Please help with my diagnosis
Posted 21 February 2012 - 12:34 PM
Posted 24 February 2012 - 08:29 AM
Posted 24 February 2012 - 02:56 PM
Posted 24 February 2012 - 03:48 PM
Yeah, as I understand it, from reading the responses of the doctor on the forum I posted above, IBS basically means "I don't know." It's a "diagnosis" given when everything has been ruled out. (I just want to say, because a certain tone can be read out of what I wrote, I'm not criticizing the doctors here, I'm sure this is a complicated puzzle to figure out.)
I think the problem with IBS is that there is no test for it, just symptom checks.
Why didn't you have a colonoscopy? Doesn't that rule out all the bad stuff like C (don't like even writing that), inflammation and the other stuff (thus establishing the IBS diagnosis)?
I, like yourself, do wonder about cancer. I was quite anxious when I first went through the symptoms.However, after various consultations with my doctor, and medications, ive started to trust their opinion. To be fair, they said they were 95% sure it was IBS, but couldn't rule out cancer because I hadn't been tested for it.I was tested for IBD which I think was through inflammatory markers from a blood test.
I'm sure that's the answer this goon I have for a doctor would give me if I suggested he should order some tests that he should.
With testing though, sometimes you are only tested for what you've asked for.I asked to be tested for H Pylori (as my wife, her sister and her mum have had it!) and when I was in the GP, I asked if they would test for lactose intolerance (considering I had been tested for gluten intolerance previously) - the answer was no!?
Do you know whether a colonoscopy rules out everything? If no, what are the things that aren't ruled out by a colonoscopy?
So, ruling out everything else is a long an tiresome process, and perhaps not always required.But sometimes it can be for piece of mind, rather than a diagnosis.
Thanks, that's reassuring.
...and for what its worth, my understanding is that D is not really a major concern for cancer unless linked with other symptoms.But i'm not a GP.Not sure if this helps?
Posted 24 February 2012 - 04:55 PM
Posted 25 February 2012 - 08:30 AM
Yes, I think what's more important is not how the stool itself is (though it's probably necessarily not good if it is unformed) but rather whether it's a deviation from your normal pattern.The problem is, I never used to look into the bowl before I had this, and now, after 8 months of staring into BMs I feel like I've no idea what is normal and what isn't any more.
Have a google on the bristol chart - it gives you perhaps an understanding that BM's are actually varied. What you may find as normal, may be strange to someone else.
Yes, I can definitely see that. I think it's best to do the minimal necessary research on this, and think about this the minimum amount of time necessary to be informed and make sure your doctor is doing the required tests (it's a lot of fun when you have to police doctors).I see from the account of your situation that you posted on the other forum that you've also had the issue of disinterested and irresponsible doctors. It's just so frustrating.I see now that I forgot to mention that I also had two stool tests. The first tested for salmonella and shingella, and the second one tested for them again, but in addition tested for parasites, all came back negative.
The problem with IBS-D is that patients can get high anxiety about the Big C, and it is a recognised problem amoungst GP circles over here. It even gives guidelines for GP's to provide reassurance, but it took 3 doctors to this for me! So you can then understand how things can have a butterfly effect if anxiety is a trigger!
Posted 25 February 2012 - 04:56 PM
Posted 26 February 2012 - 05:52 PM
Posted 27 February 2012 - 04:26 AM
That's what I thought, thanks!
Actually IBS is a diagnosis largely reached by exlcuding other GI diseases and disorders. A colonsocopy is a very definitve test that does that.
Will definitely do so.I should mention that on the other forum I referenced someone asked me the following:
Please take advantage of the info available here. Right above us here in the dark blue menu bar you will see the tabs "Home" "Forums" "Blogs" etc.. Go to the "Manage" tab and read all the info there: ie: "Symptoms" "Medical Tests" "Diagnosis" etc...
And the answer is no. So that's how unconscientious doctors can be.
Did you every get a stool test for other things besides salmonella, shingella, and parasites? For instance were you tested for C Diff, Campylobacter, pathogenic E Coli (all bacterias)?