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The History of my Post Infectious IBS

Posted by Yaretzij, Sep 25 2009, 01:57 PM

I spent Christmas of 2008 in Mexico. At my return, in January 2009, I had diarrhea. I ignored it and let it run its course for 4 days. Everything look okf for me. But as the days passed by I started to get this terrible stomach, like stabbing, pain in the center of my belly. At that point, I went to the doctor, of course, no appointments are available and have to be seen by the nurse. She very quickly said I had a virus and it will go away in 10 days. I went back home and ignored the symptoms and continue eating anything I wanted and keep doing Pilates and Yoga. More days passed by and started to have nausea, anxiety attacks,chills, urge to defecate with rapid heart beat in the middle of the night. That scared me as I have never felt that before in my life. I went to the doctor, she told me I had giardia and prescribed Flagyl 500 mg 3 times a day for 10 days. She never tested for Giardia, but I used to believe anything she said.
Well, after I finished flagyl, my life changed completely. I continued to have this sympthoms:
Increased Bowel Movements
Loss appetite
Constipation alternated with diarrhea and amount of bowel movements
Stomach sounds
Dizziness
Nausea
Every Night at 2:00 am I had a BM and an hr later another one
After the BM huge stomach pain in the abdominal area

There was no way to get seen by my doctor. She was working part time so went to see a GI, who had performed a colonscopy for me in 2004 and didn't killed me.

He run:
Blood work
CT Scan
Ultrasound
stool test to look for giardia still lingering

Everything came back negative. He directly said I don't know, see you in 6 weeks. I was astonished!. I was like do I still have to pay you? ohmy.gif

Needless to say I looked for another doctor. so I used my retirement savings to go to the Mayo Clinic, where the best doctors in the world are found (I found the exception to the rule biggrin.gif )
This guy came up with the Post Infectious - IBS diagnostic. I was like are you kidding me?. The I don't know diagnostic and the exclusion diagnostic was a big shock for me. He gave me Florastor and the book with diet guidelines. I felt good for about 2 months, but lost about 8 pounds with the change on diet. It wasn't a bad thing at that time since I was working on lossing some weight.

The chills dissapear end of April beginning of May.
Most of the symptoms were controlled with diet, except for the gas part that even eating carrots with potatoes causes discomfort. Sometimes I feel my stomach swallen. I kept researching.

I started to read about IBS and figured if it is a exclusion, why I didn't have an Upper endoscopy and a coloscopy done?. so I went to another GI, this time covered by my insurance.

The new GI does the endoscopy and says I have chronic gastritis and H. Pylori with No Ulcer.

To my surprise after that I have the upper stomach burning and burping which I never experienced before the Endoscopy.
He gave me antacids for 10 days and once he got the H. Pylori from the biopsy, he gave me a treatment for it. I took it, but the bacteria is still there.
He didn't want to do a colonscopy because I had one done in 2004 clean. I beg him to do one becasue everwhere you read it says it has to be done. I told him for my peace of mind to do one. He told me he was going to repeat the endoscopy and if nothing is found he was going to refer me to a phsychiatric becasue I don not eat becasue I have mental problems. He got lucky I am not a psycho. That stament deserved a smack as a minimum. Here I was trying to look for help to have a regular diet and get my body back and there he was just assuming I am anxious and afraid to eat.
I was worried about the weight loss. He told me I do not eat enough calories and have ice cream for dinner. I was like really and what about the gas that the ice cream causes?. He is like everbody passes gas. I had it in the past, but NOT in the middle of the night waking me up to get them out and have palpitations to do so.

I fired this doctor as well. His contribution to my case was to add fiber to control diarrhea. That works well depending on what I eat. Too much fiber gives me more BM>

I went back to look for the wonderful world class GI doctor at the Mayo. I got this pseudo doctor who just told me I didn't even know I had gastritis before , all my issues are from IBS, just take immodium for the diarrhea and that's it. I read a lot of people saying that the withdrawal from it is really hard, so I am not about to get a brand new issue for free.

In the mid time I learned Lactobacillos was the main thing all this first class doctors have failed to suggest to do after all those antibiotics treatments.

So Now I am on the third GI. This one believes all my issues are from Giardia and that will resolved from 6 to 9 months. He thinks I shouldn't have the bacteria anymore, that I tested too soon before with a stool not been so reliable. He wants me to perform the urea breath test and I am in the process of getting an appointment to do so.
So far I have lost 42 pounds from January to Sept.

The funny thing is this one is leaving my city in 2 months. So I waited for 2 months for a doctor who is planning to leave.


Shall I look for a new one?...



Comments

  DevenV, Oct 17 2009, 12:06 AM

IBS may lead really lead to infection, just like Habba syndrome. Has anyone ever heard of Habba Syndrome? (We all Habba syndrome at one time or another – Ha! Forgive the cheap pun.) Habba Syndrome was first described by Dr. Saad F. Habba, as a condition in which chronic diarrhea is associated with abnormal activity and excess bile being released by the gall bladder. Dr. Habba (who checks out – he's got his bona fides in order) first described and attached his name to the syndrome (which was published) in the early 2000s. It is different from Irritable Bowel Syndrome, as it doesn't present with abdominal pain and generally improves with fasting. Treatment is usually a course of bile acid binding agent therapy, and some of them are generic – so it might not run you payday loans to treat it, if you get diagnosed. Click here http://personalmoneystore.com/Payday-Loans/ for more details.

  tlyle421, Oct 20 2009, 06:36 PM

Hi I have Crohn's Disease. When I first went to a Gastroenterologist and a colonoscopy was done I was told I had H. Pylori Infection in my stomach. After Antibiotics the infection went away but from what she seen in colonoscopy and special blood test to test me for Crohns that has to be sent to California and 2 week wait the results came back both of the test were positive for Crohn's Disease. I have severe diarrhea. I go to bathroom about 30 times a day, when i eat i have stomach cramps and then my belly will bloat to the point I look 8 months pregnant, then few hours later it will go back down. i have tried several medicines but nothing has helped control myCrohn's. My original dr. retired so I had to find another Gastro dr. the one i found i DID NOT like at all. so i seen him one time and didn't go back. I didn't see a gastroenterologist for 2 yrs. Went to another new one today and sorry 2 say don't care for him either. He was very rude and when I was trying to explain my bloating problem after I eat, he just walked out of the room and was done. My weight goes from one extreme to another. Last year I weighte 98 lbs. now I was 148 he just told me "it happens"..... He put me on a medicine call Welcol and when I searched this med. It is to lower cholesterol!!!!!!!!!!!! My cholesterol is fine!!! I know your frustration I have alot of it myself!!!!!!!

  tlyle421, Oct 20 2009, 06:36 PM

Hi I have Crohn's Disease. When I first went to a Gastroenterologist and a colonoscopy was done I was told I had H. Pylori Infection in my stomach. After Antibiotics the infection went away but from what she seen in colonoscopy and special blood test to test me for Crohns that has to be sent to California and 2 week wait the results came back both of the test were positive for Crohn's Disease. I have severe diarrhea. I go to bathroom about 30 times a day, when i eat i have stomach cramps and then my belly will bloat to the point I look 8 months pregnant, then few hours later it will go back down. i have tried several medicines but nothing has helped control myCrohn's. My original dr. retired so I had to find another Gastro dr. the one i found i DID NOT like at all. so i seen him one time and didn't go back. I didn't see a gastroenterologist for 2 yrs. Went to another new one today and sorry 2 say don't care for him either. He was very rude and when I was trying to explain my bloating problem after I eat, he just walked out of the room and was done. My weight goes from one extreme to another. Last year I weighte 98 lbs. now I was 148 he just told me "it happens"..... He put me on a medicine call Welcol and when I searched this med. It is to lower cholesterol!!!!!!!!!!!! My cholesterol is fine!!! I know your frustration I have alot of it myself!!!!!!!

  Yaretzij, Oct 22 2009, 11:45 AM

I have heard that acupuncture does really well for Chron's. HAve you tried that?. I am starting on my 3rd session. It really helps

 
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