Jump to content


Advertisement

Photo

Strange IBS for 15 years. Please help determine the IBS type.


  • Please log in to reply
2 replies to this topic

#1 Pianist

Pianist

    New Member

  • Members
  • Pip
  • 3 posts
  • City:Saint-Petersburg
  • Country:Russian Federation

Posted 29 June 2012 - 11:03 PM

Advertisement
Hello everyone !I've also posted a similar topic in IBS-D prescription meds, so don't delete me please. No one answers there :(For the people who don't want to read it all - please skip to the bottom to help me determine the ibs type.I am a male and I have been suffering from mixed IBS, mostly D dominant (or what I think it is, I dont have an actual diarrhea) for 15 years. I am now 26. The symptoms were tolerable till I became 20-something. Now it progresses every year.I won't go into details of how I spent around $20000-25000 on all the doctors during this period. I just want to say - I don't believe any doctor in this country anymore (traditional or non-tradtional) and now Im doing my own studies, inlcuding reading this forum. Now (and for all my life) I am having a somewhat mixed type of IBS. First - I rarely have a diarrhea itself - my stool is half-way normal, meaning it is not loose, but it does make my butt dirty, so its hard to wipe with a paper and I need to wash it. Second is that I can pretty much wait the whole day to go to toilet. I will feel like ######, but I won't ###### myself. So it's not like Im having a super-urgency everytime. Third thing is that I have an uncomfortable bowel feeling (like something went to my straight colon and I will need to go shortly) every hour at best and every 10 minutes at worst. Most of the time I don't fully defecate and I feel there's something left to do. At a daytime its not an issue, but closer to the night - it goes crazy with constipation and gas and everything like that. During this constipation evening period - whenever I try to push something out - only gas goes out or a little amount of feces. So it's not like I can't work or walk or drive a car. But most of the time I have to visit a toilet before enjoying something, e.g. sex, food, sleep, etc. A week ago I started using Heather's products - Acacia Senegal and peppermint capsules. I've been using them according to the manual, gradually increasing dosage and all that stuff. It didn't help me very much, but it sure did relieve most of the gas and discomfort in the evening. I've started reading this forum and decided to try Zofran. It costs around $80 for ten 4mg tongue dissolving tablets. Its a huge price and now Im looking for a cheaper local alternative that uses the same substance. In Russia we don't have med-insurance that will cover any expenses on these medications. Hell, they would rather watch you die than treat you here, so I'll have to pay for everything myself :(A few days ago was my first time - I took half of the tablet (2mg) in the morning. It was a good effect for the first 3-4 hrs, but now its still the same old feeling and frequent bowel movement that Im used to. And it's been less than a week since then and it doesn't help much no more :( So Im really disappointed and I was thinking if its my fault and maybe its bad to take Zofran with peppermint capsules or Acacia. If someone here used all of those medications - please advise whether its fine to use them together and what dosage do you take. Please let me know if its ok to take Zofran for the long period (5-10 years and more) and what can go wrong. I can't stand the brain activity and motor functions decrease cause I play piano and I need a good concentration. Well its still better than having a need to visit a toilet every 30 minutes, but brain is the most important.So to summarize all this:Non-complete defecation. No big urgency, can wait a long time. Need-feeling every 30 mins to an hour.Morning I go 2-3 times during an hour and a half usually. Regardless of any mediactions like Zofran or Imodium. Stool is more loose than normal. Day - I have no urgence at all but every 30 mins to an hour I have those gut feelings that something is in the colon, so I can't enjoy life :( And it's not psycholigical - if I go to the toilet - I will mostly like push something out, at least gas. stool is more normal than loose.Evening - gas, bloating, constipation (I dont know if it is, never had one since I suffer a long time). Sometimes there is no evening constipation - just the same hell as in the morning. :(I also want to elaborate that the absence of urgency in my case may not also be because of no diarrhea, but also because I dont give a damn about what people will think about my IBS and I don't feel any urgency or excitement when people are around me. Im just getting very sad when I feel the need :( Thank you ! Please help if you can !


Advertisement

#2 Kathleen M.

Kathleen M.

    Community Manager

  • Community Managers
  • PipPipPipPip
  • 32,911 posts
  • City:Burlington
  • Country:United States

Posted 30 June 2012 - 07:32 AM

Could be alternating, but sounds more like IBS-D. D doesn't mean D all the time every day all day. If you have loose stools every morning I would tend to call that D.About 70% of IBSers have rectal hypersensitivity which can cause the "gotta go NOW!!!!!!!" when it shouldn't. You do not need to have this and it can happen to any version of IBS.Incomplete evacuation (feeling you didn't go enough whether there is more stool to pass or not) is common for all kinds of IBS, can happen across the board.All IBSers tend to have pain or sensations from the rest of the colon.The big deal with -D or -C is mostly for what medications you use. You don't want to give a medication that constipates someone with severe D to someone with constipation predominate IBS, but otherwise it really doesn't mean all that much go get down some specification to the IBS type.
My story of beating IBS: My Story with IBS
Ph.D in Biology

#3 Pianist

Pianist

    New Member

  • Members
  • Pip
  • 3 posts
  • City:Saint-Petersburg
  • Country:Russian Federation

Posted 30 June 2012 - 02:34 PM

Could be alternating, but sounds more like IBS-D. D doesn't mean D all the time every day all day. If you have loose stools every morning I would tend to call that D.About 70% of IBSers have rectal hypersensitivity which can cause the "gotta go NOW!!!!!!!" when it shouldn't. You do not need to have this and it can happen to any version of IBS.Incomplete evacuation (feeling you didn't go enough whether there is more stool to pass or not) is common for all kinds of IBS, can happen across the board.All IBSers tend to have pain or sensations from the rest of the colon.The big deal with -D or -C is mostly for what medications you use. You don't want to give a medication that constipates someone with severe D to someone with constipation predominate IBS, but otherwise it really doesn't mean all that much go get down some specification to the IBS type.

Thank you ! It is more like D. Also I noticed that even when I have my evening gas/bloating/constipation kind of thing - I guess it's not really a constipation, but more likely a small amount of feces going to the straight colon every hour. Its not like Im having any constipation problems that people on IBS-C forum have, so I think its more likely D-dominant.I've also noticed an interesting thing - when I take imodium in the morning to last for a day (even with semiticon - I still have gas) - at the evening I can play symphonies with my gases, lol :D But Zofran just makes me feel normal (to a certain degree) and with the help of the fiber and peppermint capsules - I dont have a lot of gas and bloating anymore.So Im gonna stick with Zofran for now. Im also trying to buy a Hyoscyamine through my friends in Sweden, because here we dont have any of the anti-spasmodics I found on this forum. But here I can buy a Buscopan - has anyone tried it ? I had it for a few weeks but it was it alone, so no significant effect. Maybe in conjunction with others it may work ! Thank you again !





Advertisement


About Us | Contact Us | Advertise With Us | Disclaimer | Terms of Service

Irritable Bowel Syndrome |  Inflammatory Bowel Disease |  Crohn's Disease |  Ulcerative Colitis |  Fibromyalgia |  GERD - Reflux Disease


©Copyright 1995-2013 All rights reserved IBS Self Help and Support Group

Website Monitoring by: AlertBot



This website is certified by Health On the Net Foundation. Click to verify. We comply with the HONcode standard for trustworthy health information: verify here