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SIBO Cured but I'm not

#1 User is offline   yellow11 

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Posted 01 February 2012 - 05:47 PM





Hi all,
People probably won't remember but I posted here a few months back that after years and years suffering from leaky gas I got to see a gastroenterologist who did a hydrogen breath test on me which showed up positive for s.i.b.o. as I said at the time it was such a relief to have finally being able to have a specific diagnosis of what was wrong with me. well after a good few rounds of antibiotics I was back in to see him this week. He didn't have time to do the proper three hour test on me but he got me to blow into an even more advanced breathalyzer (the only one in Ireland apparently) then the last one which tested for hydrgoen and methane. well the results showed up normal, it seems that the antibiotics did the trick and I may not have sibo anymore which is great except for one thing... my leaky gas is as bad as ever - no improvement at all. I am at a complete loss as to explain this. It looks like my theory that sibo equals leaky gas may not be true after all. I remain absolutley convinced that there is nothing anatomically wrong with me (for one thing when I get normal gas I am able to hold it in if I have to)but it is a bacterial problem that leads me to have this devastating condition. and I think the same goes for anyone else who has leaky gas (no pressure flatulence, can't even smell it mostly) but does not have any mositure/mucus leakage from their anus. that's why I'm so confused at this point :(
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#2 User is offline   anmegrl 

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Posted 02 February 2012 - 11:02 PM

View Postyellow11, on 01 February 2012 - 05:47 PM, said:

Hi all,
People probably won't remember but I posted here a few months back that after years and years suffering from leaky gas I got to see a gastroenterologist who did a hydrogen breath test on me which showed up positive for s.i.b.o. as I said at the time it was such a relief to have finally being able to have a specific diagnosis of what was wrong with me. well after a good few rounds of antibiotics I was back in to see him this week. He didn't have time to do the proper three hour test on me but he got me to blow into an even more advanced breathalyzer (the only one in Ireland apparently) then the last one which tested for hydrgoen and methane. well the results showed up normal, it seems that the antibiotics did the trick and I may not have sibo anymore which is great except for one thing... my leaky gas is as bad as ever - no improvement at all. I am at a complete loss as to explain this. It looks like my theory that sibo equals leaky gas may not be true after all. I remain absolutley convinced that there is nothing anatomically wrong with me (for one thing when I get normal gas I am able to hold it in if I have to)but it is a bacterial problem that leads me to have this devastating condition. and I think the same goes for anyone else who has leaky gas (no pressure flatulence, can't even smell it mostly) but does not have any mositure/mucus leakage from their anus. that's why I'm so confused at this point :(


Thanks for the update, yellow. Right now the buzz is about Solesta injections. A few LGers (sorry mmx ;) ) are getting the procedure done in the next week or so. I'm sure they'll come back and post on whether it does the trick or not. Also check out the skype group post and see if you want to join.
"When a man's dog turns against him it is time for a wife to pack her trunk and go home to mama." ~Mark Twain
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#3 User is offline   yellow11 

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Posted 04 February 2012 - 06:22 AM

Hey thanks v much for your reply anmegrl and especially thanks for all the great info and links you have put up recently about leaky gas. If you don't mind me asking do you have a favourite theory yourself about leaky gas, its causes and possible solutions? I know there may not be one overall cause that covers everyone but I'm curious to know what you think, if thats ok, as you obviously have a very comprehensive knowledge of the subject.
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#4 User is offline   anmegrl 

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Posted 06 February 2012 - 08:35 PM

LOL, I hate that I do know so much. Means I was never the cured one. But one day....

Right now my favorite theory is that our internal rectal seal is defective - meaning that it doesn't seal at all but is kind of weak. Doesn't mean fecal incontinence to the extent mucus or waste comes out but is very minor so that digestive odors and maybe stool odor from further up the rectum seeps out. Back some time ago I was in the incomplete evacuation camp and certainly when I was C I would be more gassy but I could feel it. Yet when I would have complete bowel movements with or without fiber I still noticed I had the odor just maybe not as much. I also began to notice that when I would have complete or incomplete BMs in the morning before work, I got more comments than when I didn't have a BM. The idea was bounced around in the past that it could be due to BMs that your anus sort of stays open. You stretched it and it doesn't go back intact all the way. I thought it was just evidence of hemorrhoids back then but now I think you don't need a hemorrhoid problem to have a "compromised" seal.

Of course, this "theory" is based upon the premise explained in 2006 by the ever-annoying, ever-knowing Flux back in 2006 where he states:

Quote

The sphincter is more complex than my Ziploc analogy. There are two anal sphincters, one "external" and the other "internal" both around the anal canal, so that would require a Ziploc and another ziplock surrounding it. The two Ziplocs work separately. So skip the brick.

There are sensory nerves in the anal canal that can detect temperature changes and that's how we tell the difference between gas and stool. When material arrives in the rectum, the internal anal sphincter actually relaxes to allow the material to be "sampled" by the these sensory nerves while the external sphincter is contracted, to prevent incontinence.

If it were the case that these sensory nerves lost some of their ability, then it's sounds plausible that it could

1) allow gas to pass involuntarily

2) and without sensation

Thus a person could leak gas unbeknownst to them. It appears that at least this one aspect to the claim of LGers is, in fact, consistent with human physiology.

In the case of flatus arrival in the anal canal, nothing is sensed and the sphincters have no reason to hold back the gas. That's what enabling the gas to get past. When stool arrives, it is properly detected and the sphincters are engaged to prevent fecal incontinence.


So at least according to research he did, it would explain why we can hold in large volumes of gas and feel it - probably because the temperature is high enough to detect it but if it's a very small amount of gas it may not be enough for the nerves to catch it. Of course that's the defective nerve argument. I'm not sure if it is muscle or nerve but there are ways to test if the anal sphincter can detect certain temperatures but no one really knows who has that equipment and who is willing to use it for our complaints. I think that's why most of us hit a dead end then. And of course you had people who were "cured" through other means so who knows if this theory applies to anyone.

Still, I think Solesta might work if this theory is correct or close to correct whether it is nerves or muscle (I don't know, I'd need to do more research) since it bolsters the ability to seal.

If things work out I may try Solesta as it is just temporary and at least one person had success with it and seemed to be a genuine LGer. Probably be quicker to get the shots than trying to find someone with anal temperature sensing equipment who's willing to try it out on someone who doesn't have textbook fecal incontinence.
"When a man's dog turns against him it is time for a wife to pack her trunk and go home to mama." ~Mark Twain
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#5 User is offline   yellow11 

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Posted 07 February 2012 - 05:50 PM

Thats a very interesting theory Anmegrl, thanks for sharing it on here. Personally I'm favouring a gut flora/bacteria cause to our problems but definately what you said does make sense. And of course its very true when you said everyone's different so its entirely possible that both could be the problem depending on the person. I'm really looking forward to hearing how those who got the solesta injection done get on.
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