[cristhmart]

After two years suffering from these disgusting and devastating symtoms, I finally came accross with a colorectal surgeon who applied a submucosal injection of stabilized nonanimal hyaluronic acid around my anus and brought back my social and professional life again.

Here you are who I am talking about:

http://www.proctocentro.com/

Here you could find some not related surgeries applied by this specialist:



I hope this could help to everyone.

[cristhmart]

simon86, on 13 November 2011 - 01:49 PM, said:

Hi

please could you detail your symptoms before this surgery?

Could you explain more about the surgery (I take it the video is not the surgery you had)...what is the intention?

exactly what change in symptoms did you experience? any complications? healing time etc


Thanks


I'm really happy for you if you have found help through this method, and it is admirable that you share this info with others to try and help them.

I used to have the same symptoms many people have related in this forum: inexplicable intestinal gas releases without my knowledge. Sometimes, I felt a burning sensation around my anus when the bad smell was arousing, but I was not always aware of this sensation. There were no spots in my innerwear.

The procedure is an ambulatory surgery. Just the same procedure used in cosmetics implants. One anoscopy was the single different tool they used. Even the needle they used was coming with the Restylane Perlane kit. The base of this procedure is the technique and, for obvious reasons, I don’t know it in deeply details. I inserted the video because I wanted everyone knows this is a very skilled and prepared professional team who trusted me when I said I was facing a real problem.

In the first hours when I was heading to my house after the procedure I even could smell the Betadine they use to sterilize that area. I think they used a clamp to insert large Betadine embedded strands of gauze sponges inside my rectum and then retired them, but I am not sure. You’ll see, now I realized the leaky gas problem it is not a problem with the gas itself, but a problem with the sealing of our anus in relaxed state. The reason we do not escape solid or liquid material it is because our muscles are essentially in good shape. When the muscles act, the seal is complete, but we cannot go around tightening our anus continuously and we don’t feel the sensation of gases coming from that area just because the usual sensation we feel is generated by compressed air. No sealing, no compression. This is just a theory, the fact is, the hyaluronic acid seal start to work two or three days after the procedure and it is still improving the following two weeks.

I didn’t feel any complications with this procedure. I was just afraid for the three days of treatment with antibiotics because I was a former adherent of the candida myth.

I used to read all these stories many people has related in this site with the hope that someday someone gave us the good news I’m pleased to share today with you. Thanks for your interest and I hope everyone suffering from this problem have the kindness of keeping this post up there in order to share this experience with more people. I also hope this could be a humble expression of gratitude with my doctor.

[dfmj]

Thanks for the post and I'm glad you're better.
But, I'm curious. Do you have symptoms other than the leaky gas? Typically, many seem to suffer from constipation or diarrhea coupled with abdominal pain and have noise emananting from their bowels. Have you had any trouble with the aforementioned symptoms or was it solely leaky gas?
Also, if it's not too much trouble could you describe the path taken to get to surgery?

[cristhmart]

dfmj, on 14 November 2011 - 01:09 PM, said:

Thanks for the post and I'm glad you're better.
But, I'm curious. Do you have symptoms other than the leaky gas? Typically, many seem to suffer from constipation or diarrhea coupled with abdominal pain and have noise emananting from their bowels. Have you had any trouble with the aforementioned symptoms or was it solely leaky gas?
Also, if it's not too much trouble could you describe the path taken to get to surgery?

No pain at all, just small uncomfortable bowel movements (sometimes constipation, sometimes diarrhea I think now were more related with diet changes) and normal bowel noises in the past. In fact, one gastroenterologist suggested a year and half ago the noises were a good signal of healthy bowels. I’m not suggesting all the “IBS cases” are equal to mine, but I’m almost sure every symptom involving LG/FBO is related with anal sealing problems. Off course, I’m just a patient and for me was very difficult to convince any doctor about my symptoms like everyone else. Now I’m here trying to bring good news to everyone but I’m not very willing to pass through the same experience trying to convince other sufferers that I was in fact ill or I am cured yet.

I got my surgery maybe because I happened to visit a colleague and friend of the current surgeon after not finding any help from this one (nor from three other gastroenterologists, nor from one allergologist, nor from one infectious disease specialist, nor from one bacteriologist, nor from one internist). I sent a desperate e-mail to the second coloproctologist complaining about the distrust in my history by any physician, including his colleague/friend and himself and demanding a surgery for one of my two diverticulous found by the first gastroenterologist who assisted me. I think this two people chat between them and then came out with this solution which is the standard solution for wind incontinence.

I am not pretending anyone suffering from LG/FBO came to my country (Venezuela) to undergo surgery with my doctor, but I think it will be easier for anyone to make a better choice knowing this precedence exist and it is real.

[dfmj]

Thanks for the reply
But after reading the post through again I didn't quite get this line:

cristhmart, on 14 November 2011 - 06:08 PM, said:

the hyaluronic acid seal start to work two or three days after the procedure and it is still improving the following two weeks.

Are you 100% cured, or are has your leaky gas improved significantly and it is continuing to do so? Personally, I've had great improvement with a strict FODMAP diet, meditation and exercise. Although even having 5% of my previous symptoms on some days is still cause for concern. And so I'm looking for something that will give me that 100%. I've had zero smell on some days and it I want that feeling everyday. Furthermore, shouldn't a pump work immediately after and not need the following weeks for recovery?
Lastly, what do you mean by " two diverticulous "? A Google search draws a blank...

Your post is greatly appreciated and it's driven me to seek out more doctors who can help. I gave up after the first two gave me nothing more than a fibre supplement and some advice on peppermint tea... I'm going to demand as much medical attention as I can get. But in the end, a couple more months on this diet might rid me of that last 5%.

[cristhmart]

dfmj, on 15 November 2011 - 01:51 PM, said:

Are you 100% cured

Yes, I think so.

dfmj, on 15 November 2011 - 01:51 PM, said:

has your leaky gas improved significantly

Yes, from a worst condition inmediatly after the procedure up to a 100% healthy condition.

dfmj, on 15 November 2011 - 01:51 PM, said:

Although even having 5% of my previous symptoms on some days is still cause for concern.

I know what your talking about, I'm still very disturbed anytime I smell a bad odor. Fortunately, I can quickly relate any extrange source this time. That was not the case in the past.

dfmj, on 15 November 2011 - 01:51 PM, said:

Furthermore, shouldn't a pump work immediately after and not need the following weeks for recovery?

My Dr. ordered four 1cc Perlane kits. The plan was to apply one unit in each quadrant. Unfortunatly, the first unit filled in the whole space. So after the second application, he decided to keep the other two units for a reinforcement within 6 month. I think the problem worsen, but then an internal rearrangement should have occured.

dfmj, on 15 November 2011 - 01:51 PM, said:

Lastly, what do you mean by " two diverticulous "? A Google search draws a blank...

I'm sorry for the mispelling. I meant "diverticulum"

http://digestive.nid...diverticulosis/

dfmj, on 15 November 2011 - 01:51 PM, said:

But in the end, a couple more months on this diet might rid me of that last 5%.

Good luck for you! I already walk down that path 6 continuos months, and I wish to you best results. An additional problem with this condition is that many people try to take advantage selling a myriad of extrange herbs and food complements. They already have a lot of money from me too.

[pengu]

Hey chris. This seems like a very interesting and promising cure, but I have some questions.

Did your leaky gas get worse when you were anxious or in public?

Did your leaky gas get worse depending on what you ate or drank?

Had you tried any other cures before hand?

It's very hard to think that this might be the reason because other people have been cured by other means.

What do you think of all the other people that have the same symptoms but have been cured by probiotics or GSE?

[cristhmart]

pengu, on 15 November 2011 - 07:22 PM, said:

Did your leaky gas get worse when you were anxious or in public?

Yes, typically at work. And being at work, frequently at meetings. I used to work in office and then decided to move to field. I'm an electrical engineer, but problems were always presents. Even working in field, sometimes you need to seat down to write a brief or to meet with some people at office.

pengu, on 15 November 2011 - 07:22 PM, said:

Did your leaky gas get worse depending on what you ate or drank?

Yes, worst of all being dairy products and fatty food. I could notice a continuous bad odour in the last two cases. My explanation now is the following: I was not expelling flatus all the time, but my bowels were open to the atmosphere, just like a siphon of a kitchen sink when got dry and let the vapours escape from the sewer. Sadly, being some food more benign than other, the problem always persisted and was embarrasing for me and for every one around me in any scale.

pengu, on 15 November 2011 - 07:22 PM, said:

Had you tried any other cures before hand?

Candida diet for 6 months and a dramatic loss of weight from 180 to 150 pounds. The general perception I think I gave was being suffering from AIDS. Also some products and food complements, for example: huge quantities of Glutapak R, a combination of Lactobacillus Reuteri and glutamine. Also vitamins (Berocca) and oreganol. Lot of money. I also bought and listened for three month "The IBS Audio Program 100"... and the shreddies underwear. I'm sure I'm forgetting some things.

pengu, on 15 November 2011 - 07:22 PM, said:

It's very hard to think that this might be the reason because other people have been cured by other means.

I don't know how to explain why in this condition for me and for everyone suffering from this ilness it is easier to think there is a gas thin enough to scape through our skin: A "leaky gas". I consider myself a science man and I compared the concept of "leaky gas" with some obsolete theories like the "Phlogiston theory" or the existance of the "luminiferous aether or ether".

pengu, on 15 November 2011 - 07:22 PM, said:

What do you think of all the other people that have the same symptoms but have been cured by probiotics or GSE?

I think they are very lucky, because it is a very unpleasant sensation to have an anoscope inserted in your anus. I almost forgot, I also took grapefruit seed extract. I can put an image of all these things.



Uploaded with ImageShack.us

Also Kegel exercises. A colonoscopy. A Computed Tomography... Hey, you can see part of my bowels (sigmoid colon and rectum) here like they appear when I'm laying down:



Just remembering, I also paid 20 british pounds for one paper described here: http://mensnewsdaily...l-syndrome-ibs/

[pengu]

wow. Thank you for going so in depth.
I'm not going to try it as the first cure because there's a chance that other less extreme treatments might work.
but I am definitely convinced.

If nothing else works I will try this.

[lookingforanswer]

Thank you very much for taking your time to share your cure story. I have the same symptoms as you, tried many herbal remedies, yoga, was diagnosed with IBS (I guess due to lack of other explanation) and still suffer from unexpected, rancid, sewer-like gas. The only remedy that really cut down the episodes was Nullo. It's not a total cure but it works for me about 90% of the time.
In any case, I did notice that the smell activates about 1 hr before bowel movement and since I am constipated quite often, I guess I don't have the urge to go every time and the gas escapes. And yes, in social situations it gets worse since I do get nervous thinking about controlling the smell.
My gastro doctor didn't find anything abnormal with my GI tract or rectum but I think there is a slight muscle weakness present. I suspect because of the straining a lot during bowel movement due to constipation. After I started taking Benefiber, I did notice some improvement as well.

In any case, the procedure you presented was approved, just this year, by FDA in the US. If you search for Solesta gel injections, there are some articles online already. This sounds very promising, non-invasive, and safe. If anyone knows about doctors in Chicago area performing those injections, please share. Thanks.

http://www.fda.gov/N...1/ucm257112.htm

[dfmj]

Thanks for the reply. I was initially sceptical whether your case was comparable to mine. I presumed anxiety wouldn't have exacerbated your condition, but evidently I was wrong. Your symptoms sound very similar to many of those on this board. All of whom have had a similar journey wasting their lives and money...
I'm going to the doctors tomorrow and I'm going to ask about this and get a decent response. But I live in the UK, so we'll have to see.
Again, thanks for contributing this, I feel this may be what everyone on this board has been looking for.

[cristhmart]

lookingforanswer, on 17 November 2011 - 12:29 AM, said:

In any case, the procedure you presented was approved, just this year, by FDA in the US. If you search for Solesta gel injections, there are some articles online already. This sounds very promising, non-invasive, and safe. If anyone knows about doctors in Chicago area performing those injections, please share. Thanks.

http://www.fda.gov/N...1/ucm257112.htm

Hey friend, thank you for the interesting feedback. Maybe this could help you:

http://www.solestain...pcode=IL&page=1

[lookingforanswer]

cristhmart, on 17 November 2011 - 06:27 PM, said:

Hey friend, thank you for the interesting feedback. Maybe this could help you:

http://www.solestain...pcode=IL&page=1

Thanks for that info cristhmart. I also found this instructional video. Very interesting.
http://www.solestain.../hcp/video.aspx

[2muchgas]

I have a doctors appointment and I'll bring this up to him. It's either this or SIBO.

Thank you for telling us about your cure.

[cristhmart]

simon86, on 18 November 2011 - 08:41 AM, said:

I understaned this to mean incontinence of solid or liquid fecal matter. "Leaky gas" I understand to mean incontinence of gas (flatus)...often in small amounts virtually constantly, and excapes without the patient being aware. Doctors would say that there is no such condition as leaky gas, because flatulence is normal, and it is also normal to pass flatus without being aware of it.
...
So, if nothing else is changed apart from this treatment, then the ammount of gas will remain unchanged...the patient will just be able to control it better, perhaps leading to a cessation in flatus escaping without the person being aware. A result of this would be bloating rather than leaky gas.

Simon, I know what your talking about. Yours were my own thoughts too before getting some positive results. Take into account you're talking about hypothesis, I'm talking about a fact. The fact is I feel so great. If you like to talk about theories, think about this: a bowel open to the atmosphere maybe, just maybe, could lead to intestinal flora alteration because they are not suppose to live in the present of hugh oxigen quantities.

Remember, I got two diverticula. I used to comfort myself thinking "leaky gas" was the price I have to pay for not leading to a rupture of one of them. But it is very hard to convince anyone around you that you have a sort of release valve system which puts you on a superior stage of evolution. I can't warrant everybody is going to be happy with the application of this procedure. Even I don't recommend it to anybody. I just think we only could feel better thinking we have the possibility of contributing to the expansion of the current understanding level of this illness relating our own experiencies.

By the way, I think my doctor thought the same way too, because he prescribed Omeprazole for 14 days after the procedure.

[desprate]

hi there chris..
[/quote]
I don't know what exactly is wrong with me even though I have been given a diagnosis, however weak it seems. I have described my symptoms to my doctors and have had many tests done, but still, only one test has shown anything. I had a defecography done and it showed that with repeated straining I had recto-rectal intussusception.

I'm going to Johns Hopkins to get treated and my GI there has told me that he doesn't recommend that I get a surgery done to correct this problem. Also, he's having me get another defecography done to confirm the recto-rectal intuss. diagnosis.

Here are my symptoms:

-I have to strain HARD every time I need to have a bowel movement. This is because, most of the times, my stools are like small pellets, which are hard to pass and a mucus discharge sometimes it is white sometimes yellow and fecal smell after every bowel movement. when I feel an urge to defecate, I have to go PRONTO! I can't hold it in. I consider myself fortunate that I don't have incontinence because at least I can hold back my stools long enough to go to the bathroom.

-Hours before I actually have a bowel movement, I know that I will have one because of this "heavy" feeling I get. During this time, I can strain as hard as I can, but the stool WILL NOT come out and i have to use finger to take it out.

This is when my most distressing symptom manifests: the odor of my stool leaks out. This doesn't happen through flatulence but rather, it works like those car air fresheners- the odor just wafts out of me.

-Urinal dripping. This one started a few months ago. Every time I'm done peeing and put on my boxers, a drop or two leaks out. This is annoying.

-Although it's extremely rare, sometimes when I hold back the stools, I get this shooting/stabbing pain in my anus. It last anywhere from 3-8 seconds.

-Whenever I consume anything with fructose in it (snacks and soda), my anus gapes opens up by itself and a low-pressure gas seeps out. I don't consider this flatulence because this can last for hours on end. I have been diagnosed with fructose malabsorbtion.

-I don't experience satisfaction after a bowel movement. Before all of this started, I can remember that as soon as the last bit of stool left, my anus/the muscles surrounding it would contract immediately, leaving me with a feeling of satisfaction. Now this feeling never occurs.

After passing particularly bulky stools, while wiping, I notice that my anus gapes open and doesn't close up.

-"Something" pushes against my anus whether I'm standing our sitting. It makes sitting on soft surfaces, like couches, extremely uncomfortable. If I sit long enough, I can feel my anus gaping open like it would if someone were to spread apart my buttocks.

If I contract my external anal sphincters, this "something" stops pushing against my anus; as soon as I stop contracting, "it" drops down and starts pushing on my anus again.

I don't know what this "something" is.

-Although these are extremely rare, I have found blood and mucus on my stools and on the toilet paper.

I don't know what is wrong with me, but I suspect it has something to do with my anus. :confused:

Please, any help?

[PumpIron]

Hello, desprate. Try re-posting as a new thread. This way you might get more replies.

Simon, I think you accidentally discovered a new way to test for LG.... lol. I know those small, rapid fire farts that you are talking about.
I also understand what Christhsmart is saying. For me at least, it's like my colon is an open system with the environment.

Christhmart, thank you so much for informing us of this procedure. The 'muscle' theory was my first, and strongest. The only reason I moved on to other bogus treatments is because anal sphincter surgery was out of the question. But this "Solesta" injection seems like something I will start saving up for.

Question; how are your normal bowel movements after this treatment? It seems like this would create a funnel effect on the stool..

The website isn't very detailed. I was curious to know about muscular atrophy in the area once the effects of the initial injections run out.

[cristhmart]

desprate, on 18 November 2011 - 10:30 AM, said:

-I have to strain HARD every time I need to have a bowel movement. This is because, most of the times, my stools are like small pellets

Wow, in your case, I would try to increase fiber intake and drink lot of water.

desprate, on 18 November 2011 - 10:30 AM, said:

This is when my most distressing symptom manifests: the odor of my stool leaks out. This doesn't happen through flatulence but rather, it works like those car air fresheners- the odor just wafts out of me.

This was my case too. Obviously, there are more than one cause for this then. I feel a little sad as I'm writing now.

desprate, on 18 November 2011 - 10:30 AM, said:

-Urinal dripping. This one started a few months ago. Every time I'm done peeing and put on my boxers, a drop or two leaks out. This is annoying.
...
sometimes when I hold back the stools, I get this shooting/stabbing pain in my anus. It last anywhere from 3-8 seconds
...
After passing particularly bulky stools, while wiping, I notice that my anus gapes open and doesn't close up.

My doctor recommended one Anorectal Manometry test as a condition for the hyaluronic implant, but I was desperate and he was very kind letting me to skip this step. However, in my next visit, I will remind him to let me have one order for this. The first coloproctologist also was thinking about one anorrectal biofeedback therapy. In your case, I gave the last one a try. I almost forgot: before I practiced Kegel excercises sometimes I experienced some burning sensation after emptying my bladder, a very common symptom of the "candida infection" myth, but I think a pelvic floor weakness is a better explanation for that.

desprate, on 18 November 2011 - 10:30 AM, said:

I don't know what this "something" is.

I think none of us neither knows it exactly. But surely we all agree fiber intake along with drinking a lot of water is a priority.

desprate, on 18 November 2011 - 10:30 AM, said:

-Although these are extremely rare, I have found blood and mucus on my stools and on the toilet paper.

All my GI doctors agree that without blood in my stool my condition was mild enough to do nothing about it. I don't know exactly how they would behave with this symptom, but definitely I realize I'm not the right person to give you further advice.

************************************************************************************
************************************ PumpIron ************************************
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PumpIron, on 18 November 2011 - 04:03 PM, said:

Question; how are your normal bowel movements after this treatment? It seems like this would create a funnel effect on the stool..

I think so too. Today I've realized I made a mistake forgetting to keep my discipline in fiber intake. I will not forget tomorrow on. But it is not very different from when you were "normal".

PumpIron, on 18 November 2011 - 04:03 PM, said:

I was curious to know about muscular atrophy in the area once the effects of the initial injections run out.

I'm not so sure I'm suffering from muscular atrophy. At least not after practising kegel exercises for almost six months. But maybe I'm treading the ground of faith at this time wanting to believe this condition is generated by a sort of elasticity limit overpassed when I was suffering from bloating due to one infection with blastocystis hominis for more than a year. You know, just like an elongated spring. Again, I want to believe my anus got used to seal under huge pressures and then was unable to recover to a normal position (collagen or other fluid squeezing?), so sealing problem came up. I think in any case the condition won't worsen because (faith again) I think when you tighten your anus with this bulking solution is like you were lifting weights for body fitness.

[dfmj]

quote name='simon86' timestamp='1321623715' post='849423']
Recently I washed with soap after a BM (sometimes I do this to try and control FBO). Well I must have left some soap behind, because when I sat down again afterwads, I could feel bubbles of gas constantly escaping. I think this goes on all the time without me being aware. It was only because of the soap left behind that I was aware of it. Really horrible, like a constant stream of bubbles! Then it struck me that this is why I smell.

I too am from UK, so I'm gonna have a hard time tracking down a clinician who is willing to do this (or even heard of it)
[/quote]

I can't familiarise with this enough. I can often feel small bubbles escaping. When I can feel them escaping I'm alarmed by the frequency. Typically I've always showered, but I've began bathing instead. And often, I can feel and see these bubbles escaping while in the water. This is how I've known my problem is leaky gas....

I went to my GP yesterday, she'd never heard of it. But then, she'd never heard of the FODMAP diet or L-glutamine as a treatment for diarrhoea. If anyone has any information on this procedure in the UK, please pass that information on. And simon, if you find anything could you pass it on?

I'm interested to see if anyone else will have success with this..

[desprate]

hi chris..
thax for ur reply..tell me if ur odor get worse after bowel movement?and was it fecal odor?and after ur treatment ur odor is completely gone?and in my case it get worse after bowel movement and more noticeable if i get direah people always cover there nose or poke there nose or clear there throats,in ur case was it the same thing?my social life is completely ruined i hardly can eat anything if i eat sweets the odor get worse..can u help me with the diet plan i think i'm allergic to wheat and fructose products may be i've to start gluten free stuff..and please can u ask ur surgeon about my problem of puss coming out of rectum and i've got polyp inside my rectum and also i got a lump inside the rectum when i put finger inside my rectum i feel a lump can u ask about what kind of treatment i need for this condition plus i got same leaky gas..please can u do me this favor i'll be really thankfull to u..please reply me i'm really confused and deperate..in advance thax for ur time and support..GOD bless u and all of us suffering from this horrible disease..