SIBO treatment with Xifaxan
Posted 16 March 2012 - 12:24 PM
Posted 18 March 2012 - 02:05 AM
Posted 18 March 2012 - 01:09 PM
I have been recently treated for SIBO also. The first gastro doc I went to, after testing postiive on the breath test, put me on 550mg twice a day of xifaxan. Symptoms came back in about 2 weeks - not as bad, but nonetheless, returned. Went to another gastro doctor and he feels you need to be treated for 14 days on 550mg xifaxan 3/day. Did that course and felt much better - followed by probiotic VSL#3 twice daily and I gave up sugar and refined carbs. Feeling much better. Making more dietary changes as I continue on with the nutritionist in his office. MaryAnn
Hi,I just picked up my Rx of Xifaxan. I had the breath test last week after having IBS symptoms for 3 years that worsened over time. My colonoscopy revealed diverticula. Last year I had a suspected diverticulitis attack (maybe mild) and an anal fissure. I've tried all the OTC remedies I heard of for IBS: antispasmodics, peppermint oil, various fiber supplements, ginger, probiotics, daily yogurt intake.I had half of the Rx filled after sadly learning that the standard treatment of 1200 mg/day would cost twice what I had researched it to be online($200).Some things that I am wondering as I hold the first pill:- I took metronidazole last year for possible diverticulitis. Does the fact that it didn't cure my SIBO/IBS, lower the possibility that Xiffy will do the trick?- What have people found is the best way to supplement the diet when taking this, in order to insure proper gut bacteria? Probiotics? Yogurt? I'm nervous that these items may bring back the bacteria in the small intestine, since I've eaten yogurt daily for several months and it seems to have had no effect in the long term, maybe even a slight worsening. I'm nervous that I may have small bowel diverticula.- Are there any special approaches you'd recommend for my situation? Pi-IBS-C, anal fissure, diverticulosis. SOmetimes I think my C only exists because of diverticula-related cramps, otherwise I might have D.- Is the full treatment duration of 1200 mg for 10 days really needed? Isn't 7 days of antibiotic plenty?OK, here we go...
Posted 18 March 2012 - 01:18 PM
I think making some dietary changes is key in getting rid of SIBO or keeping it under control since taking antibiotics forever is not advisable. I am thankful my gastro doctor has a nutritionist in his office that works along side him. SUGAR was the first thing they told me to stop - and not replace with artificial sugars either because they are even worse for you. Start reading labels - you'd be amazed how much sugar is in things you would never think of. Try not to eat processed foods - fruits are fine as long as they agree with you - I keep my fruits to 2 servings a day. I am also slowly cutting out refined carbs (white flour, white rice, white anything) - eating only pumpernickle or rye bread a few times a week and make sure you read those labels too. You would not believe how much WHITE flour are in things like WHOLE WHEAT BREAD and how much HIGH FRUCTOSE CORN SYRUP is in breads, crackers, etc. Reading labels are key!!! I think between my diet changes and the probiotic I am keeping things under control for the moment. I know the SIBO is still probably lurking in my gut but I feel about 80% better now than I have in 2 years. MaryAnn
I'd like to chime in here.I'm on my second round of xifaxan in three months. I was diagnosed w/SIBO in early March, took the antibiotic, but the problem never fully resolved itself. The symptoms (gas & bloating) resurfaced in early June. I'm back on the antibiotic (day 4 now). The only time I feel human/normal is when I'm on the medication. It makes me feel better knowing the diagnosis is most likely correct, but I'm worried the problem is going to return again.Has anyone had any success getting rid of SIBO permanently? If so, what worked (diet, meds, etc...)?Thanks.
Posted 11 May 2012 - 01:18 AM
I'm so glad I found this thread and hope it's the right place to put this (or that it might bump up to the top for anyone who might have more experience with this). Let me start at the beginning. Everything started with what seemed like an average cold. After about 3 weeks, I went to my primary doctor who was worried it might have turned into bronchitis (I have a history of this). He gave me a prescription for a Z-Pack which the pharmacy filled incorrectly (they gave me a much lower dose than was needed). As a result, my symptoms did not get better and when I returned, I had a sinus infection which was subsequently treated with a course of Avelox. My sinuses got better, but the medicine made me feel extremely nauseated. I had dinner one night with a drink and a half to celebrate my SIL's official return back to normal health after a very rough run with IBD. The next thing I know, I'm beyond nauseated and vomiting. I started to get stomach cramps, severe bloating, and nausea that didn't go away. I was also still running a fever from the upper respiratory problems. I went back into my doctor who didn't have much advice. He suggested that I see an ENT since that's where my symptoms started and take Tylenol for the fever and Dramamine for the nausea.I started to lose my appetite. Two separate ENT's put me on medication for silent reflux/GERD which never felt right to me. My stomach problems started to get worse and the pain and cramping low so I decided to try and see my OB/GYN. She found a bacterial infection which was treated with an antibiotic cream. She ran a sonogram and said that other than a small cyst on my ovary, everything seemed normal. When I followed up with her, the bacterial infection was gone, but it had been replaced with GI problems that were steadily getting worse.I started to realize the nausea was more appropriately the result of severe bloating. I felt like I was 7 months pregnant, and I started to track it. Anytime I ate anything (and sometimes without eating at all), my stomach would be distended 6". I couldn't fit into any of my pants and the pressure from even an elastic waistband was painful (I've seriously considered buying maternity pants). The bloating takes away my appetite because I feel so uncomfortable that the last thing I want to do is eat. My organs feel pushed together and at times, it can be hard to breathe when it gets really bad. Early on, I started developing stretch marks on my belly button which started bleeding.I have also had a low grade fever (100 and below although my normal body temp is about 96.8--yes, the reverse of normal)especially with any type of activity (i.e. doing the dishes, laundry, etc.--luckily, I work from home for at least the next couple of months). My bowel movements haven't been normal since the symptoms started (C dominant, although a fiber supplement helps a little). Other symptoms include chronic fatigue, low immunity (and a never-ending barrage of colds any time any one else gets sick). And through the past 6 months, I've lost about 15 pounds (which actually brings my weight closer to normal).When I first saw my GI doctor, he ran several tests--CAT scan, colonoscopy, etc. and everything came back negative except blood work which showed signs of an infection, but no clear indicators on what. He finally decided to try a course of Xifaxan and 3 days in, I was finally symptom free. Everything disappeared. I finished the course of antibiotics and it came back like clock work. After a second attempt at treatment, he ordered an at home breath test. When he called me with the lab results, he told me that I tested positive for SIBO. But here's my biggest question...I know from the research I've done that SIBO tends to reoccur. However, has anyone else had almost constant symptoms when not on antibiotics? The antibiotics take it away, but symptoms return within 24-48 hours after I stop taking them. The only thing that worked for longer than that was a combined course of Flagyl and Augmentin which lasted about 2 weeks before the symptoms came back. I'm getting worried that the only thing that seems to take away my symptoms is an almost constant (daily) regiment of antibiotics and am afraid that this might eventually make things worse. I've now been on 3 or 4 courses of Xifaxan separated by 1 course of Flagyl and Augmentin in the past 4 months.And my symptoms keep getting worse. I just finished the latest course of Xifaxan and my symptoms are back, 24 hours later. In addition, it seems that the bacterial levels are so out of control that I've been dealing with dyshidrotic eczema for the first time ever. It's on my hands and feet and has come and gone depending on the severity of my other symptoms. I finally went to see a dermatologist when it started spreading and was becoming unbearable. The second topical cream he gave me (a corticosteroid) seems to finally be helping with this, but I can't help feeling like this is a sign the SIBO is completely out of control.I have not done just the antibiotic therapy. I've also tried to change my diet--going through periods of strict modification in which I removed all sugar/carbsand trying a middle-ground that is easier to manage with no sugar/limited carbs. I've tried gluten free, wheat free, etc. I know that yeast is one of my worst trigger foods and that wheat can be difficult too (I can usually handle white bread, not wheat if I let myself be flexible with my diet--that's my one treat). I've also tried probiotics, yogurt, apple cider vinegar, peppermint, ginger, and fennel supplements, an increase in vitamins, fiber supplements, etc. But I guess at this point, I'm not sure where to go from here. Do I continue taking antibiotics to treat the symptoms, but are clearly not addressing the problem? Do I try to find a new doctor who actually has experience treating SIBO (my current doctor does not but he was the only one to not brush off my condition as being too stressed/anxious)? Is there something else that I need to do/can do that will help? Has anyone else been here...or have any ideas? Please help...
Posted 11 May 2012 - 01:26 AM
This message is for the Canadian I truly hope the following information helps you since you can't get the right antibiotics for the SIBO condition in Canada. I choose natural remedies, for SIBO becasue I'm] super sensitive so this is what the my GI Nautropathic doctor prescribed four weeks of the following: Garlic (Allicin) Berberine,Oregano oil and Peppermint . Here are the doses: You take 3 Allicin garlic tablets, 3 Berberine tablets, 3 times a day plus. take 1 oregano tablet ( this is the brand I take Biotics A.D.P) and 1 Enteric coated peppermint tablet ( The brand I take is Mentharil) takt three times a day the coating lets capsules pass through the stomach intact and dissolve in the intestines. Peppermint have been clinically proven to help IBS]. When I was at the Naturopathic clinic I just bought the stuff there becasue it seems a couple dollar cheaper than at the store. I also take nicinamide( B3),and Organic virgin coconut oil twice aday plus please take tons of probiotics alone on any empty stomcah I do that three times aday . This will ward off sinus infection, skin rash etc... I think adding the peppermint tablet is what really did it trick! I also Plus we drink alkalized water I also drink water with 1/2 Tsp baking soda three times a day . I did this for one month. It helped tremendously all my stomach symptoms subsided. Plus I'm on a dairy free, sugar free and gluten free diet.
I'm taking metronidazole 500mg three times a day for 7 days to treat possible SIBO. I didn't get the test, because I live in Canada, family doctors can't order these tests here. in fact, most family docs never even heard of it here...so I convinced my doc to do an empirical...I'm on day 3, so far the first two days I felt alot better and the symptoms are not 100% gone but I'd say improved by at least 70%, my bowel movements were never formed like this though it's still not the normal perfect type, but I'm only on day 3...the problem now is that I figure this probably means I possibly have SIBO but it's ganna return some time in the short future(cuz I havent treated it with any meds in the past 4 years)...and when they return I'm afraid the metronidazole won't be effective as this time. Rifiximan isn't even available here in canada...so the outlook is very bleak...anyone had experiences of treating SIBO with Metronidazole?
Posted 28 November 2012 - 11:53 PM
Is Xifan or any other antibiotic better for treating this? I take Culturelle probiotic now, but is there any better one to take to combat the horrible symptoms?
Posted 07 December 2012 - 10:08 AM
Posted 08 December 2012 - 11:34 PM
I just recently bought Align for probiotic use with SIBO. Do you guys follow the "normal" outline for probiotic use, or do you take double the amount considering your SIBO diagnosis? I'm just wondering if we need more of the bacterium in our system than "normal" people do. Also, has anyone noticed rectal bleeding with their symptoms? Maybe TMI, but I've noticed that I bleed rectally when my symptoms first start. Is this just me? Am I weird? Anyone else?
Actually I've have had rectal bleeding and horrendous itching. Of course, while I am taking the metronidazole, I have very, very little if any.
Have you noticed that align keeps you normal? I've been on Culturelle for a few years and it's really strengthened my immune system, I very rarely get sick, plus I always evacuate my bowels normally. But it does little to combat the SIBO sysmptoms.