to go and its going to be a nightmare' ill make it soo much worse,
have you tried relaxation techniques ? ( sounds like rubbish but is good to calm you down if your panicking),
by the sounds of it, like me your backwards and forwards to the doctors with no answers ...have they suggested to you what they think might be causing it???
because all i got was youve got ibs , its very common live with it basically ... and ive only just managed to get a nutritionist/dietician appointment after 6 months of asking.
That is until two years ago with things have started to get bad again. First diagnosed with reflux which I had been taking medication for the past year and a half, diagnosed with food allergies by my herbalist and now finally IBS by my doctor. I have found some relief from a colonic I had a few months ago but the pain in my stomach remains, some days better than others.
Good luck with the endo checks etc
Janey