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Uncontrollable gas


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#21 Tony13

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Posted 04 September 2006 - 10:32 PM

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Hi Tany, I perfectly understand your pain. Is like being a lepper... nobody wants you close. Western culture is flatuphobic, so we must carry this heavy cross on our shoulders.I got into deep depression so I had to go with the shrink (after suffering for more than a year) and got courage to persist and actively look for options to cure/control this disease.I'm about to order a Comprehensive Stool Analysis, as usual Lab Tests don't get a big picture of your overall GI health.I'll post the results as soon as I get them.Thanks for writing. Tony


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#22 newkid1

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Posted 05 September 2006 - 05:51 AM

Hi everyone,I haven't posted for a while, but said I would after my appointment with the colorectal surgeon. I missed my first appointment, but am scheduled to go again on Friday. I was feeling hopeful and positive at one stage there, but this LG really is mentally and emotionally draining, and it is so hard to stay positive. I can't understand how there can be no cure!!!! It makes me think it is largely a psychological problem.I ordered the IBS Audio 100 program and am up to day 26, but this hasn't really helped yet all, fingers crossed it does!!! Anyway,if anyone has anything they want me to ask about on Friday please post back and I will endeavour to get us some answers. I am hoping to have all the tests available to rule out any problem and if that fails to show anything.....well I'm not sure what I'll do....Tony please post back with results, it will be interesting to see if they find anything. Anyway guys, keep your head up, hopefully the answer to our prayers is just around the corner.Take care.

#23 Tony13

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Posted 05 September 2006 - 09:14 PM

Hi newkid,I also considered to go with a Colorectal surgeon, which by the way removed my gallbladder. Please let us know what he says.I've read that anal fistulas,anal fissures or rectal prolapse can cause fecal odor.I jost ordered the CSDA/P from spinelife.com and I was told I'll get the kit in a few days, then in 2 weeks I'll get the results. About the IBS CD, I also tried meditation CDs and DVDs and frankly just relax you, somewhat distract you from your worry, but not very helpful.I wish you good luck with the Surgeon and please let us know how it goes.Thanks, Tony

#24 smelly1

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Posted 05 September 2006 - 09:58 PM

Hey Tony, I also wondered about things like anal fistulas, fissures or rectal prolapse having some role in LG. However, I have had a few different specialists poking around and I don't have any of the above. I have also had a manometry test to test the strength of my sphincter and also an anal ultra sound to look for any abnormalities in the structure of my colon. Both tests were normal.Its very discouraging. Nothing seems to work anymore. If I eat I get LG, if I don't eat I get LG. The only think I am trying to focus on right now is making sure I have at least one bowel movement every day. Has anyone had their pancreas checked? Isn't it the pancreas that releases the digestive enzymes? Maybe we aren't getting our food digested properly....What about the liver, it also plays a role in digestion. Not that I am a heavy drinker but I noticed a few weeks ago I drank a fairly heavy amount of alchol one Friday night, was sick as a dog all day Saturday and then for two days my bowel movements were greyish beige in colour (almost white). Could my liver be malfunctioning?I guess I am rambling, just throwing out thoughts in hopes that maybe something triggers a response.Thanks for reading

#25 flux

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Posted 06 September 2006 - 01:03 AM

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Has anyone had their pancreas checked? Isn't it the pancreas that releases the digestive enzymes? Maybe we aren't getting our food digested properly.
This is clearly not the case.
quote:
Could my liver be malfunctioning?
No.
I am not a doctor, but utilize sources of information not readily available to the public. Some of this information may contradict what you think you know and some of it may sound harsh, but the information is what it is, and you got it here for free. I am just a messenger. Always consult a real doctor.

#26 newkid1

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Posted 06 September 2006 - 04:14 AM

Hi Smelly,I posted on some thread not long ago after a visit to my gastro and the results of a blood test which showed my liver wasn't functioning at full capacity. I then had another test for hepatitis and other liver problems which came back negative and he was at a loss to explain it. He told me to wait a month and have another test then. During that month I started taking milk thistle 12000 complex capsules which are made by Nutra-Life. I bought them from the health food shop. I had been taking them, for about 3 and a half weeks when I had another blood test and that came back normal.....think it must have been the milk thistle. I have a problem when I drink alcohol too, like I feel sick for days afterwards, but maybe that's coz I drink too much!!!! The incomplete evac is definitely a big factor in LG and hoping I'm hoping after seeing the colorectal surgeon, he may be able to help alleviate some of that i.e. find out what is happening with defacography or something....Be interested to see what your results show Tony and I'll post back on Saturday after I get back from my visit....wish me luck!!

#27 Tony13

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Posted 06 September 2006 - 07:35 PM

Smelly:I think Enzyme deficiency can cause gas, as undigested food bits -- not broken down by the enzymes -- get into the Colon, and then the bacteria have a big fest, and their collective waste is foul smelling gas.However, when I was under naturopathic treatment I took digestive enzymes, but didn’t stop the gas. But that’s my case, I read in other forums (curezone) it worked for some. My new gastro mentioned I probably have SIBO (Small Intestine Bacterial Overgrowth), but he didn’t elaborate. In 3 weeks I’ll be tested for Food Intolerance, and probably I’ll be referred to a Nutritionist for getting the right diet to minimize gas without starving.By the way, in my last Liver Chemistry, I had high levels in ALT and Alk Phosphatase, which I blame to the Naturopath’s prescription. He said I had Candida and that it hides in the liver… I frankly will never get back with those quacks, and natural stuff can also harm you…Regarding the anal/rectal issues, I also read (curezone) that some people with fecal odor has these diseases, and got well once treated, I’ll give it a try if the SIBO theory doesn’t work.NewKid: I’ll have the CDSA/P in 2 weeks, and it covers pancreas/liver figures; I’ll certainly post any important results.

#28 smelly1

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Posted 06 September 2006 - 09:06 PM

To Flux .....as always, such insightful posts, please refrain from commenting on my posts, thank you.To NewKid and Tony13, please keep us updated with results of various tests that you are having. Tony - how do they test for SIBO?

#29 flux

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Posted 07 September 2006 - 01:21 AM

quote:
I think Enzyme deficiency can cause gas, as undigested food bits -- not broken down by the enzymes -- get into the Colon, and then the bacteria have a big fest, and their collective waste is foul smelling gas.
There are no "enzyme deficiencies". There are specific malabsorption syndromes, but they lead to other symptoms. Odoriferous gas is not the result of any enzyme deficiency.
I am not a doctor, but utilize sources of information not readily available to the public. Some of this information may contradict what you think you know and some of it may sound harsh, but the information is what it is, and you got it here for free. I am just a messenger. Always consult a real doctor.

#30 Tony13

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Posted 07 September 2006 - 07:05 PM

Hey Flux, You enjoy being the devil's advocate, don’t you? No problem, I think wearing the 'black hat' is necessary sometimes. On the enzymes low level, my Gastro told me… ( he’s a Harvard MD), so why you say a categorical ‘no’. One question, do you suffer from any digestive disorder, or even better, have you found a cure? I’d love to see more ‘proactive’ comments from you rather than ‘reactive’. It’s not my intention starting a war of words, I appreciate some of your comments. Tony.

#31 flux

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Posted 07 September 2006 - 07:44 PM

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On the enzymes low level, my Gastro told me… ( he’s a Harvard MD), so why you say a categorical ‘no’.
He's probably talking about something different. There are specific enzyme deficiencies such lactase deficiency. If one has that and consumes enough lactose, one would get gas, although it wouldn't be odoriferous gas.If one had a disease that caused a global enzyme deficiency, the least of your problems would be excess gas and again odoriferous gas still wouldn't be a symptom of it. The gases involved are produced in small amounts from small amount of substrate. It's purely a function of the activity of the bacteria.
I am not a doctor, but utilize sources of information not readily available to the public. Some of this information may contradict what you think you know and some of it may sound harsh, but the information is what it is, and you got it here for free. I am just a messenger. Always consult a real doctor.

#32 Tony13

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Posted 09 September 2006 - 07:28 PM

Flux,What do you think the foul smelling gas is result of?How to either avoid it or at least control it?

#33 newkid1

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Posted 10 September 2006 - 07:23 AM

Hi guys,Well I had my appt with the colorectal surgeon and he has scheduled me in for a defecography and anal manometry. I have to say I'm not really holding my breath for the results to show anything as I have seen a few posts from people with LG and they have had similar tests, which came back 'normal.'He is going to wait for the results before making any diagnosis, but suggested that if the test revealed nothing, then biofeedback with a trained physiotherapist would the best chance of reducing the IE, and hopefully my symptoms......has anyone tried biofeedback? Did it work, are you any better off?

#34 flux

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Posted 10 September 2006 - 01:39 PM

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What do you think the foul smelling gas is result of?
In general, the gases are sulfur-containing gases which are produced by the action of sulfur-reducing bacteria in the gut on sulfur-containing proteins that naturally escaped digestion. It might be the case some people have more active bacteria than others and that accounts for why there is excess odoriferous gas. (Note this is not the same as have an excess of gas in general. The odoriferous gases are always produced in very tiny amounts relative to the other gases and do not contribute to overall amount of gas.)We don't know if this applies to LGers because in many cases, the source of the gas hasn't been established or even whether there is odoriferous gas present is not clear.You could try reducing your intake of sulfur-containing proteins, but this would be difficult to do.Pepto-Bismol should soak up the sulfur-containing gases and the charcoal undergarment should also do the same. If it doesn't work, one possibility is that the gas isn't coming from the gut.
I am not a doctor, but utilize sources of information not readily available to the public. Some of this information may contradict what you think you know and some of it may sound harsh, but the information is what it is, and you got it here for free. I am just a messenger. Always consult a real doctor.

#35 Rowe2

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Posted 13 September 2006 - 09:10 PM

A doctor once told my dad that some undigested food particles got lodged in pockets in his smaller bowels and that caused the foul odor for him Posted ImageAll I know as for myself, there's times I better be able to get away from my own self...pppeeeeeewww...

#36 stinkin life

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Posted 15 September 2006 - 07:50 PM

Hi Tony13,I have to deal with the exact same things that you are. My life revolves around the fact that my gas is uncontrollable. I am always afraid that I am going to be fired from my job because of my gas. I used to come here and post things all the time, but I just got more and more frustrated by the fact that nothing helped me. Anyway, I know that this won't help you much, but I completely understand your pain. Sometimes it helps me a little bit to know that I am not alone, even though I feel like it. Best wishes

#37 Jimmy26

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Posted 16 September 2006 - 05:16 PM

I totally agree with tummyrumbles, i started evacuating whenever i wake up and the gas seems to dissapear. Even though when i feel anxiety the smell is still there, which doesn't solve the problem much but there is definately less feeling of bloating.

#38 Tony13

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Posted 16 September 2006 - 09:41 PM

Hi TummyRumbles, I agree with you. Evacuating decreases gas volume, but not the odor. I use charcoal undergarment and the LG gets trapped and after lunch it starts seeping out... I have difficulty evacuating in the morning, but sometimes I apply enema after my firt bowel mvmt in the morning and it comes out the rest that I didn't even feel! Do you have an advise on how to control/synch your bowel movmts? I find difficult to stay in the bathroom for an hour... would it matter the posture? I've seen some stalls you put over the toilet so you do it like an 'eagle' as in some asian countries.

#39 Girl

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Posted 17 September 2006 - 08:04 AM

Hey my heroes friends,It's me, girl.. I hope you're doing more better then me, my moral is very down right now..I am reading here you guys did so much checking and nothing can say why nothing in this world can take away the gas problem.I started to think on something.. an old idea of mine, maybe a hypnosis would help us? During this week, during the last and the last before this last week etc.. happened to me quite embarrass things, it seems I can't controll the gaz.. and the people knows I have this problem of gaz and I feel so lonely cuz of this.I have pains in the heart of being so frustrated from this problem, all I want is to be a normal like I did at the age of 12.Then when I said age 12.. At what age the IBS began to you? to me, it began on the age of 12..Maybe something went wrong with the hormones?Before the age of 12, I had here and there problems with gas but NOTHING bad.. like all the normal people, I do remember me, sitting in the classrom and then my stomach started gurgling, I couldn't concentrated, and what hurt me the most is losing my humanity and all the hard work I did, I had so good grades, with the IBS all came to C and D. I am so hurt cuz all this happened to me.And say, if it's a problem of hormones, how I can check it? I just want to understand from where this gas comes???Be strong friend,Girl.
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#40 Tony13

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Posted 18 September 2006 - 09:38 PM

Hi Girl,I can feel your pain, and I think this 'problem' can be much harder for women, specially teenagers. Gas can be caused for tons of causes: gallstones, malabsorption, Candida, parasites, food intolerance, and so on.So far, I haven't read hormones can cause gas.I've hear from other forums that hypnosis doesn't work, but definitely psychologic help can help you to strength your character to be able to cope with the social rejection you inevitably will suffer in this flatuphobic society. Look for help, and you can always count with us, we're a help group. Take care. Tony





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