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Hi just wanted to right a bit about me and my Situation

Posted by fantasywriter24 , 17 January 2012 · 97 views

So hi. Im Madi and am 15 years old and the last 4 months has been like living in purgatory. In August of 2011, i was diagnosed with Hyperthyriodism/Graves Disease. Only a month later,i began to develop very painful stomach pain making me feel very sick. i missed countless numbers of school days and only after a trip to the hospital(in which i had a CT scan, and multiple other tests), did my pediatrician refer me to a GI Doc. After my first appointment,she believed i had ibs and acid reflux(which was being taken care of by the acid medication omephrazole that my pediatrician and prescribed). JUst to make sure though, she had me do a stool test, which had come back slightly elevated. After this time she gave me a list of things to cut out of my diet to help elevate symptoms and originally they did. NEvertheless, as a she decided it was best to have an upper endoscopy and colonoscopy done About two weeks before my colonoscopy and endoscopy(around christmas time) my symptoms began to take a turn for the worse. I began to have emense cramping and bloating/constipation periods followed by days of liquid diahrea. The pain was intense and i felt the worst i had ever felt in my life. I couldnt eat because all food would do was make me feel more sick. MY mom called my docter who said thet all they could do was have me try to wait it out untill the colonoscpy/endoscopy. You can imagine i wasnt too thrilled about that.Not to mention as time progressed i began to become more paranoid and anxious. I began to be afraid to be away from a bathroom for to long and refused to take the bus/get on a plane when i would be alone having to deal with my pain by myself. Finally the day of the tests came. All went well,except for the fact that apparently had a VERY spastic colon and it took her 15 minutes to get the tube in, adn everything looked great until they reached my stomach.Once their they noticed red lumps of iritated liningand took some biobsy samples to c what was causing it. About a week later the biopsys came back normal and they attributed the irritation to the Omephrazole(acid reflux meds) i was taking. they suspected thet it was causeing my stomach more harm than help and desided to start weaning me off of it. since that started my reflux has been slowly comping back, and my stomach is still killing me constantly and im not quite sure what to do. plus ive been having this pain in my right side under my ribs which they are begining to believe is caused by my gallbladder(tests to come for that). All of this on top of my school life and social life is causing me major stress. i am now afraid to be alone for a long period of time and also have begun to fear being away from a bathroom for to long. Its begining to mess with my sanity. MY dad who lives in a different state, hasnt got to see me as much because i refuse to get on a plane alone. im just afraid of having a major stomach attack in the air without haveing any help to calm me down or be there when im in pain. Im always anxious and afraid and im just plain sick of it.

sick2much

Jan 18 2012 08:22 PM

Hey fantasy, I am so sorry you are so young and having to deal with the same symptoms as me hun. Do they have you on something to control the anxiety caused by the Graves; that alone can increase stomach problems. Do you have the Grave's under control yet? Ya, the doctors with through omezaprole at everybody with IBS hoping that it works on some, probably to get a kick back. Don't freak out yet from the pain under your right rib, it could be just simple trapped gas, wait for the test to come back. Grab a light weight, put it over your head and lean to the oposite side of where the pain is, use your right lateral abdominals to straighten you up. Now switch sides, do this for a few days and see if it help. I also have read many of articles saying that water and lemon juice can help flush galstones, could be just a wives tale. All of this is just my own experience, and I don't wish this suffering on my worse enemy let alone somebody so young.

Hun, I have these attacks that will make me loose conciousness unless I find out how to raise my blood pressure within a few seconds. I use to be as scared as can be, am I going to die? When you get your attacks, tell yourself, I am stronger than this, I will not let this beat me, I am the one in control of my body not this disease. Now at night I want you to shut your eyes, focus on your breathing till your relaxed. Now focus, as hard as you can, not on the pain, not on the sickness, but focus on where it coming from. Where is the gurgling at? The pain moves from here to there. When it is here this happens. Now try to remember, when you wake up the next morning google large intestine and then small intestine. Now go to were it says pictures and click on it. The more you understand of what is happening to you the better you will feel.

Screw what other people at school and around you say. All you have to be is the best you that you can be. Once you do that then hold your head high and proud.

Goodluck kiddo

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fantasywriter24

Jan 18 2012 11:07 PM

Currently they have me on Methimazole for my Thyriod which is mostley under control as they have started to wean me off. Nothing for anxiety because they think that it is "just a phase" or could be simply worked out through a therepist. And thanks

. it helps to know im not alone cause sometimes i feel as if im screaming in a room full of people with no one listening.

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sick2much

Jan 19 2012 03:05 PM

I use to be a gym rat, and I can tell ya first hand, if you can work out really hard your mind will make your relax. It also releifs endorphins that make you feel good and can help eliminate pain. It also causes your digestive tract to work better. Try eating similiar things at similiar times everyday. ALL of us longtime sufferes are listening. Most of us on this board are looking for answers, some are looking for a quick fix, but all of us are looking for a cure. Keep your chin up and see if the above helps.

Have a great day youngen

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Brittany123

Apr 16 2012 02:51 PM

Hey i was just reading a couple of peoples blog and your story really reminded me of myself. I am 13 and am in 7th grade. i just like you have missed soooooooo many days of school, and trying to make up everything must be even harder as you get older. Well anyway i had the same tests done and everything came back normal. But one medicine tat works for me is Amitiza, so i dont know if your on it but i would give it a try.