21 replies to this topic

[tebe]

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Just found that the Nutrition Department, Kings College Hospital London, has three booklets re FODMAPs, and like so many others I want something that's adjusted to my local conditions, eg UK. However, irritatingly they only sell them in batches of 10 and seemingly only to dieticians!! It's three booklets, one on the diet, one with some recipes one how to get back to whatever normal foods you can.

[tigerjayne]

Thats not good, i myself could do with a set of them. I also asked the doctor about a dietician and again was fobbed off. I guess there is no way of getting maybe a downloaded copy then?

[tebe]

I may have a go at ringing them, as I couldn't find an easy email address.

[tigerjayne]

Please let me know how it pans out.

[tebe]

I found an email address and they responded very quickly. They immediately identified the nearest NHS dietician for me (about 1.5 hours away and would need a referral from a GP), which was helpful, but are only selling their books to dieticians as the diet is complex. The latter I do believe, but did respond that it then pushes many of us tinkering using books from elsewhere as best as we can, in desperation. I do hope they will take such thinking aboard!!

[tigerjayne]

Well done, you are so good at this. You have been a great help to me, i can tell you. Would it be possible to have the email address so i can Email them to find out where my nearest NHS dietician is? i will also ask the doctor to refer me also. Thanks hun.x

[tebe]

I have sent you a PM with the details.

[Pippa1260]

Please could you also send me the details? I am currently on the search for a dietitian with an interest in FODMAP in the UK. Do you have any recommendations?I have contacted Kings College London after reading about them online (http://www.kcl.ac.uk...al/fodmaps.html) but am still awaiting a response, so any help you could give me would be much appreciated!Hope you're well and thank you in advance for any help you can give.

[GUTted]

Hiya, I've just discovered this FODMAP diet, (literally 10 minutes ago), so I'm a bit confused as to why you guys are wanting these booklets? I get why you'd want a recipe booklet, but surely all the allowed/not allowed foods are readily available for download? Or is there something extra on these booklets Kings College?I was just on another part of this forum and I saw a thread about it and they've put a downloadable PDF of what's allowed etc... http://www.ibsgroup....-convenience/By the way, a while ago I saw a holistic homeopath that put me on a "no wheat, no sugar, no dairy, no mushrooms, no alcohol" diet aimed a eliminating fermentation in the gut - it stopped me puking all the time but it didn't help much with my IBS. Do you think this FODMAP thing will be much different?

[berribum]

HI read about FODMAP diet some time ago, think there was an ad in paper about guys hosp had some leaflets, i noticed on here and net that they dont give them out to patients just drs and dietitians! Ok i thought i will go dr and get her to refer me to a dietitian, so been today dr looked into and surprise surprise they cant help me them not trained for it! She cant refer me to anywhere else as not allowed to do that as no funding for it! so wat am i to do just follow someone else diet sheet or buy a book on it i suppose, dont seem fair to me xx julie x much love to my fellow sufferers

[BQ]

Here is another source:http://ibs.about.com/od/ibsfood/a/The-FODMAP-Diet.htm

[berribum]

Hi thanx for that i will have a look now. i really want to follow this diet but am finding it hard as i have printed off 2 diet sheets from different sources and say different things. one says i can have sweetcorn and one says i cant! i feel a bit let down by the NHS for not providing the help i need

[berribum]

just had a look at that and that is the one i found last night and printed off. xx

[berribum]

Hi could someone please send me the email add for Kings college please i cant seem to find it. thank you.

[BQ]

Here's another source:http://ibsdietplan.org/the-low-fodmap-diet/This one looks like the same one from About.com:http://www.healthhype.com/nutrition-guide-for-fructose-malabsorption.htmlAnd there is info on this Facebook page as well:http://www.facebook.com/topic.php?uid=109855859033409&topic=186Hope these help

[tigerjayne]

Hi everyone, I was much better on the FODMAPS diet but came off of it as i was bored of the food. I was better for a good couple of months afetr coming off of it and since had all of the tests done for about everything and they all came back clear so dairy, wheat ets does not effect me so they are saying it is clearly just IBS so go away and manage it. In that case is there any point in using the FOBMAPS diet? I will say for the past 2 weeks i havehad crappy symptoms back again.

[BQ]

Well Yes! if you felt better on it! There are plenty of foods to pick from! Try some new recipes maybe???

[tigerjayne]

Well Yes! if you felt better on it! There are plenty of foods to pick from! Try some new recipes maybe???

Thanks, i will have to start it again then.

[berribum]

Hi BQ thanx i have had a look at those but still find them rather contradicting. one says ok to eat peas the other says no peas and there are various other things that are safe on one and not the other, i wish this was easy i just want to do it properly but dont seem to be able to get a full true list anywhere.

[BQ]

Well sometimes one has to engage in trial and error. I am well aware that several lists exist and that they are not the same. You must simply try and see how you do. Or check out a variety of lists and see if there is a majority listing it as to be avoided.... And... if there is a majority listing as to be avoided.... avoid it. If there is a majority listing it as ok.... than try it and see how you do.