A Heads up
Posted 14 May 2015 - 12:33 PM
I posted on this forum a little while ago about my IBS and how well I felt on antibiotics. I am just returning to this forum to let you people know what I have figured out and what I think is causing my symptoms. Just as a reminder I got the best results from amoxicillin and clarithromycin used to treat H. Pylori, but the symptoms came back and all of the tests for H. Pylori were negative. Anyway after more research and testing I have been diagnosed with chronic lyme, and I am just putting this out there for anyone that may have had similar symptoms and experiences so they can rule it in or out for themselves. Just as a warning chronic lyme is a very controversial topic and diagnosis. You can literally spend months researching lyme just to get a feel for what the possibilities are and what the controversy is all about. Most Dr.s wont know where to get the best testing done, using the right lab made a huge difference in my case because the majority of labs don't even test for the bands that I have that are very specific to lyme. A good place to start is to watch under our skin on youtube and to find a lyme literate Dr. I just barely started treatment but already feel like things are improving , I will come back and update this from time to time if you would like.
Just a quick recap of my symptoms and illnesses
Main symptoms are abdominal pain, mild dizziness, fatigue, bloating, constipation/diarrhea, slight depression, on and off severe low back pain, decreased libido.
-Diagnosed prior to lyme diagnosis with the following
+ IBS after I had a clean upper/lower gi, negative allergy test, negative test for pathogens, negative bowel inflammation, negative blood in stool, negative celiac test and on and on
+ Osteoporosis 39 year old male doesn't make sense no one can figure out why
+ low T
+ sleep apnea treating with CPAP with no real improvement with energy or fatigue except while on antibiotics
+ depression and anxiety
+ H. Pylori (some sources say the test can cross react with lyme this is what made me think I should test for lyme)
IBS treatment and results
+ Incredible results with intracellular anitbiotics fro H. Pylori IBS was completely gone for a while not to mention other improvements like decreased brain fog, increased energy and libido
+ no results with rifaximin and a later trial of rifaximin/neomycin combo.
+ no results with yeast diet and long term diflucan
+ no result with anti parasite or protozoa meds
+ no results at all with probiotics I have tried pretty much all of them. The good ones didn't do anything the bad ones made it worse
+ marginal improvement with fodmap diet but steadily worsening symptoms and sensitivities over the years
Just remember if you do decide to go down this path you really do need to find a Lyme literate Dr. to get the best tests. The problem with lyme is that there are no good tests. There are tons of false negatives and even the best test will still miss a lot of people. Greg
Posted 15 May 2015 - 05:37 AM
Very interesting. Thank you for this comprehensive post that summarizes your situation. Could you provide some details about the treatment that is working for you?
You mention you tried several probiotics. Did you try florastor?
Posted 15 May 2015 - 02:56 PM
Pretty much the only treatment for Lyme is more intracellular antibiotics. I have only been on them for a few days and was noticing improvements with brain fog and bowel movements. I just found what looks like a rash and may have spoke too soon about it working. About the Forastor I have never tried that particular brand but I have been on a boulardii probiotic for the past month due to all of the antibiotics.
Posted 15 May 2015 - 03:51 PM
i don't think they'll rid of flour and yeast