New Ideas

07 February 2012

Posted by Gena

So we need to get our illness recognized as an actual problem so that we can 1) get the help that we need, 2) get more support, 3) have less stress financially, work related, friend/family related and in any other way we have stress.
I have realized I am in a stage of my life where I am growing and maturing and learning new things every day. I also know that I have a voice and I am not afraid to use it and people need to know about IBS, the trauma it causes, the problems we deal with and the help we need from the gov., work, friends, Drs., everything.
The only thing is, I have no idea how to go about it. Do I talk to the mayor, the senate, the president lol. Jesus? lol sorry I just have no idea who to talk to. But I know talking on here helps me think, helps some people with their problems, you help me with mine and things get done.
Anyway, shoot some ideas my way and hopefully we can make some progress. :]

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2 Comments On This Entry

Post in Craigslist in your area that you are looking for IBS sufferes. Tell them you are looking for reclassification of the disease. Right to some GI specialist and tell them as well as ask to put a flyer in there office. Once you get all these people together you must decide wich ones you want to be veiwed most predomently in the public. For example if you think of choosing yourself you will have to many na sayers saying that you are just looking out for yourself, are lazy, and or want an eazy ride. So the people you want to be focused on is diverse but they all must also be suffering quite badly. Now take videos of there life in the worse sufferings. If one of the people is a office or production worker ask them to set up a web cam at there computer. Then to hit record every time they go to the restroom. If someone is type C they get lethargic, gain weight, bloat, and become nauseaus so you must show these things. So once you have all the data gathered you then need to find some doctors to back you on the condition classifications. Then you need to submit to the social security administration and to american's with dissabillities.

If you are in a desperate situation in life you can contact someone from the office of americans with dissabilities. If they think your condition is severe enough they can push through to the system for reclasification.

sick2much, 07 February 2012 - 07:34 AM

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That sounds great. I think I will talk to the dr fist since I am going to see them soon so they can tell me what to write in the post but I appreciate your help. I hope something good comes from this

Gena, 08 February 2012 - 09:54 PM