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Any body else experience weight loss from their IBS


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#21 claire_louise

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Posted 04 June 2010 - 02:26 PM

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I'm really struggling with this. I've always been underweight due to a fast metabolism (yes, I'm one of those annoying people who genuinely is naturally thin) but since I've been ill I've gone from 7 stone to 6 stone and I absolutely hate it. I'm not eating significantly less than I used to - it's much harder to eat right when I'm feeling awful all the time but I try my best, so I don't know what else to do. My gp is aware of it and weighs me every time I go in, but as my weight loss has been very gradual he never seems unduly concerned. He's said that he wants to try to build me up a bit 'when I feel better' - it's been two years since I started losing weight and four since I became ill, so goodness knows when that will be.


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#22 Genie75

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Posted 18 June 2010 - 10:52 PM

That's interesting about the acupuncture. I was thinking of trying it! I too lose weight from IBS. Instant diet! I believe I'll live longer than everyone else cause I'm not able to eat what most people eat LOL
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#23 Donna123

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Posted 03 September 2010 - 06:22 PM

My IBS is so severe from yeast overgrowth so I can barely eat from severe fullness from gas. Most people don't have this but I do! I am never hungrey and always constipated so I can hardly eat. What a nightmare! I'm underweight so I don't even get my period anymore which is a mixed blessing since my IBS cramps, gas,bloating,headaches,etc. are 10 times worse when I used to have my period. Seriously.

#24 Autosaver

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Posted 12 September 2010 - 09:59 PM

If your weight is going away when you eat the exact same amount that you eat when you are gaining/maintaining weight that is NOT an IBS symptom.Now a lot of people eat less when their IBS is acting up and that is normal weight loss.

Actually, you may be wrong.I lost several pounds after months of IBS. And the doctor concluded it was water weight. (I had watery D so it does kind of match)I was constantly dehydrated, its better now. But I think its likely IBS could cause some weight loss.

#25 Kathleen M.

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Posted 13 September 2010 - 05:59 AM

Anyone can lose a couple of pounds from water weight changes (diarrhea, sweating, etc.). If it happens to healthy people it can happen to IBSers. Nothing about IBS will cause your weight to never change for any normal reason ever again for the rest of your life. It will go up and down for all the reasons anyone else will have their weight go up and down.However prolonged unexplainable sustained weight loss that doesn't resolve when you start eating the number of calories your body requires to maintain weight or unexplainable weight gain that eating less and moving more doesn't fix are things your doctor should be made aware of and be checked out. Do not assume either is "just" IBS and nothing else.Unexplainable, abnormal weight loss is a signal something else is going on.Again, normal weight loss for any of the myriad of reasons healthy people gain or lose a few pounds will happen to people with IBS, so a few pounds here or there you can explain is not reason to get a lot of medical tests. However if you are consistently losing 5 pounds or more a month every month for months on end and never regain any of it even when you increase the amount you eat to well above what you should need. That is not IBS, that is a sign of other things going on.Now a lot of IBSers change how they eat to prevent symptoms and diet changes are one of the normal reasons healthy people gain or lose weight. So like I said normal, explainable, weight loss or gain that would happen to any person that didn't have IBS will happen to IBSers (and sometimes the reason for the normal weight loss will be something to do with the IBS, but it will be normal and explainable weight loss--or gain). The "red flag" is when there isn't something that makes sense about the weight loss. Some diseases (from metabolic problems to celiac and inflammatory bowel diseases) make it so you will lose abnormal amounts of weight that cannot be explained by I just don't eat enough, or I'm not carrying around as much water as I usually do.
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#26 Sorbsy

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Posted 14 September 2010 - 03:09 PM

My god, I can really relate to a lot of the experiences here. I've been struggling on and off with anorexia since I was about six years old, and always had random gut pains. I'm currently having the worst bout, and I don't want to eat anything. I've dropped ten pounds in three weeks from not eating. And yet, there are very occasional times with PMS where I will be so ravenous I become despondent, eating continuously for days on end. Honestly, I think I'd rather that than what I'm experiencing now.Eating makes me feel a little ill, but it's mostly that feeling of being averse to the food that gets me before I can even manage to eat. Often I force it, and though I feel somewhat bloated after, I generally feel fine. I'm not averse to eating because it makes me hurt after, it's just...really, really unappealing. But 5'7" and 125-130lbs isn't exactly dangerous weight loss, so I'm not concerned yet. I'm watching it, though.I've been particularly worried since my nerves haven't been terribly jangled lately, at least not more than usual. I'm glad this is a common symptom for people with IBS. All I ever get with reading is that it's a sign of IBD and cancer.
"As a doctor I should be able to tell you what causes diarrhea. However, viewer, it is one of the greatest mysteries in the scientific world." - Dr. Steve Brule

Proud member of The "Mitral Valve Prolapse Dysautonomia" With Dysfunctioning Thyroid club; presently hosting a wonky GI tract, malfunctioning endocrine system, factor V Leiden thrombophilia, and morbid humour.

#27 Autosaver

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Posted 18 September 2010 - 09:20 PM

Anyone can lose a couple of pounds from water weight changes (diarrhea, sweating, etc.). If it happens to healthy people it can happen to IBSers. Nothing about IBS will cause your weight to never change for any normal reason ever again for the rest of your life. It will go up and down for all the reasons anyone else will have their weight go up and down.

..That is the point. Diarreah is an IBS symptom. You can lose weight from it. Normal people can have diarrhea from eating too much fiber/exercise. But it isn't a 24/7 problem. For example, if you throw up every day from a sickness. The sickness is making you lose weight. Yes, throwing up can happen to anybody. But it has a cause in this situation. Leading the weight loss to be from your disease.

#28 Grandmahurts

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Posted 19 September 2010 - 09:25 AM

I too have lost weight since being diagnosed with IBS almost 2 years ago. My stomach hurts before I eat, while I eat and after I eat. I am hungry for nothing - and everything makes my stomach hurt. The doctors tell me that my weight loss is within normal range of gaining/losing 10 pounds per year. I am hoping that at some point my appetite will improve to the point where I actally WANT to eat...even chocolate doesn't appeal to me and you can ask my husband and all my sisters how wierd that is for me!I have been lactose free for 6 months. I haven't had a cup of coffee for over a year (oh how I'd love a cup right now). I went very strictly gluten free for 2 months with no difference noticed. I avoid baked, refried, pinto, garbanzo, kidney and black beans...which makes no difference either. I kept a food diary for 9 months and could find nothing that made any sense as far as what triggered increased or decreased pain. So I pretty much eat when I know I have to and the foods I choose are boring and unappealing. I'm hoping to gain back about 7 pounds soon so that my clothes don't hang on me. I am 5' 7" and currently weigh 117.

#29 EleanorAlden

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Posted 04 September 2011 - 02:32 AM

There is a very important difference between an eating disorder and the symptom of IBS that causes many of us to lose our appetite for food, where nothing sounds good, and our bodies sometimes flat out regect food, this is called medical anorexia and is no more controllable than bowel movement symptoms you can try and overcoming it by forcing your self to eat and drink in whatever small amounts possible but do not confuse it with an eating disorder. if you know you don't have one you don't, and as a fellow sufferer who has lost nearly 40 pounds although i'm still not yet underweight, just thin, eventually having people accuse me of having an eating disorder is one of my biggest fears when dealing with my IBS.

#30 Grandmahurts

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Posted 04 September 2011 - 07:27 AM

There is a very important difference between an eating disorder and the symptom of IBS that causes many of us to lose our appetite for food, where nothing sounds good, and our bodies sometimes flat out regect food, this is called medical anorexia and is no more controllable than bowel movement symptoms you can try and overcoming it by forcing your self to eat and drink in whatever small amounts possible but do not confuse it with an eating disorder. if you know you don't have one you don't, and as a fellow sufferer who has lost nearly 40 pounds although i'm still not yet underweight, just thin, eventually having people accuse me of having an eating disorder is one of my biggest fears when dealing with my IBS.

I have now regained the 17 pounds I lost. My IBS is gone...thanks to the book "Unlearn Your Pain" by Dr. Harold Schubiner.I hope you are feeling better soon.

#31 tanger32au

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Posted 04 September 2011 - 11:55 PM

I also used struggle to keep weight on, now I can't lose it :( I am trying to watch and control what I weat but it is a struggle every day.Paul

#32 takef586

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Posted 17 September 2011 - 06:21 AM

I've had IBS for over two years now. It loks like it originated after a case of food poisoning, which gave me diarrhea for a couple of days. Then the bloating and pain started. I have been through all possible medical exams including colonoscopy, CT scan, etc. They found nothing, so the diagnosis has been IBS. However, I have lost in the process something like 25% of my body weight (21 kilos in the worst moment). The infectuous origin of my problem and the fact that I briefly reacted positively (the pain disappeared) during an antibiotics treatment, points to SIBO being my main problem. I am convinced that most of the body weight loss has been caused by dysbiosis, malabsorbtion and bacteria in the small intestine competing for nutrients. I am on the GAPS and FODMAPS diet now. This has helped the digestion somewhat, and I have gained back 4 kilos, but it is still below a level I would call my normal body weight ( I used to weigh 70-75 kilos most of my life, now I weigh 67).

#33 Dolphin1991

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Posted 28 January 2012 - 01:08 PM

I've got the same problem,I always loved losing weight and once it was even 10 kilo in a month, but I could always stop again so I didnt ever really have an eating disorder. I'm still a bit obsessed with my body image and my weight, but now it all changed a bit.Ive had IBS for about 3 months now, and it got a lot worse a few weeks ago so I got taken to hospital where they diagnosed me (they also said I have an eating disorder but thats just because they get the most money out of the insurance that way, I didnt ever even talk to anyone about food and I ate normally regarding the fact that I was sick all the time) Since then, I lost all my appetite. I can forget about eating completely if Ive got enough other stuff to do. Theres no hunger feeling anymore, I just sometimes feel my stomach pull itself together so I think I should probably eat, and I like the taste of food in my mouth, but I cant ever eat more than a little bit, as I feel sick immediately. Also, I constantly feel nauseous, a bit like having a hangover, but I guess I'm getting used to it.I'm a bit concerned, because I cant eat more and I lose a lot of weight. I'm obviously loving it at the moment, but there is going to be a point where it wont be nice anymore.. it's going way too fast as well and I have no clue how to stop it!xx

#34 BQ

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Posted 28 January 2012 - 11:25 PM

DolphinIBS guts like to be busy.. Not eating and skipping meals IS making things worse for you. And I would rethink whether or not you have an eating disorder.... Seek help if you cannot eat. If you have nausea.. try Ginger tablets or ginger tea. But.. you MUST eat.
Please remember this is a group of folks seeking support on how to live with and manage IBS. THESE ARE ONLY MY OWN THOUGHTS. IF YOU WANT AN EXPERT OPINION, ASK A MEDICAL PROFESSIONAL.

#35 SarahLund

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Posted 29 January 2012 - 01:37 PM

Just read all the above posts. Always good to know. I think it's normal to lose even the tiniest bit of weight, when you do a bm, whether you're an i.b.s sufferer or not. It has the same effect as a gastric band, cos your stomach shrinks after a bm, so you have more room in your stomach. Hence the relieved feeling after you visit the bathroom. My dr always told me "You're still underweight". What did he expext? He knew i had i.b.s-c. Some people, honestly. lol

#36 Kelly H

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Posted 09 February 2012 - 02:42 AM

I'm a 19 year old female, Since November I've lost around 15 to 20 lbs I'm 5'6 I normally weigh about 125-130, now I weigh 107 lbs. I've been trying to eat more and healthier but i keep losing weight. Eating is painful and i have to go to the toilet several times after and intermittently throughout the day. I don't have much of an appetite anymore and become uncomfortably full very quick into a meal. I have a family history of Ulcerative Colitis, IBS, and Colon cancer. My primary care doctor has suspected IBS since I was about 15. When I was 16 I had to have my gallbladder removed due to gallbladder failure. I just started seeing a GI specialist who did bloodwork, a CT scan, a colonoscopy and endoscopy. The bloodwork came back normal, and the CT came back normal except for some ovarian cysts which is fairly normally for a girl my age. We got the results from the endoscopy/colonoscopy today the doctor's secretary told my mom all of the tissue samples taken during the test were benign and officially diagnosed me with IBS. I haven't spoken directly to my doctor since the test and i don't remember anything due to the anesthesia, I'm getting very frustrated with all of this. My doctor wants a follow up visit in 6 weeks, I'm fed up! I'm feeling very uniformed by my doc! I want to feel better and at least speak to the doctor about everything!! My family has been calling me skeletor for weeks and weeks! How am I supposed to last 6 more weeks like this, I'm afraid I'm going to end up in the hospital due to weight loss before I ever see the doctor again!!

#37 holloma

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Posted 10 February 2012 - 07:03 PM

I'm really struggling with this. I've always been underweight due to a fast metabolism (yes, I'm one of those annoying people who genuinely is naturally thin) but since I've been ill I've gone from 7 stone to 6 stone and I absolutely hate it. I'm not eating significantly less than I used to - it's much harder to eat right when I'm feeling awful all the time but I try my best, so I don't know what else to do. My gp is aware of it and weighs me every time I go in, but as my weight loss has been very gradual he never seems unduly concerned. He's said that he wants to try to build me up a bit 'when I feel better' - it's been two years since I started losing weight and four since I became ill, so goodness knows when that will be.

I know it is not funny but you really cracked me up with that last line "He's said that he wants to try to build me up a bit 'when I feel better' - it's been two years since I started losing weight and four since I became ill, so goodness knows when that will be." It's funny because it's true. I know EXACTLY how you feel. I have always been thin too and now that I've lost weight I look terrible. I'm trying my hardest to gain it back though. I have not had it as long as you (I do hope you feel better soon) but I have been able to stop losing weight. I'm just having a problem gaining it. I suppose not losing anymore weight is something to be thankful for though.

#38 holloma

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Posted 10 February 2012 - 07:14 PM

I too have lost weight since being diagnosed with IBS almost 2 years ago. My stomach hurts before I eat, while I eat and after I eat. I am hungry for nothing - and everything makes my stomach hurt. The doctors tell me that my weight loss is within normal range of gaining/losing 10 pounds per year. I am hoping that at some point my appetite will improve to the point where I actally WANT to eat...even chocolate doesn't appeal to me and you can ask my husband and all my sisters how wierd that is for me!I have been lactose free for 6 months. I haven't had a cup of coffee for over a year (oh how I'd love a cup right now). I went very strictly gluten free for 2 months with no difference noticed. I avoid baked, refried, pinto, garbanzo, kidney and black beans...which makes no difference either. I kept a food diary for 9 months and could find nothing that made any sense as far as what triggered increased or decreased pain. So I pretty much eat when I know I have to and the foods I choose are boring and unappealing. I'm hoping to gain back about 7 pounds soon so that my clothes don't hang on me. I am 5' 7" and currently weigh 117.

I am also 5'7 and I was 130 and I am now 122 although at one point I was 120. The doctors are also telling me that I probably have IBS although I am having a colonoscopy next week. I did have a Celiac test done to see if I had gluten intolerance. I also tried going gluten free but the test came back normal. Have you tried going without cheese and fattening foods? I've read that one way to help gain weight is to eat carbs and drink ensure. I think the ensure is what has helped me to gain back those 2lbs. I was also told to drink my calories like instead of always drinking water, I should drink apple juice, ensure, .. that's all I can think of at the moment. Also, they say to eat slowly and eat several small meals a day rather than 3 big meals. And I'm always told stress can affect my IBS.. I'm so tired of hearing that. I'm really not that stressed out but I'm trying everything. I hope these other ideas will help you. So far they seem to have helped me.

#39 indyibsguy

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Posted 24 February 2012 - 02:59 PM

Add me to the list of IBS people who loses weight during one of my long rounds with IBS. I get depressed, or overwhelmed with anxiety during one of my long spells of IBS and simply do not east as much. I do NOT skip meals really, I just donít' eat as much and I do not "graze" between meals. The change in weight can seem drastic, but when I look at how much less I'm eating, I donít seem to worry about that so much, but it does always sit in the back of your mind as anyone who has researched IBS knows, that "weight loss" without trying is a symptom for something else. But from talking to a Gastro doc today, I told him I typically lose weight during one of my IBS spells, and shook his head in understanding and didn't make a big deal about it after I answered his question about recent weight loss.
A non-convinced and frustrated IBS Suffer from the Midwest.

#40 Sapphmonster

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Posted 08 March 2013 - 04:01 AM

I've lost 12kgs due to lack of appetite :( just have no appetite. I second everyone who says they are 'grossed out by food' I can totally relate





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