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Disability/social security - has anyone applied?


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#1 SophieUK

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Posted 20 July 2005 - 09:00 AM

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I've had a couple of people ask me recently whether it's possible to get disability living allowance (UK) or social security/disability (US) for IBS sufferers, and the truth is I don't know...Has anyone here applied for disability? Were you accepted? I would love to collect some experiences together both on this thread and on my IBS Tales website to help anyone who is finding it too difficult to work and is thinking about applying for disability.If anyone has an experience to share I would love to hear from you.I've created a section on this on my website here:http://www.ibstales.com/ibs-disability.htm


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#2 The Cat

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Posted 20 July 2005 - 03:14 PM

heyai can't say i've tried. Jools has though but she isn't around at mo. I think also sue knows about this but i thk she's in Norway. If you do a search i think there are several strands on it.

#3 Roo

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Posted 20 July 2005 - 09:59 PM

Sophie - used to work at a law firm for this type of thing. My understanding is that IBS does not qualify for disability. I'm happy to look it up for you, though. Give me a couple days.Roo

#4 Kathleen M.

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Posted 21 July 2005 - 06:42 AM

IBS is not on the list of diseases that are considered typically severe enough to be disabiling.But on every list of those diseases I have seen they always have the "other diseases may be covered if you can prove they are severe enough to keep you from working" sort of disclaimer.So you could get IBS covered if you can show it is as bad for you as something like Crohn's that is on the list. It is just the typical IBSer is not disabled where they typical of other diseases are.K.
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#5 SophieUK

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Posted 22 July 2005 - 02:23 PM

Thanks very much for your replies. I've had a couple of emails from people who have received disability but, as you guys say, they haven't been awarded it through IBS alone. There doesn't seem to be a cut and dried answer though which I suppose is the way it has to be - there are so many degrees of IBS that it'd be impossible to give disability to everyone, and even people with severe IBS often have good days/weeks and so might be expected by the authorities to work. Poor us.Roo - if you can come up with further info I'd love to hear it. Does anyone else have a view to share?

#6 Roo

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Posted 22 July 2005 - 02:38 PM

Sophie - still searching... so far it looks like there is set criteria for disability in the US... Will keep you posted..Roo

#7 lyonskitten

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Posted 22 July 2005 - 04:19 PM

Hi just wanted to let you know that I was found elligible to collect ssi, I am not collecting at the moment however because my hubby make s enough to support us. last month however he was out of work due to a surgery and my benefits kicked back in and got us through it thank God! I also suffer from athritis in the spine, vertigo and acid reflux disease but it was mainly because of the severe alternating c/d IBS that I was elligible. The judge I had was excellent and really did his research. My lawyer really didn't even have to open his mouth. The judge asked me questions and seem to really listen to what I was saying. Also my doctor and husband wrote letters. It also helped that the doctor they sent me to, said it was impossible for me to work full time. So please do give up. It took me two years. Hope this helps.

#8 lyonskitten

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Posted 22 July 2005 - 04:21 PM

sorry! What I menat to say was please do NOT give up!!!!

#9 Jolt

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Posted 23 July 2005 - 01:10 AM

Sophie,I respectfully disagree. "And even people with severe IBS often have good days/weeks and so might be expected by the authorities to work..." However, even though I may have a less difficult day, every other, sometimes, because it has, long term, and adversely impacted my life, a good day, is meaningless. ie. after the first year or two of spending most of the night on the toliet, my sleep cycle is permanently altered. Therefore, I cannot work, even on my occasional 'good days'. And btw there are truly no good days as I still always every day experience some degree of pain/discomfort. So, you see, I don't have IBS, rather, My Life is IBS. Understand?

#10 joolie

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Posted 25 July 2005 - 12:08 PM

i applied twice...got turned down twice...im not even sure if im prepared to put myself through it again...they make you feel like crims Posted Image Posted Image
joolie :)

#11 london_sje

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Posted 10 October 2005 - 09:59 PM

Dear Sophie,Hi! I filled out a form on your website in regards to filing for disability. You may want to read more there.In 2002, I was honorably discharged from the United States Marine Corps for my IBS and GERD mainly. I receive disability compensation monthly from the U.S. Veteran Affairs for it, though it is only at 10% (of my salary as a former Marine). This is in appeals right now as well after my VA representative realized that I couldn't work a steady job, full or part time, in the VA Vocational Rehabilitation program that is provided disabled vets. She encouraged me to do apply for more vet disability as well as Social Security.After all my appeals being turned down (not uncommon for nearly everyone who applies), I am now just waiting for the hearing date. That is the final stage of the Social Security Appeals process. It should be anytime now. This whole process has taken over a year and a half. I haven't worked in that period of time at least. The last time I worked, for two months, my boss pressured--- well, basically asked for my resignation. I was working for the government too then. I suppose she didn't want to deal with any lawsuits or such if she had fired me. After all, she would have done so on the basis of my disability, which I claim in job applications, especially ones for the government. The whole problem with me was that I got sick too much. In the Marine Corps, I was often sick and would have to be sent home from work. (In the military, you can'tcall in sick; you haveto go to work regardless. Then you may be sent to the Doctor, who then sends you home.) I couldn't exercise anymore cardiovascularly without vomiting. If I physically jar myself with jumping, running, and such I end up vomiting. If I vomit, I'm in bed for days. I also couldn't hold my post, working overnight. I had other issues too, which kept me from doing my job as a Marine. I only wish I could have stayed in.I do not have problems with constipation or diarrhea, but have upper digestive problems, including Esophagitis, Duodenitis, GERD, and IBS. I get really bad PMS, been diagnosed with Endometriosis as well, which only agitates stomach problems further. I take two medications right now and have taken up to four. I still see a specialist as well as primary care doctor. My days vary in quality and I can't say any pain, nausea, or discomfort is constant. I think others with IBS find that true too. There are good days and bad. There are days with both good and bad times as well. This is what makes filing a claim so difficult. I still feel guilty about it all and think I should get back to work. I'm not sure how things will turn out, but maybe soon enough I'll know and can share this with you. I don't have great faith in the system though and don't really know for sure if I deserve the help. I've always had a very strong work ethic, so going through with all this is difficult for me.Anyways, I hope this helps somehow.

#12 Cathy1

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Posted 12 October 2005 - 08:24 AM

I have many friends with IBD's (crohns, uc, FAP, etc.) who have applied here in the states and not one has ever been successful.

#13 Gary101

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Posted 12 October 2005 - 05:29 PM

I have one friend with crohns that was eventually successful, but it took him 3 trys and it was a very long battle.

#14 paul762

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Posted 14 October 2005 - 11:54 AM

jools - dont give up on the disability, because my mum was speaking about me to a friendly chap in the citizens advice and he mentioned he had just won a case for a girl to get disability benefit, she even managed to fill in the forms etc. in the c.a.b office which I would never be able to do. so theres hope for us yet!

#15 Cathy1

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Posted 19 October 2005 - 09:33 AM

I agree joolie, it sounds like those that are successful have to apply several times.

#16 dhourie

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Posted 26 April 2011 - 01:00 PM

Hi I am new to this sight, I am looking for any info on getting disability for my ibs, I am sick of this thing! I have already lost so many jobs because of ibs, because I am unreliable! They seem to not care about what I have and only care about the fact that I can't be at work in the mornings because it gets so bad. I am missing work right now because of my ibs. I finally found a job I love and, I am frustrated and don't know what to do anymore it is so embarrassing to go to work with this thing.

#17 toughjourney

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Posted 30 April 2011 - 11:40 PM

Hi I am new to this sight, I am looking for any info on getting disability for my ibs, I am sick of this thing! I have already lost so many jobs because of ibs, because I am unreliable! They seem to not care about what I have and only care about the fact that I can't be at work in the mornings because it gets so bad. I am missing work right now because of my ibs. I finally found a job I love and, I am frustrated and don't know what to do anymore it is so embarrassing to go to work with this thing.

I understand your frustration. I too had a job I loved. Even though it was a desk job (sedentary by defintion), I was missing so much work due to the IBS, and during work, I had to make so many unscheduled bathroom breaks in a days work (bathrooms were public at this job and that was difficult). You should have heard the excuses that I would give my clients sitting at my desk as to why I had to suddenly depart my desk, keeping them waiting for me to return. I was let go of my job as in fired two years ago. I have not worked since. I immediately applied for disability and was rejected two times by someone who never saw me. I then went to a disability lawyer and he took my case. It took a year, and yesterday, I finally had my day in court before a judge. I could tell the judge was really listening to me and my lawyer did a great job cross examing the doctor the court appointed to appear. The doctor didn't show but communicated his opinions about my condition via phone. He was an internal medicine and cardio doctor, and hadn't a clue, in my opinion, about IBS. Then when the judge asked me about my condition, he seemed to believe in me. The judge then asked the "vocational expert" about whether I could do substantial work, and surprisingly (maybe after hearing my testimony), he said no. My lawyer gave a closing statement, and the judge looked directly at me and said, "I find you very credible." In fact, he repeated it twice. I left with my lawyer saying he felt very positive about the outcome. (and he's in court 3 times a week).I tell you this, because even though I was told by many people (on IBS forums; well meaning friends; and even one of my doctors)that those who have IBS "never get approved for disability" , I was determined to try. As a quote from the popular movie, The King's Speech, I HAVE A VOICE! Disability is not for every IBS sufferer, but for those that have it so severe and symptoms cannot be managed regardless of medication, and find themselves unemployable (not your fault), it's at least worth a try. If you are in the U.S.A, you can google "applying for disability" on the internet. I went through an "advocate" who handled my first two applications. Although you can fill out the applications yourself through Social Security and submit them. You will need to have your doctors be very thorough in their medical records concerning your IBS as Social Security will want this information. I researched several lawyers who do nothing but disability cases,but most of them would not take my case unless I was rejected twice. That was okay, as by then I met that qualification having been turned down twice by Social Security. Disability lawyers (a good one) is worth it. They work on contigency and they know how to help you win your case.It may take time, but DON'T GIVE UP, especially if you feel that you cannot hold a job due to your IBS.

#18 ALLCOUNTRYMAN1

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Posted 18 December 2011 - 05:23 PM

I just won my IBS disability case in Va. Got a fully favorable decision from the judge. I had to get denied twice then set up a court date for the judge to hear my case and we won. Took since 2008!!! But Im getting 4 years of back payments now so very blessed. Dont give up. Keep trying cause IBS is real and is a disablity.

#19 BQ

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Posted 19 December 2011 - 04:48 PM

(((((Hugs))))) of Congrats to you!!!! All the very best!
Please remember this is a group of folks seeking support on how to live with and manage IBS. THESE ARE ONLY MY OWN THOUGHTS. IF YOU WANT AN EXPERT OPINION, ASK A MEDICAL PROFESSIONAL.

#20 AIRPLANE

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Posted 25 December 2011 - 01:30 AM

Yes, glad to hear that at least a few people have managed to get disability. I know that there is no way many of us would ever get it but I feel that if enough people did then maybe IBS would get more respect and be taken more seriously- i.e., better drug treatments, being allowed to have more of the needed tests as well as treatments (like for adhesions) that are actually causing it.I also wonder whether one could go the psychological route if the IBS itself wouldn't work. That part of it is as much a problem as the IBS itself in many of our cases- the stress and stigma that go with it.Much as I would hate the idea of not pulling my own weight, I'd go for it if I could. Although at this stage I'd probably end up with a reduced retirement as opposed to disability plus it is VERY difficult to get at the Federal Agency where I work. I know someone who got it after serious heart surgery and heard about how difficult it was and the amount of paperwork involved.





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