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why does nobody help?

1K views 5 replies 4 participants last post by  flossy 
#1 ·
I posted a new thread yesterday titled "please help me".
I begged and begged for help and advice and nobody has even replied even though the thread has over 40 views.
I thought I had found a site where people like me could talk and help each other, obviously not.
 
#2 ·
Murphy11lfc I am sorry to hear that you are in such distress, and that you were very disappointed to not have received feed back or encouragement on your last post even tho' it got 40 views. Please do not lose heart, remember that we are all here looking for help. I was here for a while some time ago, but then I had things come up and I didn't have the time to check in every day, and also often when people are feeling good, they may not check in at all, or may breeze in when they have a moment to see how others are doing. But I assure you, there are friends here, and many like yourself who feel totally overwhelmed, at the end of their rope and terribly depressed with these illnesses, again, we are all here looking for help and there is some really good info on these pages that can help a lot of people, but no two cases are alike, we are all learning just what our issues are and how we might apply ourselves to fixing them. Some times we can get relief for only a short time, and sometimes we hit on something that is priceless, like meeting a new friend here, or using a technique that worked for someone else that does for us too. But it all takes time, this is a very large site, there is a ton of stuff here and a lot of people. Some people only read, they have their own issues but don't feel comfortable posting yet, they get some hope from reading, maybe find some comfort in that someone else may have read your post and thought, that sounds just like me, I am going to keep an eye on this post and see where it goes. Or maybe your issues are not at all like someone elses who read your post, and they just can not relate that well so they move on because they just don't have much to say there, they need help and connection with someone that they do have common symptoms with.

Many posts come and go here, do repost, that's ok, we all do it, a new person coming on may be just who you are looking for, or someone who hasn't been on in a while might come back and say, oh yeah, here is another one just like me, I know what can help them.

You need to do a lot of reading here, find the group of folks that has the same issues you do, I let a lot of posts go by that I don't comment on because I don't have the kinds of issues they do, and it really is not my place to interject opinions that I don't feel would be helpful or time worthy for either of us.

Please don't leave, I am sure there is help for you here.

Best wishes to you.
 
#3 · (Edited by Moderator)
so sorry for all your problems..

Corydalis said it well as to why some times we post and don't get answers to our post. many days i am too busy, too ill (have many many other health problems because the bowel stuff), or too tired (fibromyalgia, chronic pain, mitochondrial disease etc) to answer everybody's post. i just try do what i can but i can't answer them all.

you mentioned in one of your other posts that you have proctalgia fugax. i know what this problem is from googling it but i've never had it and don't know first hand what the treatments are (just what one reads on google) so that's why i didn't respond to your post yesterday about the sharp rectal pain etc and you were asking did any other people have this and what did they do for it...

does a sitz bath help relieve the pain at all?

anyway--it does sound like a doctor's advice would help with dealing with proctalgia fugax--it sounds compliacted. if your current gastro doc isn't helping, please do try to get another doc who is more proactive about it. or maybe a colorectal surgeon would help. they are specialists in rectal problems.

good luck. hope you can find some relief...take care
 
#5 ·
oh thanks, Corydalis Aurea--you're more than welcome. so sorry you are having problems with such severe anal pain. it sounds miserable. I do hope you can find some relief. and an understanding and proactive doctor to help. take care..
 
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