Posted 10 April 2012 - 12:17 AM
I too have undergone various intrusive testing, all of which found nothing. I also feel as though I have some sort of a blockage (as this is what it feels like), but no one has been able to confirm this. It's been a couple of years since I had an abdominal xray done, so I'll probably go for one soon to double check for growths and/or blockages again. The most frustrating part of this condition is doctors not being able to provide a definitive diagnosis and the lack of treatment options are very hard for a chronically ill person to deal with. I now go to my doctor and he doesn't give me the time of day. Believes that its all in my head and that I just need to "consume more fiber". GI wont see me anymore, as "there's nothing more that they can do for me". That's some support in trying times. I don't even feel like I have a professional to turn to anymore and all of the GI's run on the same database around here, so none of them will see me. I went as far as calling the provincial coordinator to confirm this. If that's not some BS. It's like telling a deaf person they can no longer see a hearing specialist. It's terrible and not having a doctor in my corner makes me feel all the more helpless. If only they could do one day in my shoes he would have a much different outlook. I've found a very small amount of success with taking 6 metamucil capsules, along with 100mg of docusate sodium prior to bed. In the morning I wake up 1-2 hrs before I have anything going on to eat a high fiber breakfast, with a cup of coffee. This usually stimulates some sort of a BM, however my pain and discomfort is usually back within an hour or two (if I'm lucky), as I rarely produce what feels like a complete evacuation. I'm late for everything due to my morning routine and its starting to also stress me out. It's been 5 years of the same morning routine, almost like an OCD condition.I've also been taking Natren Probiotics (Healthy Start - 3 bottle pack, veggie caps) and this helped somewhat with extreme bloating, but over the past week or so, seems to have no affect anymore. I used to take them a couple of years ago and remember the same diminishing affect. I've tried various other brands, including Dr. Ohhira's, but the Natren seems to work the best for me.I don't believe I ever had mental illness prior to being in so much damn pain and discomfort all day (this can have a serious toll on mental well being). I used to be a little bit hyper (anxious), but nothing serious. I now would say that I do have clinical depression and suffer from anxiety, ranging from controllable, to not being able to leave my house as I feel gross inside. The black cloud the accompanies my flare ups makes it very hard, if not sometimes impossible to deal with stressful situations, or people in general. The depression has been getting worse with time as well.I've read a couple of more articles about the affect of SSRI's on the gut and the gut/brain interaction with serotonin. It appears that SSRI's can play a significant role in pain threshold and certain SSRI's increasing intestinal transit times. I tried Zoloft a while back and remember having to quit after the first dose of only 50mg, as the side affects were overbearing (terrible headache, ringing in ears, hangover in the morning, burning stomach, completely out of it and drowsy for 24 hours). I know I probably didn't give it enough time, but the side's were scary. Anyways, I'm hoping to somehow get my hands on Amitiza to rule that out, as I know there are mixed reviews out there. Just knowing that a drug that could potentially help my condition is available cross border and not having direct access to it is driving me nuts. I truly hope that the pharmaceuticals visit sites such as this to try to find a cure to what I would consider one of the most terrible conditions out there. I would pay any price to feel better.