Posted 29 March 2005 - 01:52 PM
The information provided here refers to the disease ME. Though we will sometimes call it ME/CFS to help members who are less familiar with the disease to be able to follow our conversations, the information still refers to the specific neurological disease entity M.E.
Is Chronic Fatigue Syndrome known by other names? Some people do refer to CFS by the following names...ME
- Myalgic Encephalomyeltis or Myalgic EncephalopathyCFIDS
- Chronic Fatigue Immune Dysfunction SyndromeWhat's in a name? What is the deal? Is it CFS, CFIDS, or ME? http://www.ahummingb...gyexplained.htmhttp://www.meassocia...ent/view/89/83/What is it?
It is not chronic fatigue, which is a symptom common to many medical conditions. It is a distinct illness that affects the immune, endocrine and nervous systems. The World Heath Organisation classifies ME/CFS as a neurological illness (like Multiple Sclerosis).ME, the medical facts, abbreviated - http://www.ahummingb...ctsssummary.htm
ME, the medical facts, longer version - http://www.ahummingb...edicalfacts.htm
Read this article comparing ME and MS: http://www.ahummingb....com/mevsms.htmWhy are some ME patients sicker and more limited than others?http://www.ahummingb...andbedbound.htmHow common is ME/CFS?
ME affects around 240,000 people in the UK - that's 1 in 250 people. What causes it?http://www.immunesup...rome-causes.htm
ME onset, and possible triggers - http://www.mefreefor...ers.1325.0.htmlHow is it diagnosed?
There are a series of clinical tests that can confirm or rule out an ME diagnosis. Anyone who is suspected of having ME/CFS should have a number of routine blood tests by their GP as well as more specialized scans to confirm the diagnosis. Brief review of diagnostic criteria - http://www.meassocia...view/90/83/1/4/
Tests helpful in making a diagnosis - http://www.meassocia...view/90/83/1/3/http://www.ahummingb...estingforme.htmCommon Myths About ME/CFShttp://www.ahummingb...ythsaboutme.htmWhat course is it likely to take?
The symptoms usually are most severe in the first year or two. Thereafter, the symptoms typically stabilize and then persist chronically, wax and wane, or improve. Some patients partially recover, some fully recover, and others recover and relapse. Current studies indicate that if a patient sees no progress made within the first 5 years of becoming ill, they will most likely not experience a meaningful recovery.http://www.meassocia...view/89/83/1/2/What do I need to know about doctors and ME/CFS? http://www.prohealth...m...rid=77&#-77
AMA's Doctor Finder - http://webapps.ama-a...inder/home.html
Co-Cure's Good Doctor list (listed by country and state) - http://www.co-cure.org/Good-Doc.htmWhat can I do to manage this Brain Fog (cognitive dysfunction)?
Clearing the fog, coping with cognitive dysfunction.... http://www.immunesup...a...in Fog tip/
Cognitive dysfunction in MS - http://ms.about.com/...nitive_over.htmMy relative, friend or lover doesn't understand what I'm going through; what can I tell them? http://uk.geocities....tars/judge.htmlhttp://www.ahummingb...mefeelslike.htmI'm a relative, friend or lover of a patient - what can I do?
Letter to "normals" - http://www.fibrohugs...=...&Itemid=239
Info for carers, family and friends - http://www.ahummingb...s.htm#283486901A Great Essay On Living With Chronic, Invisible Illness:http://www.butyoudon...SpoonTheory.pdfTips on living successfully with MEhttp://www.ahummingb.../helpyhints.htmhttp://www.butyoudon...s_and_articles/Please report broken links to M&M using the PM function or email.
ME patient for the past 9 years
Illness is not something to feel ashamed of. It is not a sign of misfortune or defeat. Suffering is the fuel of wisdom, and it opens the way to happiness. Through illness, human beings can gain insight into the meaning of life, understand its value and dignity, and strive to lead more fulfilling lives. ~ Daisaku Ikeda
In life, it's not the bad things we do that hurt us, it's the good things we don't do. ~ Shmuley Boteach