Posted 07 May 2012 - 09:11 AM
After 2 GI specialist and 3 hospital stays (actually 4-this happened to me in 2007 as well), I actually have not received a diagnosis from an actual doctor. After investigating everything, I'm going to self diagnose myself with PI-IBS. The first time it happened in 2007, I had been treated for a dental infection with the anti-biotic clindamycin. Although I told the oral surgeon it was making me sick, he said I needed to continue to take it anyway. Since he was doing a biobsy on my gums and gave me the indication it could be cancer, I continued to take the antibiotic, although it was making me deathly sick. Needless to say, I ended up in the hospital with typical IBS symptoms, as well as vomiting. The primary doctor I saw at that time did tell me he felt it was a secondary infection caused by the antibiotic.This last spring, 2011, I was being treated for a sinus infection that would not go away. After several attempts with antibiotics I had previously taken with no problem, I was put on one called Levaquin. This one made me really sick again. I was in the hospital for 5 days in May, 2011 and was released after I was able to digest solid food. I continued to be sick with nausea, diarrhea, headache, severe gas, and backache. This went on for several months. During this time I had a colonoscopy done (not sure if this actually caused any problems) but shortly after having it done I ended up back in the hospital with the same symptoms as back in 2007 and May, 2011. This also included 3 ER visits in which they gave me Flagyl to take as an antibiotic. Once again, after being able to hold down solid food, I was released after 5 days. The Flagyl also was making me sick, and within 3 weeks and a couple more ER visits, I was once again admitted to the hospital. This time my white blood count was sky high and I was put in isolation in the hospital. 6 days later after being able to hold down solid food again, I was released again. No actual diagnosis ever given to me.After seeing the GI doctor who had treated me in the hospital and I can't remember how many tests later, I finally decided to get a second opinion. The second GI doctor I drove to Chicago to see, gave me the impression she would have a diagnosis for me in no time. After several more expensive tests, she finally told me she had no further suggestions for me. During this time, not one of the doctors or hospital workers ever suggested probiotics. They just filled me with prescription anti-nausea, and anti-spasmodics. Nothing for the diarrhea or anything else. My primary doctor's nurse finally said, try this probiotic, Floristor, it sounds to me like the antibiotics have killed off all your good bacteria, as well as the bad (if they are actually all gone). Since trying this probiotic last week, and a anti-nausea medication, most (and some days all) of my symptoms have gone. I've had just 2 bouts of diarrhea (one on one day and another on a different day) but have had regular bowel movements on the rest of the days, when I was having 5-6 bouts of diarrhea per day about every other or 3rd day. One a difference, and my nausea has disappeared (which what was making me the sickest). I really hoping that this continues. I went out fishing this weekend, which was the first time I have been out of the house, other then work, when I could make it to work, in the last year. This Nurse is my new hero. My question is, why haven't any of the other medical people suggested probiotics to me? What a waste of money I spent on all the hospital stays and costly test and procedures. I'm wondering if I could sue anyone and get back some of the money I've spent, but I wouldn't know where to start. Anyone who hasn't tried probiotics for PI-IBS, please do, it may change your life back to semi-normal. Hope this might help someone.