Posted 01 April 2001 - 03:52 AM
Yes, I know his site is under endometriosis. I never looked under endometriosis after getting the pictures from the first lap. I wish he had chosen another name for his site. He basically deals with pelvic pain. I found him on the international pelvic pain website. They have a listing of doctors across the country that specialize in pelvic pain. For anyone out there with eno, endowisdom.com is a great site. Their information got me through the bowel prep. http://www.ncbi.nlm.nih.gov:80/entrez/quer...5&dopt=Abstract
So, pain mapping. I spent ALOT of time at the above site by the way. The description of pelvic pain mapping scared me to death. I wish it hadn't and I had done that first. The bowel prep was the worst part. I had to drink a lavage (sp?) solution. It arrived in a plastic jug to which I added very cold water. I had to drink 1 8oz glass every 15 min. I had a very good wonton soup - just the broth - to sip after every glass. I don't think this is quite normal, but all my bowel movement came it seems at once. I have never been so cleaned out. The reason for all this is that they want your bowels to be up and out of the way when they go in so 1 they can see and 2 that they don't poke them inadvertantly. (my weird bowels, I just got my first bowel movement a week after all this.)After that I got up the next morning to go to the hospital. I remember to the point up to seeing the operating lights - and then I remember the tummy pull - and that's all I remember.Now - what actually happens. You are put on a table and tilted just a little to your head so that your intestines slide up and out of the way. You will be put through altered states of consciousness. - Awake is not really the term I would use. As I say, I only remember the tummy pull. - they clean your vagina and numb your cervix locally so that they can put in an instrument to hold the cervix, and thereby your female organs still. They ask you to hold your head up and that makes your lower tummy muscles firm up and they poke through. They do not put in as much gas in your tummy as they would in a normal lap. The doc takes his hand and pulls - and he said I could go home and practice it on myself because that is exactly the same thing he will do - he pulls your tummy up so the gas can go on in. Then he told me that they start the pain mapping and that he could go in and that everything might hurt would be a possiblity. Even that, though would tell something. But the point is to start to touch and see if together, you and the doc can find out where the pain focus is. The whole time for the pain mapping part is 7 min. AND the point is not to try to actually duplicate the actual pain, but to try to locate it. He said he would go in smaller and smaller circles. That there are places they know to look where hernias occur. Now, not every doctor does this. Not one in Columbus even knew what I was talking about. Do your own research to get well. Now I have a picture of my hernia , before, during the mesh fix, and after. I do not see how they found it. He said I kept saying over and to the right. At the base of my round ligament was this slight bulge. It was a piece of fat - rather than intestine that doctors usually look for - that had poked through my abdomnial wall. Dr Onders who fixed it said he no longer uses staples or rivets in females because of the nature of pelvic pain in females. I had asked about no staples because I had heard from another doctor about the fact that they could staple a nerve ... but that's heresay. Hernias are basically holes in the abdomnial wall where things poke through that shouldn't. No relation to endo. Endo. is cells that should be in the uterus that land in the abdomnial cavity and usually cause pain around the period time of your cycle. The cells can range from clear to chocolate brown. No one knows what causes it and your pain does not coordinate with the type of endo - which means you could have lots of pain and just clear cells or no pain and have chocolate brown places all over. Men have been known to get endo if they have been exposed to female hormones, as in after prostrate (sp?) cancer.Adhesions are things that can happen on the inside where scars are on your outside. They are related to endo because you can have both. You can have adhesions that just happen on the inside. They look like stretched pieces of plastic wrap. They have been known to be the cause of pelvic pain.Now a little about pelvic pain. It is it's own animal. Yes, pain can show up in a part of the body that has no relation to it ( I have a friend that her jaw problem showed up in her back) - but it is also possible that a chronic appendix can flar up off and on for years. - There are still doctors who argue this. Do your research. I have written the doctors who write in the journals to see if my problem sounds like it might be a chronic appendicitis.It is SO worth it now. Thanks for letting me talk your ear off. This is only from things I have learned. I have never studied anything medically.