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Today I got some other blood tests results. My doctor told me last week that I either had gluten allergy or Chron's. So, the results are that I am not allergic to gluten. Which means that the only remaining disease that fits my symptoms is Chron's. As you may know, Chron's is not very pleasant but medication can help unlike IBS. However, I've lost a lot of weight recently, which seems to please my boyfriend. People don't think that I look sick at all. But I am sick. I don't know how it works for you but people around me do not seems to realize that I don't feel like partying at all. But like I always said, I should not complain, it could be worse.
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MyOwnSavior
02 April 2009 - 09:02 PM
Yukie,
I'm surprised that your doctor was not able to make a definite diagnosis on whether or not you have Crohn's disease. It seems as if he's saying "well it's either this or that, and it's not this, so it must be that". That doesn't seem... right to me for some reason. I keep forgetting if you've had a colonscopy or not; but if you have I would imagine your doctor should have been able to make a diagnosis at that point. I remember when I had a colonscopy my doctor immediately ruled out Crohn's disease afterwards. Evidently there was no inflammation in my bowel; which is what is indicative of Crohn's...
Anyway I know how you feel, it's so weird to be "different" from everyone else, especially because of a problem in the bowel area. I honestly don't know what to do as far as partying is concerned; I mean I just never did it. With a disease like IBS or Crohn's, I don't know what to say either if someone would feel like partying... personally I would think it'd cause way too much pain to engage in drinking, but if someone really needed to drink in order to fit in then I wouldn't know what to say... I'm not saying you need to do that, but I know you probably want to go out with friends and do all the things your friends do; not just sit home alone by yourself... hopefully once you get put on medication or other treatments you'll feel a lot better though.
I'm surprised that your doctor was not able to make a definite diagnosis on whether or not you have Crohn's disease. It seems as if he's saying "well it's either this or that, and it's not this, so it must be that". That doesn't seem... right to me for some reason. I keep forgetting if you've had a colonscopy or not; but if you have I would imagine your doctor should have been able to make a diagnosis at that point. I remember when I had a colonscopy my doctor immediately ruled out Crohn's disease afterwards. Evidently there was no inflammation in my bowel; which is what is indicative of Crohn's...
Anyway I know how you feel, it's so weird to be "different" from everyone else, especially because of a problem in the bowel area. I honestly don't know what to do as far as partying is concerned; I mean I just never did it. With a disease like IBS or Crohn's, I don't know what to say either if someone would feel like partying... personally I would think it'd cause way too much pain to engage in drinking, but if someone really needed to drink in order to fit in then I wouldn't know what to say... I'm not saying you need to do that, but I know you probably want to go out with friends and do all the things your friends do; not just sit home alone by yourself... hopefully once you get put on medication or other treatments you'll feel a lot better though.
Yukie
03 April 2009 - 06:32 AM
Hello you,
so here's the thing. My doctor diagnosed me with IBS but since none of the medecine helped me (milf of magnesia, beano, prevacid etc) and that I lost a lot of weight in a very short period not to mention the radical lack of B12 she thought it might be gluten or Crohn's. I'm not allergic to gluten so she gave me B12 supplement because I was feel very weak and she recommended a GE appointment. I'll go see him next week to schedule some internal tests at the hospital where he works. As for the colonoscopy, I don't know if he'll do that because my aches are mainly in the small intestine and it seems that colonoscopy only reaches the big one.
As for partying, it's just that I don't feel very social since a couple of months. My friends say that I don't have to drink ( I like to drink fruity drinks from times to times ) to be there but you know, loud music, crappy food, booze..it's just not my thing anymore. I'd rather stay home and watch movies. I can't wait to be treated so that I can get my life back. By the way, how are you :)
so here's the thing. My doctor diagnosed me with IBS but since none of the medecine helped me (milf of magnesia, beano, prevacid etc) and that I lost a lot of weight in a very short period not to mention the radical lack of B12 she thought it might be gluten or Crohn's. I'm not allergic to gluten so she gave me B12 supplement because I was feel very weak and she recommended a GE appointment. I'll go see him next week to schedule some internal tests at the hospital where he works. As for the colonoscopy, I don't know if he'll do that because my aches are mainly in the small intestine and it seems that colonoscopy only reaches the big one.
As for partying, it's just that I don't feel very social since a couple of months. My friends say that I don't have to drink ( I like to drink fruity drinks from times to times ) to be there but you know, loud music, crappy food, booze..it's just not my thing anymore. I'd rather stay home and watch movies. I can't wait to be treated so that I can get my life back. By the way, how are you :)
MyOwnSavior
03 April 2009 - 08:58 AM
Yukie,
Ah, I see. I guess I was just a little bit worried because I had lost a ton of weight too; had tried all types of products (as you mention, beano, prevacid, and in my case all sorts of dietary supplements; including some sort of charcoal thing for gas relief - which was my biggest problem with IBS - well that and cramping, until I started my most recent medication). That's strange about the small intesting though... I didn't know that you could really tell the difference (I say that because I thought my pains were coming from my stomach when in fact they were coming from my large intestine). I think they can do something called a "small bowel follow through"; though, to check pains in the small intestine...
It's nice that your friends are at least supportive. But I know how you feel; I think IBS (or, perhaps, Crohn's or any other type of chronic digestive ailment) can really change how you feel about things in life, or maybe in some cases even life itself. I don't know, but hopefully you do find something that can help you enjoy life again. No one deserves to have to live like we do...
Well, I'm the usual. :) The biggest thing with me is being burned out from all the work I've had to do and the semester still has a month to go :( I sit down to do work and it's like I just can't focus at all... ugh. Still this is my last semester, Thank God!
Ah, I see. I guess I was just a little bit worried because I had lost a ton of weight too; had tried all types of products (as you mention, beano, prevacid, and in my case all sorts of dietary supplements; including some sort of charcoal thing for gas relief - which was my biggest problem with IBS - well that and cramping, until I started my most recent medication). That's strange about the small intesting though... I didn't know that you could really tell the difference (I say that because I thought my pains were coming from my stomach when in fact they were coming from my large intestine). I think they can do something called a "small bowel follow through"; though, to check pains in the small intestine...
It's nice that your friends are at least supportive. But I know how you feel; I think IBS (or, perhaps, Crohn's or any other type of chronic digestive ailment) can really change how you feel about things in life, or maybe in some cases even life itself. I don't know, but hopefully you do find something that can help you enjoy life again. No one deserves to have to live like we do...
Well, I'm the usual. :) The biggest thing with me is being burned out from all the work I've had to do and the semester still has a month to go :( I sit down to do work and it's like I just can't focus at all... ugh. Still this is my last semester, Thank God!
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