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My lower rt side pain was a hernia - PLEASE READ


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#1 Guest_B_*

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Posted 29 March 2001 - 07:07 PM

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This has been going on for two years. It is now over thanks to the internet and my own tenacity.I finally had a pelvic pain mapping - and I highly recommend it to those of you who have pelvic pain. It's a type of laproscopcy that tries to track down the source of pain. My symtoms were pain lasting 20-30 min. on my right side - increasing in severity every month. The pain started on day 14 of my cycle and lasted until my period was over. I have no endometeriosis. When you have chronic pelvic for a long time - the pain behaves however it wants to. My ovaries and female parts are just fine.I sometimes had swelling in my groin on the rt side. The pain got so bad that I would lie down screaming until it was over - and when it was over there was no sign something was wrong. I had an appendectomy thinking it was a chronic appendicitis. It wasn't.What it was - a hernia. A piece of fat that had poked through my abdominal wall at the base of my round ligament. There was a bump on the inside - but NO bump on the outside like a typical hernia. The CT scans and the MRI and putting barium all through me showed me to be normal.Where I was fixed - Cleveland University Hospital. I had a GYN and a general surgeon looking in me. Dr. Janicki has a website. EndometriousisUSA.com - I hope I spelled that right. They used a mesh - no staples. I found these doctors on the internet. I was not crazy. It was right where I said it was. It was not IBS. KEEP trying to get well, everyone.Good luck.


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#2 Stace

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Posted 29 March 2001 - 07:21 PM

Good for you and your tenacity! I am from Cleveland Heights (live in TX now) and University Hosp. is amazing.So glad you kept at it and finally got an answer!Stacey
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#3 Krissy

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Posted 29 March 2001 - 11:12 PM

Hi B, I've had right sided pain for 4 years(it does go to the left also)I am curious to know what your IBS type was? D ? C ? I was checked by 3 surgeons who said they felt nothing but that my muscle wall in that side was weak,probably from having my kids.There was another girl Dina who had the exact same thing a while ago,she is the reason i went to the sugreons.I am happy for you,finally! Krissy
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#4 JenS

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Posted 30 March 2001 - 10:51 AM

I am so GLAD that you found an answer for your problems!!!

#5 JenS

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Posted 30 March 2001 - 11:28 AM

B,What kind of sweeling on the right groin? Besides pain, what were your symptoms?[This message has been edited by JenS (edited 03-30-2001).]

#6 HipJan

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Posted 30 March 2001 - 01:28 PM

Congrats!!!!!!!! What type of pain did you have? What did it feel like? I've also had lots of pelvic pain - long story - but I am finding some relief now from some pro. cream.
"Cast your bread upon the waters..."

#7 Guest_B_*

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Posted 30 March 2001 - 08:13 PM

Hi everyone! Cleveland Hos. IS amazing. Not one doctor in Columbus knew what to do with me.My IBS type is C. I will typically have a big poop - maybe even three in the same day - and then wait at least a day, typically a few days before the next one. My 3 year old daughter is the same way. I really have no problem with it besides that it doesn't fit everyone's definition of normal. I've been this way all my life. Because of that, doctors were quick to label me IBS. I really can't tell you if my bowels had anything to do with any of it. What I ate and when I pooped made no difference in the pain. I even eleminated milk products - did everything the board said about "C" - flaxseed oil - the works. The ONLY connection I got to anything was to my cycle. By the way, I do have the Cleansing before period poop. The only thing a columbus dr. did do was start me on Lupron - a temporary measure used mainly on females thought to have endometriosis. It was used on me to try to keep my hormones down. It's a hormone treatment that puts your body into temporary menopause. It kept me out of pain. By the way, my poops were slightly more regular and smaller.You can look up my other older posts to try to see what all I went through and all the different things I thought this was - if that is helpful.My symtoms - I was getting laundry out of the dryer one day and felt an uncomfortable feeling. It just came off and on. It was a year and after my first laproscopy that I found the connection to my cycle. I got that first lap. because the pain didn't just go away. After the lap. my GYN basically got me out of his office. I had perfect female organs. The pain got worse every month. Stabbing implies quick to me - this was not quick. It was the worse pain I ever had in my life - and every month it would top itself. It was where I thought my appendix was - or where my rt.ovary is. It never moved. I had all over pelvic pain only a few times and that was when it was already very bad. It went from making me sit down to me lying down screaming. By December of this last year I was just trying to exist throught the pain - WITH pain medicine. NO position would make it better - Lying on an inclined plane really didn't help. That typically does for hernia patients, not for me.The swelling did not come every time. It was on the rt. side in the soft spot between my leg and my vagina. It would come out as far as my first knuckle on my hand. Painful to touch. I thought my insides were exploding. Sometimes I would push in this spot very hard and deep and to my right. It was like I was touching something that was touching something that was my pain. From what I remember my dr. saying - there is a vein there that could have been somewhat blocked?? I'll see him again for my post-op and I'll ask. But ice didn't help. Heat didn't help. The swelling was gone when the pain was gone. The pain lasted 20-30 min. and I watched the clock and just waited for it to be over.I wish I could come up with better words - just INTENSE seems to be the one that fits. No fever. No body movement inhibited. Nothng I could do to bring it on. I even waited between attacks to go out to plant a big bush last year. Coughing didn't move it. It varied between 4 to 6 hours apart bet. attacks. My kidneys were fine. My tests were OK. My physical therapist said it wasn't my body. I am a 5'4" 115lb. small person that is pretty limber.I really don't see how a typica; general surgeon would have found - or felt- this hernia. You would almost have to know what you are looking for. There are only a few places in the country doing pelvic pain mapping. I was frightened when I read about it - but it was really worth it for me. It sounds worse than it is. The only thing these pain management doctors wanted to do here was start killing nerves in my back. No thank you. It took awhile to research what else it could be. I spent hours on the National Library of Medicine site. You can read the med abstracts there.WHY did it follow my hormone levels? who knows. From my research on some of the med abstracts - I am not a doctor - it seems that a woman has a higher pain threshold in her follicular phase - day 1 to 13. Ovulation ( day 14) could have helped trigger it in my case - maybe. My worst day was 14 and 15 and then until my period was over. The pain timing did not fit endo either. I think it's interesting that HipJan found some relief with pro-cream.Please kepp trying to find out what's wrong. Doctors do not always have the right answer.I'm reinforced now!!

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Posted 30 March 2001 - 09:09 PM

Congratulations. Its great you found the answer! So you didn't have endometriosis? I'm just curious b/c the doctors website is for endometriosis but you said you have no endometriosis but a hernia. Is endometriosis categorized under hernia? I've always felt like I might have a hernia instead of ibs. That's why I'm asking. Thanks-SCan you say mor about pain mapping?

#9 Guest_B_*

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Posted 01 April 2001 - 03:52 AM

Yes, I know his site is under endometriosis. I never looked under endometriosis after getting the pictures from the first lap. I wish he had chosen another name for his site. He basically deals with pelvic pain. I found him on the international pelvic pain website. They have a listing of doctors across the country that specialize in pelvic pain. For anyone out there with eno, endowisdom.com is a great site. Their information got me through the bowel prep. http://www.ncbi.nlm.nih.gov:80/entrez/quer...5&dopt=Abstract So, pain mapping. I spent ALOT of time at the above site by the way. The description of pelvic pain mapping scared me to death. I wish it hadn't and I had done that first. The bowel prep was the worst part. I had to drink a lavage (sp?) solution. It arrived in a plastic jug to which I added very cold water. I had to drink 1 8oz glass every 15 min. I had a very good wonton soup - just the broth - to sip after every glass. I don't think this is quite normal, but all my bowel movement came it seems at once. I have never been so cleaned out. The reason for all this is that they want your bowels to be up and out of the way when they go in so 1 they can see and 2 that they don't poke them inadvertantly. (my weird bowels, I just got my first bowel movement a week after all this.)After that I got up the next morning to go to the hospital. I remember to the point up to seeing the operating lights - and then I remember the tummy pull - and that's all I remember.Now - what actually happens. You are put on a table and tilted just a little to your head so that your intestines slide up and out of the way. You will be put through altered states of consciousness. - Awake is not really the term I would use. As I say, I only remember the tummy pull. - they clean your vagina and numb your cervix locally so that they can put in an instrument to hold the cervix, and thereby your female organs still. They ask you to hold your head up and that makes your lower tummy muscles firm up and they poke through. They do not put in as much gas in your tummy as they would in a normal lap. The doc takes his hand and pulls - and he said I could go home and practice it on myself because that is exactly the same thing he will do - he pulls your tummy up so the gas can go on in. Then he told me that they start the pain mapping and that he could go in and that everything might hurt would be a possiblity. Even that, though would tell something. But the point is to start to touch and see if together, you and the doc can find out where the pain focus is. The whole time for the pain mapping part is 7 min. AND the point is not to try to actually duplicate the actual pain, but to try to locate it. He said he would go in smaller and smaller circles. That there are places they know to look where hernias occur. Now, not every doctor does this. Not one in Columbus even knew what I was talking about. Do your own research to get well. Now I have a picture of my hernia , before, during the mesh fix, and after. I do not see how they found it. He said I kept saying over and to the right. At the base of my round ligament was this slight bulge. It was a piece of fat - rather than intestine that doctors usually look for - that had poked through my abdomnial wall. Dr Onders who fixed it said he no longer uses staples or rivets in females because of the nature of pelvic pain in females. I had asked about no staples because I had heard from another doctor about the fact that they could staple a nerve ... but that's heresay. Hernias are basically holes in the abdomnial wall where things poke through that shouldn't. No relation to endo. Endo. is cells that should be in the uterus that land in the abdomnial cavity and usually cause pain around the period time of your cycle. The cells can range from clear to chocolate brown. No one knows what causes it and your pain does not coordinate with the type of endo - which means you could have lots of pain and just clear cells or no pain and have chocolate brown places all over. Men have been known to get endo if they have been exposed to female hormones, as in after prostrate (sp?) cancer.Adhesions are things that can happen on the inside where scars are on your outside. They are related to endo because you can have both. You can have adhesions that just happen on the inside. They look like stretched pieces of plastic wrap. They have been known to be the cause of pelvic pain.Now a little about pelvic pain. It is it's own animal. Yes, pain can show up in a part of the body that has no relation to it ( I have a friend that her jaw problem showed up in her back) - but it is also possible that a chronic appendix can flar up off and on for years. - There are still doctors who argue this. Do your research. I have written the doctors who write in the journals to see if my problem sounds like it might be a chronic appendicitis.It is SO worth it now. Thanks for letting me talk your ear off. This is only from things I have learned. I have never studied anything medically.

#10 Guest_Kylie_*

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Posted 01 April 2001 - 09:59 AM

Wow, I can't believe how similar this all sounds - I've been battling this same pain for over ten years, and after myriad testing still nothing - therefore IBS (is this a cop-out?) I am also IBS-C, and only D through nerves or 'that time of month'. Food isn't an issue, I don't really know what other than stress triggers my probs.I've never really mapped my pain, but now I will - and when I think of it, it is worse around day 14 onwards. The other interesting thing is that a doc over 10 years ago said ligament, and made me do some manouvres that brought on pain to prove it.I've been thinking niggly appendix, even had some kidney stones recently so thought maybe that's been the prob all these years. I've been Cat scanned, U/S x-rayed everything, and still I sit here with almost constant pain.I'll try the link and find out more, I just hope that they offer something like this in Oz.Kylie

#11 Guest_B_*

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Posted 03 April 2001 - 03:37 PM

http://www.pelvicpain.org/physician.asp Try this link. It lists doctors who have an interest in pelvic pain. I just started calling to see if I could find one that did conscious pelvic pain mapping. It really is not surprising that not all of them knew. But some do. Also if you look on that National library of medicine site you'll find that there are some places doing research in like Rochester NY, in Alabama, in California... Write these people and find yourself a doctor. You can usually look up a name in the yellow pages site and get an address or you can write the hospital that the doctor works in.If you do find a link to your cycle like I did - and you really are in a lot of pain, Try the luporn shots temporarily. It is sort of a last resort, but it SO HELPED me with the pain. - Really almost too much. I felt good again and I really had to tell my inner child that yes, I really had to have surgery. In some way those hormones affected the pain. That's the reason I though it might be my ovary. But you have to consider that at day 14 all of the levels of estrogen, progesterone, and relaxin go up. They do that to make way for the egg to be fertilized and to prepare you body for pregnancy. One of the ways that they do that is to relax the muscles - hence the name relaxin. -and my thinking is that if something is relaxing your muscles then is it more likely that a hernia would poke through at this time? They have found that runners are more prone to knee ligament injuries at this time - but their answer to that is to put them on the pill to satbilize the joints. But I found I couldn't even go back on the pill. Trying to go on the pill - I tried this 3 times - by the 3rd day I was back in pain. So I'd quit.Be strong. Keep trying to find the answer for you. There is also many GYN doctors that have found chronic appendicitis. It really is out there.

#12 Guest_B_*

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Posted 03 April 2001 - 04:00 PM

That knee thing is pretty hotly debated in the med journals. http://www.ncbi.nlm.nih.gov:80/entrez/quer...6&dopt=Abstract That's where I got that from. My point is, if there are people who believe that hormones can affect other parts of your body, like ligaments in your knee, then could hormones also affect other muscles -- including your digestive tract?

#13 Kathleen M.

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Posted 03 April 2001 - 04:07 PM

It is fairly well documented that the hormonal flux that occurs during menstruation does effect the GI tract.Even in woman who do not have IBS, GI problems are associated with that time of the month. K.------------------I have no financial, academic, or any other stake in any commercial product mentioned by me.My story and what worked for me in greatly easing my IBS: http://www.ibsgroup.org/ubb/Forum17/HTML/000015.html
My story of beating IBS: My Story with IBS
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#14 Guest_B_*

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Posted 03 April 2001 - 04:11 PM

If you can get to a med school library you might be able to look up this article. http://www.ncbi.nlm.nih.gov:80/entrez/quer...8&dopt=Abstract This one is about chronic appendicits.

#15 Guest_Kylie_*

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Posted 04 April 2001 - 02:57 AM

Thanks for all the links B, it has inspired me to start researching again rather than sit back and accept 'this is the way it is and will be'!Kylie





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