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#894131 Code of Conduct

Posted by Jeffrey Roberts on 30 May 2013 - 12:06 PM

Ideal IBSgroup members:

  • Ask questions to help learn about IBS
  • Welcome new members to the community
  • Share their opinion with others in a considerate way
  • Respect confidential information and don't transmit other members' information outside the IBSgroup community without their permission
  • Enjoy healthy debate on the forum but stick to the argument rather than making comments directed at an individual
  • Check in on other members, make sure they're okay
  • Share personal experiences without trying to provide too much medical advice
  • Give feedback to IBSgroup about improvements, questions, or comments about the community


  • BQ, rellybelly17, TexasJan68 and 15 others like this

#102541 LINDA's Calcium Info

Posted by cookies4marilyn on 31 July 2005 - 04:56 PM

Linda - This is for those who keep asking about the calcium, I have brought up your original post - if there is anything you want to update or change, then just post this entry and cut and paste it into the reply, and I will remove this section - I am going give this topic link to those who inquire. If you want to make a new thread yourself - please feel free and I can delete this one - I am wondering, since we have so many inquiries about the calcium - would you or the folks here like me to make this a featured thread at the top? Just let me know! ~ Marilyn Posted Image===========================================This is what has helped me for more than 7 years (since 1998) with almost daily attacks of urgent DIARRHEA. Calcium is known to be constipating so if you are that IBS type do not take it. Here is the what and how to take the calcium information if you suffer from DIARRHEACalcium is an OTC supplement we all do not usually get enough of. No Rx needed to purchase this.When you take calcium about 40% of the dose gets to the bones the rest is eliminated in our waste. The calcium goes to the intestines and soaks up excess fluids and binds them together and they are gotten rid of in our waste.This is a process that can be continued by taking the calcium carbonate on a regular basis thus giving a more formed BM.There is calcium carbonate which helps us with DIARRHEA and there is calcium citrate which is more easily absorbed by the body and gets to the bones.A lot of the calcium supplements contain a 2 to 1 ratio of calcium to magnesium. Magnesium is not helpful for us with DIARRHEA only causing more in most cases. So do not purchase this combination. It will only make things worse.The dose to take is different for everyone. I must take 3 a day one at each meal and it does not make a difference if I take it before during or after just take it regularly.The most success has come for using any formula of calcium supplement that is like Caltrate 600 Plus with Vitamin D and Minerals in the purple and white box. I hope this will help anyone wishing to try it and I am always here to answer any questions for you. I have a lot of feed back form many users.There are other things to consider. If you take any other meds check the side effects and also check with the pharmacist to see it taking calcium will interfere with you other medications and how you might take them.The only side effect is at the beginning of taking the calcium you may have some gas or indigestion but this usually goes away soon after taking a regular dose for a few days as your body adjusts to the added calcium.Starting with 1/2 tablet doses with each meal will lessen this problem and it may be enough to control the DIARRHEA attacks without making you constipated. Constipation can be a problem so be careful not to take too much.I had my gall bladder removed in 1976 and from that time on I had suffered urgent attacks of DIARRHEA. Went through a lot of test but nothing else could be found.I took many of the meds for bowel spasms and cramps over the years but nothing ever seemed to help. I started to take a calcium supplement to help prevent bone loss in later years and from the first day I felt relief. I was pretty much a prisoner to the bathroom or had to go without eating to be able to leave the house.I must take 1 tablet with each meal and the DIARRHEA does not come back if I miss taking it I get DIARRHEA.The way it works is the calcium carbonate it a binder and when you take it only about 40% of the calcium gets to the bones and the rest is gotten rid of in our waste. During the process it gets to the intestines and soaks up excess bile and water and helps give a more solid BM. Now that you have no gall bladder the bile fluid goes directly into the intestines and causes irritation and DIARRHEA. The calcium carbonate soaks this up and no more DIARRHEA. It works great for a lot of us and you just have to take the calcium regularly and do not miss. I started with Caltrate 600 Plus with vitamin d and minerals and it does seem to make a difference in the ingredients of calcium... This one seems to do the best job for most. You can buy other store brands of calcium with the same ingredients that work just as well but they need to have the same ingredients. I get Member's Mark Brand from Sam's Club you get 300 tablets for 8.99.Let me know if you need more help.You won't be sorry if you try it. I suggest starting with 1/2 tablet with each meal at first this may be enough to control the diarrhea if not in a few days up the dose to 1 tablet with each meal. The side effect is constipation so if you feel it coming on just cut the dose.It is important to use a calcium that is as much alike as the Caltrate brand. Let me list the ingredients:Vitamin D 200 IUCalcium 500 or 600 MG ( This should be calcium carbonate form)Magnesium 40 MG (No more than this amount because magnesium will cause you to have DIARRHEA but because calcium is constipating the magnesium helps to counter act that effect)Zinc 7.5 MGCopper 1 MGManganese 1.8 MGBoron 250 MCG.There are other brands with the same ingredients so get something as close as you can. Then start with 1/2 tablet with each meal and in a few days if this is not enough to control your DIARRHEA then up the dose to 1 tablet with each meal. If you feel you are becoming constipated the cut back on the dose. It has been working since the first day I started taking it July 1998 and as long as I take 3 a day (this is the amount I must take it may be different for you) I remain DIARRHEA free. No cramps, bloating or DIARRHEA.The dose you take with each meal is not the dose that is helping you at that meal it is the prior ones that have time to works their way through you system to soak up excess bile and water in the intestines.It also works for those of you who still have the gall bladder.It is worth a try.Take Care,Linda edited to change years of success!!Posted Image===============================
  • Jayne.F, mk_ruah, cckw and 8 others like this

#908595 Read this if you have pain under and beneath your right ribs

Posted by Zhr on 17 December 2013 - 04:21 PM

I was diagnosed with IBS-D three years ago after a sudden onset diarrhea. The last year, I have been having pain under my right ribs just at the lower edge of the right rib cage, along the edge of ribs on the rights side. My pain is sometimes dull and sometimes stabbing. When making a sudden move like twisting towards back or if I bend sideways to the right, I sometimes get a stabbing pain unexpectedly. At times, it feels as if there is something under my ribs. Often my entire upper right quadrant is sore as if I had a bruise from something that hit me. Sometimes I can localize the pain at a specific spot, right at the edge of my right ribs sometimes it is more diffuse but still in the general area. It almost feels as if there is a tumor growing in the area. These sypmtoms have been so relentless and so specific that I was convinced that there was something wrong, perhaps with the liver, biliary ducts or gallbladder or even the head of the pancreas. However, my recent MRI came up normal. The reason I am posting this is to let others who have similar symptoms know that despite the unmistakable, persistent, very specific and localizable pain in that area there may be nothing serially wrong with you. I know that I am not imagining my symptoms. This pain may be due to subclinical low grade inflammation of the large bowel at the hepatic flexure extending towards the right side of the traverse column or a low grade inflamation due to a lingering infection of the large bowel or the Sphincter of Oddi (check out Sphincter of Oddi dysfunction).   Subclinical inflammation does not show up in MRI or even colonoscopies and pill endoscopy. If you are having similar systems don't assume the worse automatically but go get yourself checked. As a side note coffee aggravated my symptoms. I hope this helps. Feel free to ask me any questions about my symptoms. Wishing you all the best.

  • IndianRopeTrick, Gen888, dizzle1981 and 4 others like this

#883579 After decades of IBS-D, I am finally IBS-D free!

Posted by skip1000 on 08 January 2013 - 12:19 AM



This topic isn't about my suffering w/ IBS-D, but rather what I have done to become totally IBS-Free. Best of all without any drugs.


A short background, I was a sufferer of IBS-D since birth due to Hirshsprung disease and had part of my large intestines removed. I lived for decades suffering from IBS. Everything on the planet caused IBS then. Vegetables, fruits, milk, fats and oils, raw foods, over-eating, etc. Even not sleeping enough or sleeping on a bad bed or sleeping the wrong way caused D. I felt very held back, fearing to go on any long trips bc of IBS. Even short commutes to school or work can sometimes get intolerable. On a good day, I had gas, maybe even lots of it. On a bad day, it’ll be IBS-D, and it’ll go on for days or even weeks. Twice in my life in my twenties, I had it so bad, I literally had clear soups only for 3 months straight, each time. Everything I ate then triggered a BM. Embarrassed to talk about it, I kept it mostly to myself and close friends and family. It affected my life, my health, my confidence in myself, my sleep, my emotions… literally everything. I felt totally bound by my problems. As I got older, things only got worse, which is to be expected from a normal person’s perspective.


Over the years, I have tried all kinds of medicines (western, eastern, acupuncture, meditation, etc.) but they only address the symptoms and couldn’t prevent another bout of IBS. Also, they didn’t always work.


It wasn’t until a few years ago someone mentioned to me that my digestive troubles was probably due to lack of enzymes. I didn’t even realize that my condition was called IBS. It was then that things started to change. I discovered enzymes (that I take w/ every meal) and probiotics, and things got better. Then I discovered that taking calcium pills could improve my condition as well. Over the course of the years, I found out that making my overall diet more alkaline would be better for my digestion. Things improved tremendously, but I was not IBS-D free yet. If I ate something slightly greasy, or too acidic, then back to the loo I go.


It wasn’t until one day, by a stroke of great luck while shopping in Amazon, the site recommended alkaline drops to me. Curious and seeing the alkaline connection w/ the rest of my diet, I decided to buy a bottle of the alkaline drops to try, since it wasn’t expensive. I also bought a copy of the book “Reverse Aging” by Sang Whang. My life was never the same again. I have found the root cause of my IBS-D suffering all these years – alkaline deficiency.


Through this book by Sang Whang and other research I’ve done, I’ve realized that the human blood is generally alkaline at 7.4 ph. However, most of our modern diet consists of acidic foods (such as proteins and fats). Any proteins that go undigested becomes uric acid. What do you need in your body to neutralize the acids? You need alkaline minerals. How does this relate to IBS-D? The enzymes are produced in the small intestines, which are used for digestion and absorption of nutrients. Enzymes are also alkaline, which means the body needs a supply of alkaline minerals to produce the enzymes. If the intestines lack enzymes, indigestion (such as gas, bloating, and diarrhea) occurs. Another function of the enzymes is to neutralize the stomach acids. If the foods from the stomach, combined w/ stomach acids aren’t neutralized, indigestion will also occur... and IBS-D.


To further complicate this system, if your body is using all of its alkaline minerals to neutralize acids in the bloods such lactic acids (from working out) and other acidic wastes, acids from food and drinks (sodas [ph 3.5]), where will it get any more alkaline minerals from to produce any enzymes? The body has already depleted its supply of alkaline minerals and has become a candidate for IBS-D.


To solve the alkaline mineral deficient body, you will need to maintain an alkaline diet consisting of lot of vegetables (green ones are best) and supplements (such as probiotics, enzymes, and alkaline water supplements). The other thing to do is to decrease your intake of acidic foods (not including citrus [vitamin C is alkaline after digestion]). Eliminate softdrinks from the diet. Sodas w/ a ph of 4 will require equal amounts of food/drink w/ ph of 10 to bring the overall ph back to a 7. So you see, everything in the universe equalizes. Hope you can understand the crash course in the body’s ph and it’s effect in IBS-D. There are plenty of books and articles out there that discusses alkaline diets.


Since discovering all of this in the last 3 years, I have been totally IBS-D free. I’ve only introduced alkaline water into my diet for 1 year now, but that to me made the biggest difference. In the past 6 months, I’ve had diarrhea maybe only 3-4 times for short durations and it’s mainly due to exhaustion and bad foods. That is something any normal person experiences. Also, my BM in the past year since using alkaline water is the best that I’ve ever had in my life, and I also don’t get gassy just because. I never knew what it was like to feel normal in more than 40 years until now. These days, I eat very healthy, but I also broadened my diet eating foods I would never eat before. I eat fried foods regularly now in moderation (just cravings), but I would not have dared to eat it in the past. I eat fruits and vegetables all the time now, but I could never have done that even 5 years ago before I discovered the truth. There is hope. It worked for me and I know it will work for others like me.


Plan of action:

1. One 10 oz cup of water first thing in the morning w/ 3 drops of alkaline drops. Take w/ 1 probiotics pill. Do not eat any foods.

2. If you don’t eat right away, have a second cup of water or tea w/ another 3 drops of alkaline drops. Again, do not eat foods w/ alkaline water. This is probably all you will need – total 6 alkaline drops in a day. This is how much I use these days.

3. Have your alkaline meals w/ an enzyme pill.

4. No sodas. Drink non-carbonated or non-acidic drinks.


I do not recommend drinking alkaline water w/ foods only bc the stomach should be acidic when you eat for normal digestion. My personal experience when using alkaline water w/ foods was that food in the stomach digested so slowly (probably due to lack of stomach acids), I developed nausea and heachache. When the alkaline water is consumed on an empty stomach, it will get absorbed quickly and buffer the alkalines in the body for later use, w/o side effects. That is most ideal from my experience. You can drink alkaline water whenever the stomach is empty, but for me these day, 6 alkaline drops in 2 glasses of liquids would be enough for a day’s use.


If you work out, taking electrolyte capsules will help reduce the lactic acid buildup. Adding a few alkaline drops into your water (again, use on an empty stomach) would help. This goes into the big picture to prevent IBS-D during your intense workouts. It used to happen to me all the time after a workout, but rarely these days. I did look into blogs and found that getting D during races is quite common, so again, there is some connection there. Avoid acidic electrolyte drinks. The don’t prevent cramping and the acid is terrible for someone w/ IBS-D.


Whether to use alkaline drops or ionizing machines is personal choice. I own both, but personally, I prefer the drops due to its low cost and 6 drops per day can last for months on a bottle. Ionizing machines are expensive to own and maintain.  I can also travel w/ the bottle, and keep separate bottles at different locations, such as at work.


I realize that every person is different - what works for me might not necessarily work entirely for others. This is where it’s important to listen to your body. If your body reacts w/ certain foods, it is either bc the there is a problem w/ the food, or something is missing from the equation, such as the lack of enzymes. For example, while citrus fruits and apples are alkalizing once digested, getting them digested can be a challenge w/o enzymes in your system. Also, each person’s body might produce more of one type of enzyme and less of others. Lacking lactose enzymes means that it can be difficult to digest dairy. Know what enzymes you need would help you w/ the different foods you eat.


As w/ any problem in life, one must first identify the problem to be able to solve the problem. Once you find out the root of the problem, you will likely your solution. Luckily for me, I was able to discover that in this lifetime. I went through so many year of desperation, wondering why I had to suffer like I did. I had fantasies that somehow one day, I would be normal like other. I kept hoping for the best for some breakthrough medicine or supplement, until finally I just accepted my situation and made the best it. Problem is that as I got older, my digestion only got worse, even though I was more careful w/ my diet. Fortunately, through part diligence, part persistence, and part dumb luck, I was finally able to discover the truth about my own body, mainly by listening to it. Now, I can say that I have been IBS-D free for a year, and hopefully I will never have to look back to my past.  From the period when I first actually identified myself as "IBS-D" in mid-2009 (and started using enzymes) to the period I started alkaline water in beginning of 2012, I'd say it took a rather short time for me to go completely IBS-D free.  Hopefully, those of you reading this will also find the root cause of your digestive problems, and then find your permanent solution too.


Feeling liberated at last, I wanted to share my experience.  I used to dream about having normal digestion, now I'm living it.  I feel like I owe it to the community to those who are suffering and desperate like I once was.  At one time, my day was consumed figuring out how to plan my day such as where the nearest toilet was in any emergency, or what to eat to not get sick, and what to actions/medicines to take if I got sick.  Now my days are just focused on my tasks and not on my digestive problems bc I don't have to worry about it. I feel like I can travel anywhere and eat just about anything. I can eat, I can digest, I can absorb, feeling healthier and more energetic. I put on a bit more weight since the change and look better. I feel much more confident. I can openly socialize and have normal relationships, and not have to discuss my problems since I don’t have it anymore. I can go out to eat w/ friends and even be a foodie. I am no longer bound like I was before. I can do more and I feel great. Even if my discovery can prevent sufferings for 1 other person, I would be very happy.  If this works for you, please share your experiences.


Good luck and wish everyone all the best.

  • Cameracat, sky512, gingerb and 4 others like this

#1328753 How I recovered from IBS/SIBO

Posted by richgel999 on 26 February 2017 - 02:54 PM

As a teenager my town's water supply got poisoned with raw sewage. Many children in town got sick, including my brother and I. After a few days of vomiting I was brought to the hospital. I remember it taking me months to recover. 
In the following years I took several courses of antibiotics (after dental surgeries), and I had several incidents of food poisoning. My doctor thinks all these events, combined with lots of work stress due to "crunching" and a bad diet, contributed to me getting IBS and then a very nasty case of SIBO: Small Intestinal Bacterial Overgrowth. (As a side note, my brother later developed Crohn's Disease.)
I'll never forgot when my gut finally "gave up" in early 2013. I was at work, finishing up a project, when it felt like a volcano erupted in my stomach. I had tons of upper GI gas and belching, followed by a massive wave of pain in my small intestine and stomach that lasted 4-5 days. After this event my gut never worked the same again.
After this occurred, I would experience random SIBO symptoms, especially after eating foods containing sugar or starch: lots of very uncomfortable upper GI gas, followed by inflammation/pain in my small intestine or stomach. I developed constipation and food intolerances. During this time (2013) I had the worse seasonal allergies and GI pain of my life.
I went to several MD's and one GI specialist, but all they could do was diagnose me as having "IBS". They prescribed Prilosec, with a recommendation of trying Probiotics. I learned that most MD's were useless, if not downright dangerous when it comes to GI conditions.
In early 2014, in on and off gut pain, and weakening, I quit work to try and focus on healing. I remember slowly getting better in 2014, but I was still in a fragile state. I tried the SCD diet and 24-hour SCD yogurt (along with other yogurts) with no success. It seemed no matter what I ate, I would have upper GI gas followed by severe pain like 1-2 times a week. But over time, I remember getting better enough to work at home again.
Not realizing the true state of my condition, I returned to work at another stressful job in Texas, and by mid 2015 I had all the symptoms of leaky gut, SIBO, and I had developed food intolerances to corn and milk proteins. I also developed gastritis in my stomach. I was in a lot of pain, and in serious trouble.
During this time, I experimented with several supplements and diets. Low LODMAP helped, Colostrum made a difference, and Slippery Elm "gruel" reduced the pain and helped my motility. I used liquid Melatonin, and was prescribed Prilosec to help heal my stomach.  I remember having severe constipation during this time. I used small doses of 5-HTP and "Iberogast" to help keep my gut motility up and reliable.
At this point, I knew I had to stop working for a long time and just focus on fixing my GI tract. I moved back to Washington State, so I could go to licensed ND's. (There are no legal ND's in Texas.) I took the hydrogen/methane breath test twice, and on the 2nd test I was diagnosed with SIBO.
To start my long road of recovery from SIBO, I followed a modified form of the Siebecker treatment protocol:
I first went on an elemental diet for 2 weeks, which made an immediate difference. I actually felt great on the elemental diet. I then started a very basic low-FODMAP diet of basically organic chicken+carrots, Date Lady Date Syrup, unsweetened coconut milk, Manuka Honey, cashew butter, and small amounts of dates. I ate these foods because they didn't trigger SIBO symptoms, and they gave me energy.
After the elemental diet, I took several courses of herbal and pharmaceutical antibiotics (Rifaximin/Xifaxan). The first 2-3 courses didn't work (and if anything made my symptoms worse), but the 4th course did. Rifaxmin is very expensive, but it worked. On my last and successful course of antibiotics, I took a bunch of herbals (oregano oil, Allimax, Neem, Berberine, and Lactoferrin) combined with Rifaximin. I basically decided to nuke my gut biota from orbit, and then rebuild it once whatever bacterial in my system that was slowly killing me was gone. It was me verses the bacteria, and I was focused on winning. I knew this was a dangerous option, but I had no choice because nothing else I tried worked.
After the ~6 week course of combined herbal+pharma antibiotics, I then continued to eat 4-8 tablespoons of Date Syrup every day for several months. Date Syrup is strongly antibacterial and antifungal. It was also a source of calories and "safe" carbs for my body. I remember doing this for 3-4 months. During this time, I had a hot coconut milk beverage containing lots of l-glutamine, bovine colostrum, and fish collagen once or twice a day, sometimes sweetened with date syrup.
I was still in seemingly random GI pain/inflammation, but the SIBO symptoms were gone. I could "safely" eat food again and not develop large amounts of upper GI gas/belching and massive pain. I remember still being constipated.
I knew at this point, after all those antibiotics, that I had wiped out almost all of my healthy gut flora. It was now time to rebuild. I stopped consuming anything that was known to be even slightly anti-bacterial.
I first started slowly introducing small amounts of fermented foods, such as raw fermented sauerkraught. Even the tiniest speck of sauerkraught would cause a lot of "normal" gas, which was a good sign. I also finally found a combination of probiotic strains that worked for me: Mutaflor (a friendly strain of E-Coli I had to import from Canada), VSL #3, and Safeway Probiotic 10X. I started making SCD-like 24-hour coconut milk yogurt using VSL #3 or Probiotic 10X, which helped a lot. Note that most probiotics I tried were not helpful.
I remember as my gut biota recovered I felt the most amazing feeling in my large intestine: It was like 10,000 little points of "healing" in my system. I could literally feel my gut biota redevelop. The feeling was strongly anti-inflamatory. I then realized that we all take for granted what it feels like to have a healthy/functioning gut biota. You'll only notice the difference when it's gone. I'm now extremely attuned to the feelings from my gut.
Still, my gut was fragile. I also started taking lots of prebiotics: I started with Inulin, then my doctor introduced Arabinogalactan, along with Lipotropic Complex. I eventually switched from coconut milk to lactose free milk in my 24-hour yogurt and my daily drink. I was able to very slowly reintroduce small amounts of starches, then eventually lactose (which is actually a prebiotic). I'm now able to drink real milk containing lactose again, but it took over a year after the antibiotics to get to this point.
I still have to consume around 5-6 tablespoons of very strong 24-hour probiotic yogurt every day, but now my gut hasn't worked this well in decades. I can eat almost anything I want now, which is both a blessing and a curse. All SIBO and IBS symptoms have been gone for one year. It is definitely possible to recover from SIBO, but it's a lot of work.
List of supplements that helped me:
- L-Glutamine - 5-10 grams/day. Feeds the GI tract, helps rebuild the gut lining.
- Colostrum - I buy big tubs of it, because the capsules are too small. 5-10 grabs/day. Eat it like a food. This calms the immune system, acts as a prebiotic, and helps rebuild the gut lining.
- Fish Collagen - 1 scoop/day. I found that supplements that helped your skin look better seemed to help your gut, too. I noticed an immediate improvement to my gut once I introduced collagen.
- Red Reishi (Dragon Herbs) - Took this for a few months after the antibiotics. Made me feel significantly better. Calms the immune system. 
- CBD - Anti-inflammatory. Helped with GI pain after SIBO flared.
- SAM-e (50-1600 mg/day) - Took this before/after the antibiotics. This helped my liver and boosted my neurotransmitters. I noticed I had to take much more SAM-e when my SIBO was severing flaring. I think whatever bacterial was in my system was producing toxic metabolites which were severely bogging down my liver.
- Liquid Melatonin - This was like an instant pain reliever for my stomach when I had gastritis. When I had gastritis I took up to 20mg/day.
- Betaine HCL - I will never take this stuff again. I believe taking this contributed to my gastritis. If you do take HCL, always take as little as possible. 
- Digestive enzymes - Never made any difference, and I'm leery of this stuff's effect on the gut lining. 
- Iberogast - Massive gut motility booster. It's VERY strong, and I found it somewhat irritating. I preferred 5-HTP.
- GastroZyme - After the antibiotics I took several 2-3 week course of GastroZyme, which was intensely healing to my GI tract. You take as much as you need to turn your stools green, then keep taking this dose for a few days/weeks until your gut feels slightly irritated, then you stop. Keep taking courses like this until you no longer need it. Note that GastroZyme is a weird supplement - it can be either very healing or slightly irritating. Overall, this stuff is amazingly healing for the GI tract when used carefully.
- Probiotics that helped: VSL #3, Mutaflor, Safeway Probiotic 10X
I only took Mutaflor and VSL #3 for a couple months after the antibiotics. Both are very expensive.
- 5-HTP - Took small doses (10-50mg) after every meal to boost gut motility.
- Pregnenolone - I developed early symptoms of Adrenal Fatigue while ill, and this helped. I took 5-30mg/day, off and on as needed.
- Adaptogens - "Gaia Adrenal Health - Daily Support". Adaptogens like Rhodiola will help your body deal with the stress until you can heal. Don't take continuously, try a cycle of 7 days on 3 days off. Don't take longer than 1 year, and if you develop insomnia stop taking adaptogens. Many adaptogens are very gastroprotective.
- Integrative Therapeutics Lipotropic Complex - My stool tests showed that I was not digesting fats well, so my ND introduced this product which seemed to help.
- Real licorice, licorice tea, and licorice extract - Helped heal my gastritis. I found all brands of DGL to be basically useless, because the active component has been removed. I used several courses of real licorice.
- Aloe 80 Organics Stomach Formula - Helped heal my gastritis and relieved pain. This was the only aloe containing supplement I found that actually helped.
- Slippery Elm, Marshmallow - Make into an oatmeal-like gruel. Don't take the dry capsules, you must premix it with hot water first. Eat it like a food. Helps normalize motility and rebuild the gut lining.
- St. John's Wort, L-Tryptophan - Useful to keep your serotonin levels up. I noticed my serotonin levels dropped like a rock as my gut health declined. (This makes sense, as most of your body's serotonin is made in your gut.) Serotonin levels and gut motility seem strongly correlated.
It can be helpful to develop one or two "Fallback Diets" while recovering from antibiotics, in case you go too far and reintroduce complex foods too quickly. For me, this fallback diet consisted of eggs, meats, sauerkraut, chicken, chicken soup, etc. The GI tract heals very slowly. "Safe" fallbacks diets are good for morale, because you know you'll always having something safe to eat while you heal.
I found that if I optimize for my skin health, that my gut seems to work better too. If I stop eating probiotic yogurt, my acne flares and my gut function declines. There seems to be a strong correlation between acne and gut health, at least for me.
Two other things I found helpful: Infrared sauna, and an earthing sheet.
I strongly believe that medical science is still in the dark ages when it comes to GI conditions and how to properly treat them. "IBS" is a useless diagnoses. I think, for some people, wiping out some to most of your gut biota and "regrowing" it is the right course of action. It's risky, but so is living with an unhealthy gut biota. In my case, my gut microbiota was slowly killing me.
Finally, after the antibiotics I started exercising, 3-4 times per week. I first started with walking, then fast walking, and built up to running and weight lifting. Exercising helped a lot, and I will continue to exercise for the rest of my life.
-Rich Geldreich
Seattle, WA

  • Fromthegut, cazbomb, ashyam86343 and 4 others like this

#1318730 The ABC's of Chronic Constipation (aka IBS-C)

Posted by flossy on 20 January 2017 - 10:44 AM

- Updated on 8/22/2018 -


Observations and suggestions to my fellow chronically constipated friends:


Hello everyone! I have been an active member here for a few years now and just wanted to pass along some pertinent information that I've learned about IBC-C, aka chronic constipation (or CC for short). I will be going over everything from the “just eat more fiber” theory to surgical procedures, and covering everything in-between that comes to mind. Keep in mind I'm gonna be honest here and not sugarcoat stuff.


For those who are new here:


Fiber: Most doctors will suggest to eat more fiber to help with your constipation. I grudgingly agree that this should be tried first and foremost, and if it works consider yourselves off the hook. Honestly? You people are REALLY lucky..... But if that doesn't work? This is very common with the CC crowd. I'd say about 80 to 90% of us here find more fiber, both soluble and insoluble, just makes us more constipated. Extra fiber is out of the question for me. I took a doctor-recommended fiber supplement for awhile and it was like trying to pass tree branches, in slow motion. Screw that. So if after a few days extra fiber doesn't work, try no extra fiber at all. Zilch. (Easy enough.)


Water: You can also try drinking more water, but for me? Drinking more water did nothing for my constipation and just made me pee more. Not good when you're at work all day. In theory lots of water should probably help, but for a lot of us it doesn't do squat.


Colonoscopy: If you have been chronically constipated for some time now I think it's important to get a colonoscopy, to check for things like blockage, diverticulitis, certain types of cancer(s), whatnot. If you get put to sleep for the procedure your colonoscopy should be a breeze, and I'm not exaggerating. Always ask BEFORE making an appointment if they put you to sleep or just put you on twilight drugs. If they use just twilight drugs? Call someone else, as it's much better to be out for the procedure. 


Now to the actual bowel moving process:


I suggest waiting until the very last minute (if not second!) to go. Sitting on the toilet and trying to go is not a good idea at all. Good way to get hemorrhoids, or to make them even worse. I also think waiting until you can't wait any longer to go is a good idea because one gets better evacuation that way.


Very important:


Supplements: If you're currently not taking a supplement every day to help you go to the bathroom, you really, really should. Sad to say but chronic constipation rarely goes away on its own. Don't be stupid, find something that works and take it every day. I tried to tough it out for a long time – probably a year or two - and got horrible hemorrhoids (grade 4, the worst you can get) from trying to go, as nothing much would move inside me. (Note: You can also get rectal prolapse from CC.) I've had two hemorrhoidectomies because of this and recovery afterwards is quite painful. I've tried just about everything and normally take & recommend Dr. Schulze's Intestinal Formula # 1 (I take 2 or 3 regular strength pills daily).




Note: The ^above^ link has just about everything I've ever tried to stop my CC.


BTW, I'm not paid to plug I.F. # 1. I'm coming up on three years of using it now. It's all herbal and the formula is made by a real doctor. Also, I can eat just about anything I want, as long as I take I.F. # 1 daily.


Now you might be thinking, “'Fluffy,' don't you worry that by taking laxatives every day your intestines won't work right after awhile, or you'll get addicted to the laxatives?” ...Something of that nature? Honestly? NO.


'Is chronic use of stimulant laxatives harmful to the colon?'

Click on below link to read (it's short):


My intestines already don't work right and barring a miracle, probably never will again. It's the ugly truth. I don't mean to be a bummer but I've read very few success stories about CC. Usually? With the “I'm cured!” stories? They are still taking a supplement, something to help them go. If you still are taking a supplement and say that you're cured, you're really not cured. What you are is successfully treating your condition. Big difference. Cured in my book means you eat & drink what you want. You're not constipated anymore. You have at least one regular BM per day. You don't take ANY supplements, pharmaceuticals, special drinks/whatnot at all to help you go. You poop like a normal person. You had IBS-C for a long time and now, for whatever reason, it's gone. That's cured.


I think the best hope of an actual cure for most of us is either a series of fecal transplants and/or fasting for at least a week on nothing but water. Or both.


What else?


Chronic fatigue: Don't be surprised if you get really tired after your BM's, and thirsty as all hell. And cold. I always do. “Turn up the heat!” Chronic fatigue is a very common side-effect of CC (as is depression). I usually chew nicotine gum, take super B complex vitamins and half a Sudafed a day for energy. I'd take ephedrine if I could, but it's banned here in the U.S. Go figure. Ban something that is natural and push pharmaceuticals on us. It's all big business. There isn't exactly any ephedrine lobbyists out there now, is there? 


Using the bathroom at work: I have read many stories here of people who do not want to use the restroom at work for their bowel movements. I used to be like this too, so much so I was giving myself enemas every morning before work to try to get as much ick out as possible. I almost always have incomplete evacuation (which is normal for those of us who have CC) and would have to go again sometimes at work. You know what? You gotta try to get over it. GO AT WORK. Bring in something to read every time you go like a cell phone or magazine to get your mind off of it. Listen to music if it helps you relax while you're going at work. Giving yourself enemas before work and/or trying to force yourself to go at home before work so you don't have to go while you're at work can get crazy - it's not good. It would also probably be a good idea to sit down and have a brief but serious discussion with your employer and tell them you have IBS and will need to use the bathroom more often than most. I've brought a note in from my doctor at every place I've worked at since I've had CC.


Gut flora imbalance: I probably should have added this earlier, but I have never been formerly diagnosed with IBS-C. Regardless, I believe the root cause of my problem (and many others of us here) is an imbalance in our gut flora. Either an overgrowth or undergrowth of one of the many bacterium inside us. You'd think our brains would just say, “Hey... Wait a minute.... somethings not working right in there” and adjust itself/send signals down to our intestines so they'd fix themselves and run smoothly again, but sadly, no - this is just not the case. CC sometimes seems like a generational curse to me. But in reality for me it is simply a case of bad genetics/hereditary and the result of eating (or drinking) so-called health food: I got my CC from changing my diet from regular American food to about two or three months of raw fruit and vegetable smoothies, made in a blender. Yes, health food ruined my intestines... It's rare, but it happens. 


Overeating: I really hope if you have IBS that you are not overeating, as it just compounds your digestive problems. Think. Be smart. Eat to live, don't live to eat. 


Surgery: Lastly, I have read a few stories here of people who have had major problems with their intestines and/or rectal area. Supplements may work for the short-term, but after awhile? Nothing works. Some people get rectal prolapse, get surgery, then get rectal prolapse again. Some people are told they have twisted or narrow intestines.... Stuff like that. If it gets THAT bad, and for some it does, when nothing much wants to come out anymore no matter what, then one must consider surgical options. (Important note: Even having part of your colon removed doesn't always help.) I know most of us don't like to think about getting a stoma/colostomy, but when you've tried everything, nothing seems to work anymore, you can barely function and your doctor says that is your best option, then you gotta do what you gotta do. There are also other surgical options that I'm not too familiar with, so that's all I'll say about that.


Thankfully, most of us with CC won't need to get surgery if we take a supplement every day to help us go.


If you have any questions/comments you can post 'em here, on someone else's thread - or - you can always start your own thread if you want to. Don't be shy.


“We are all searching for that magic pill.” - Nuffa


Good luck to all!

From your IBS-C cyber pal,


  • annie7, Fromthegut, HDelRey and 4 others like this

#1089089 Finally! A product I can recommend

Posted by flossy on 16 May 2015 - 02:55 PM

Note: This post was updated on 2/18/2018. 


Hi everybody!


I have had chronic constipation for over five years now, give or take. I am also a frequent poster here. Those of you who know me from this board know I’ve tried just about everything to help remedy the situation (see my list on bottom of this post). I’ve been waiting a loooooooooooooooooong time to be able to recommend a product to everyone. Well, I found something I like now (and no, unfortunately I don’t get paid for this, nor any perks for the recommendation): Dr. Schultze’s Intestinal Formula # 1.




You can find it right here:




Also there is an Intestinal Formula # 1 maximum strength, which I use from time to time too:




His website:


I’ve been using I.F. # 1 almost 3 years now, every day, and I gotta say usually it's pretty easy to go now. I still cannot evacuate fully like I did in the good old days before IBS-C (that drives me crazy), but these 100% all herbal pills work well. Simply put, it softens up my BM's and I like that!


You say, “Can’t I just buy a stool softener and try that?”


Sure you can. I used them on & off for many months, but even though it was a bit easier to go it seemed like I couldn’t stop going….. and in SLOW MOTION. I don’t like that.


Are these pills I’m recommending miracle pills? No. But I would give them a very good rating, BETTER THAN ANYTHING ELSE I’VE TRIED, and I’ve tried just about everything.


Hmmmm…. What else do you need to know here?


I waited a long time to try these pills as I think Dr. Schultze’s products are a bit pricey, but worth it.


BTW, Dr. Schultze is a real doctor and he certainly seems to me that he knows what he is talking about, especially concerning constipation. He’s been in business for years & years.


If you wanna read more about his views on chronic constipation, you can read his book here, free of charge (RECOMMENDED):


A few random notes:


The Intestinal Formula # 1 took several days to kick in and my intestines felt really weird the first week or two, but after a while things started settling down inside.


You can always take Beano or simethicone/anti-gas pills to help with any gas you might have. This is all discussed in his book and to be expected.


Dr. Schultze recommends starting with one pill per day. Currently I’m taking two or three regular strength pills every day, during my main meal of the day (NOT afterwards).


Thank heavens, I finally found something that works well. (Hey-now!)



Quick read:


"Is chronic use of stimulant laxatives harmful to the colon?" 





"The Great List of Remedies that I have personally tried"




I wanted to put all the stuff I've tried for my IBS-C that I can remember. 


Here we go:


Different kinds of magnesium - magnesium doesn't work for me but does for most. Recommended.


Stool softeners - work


Aloe gels - didn't work for my chronic constipation (CC) but definitely soothes the intestines. Recommend for that (I still take two gels a day).


Peppermint pills - didn't work for my CC but might have given me fresh breath (or at least fresh burps tongue.png ).


Probiotics - tried several different brands and types. I do **NOT** recommend probiotics for people with CC. Most of the time they will make the condition worse, but not always. 


Senna - works


Franklin Formulas - these were tried by bunch of us on this board. For both IBS-C & D. They barely did anything by themselves. I don't think they are available anymore.


Olive oil - tried drinking this a few times a day, every day. Didn't help.


Soluble and insoluble fiber - tried both kinds several times, they both make about 80% of us on this side of the board (CC) - including myself - even more constipated. If extra fiber clears up your CC? Congratulations, you are off the hook. If not? Fiber is a menace.


Apple cider vinegar - I heard if one takes a couple of teaspoons of this, mixed with water, once a day, it will help with one's CC. Well, it worked a little bit, but not enough by itself for me. ACV has a LOT of other uses. Google if interested. P.S. I still drink it in the mornings.


Colloidal silver - tried a tablespoon a day, didn't work for my CC. I still take it though, it's a good source of energy, etc.


Erythromycin - You need a prescription for this. It did help with my CC. Recommended somewhat.


Water, and lots of it. Didn't do a thing except make me have to urinate more. And speaking of urine...


Urine therapy - Drinking my own urine for about a week didn't help with my CC. Yes, I will try anything. And speaking of anything...


Fecal transplants (aka FMT's) - I tried two of these myself, both rectally and with pills. Neither helped at all, but I did them incorrectly. However FMT's do show some promise of a real cure, especially for those with IBS-D... but I don't have that. The IBS-C FMT cure rate (30%) is not nearly as high as the IBS-D cure rate (80%), but I'm thinking that both these figures may be inflated?


Miralax - I took this on and off for months at a time. It's definitely better than nothing, I'd rate it about a C+ as far as its effectiveness. Very popular/somewhat recommended.


Prune juice - Just a small cup of this will give me diarrhea. It works for most people who suffer from CC, but not everyone. Recommended.


Chicken soup, garlic & onion style - I have a bowl of my chicken soup pretty much every day, it definitely helps with my BM's. Recommended. The ingredients and directions are here, if interested: http://www.ibsgroup....the-tummy-area/


Alcohol - Several people have posted after a night of a few drinks? No CC the following morning. Even though I've been clean & sober over 21 years now? Hell yes I'd drink a beer or two a night to get rid of this. So I had one beer. Result? More constipation the next day (sighs). Definitely worth a try though.


Dr. Schulze's Intestinal Formula # 1 - I've been on this for almost 3 years now, it's my fav. All natural, herbal, made by a real doctor. And I can and do eat anything I want on it. Recommended.


Enemas - Definitely worth trying, recommended. They make me have to urinate like crazy afterwards so I really don't like giving myself them, but they definitely help.


Vegetarianism - I've read quite a few success stories here with going vegetarian. It's definitely worth a try.


Prayer - I had to add this to the list. I don't know anyone who has been cured of CC through prayer, including myself. I feel weird saying this as I am a Born Again Christian, but it is the truth. And yes, I still pray all the time to be cured and it's still a no go - at least so far. Still? Worth trying.


Fasting - I did my first 7 day fast a couple of weeks ago. Just water. It temporarily cured me of my IBS-C, but then it slowly came back. It was a great experience and I still have health benefits from doing it. I will do another one sometime in the future when I have the time. Definitely recommended. If interested: 'The Fasting Cure' by Upton Sinclair. This book is 107 years old. Free to read on PDF right here: http://apache2.pum.e...sting/upton.pdf


I think both FMT's and fasting have the best chances of us actually being cured. Intestinal Formula # 1 is best at treating the condition successfully. My two cents.


Good luck everybody! smile.png

  • Betty Wilson, LuvTheLoo, mikan92 and 4 others like this

#888153 Honesty has ALWAYS been the best policy, for me...

Posted by CrimsonRegret on 13 March 2013 - 06:51 PM

Anyone I've been in a relationship with, I was just really upfront about it. I figure, trying to hide it really made no sense. 


I've only ever lived with ONE person I was in a romantic relationship with and I told her right away that this would be the case with me. That every so often it just flares up and I need ot kind of live in the bathroom. She was very understanding (at least in that aspect I won't get into the details of how it ended) but see it was better to just be up front. 


Now I live with two male roommates. My best friend ever and his brother (who I despise). 


Anyway, I just have to share a bathroom with my friend (me and him both have bedrooms upstairs) and at first I was a little awkward about telling him until my first attack where I just had to flat out be like "You know what, I'm having an attack and I am just going to have to be in the bathroom for a while." 


Now me and him have been living together so long he's rather used to it. I am curteous enough to give him the same space. If he is having a problem (He doesn't have IBS) but needs the bathroom due to indigestion of some kind I just am understanding about it. 


The way I usually put it with my relationships/roommates is that everyone poops, everyone has their issues, and if we can be adults about it then it'll just be better. I haven't really run into anyone I was dating, or living with who teased me about it, or made rude comments. Then again, I might just be lucky that the people I've dated and lived with were very understanding. Or it was because I was so upfront about it and kind of "owned" it that there really was nothing to be mean about since I'm already aware of my own issues. 


Honesty would be my advice for anyone who is concerned about this. It's worked with several other issues I have as well. If you tell the truth right away then it doesn't look like you were trying to hide something. If the person has a problem with it to a severity of them not liking you over something as trivial as that, ask yourself if you really need to be with a person who can't understand basic human needs. 

  • rellybelly17, Popuri1911, Daniel82676 and 3 others like this

#792383 Choosing an Online Support Group

Posted by Jeffrey Roberts on 10 May 2010 - 04:39 PM

Your online support group checklist When you're diagnosed with a health condition, you can't help but feel alone sometimes — but you don't have to. If you want the feedback of someone who knows what you're going through firsthand, an online support group could be your answer. Joining a support group is a good way to find comfort, encouragement and information from others who are going through or have gone through what you're experiencing. In some cases, that's the only way you can feel like you're being completely understood. If you would rather not attend meetings, feel too shy about speaking up in person, want to remain anonymous or simply can't find one in your area, then consider joining our online support group. It's convenient, free of charge and only takes up as much time as you want. You'll be able to review all of our discussion threads without being a member. Before you join, take time to review what members are talking about and how they interact with one another. Use this checklist to satisfy yourself that our support group is worth your time — and your trust.
  • Our group is linked and are members of recognized national health organizations. We are linked to by some major health organizations such as the Mayo Clinic, WebMD, and we are members of the American Self-Help Clearinghouse and the American Neurogastroenterology and Motility Society,.
  • Our group is moderated in a professional manner by long-time members. Our moderators are actively patroling online group abusers (such as those who monopolize conversations, use profane language or insult or dismiss other members) yet still allow healthy conversations to flourish without interference.
  • Group guidelines have been established. Guidelines, Terms of Service and Help menus include information about starting discussion threads, language and tone to be used and information on how to express concern over another member's lack of adherence to these guidelines. Our guidelines show that thought and consideration have been put into how the group operates.
  • Our group is not funded for a specific commercial gain. Hosting an online support group isn't free. Someone must be paying for the hosting, functionality and technology behind the online group. Our group discloses who sponsors it. Members will never be faced with unwanted advertising for a particular product through postings or through email.
  • Your anonymity is guaranteed. When you post or reply to a post, none of your personal information will be displayed. If anything, your user name or screen name will appear but nothing else. We always recommend to be careful that you don't give away personal information inadvertently when posting or replying.
  • This group does not try to replace your doctor. An online support group should never replace your doctor. Members should never recommend that you go off treatment or change the treatment prescribed by your doctor, even if that member has had a positive experience with another method. If you do find interesting information posted on our website, do ask your doctor but don't assume that what worked for one person will work for you. That's for you and your doctor to decide.

  • Rosemary Killgour, rcmedsupply, Patricia mary and 3 others like this

#1215553 Viberzi (eluxadoline) now available

Posted by ZenDada on 22 March 2016 - 12:01 AM

I'm completely cured on Viberzi.  35 years of explosive watery diarrhea 10+ times a day.  I was on Robinul and Lomotil 6 times a day with modest relief so long as I avoided salad and coffee.  But the pain never went away, and I had accidents at least once a month.  


Now I can eat anything I want.  I usually poop a firm stool once a day at a predicted hour (after I wake up and long before I leave for work).  Even if I feel like I have to go, I can hold it for a long time!  


No urgency.  No accidents.  No pain.  No diaper bag.  No missed outings with friends.  No planning trips around bathroom stops.  The only side effect is that I feel slightly high for an hour after I take it.  My insurance covers it with a fax from my doctor to BCBS.


If you have not tried this drug, do it.  Now.  IBS-D is a thing of the past.  I am an EX sufferer of IBS-D.  At 60, I am finally just a normal person like everyone else.

  • jaumeb, vanilla_bean, Athan and 3 others like this

#1195482 New tab: Overeating and IBS

Posted by tummyrumbles on 26 January 2016 - 05:26 PM

Hello it's me again. Any chance of a new tab called "Overeating and IBS"? There's not much on overeating on this forum. It's possible that overeating could be the main cause of IBS for some people here, especially the Leaky Gassers. It was for me. Eating smaller portions resulted in a drastic improvement for me evacuation and gas-wise and it would be good if there was a permanent tab warning people about overeating. 

  • pau, pammy2665, Donna Rae Bracey and 3 others like this

#1191802 Viberzi (eluxadoline) now available

Posted by JonSnow on 18 January 2016 - 08:25 PM

I have been on this medication for 1 week, 100mg x twice daily.


Short version:

It definitely firms up the stools.

I need to take it longer before I can say with any certainty how it affects pain, gas, urgency, bloating, etc.

I suspect it is less constipating than other drugs I have tried such as Immodium, Lotronex, and Methscopolamine Bromide, but not 100% sure yet.


Longer version:

My intent was to stay on a safe diet the first week and let the Viberzi build up in my system before experimenting with unsafe foods. However, my safe diet is high in protein and low on fiber and produces solid BMs. Therefore on about day 3 I was getting constipated and had to add fiber to my diet at a pace higher than recommended, to get things moving. I have experienced a lot of gas and slightly uncomfortable intestinal pressure off and on the last 4 days. I don't know if that is because I haven't adjusted to the increased fiber, or if it's due to the Viberzi. My BMs seems to be headed toward regularity and everything has been solid so far, no diarrhea. I think this next week will give me a much better idea about this drug's benefits and long term viability.


My soapbox:

Get to your GI and try this drug! I believe this is the very first drug in the US to be designed specifically for IBS-D and FDA approved for both men and women. I've been waiting 15 years for a drug! Why isn't everyone trying it and reporting results? I see TONs of posts about people feeling frustrated, hopeless, and desperate. I don't mean to belittle anyone's feelings, they're certainly legit and I've felt all those things many times. It just bugs me to see all those posts, and to have tracked this drug for 2 years, and now I see a whopping 2comments about it in a month. Who knows if Viberzi will work, but everyone needs to at least try it. Hopefully it will make enough money that companies will invest more money and research into additional drugs. Ok, that's the end of my soapbox:)

  • AIRPLANE, gramx3, ZenDada and 3 others like this

#974065 How I have CURED & CONQUERED my IBS-C after 21 years of suffering

Posted by FinallyFree on 23 August 2014 - 11:35 AM

Quick answer:


An alternating mix of Magnesium CITRATE and Linzess / Linaclotide / Constella.


My story:


I am a 37 year old guy who has been suffering from IBS-C for 21 years. Symptoms have been constipation, excessive gas / flatuence, depression, bloating, social anxiety, back pain, dizziness, fatigue, brain fog, severe straining and incomplete emptying.


Needless to say, this crippling IBS-C has had a severely negative impact on some of the most precious years of my life.


I have literally tried it all:


- Gluten free diet
- Modulon
- Propulsid
- Digestive enzymes
- Acidophilus
- Fennel
- Pepperment Tea
- Laxatives
- Resotran
- Metamucil
- Low fat diet
- Dairy free diet
- Meat free diet
- Drinking lots of water
- Smaller meals
... just to name a few. Nothing worked.
The only thing that ever worked on occasion was Zelnorm and / or drinking coffee.
Then, about a month ago, I discovered Magnesium CITRATE and Linzess / Linaclotide / Constella (is just becoming available in Canada). By using an alternating combination of these (145mg Constella one day and then 6 Magnesium Citrate pills the next day), I have had incredible relief and feel better than I have ever felt in 21 years.
If you're like me, you have been browsing the internet for answers and you'll do anything to stop the pain and get your life back. I have been browsing this very forum for many years anonymously searching for answers. I swore if I ever came up with answers, I would post it to help others.
I can't promise anything but I can only say that a combination of Magnesium CITRATE and Linzess / Linaclotide / Constella has been a miracle cure for me.
If you are suffering from IBS-C as I have been, I highly recommend trying Magnesium CITRATE first.
If that doesn't work, top it up with some and Linzess / Linaclotide / Constella... and get your life back. 
I have CONQUERED this awful affliction and taught my bowels a lesson once and for all!
If this story helps even one person out there, then it's worth it.
Thank you and God Bless.
May 13, 2017 update:
I discovered a dietician who has changed my life:
The key items I learned from her:
  • By taking 2 Magnesium Citrate capsules (150mg x 2) every night, I am having a BM every morning!
  • Up to 450mg daily in capsule form is 100% safe and is not a traditional laxative. I have confirmed this with Audrey (the dietician) and my family doctor.
  • You still need some fiber too, and straight from a dietician who specializes in IBS-C, the fiber you want is SOLUBLE (NOT INSOLUBLE). I get my fiber from Steel Cut Oats, white chia seeds and frozen blueberries every morning. YEAST-FREE sourdough bread is also a safe option.
  • I have also been following the FODMAPs diet to a degree and have learned that the "Os" are the worst for IBS-C. Garlic, onion, wheat and yeast are our worst enemies! 
  • High fructose corn syrup is also another trigger and can be found in pop and ketchup
Sorry if my initial title was misleading, I was so excited to find something that works, I had to share it with all of you. I have not cured my IBS-C but I am managing it very well.
Since taking 2 Magnesium Citrate capsules (150mg x 2) every night, eating the right SOLUBLE fiber and avoiding garlic, onion etc, I have not had to use Constella / Linaclotide at all.
The IBS Dietician, Audrey, lives in Edmonton, Alberta (Canada) but will use technology such as Skype or Facetime to reach out to anyone in the world. I highly recommend her!

  • Angelk, snoopk1, Guineagirl and 2 others like this

#887693 Heartburn/Gastritis/Esophagitis/ pain in head,neck,chest Nexium

Posted by jn1285 on 06 March 2013 - 04:32 PM

I experienced a pain with GERD/Heartburn in September 2012. I was sitting at my desk at work after a small lunch and all of a sudden my ears had a weird ringing, my head and brain seem to be having a stroke and my entire left side of my body went numb. The ambulance came and said my blood pressure had dropped low and I started to feel clamy/cold every 20 minutes. My EKG in the ambulance was normal and by the time we got to the ER, I had no more episodes but was scared and thinking I was dying. I went home after 11 hrs in the ER. I had to walk around the living room all night because every time I lay or sit, the pressure would build up and my chest around my heart would hurt and my brain/head felt like it was having a stroke. I went to a cardiologist the next day and they did an Echo Cardiogram on my heart and it was normal and fine. The cardiologist said it was possibly my heartburn and gave me 2 samples of ACIPHEX. I took it and it seemed to work like instantly! I scheduled an appointment with a Gastro Enterologist doctor and told him my GERD/Heartburn history: 
(for 20 years I drank hard liquor every weekend but I also ate really good foods, veges and fruit, I ran 2 marathons and lifted very heavy weights in the gym for 20 years and ate very spicy foods all the time and was taking Ibuprophen for 20yrs for muscle aches and an Aspirin/Ibuprophen everytime I knew I was going out drinking so I wouldn't get a hangover. I also took numerous multi vitamins/minerals, bodybuilder protein powders, creatine, nitric oxide tablets and gatorade 3x a week before I worked out in the gym. I would have occasional heartburn from doing all those things and I stressed allot. I was diagnosed with GERD when I was around 25 years old and given samples of NExium 20mg. I would only take it when I ate something very spicy.)
In Sept 2012, the first Gastro doctor did an Endoscopy and diagnosed me with Gastritis Non-Acute and gave me a RX of Omeprazole 40mg once a day. It did nothing or very little. I still had chest pain/pressure for the next 3months. I had stopped drinking heavy and eating anything spicy or lifting heavy weights but I started to feel back to normal during the holidays and started drinking again a little and lifting heavy weights. Then in January 2013, I started to get throat or esophagus feeling like it was swelling up after working out or eating dinner, on top of the chest pain and pressure in my chest. I then went to another Gastro Specialist doctor (Dr. Barrientos ParkPlaza) and he decided to do another endoscopy to see if the first doctor missed something. This endoscopy revealed I had Esophagitis and still Gastritis in my stomach. He prescribed me Dexilant 60mg to take once a day. The Dexilant worked great and I started back to eating some greasy foods and having a few beers and would only do 1 exercise of heavy weights per workout. 
Then 3 weeks ago i felt really good and ran my first 5 miles since 5months ago, but had to do most walking because I kept feeling my stomach acid splashing into my throat. AT night I would keep hearing my ears ringing and experience tinnitus. 2days later I ate a small microwave dinner at work as I was leaving and jumped in traffic to go to the gym. At a traffic light I felt the same stroke/chest pain and my head felt like I was suffocating and need to burp but couldn't. I also felt a rush in my bottom like I need to use the bathroom but could not. I took some GAS-X to try to burp, 1 Dexilant and one ANASPAZ Rx that I was given by the first Gastro Doctor to relax my stomach if I had spasms.
I knew it was my GERD acting up again  I drove myself to the ER and the did another EKG and blood pressure. Both were fine but my temperature was 99.7, a little bit high and I could hear my heart pounding in my ears. Here we go again! I felt like I was dying again. The ER referred me again to a cardiologist because they said my GERD/Heartburn has no connections with my head feeling a dull pain and pressure in my neck.(Wrong!)
I went to my last Gastro doctor and told him what happened and he said maybe my dad's history of a stent in one of his neck veins was happening to me. He also said the pressure pain in my neck and head was not related to my Gastritis/Esophagitis.
The cardiologist did an UltraSound on my neck Carotid arteries and a TreadMill stress test. Everything checked out fine and normal. I had him check my Thyroid Gland by hand and asked him if it was my gallbladder or spleen but he said no.
I could not eat anything other than fruits and vegetables for 2 weeks because anything else (meat, milk, cereal, yogurt,etc) would make my stomach acid to get agressive and cause tremendous gas pressure and my throat would feel like it was closing up. My head would have these headaches all day and very painful after anything goes in my stomach. I lost all hope. I thought I had a tumor or even cancer and I felt like I was slowly dying. I was scared to sleep everynight. I could not even go out in the field with my coworkers as a law enforcement officer because I would get shortness of breath if we did anything with force. 
Finally after losing 10pounds and could not eat anything but fruit and veges, I went to a simple General Practice PCP Doctor Demetrus Green. He was the first to use an old stethoscope and and listen to my lungs, heart and chest. He touched my thyroid and glands which all was fine. He said that my HeartBurn/GERD/Gastritis/Esophagitis was soo bad that it was putting pressure on my VAGUS NERVE that runs along your spine. Thats what was causing the headaches, fever chills during those stroke feelings moments. The PCP said the inflammation caused by my stomach acid can cause your throat to feel swollen. He prescribed me NEXIUM 40mg for 2 weeks once a day. After just 2 days of taking it I have been healing up! A simple doctor in a small shabby office is my miracle. I looked it up and found Nexium 40mg is a PPI that turns off the acid in your stomach to allow your stomach lining and throat lining to heal. It also has medicine in Nexium that aids in the healing of inflammation of your esophagus so it doesn't put pressure or inflame your VAGUS NERVE also.
After 2 days of Nexium 40mg, I am burping allot but it is allowing the pressure out. I tried meat for the first time and had no problem. I will now have to stick to a bland diet and small meals for a while and no alcohol and no weight lifting until I heal 100%.
My doctor also told me to eat foods with probiotics so I bought some KEFIR milk and ordered on AMazon some: Heartburn Free ROH10(with natural orange) that says it can help heal heartburn together with your meds, D-Limonene, 1000mg (with natural orange) and Mastic Gum. I will take these natural stuff together with my NEXIUM and change my diet. 
Folks , hearburn, GERD, gastritis, esophagitis can make you feel like your life is ending and cause pain in many  areas in your body. Nexium 40mg is a great cure!
Update April 4, 2013:
2 weeks after just taking Nexium 40mg once a day, I was still having bad rushing headaches after every meal. My doctor told me I possibly was having H Pylori symptoms and gave me : 4X a day Amoxicillin 500mg and 2X a day Clarythromycin 500mg, also still Nexium 40mg. The first three days of taking these antibiotics was great and all of my heartburn, gas bloat and headaches and dull neck pains went away. The 2nd week of antibiotics, seemed like they all stopped working. I went back to the doctor 2 weeks ago again! He no said I may also have problems with food not emptying in my stomach quick enough causing it to sit in my stomach and cause bloat and Vagus Nerve pain (Headaches, neck pain) so he prescribed me Reglan/Metoclopramide 4X a day 30mins before each meal, all together with all the antibiotics and nexium. I was popping 11 pills a day and all they did was ease the heartburn a lil. I stopped taking the antibiotics last week and just did Reglan/Metoclopramide 4x a day and nexium and occasional D-Limonene natural orange pill. The Reglan or something made me feel jittery and nausea. I had severe jaw pain, a burning feeling in my left arm pit and across my heart on left side that scared me. This occurred mostly as I stressed/worked hard as I am taking a motor apart or working hard at work but I try to not lift heavy or stress.
This week I started to have bad itching eye lids, arms and hands every so often when I feel gas/bloat and need to belch. I looked all this up and google says the itching is caused by H Pylori. So last night i took sum antibiotics and woke up much better, spo I will get back on my antibiotics and stop the Reglan cause i am afraid of it and continue Nexium 40 mg 1x a day and start this new natural DGL Ultra licorice chew tabs. The Reglan and AntiBiotics combo started causing stomach acid to come into my mouth at night and my front teeth started to crack! I went to the dentist in an emergency to see why my teeth was brittle and crack lines showing and they said acid was eroding my enamel and causing black plaque to form. The Dentist cleaned my teeth and said it only eroded the enamel a little and said it was caused by me grinding my teeth at night. I never grinded my teeth in my life and had to start sleeping with a mouth guard. It had to be that damn Reglan so I stopped taking it and told my doctor and he said stop using it immediately! I been praying allot and taking walks every 3 days which helps me belch and feel better. I read that H Pylori can cause these problems/symptoms (even though i was tested twice negative for H pylori months before). I will go to a random gastro doctor in a week to get tested just for H Pylori to see if this is truly the cause to my misery!
End April 28, 2013
I was recommended to go see a 30 year veteran of Gastroentorology named Dr. Gossett in Houston Tx and he was a joke! He sent 3 new students he was teaching in my room and told them to take my notes. I explained for 30mins to an intern all my problems and then Dr. Gossett came in last minute and did not even hear my full diagnosis and just said I have IBS! He then said he had a wonderful pill to take and it would all go away. It was Anaspaz, the same damn medicine another gastro doctor prescribed me in October 2012 that never worked! I never went back to the fool.
May, 2013
I was still experiencing problems with gas/bloat after putting anything in my stomach and now my throat would feel like it was swelling up inside everytime after any food or drink. i was surely feeling like i had thyroid issues or cancer issues in my neck, it was that painfull. It seemed worst in traffic as I sat 40mins in my truck every morning going to work and going home. Once every week I would have these "attacks" like my ears popped or filled with air, my neck would get really stiff and then my head would feel like I was having a small seizure, but I know it was my stomach issue because i also would feel like farting at the same time but couldn't. I was beginning to feel depressed again and it took over my personal life like I felt I was slowly dying or had some disease that no gastro doctor could find. I looked up a 5th gastro doctor here in Houston with good qualifications, was well educated in gastro and that was an african-american, because I figured maybe he could relate to my pain/heartburn/gas issues. I found Dr. Daniel Ball, and took a bag full with : amoxicillin, clarithromycin, omeprazole, reglan, dexilant, nexium, orange peel pills, tums, pepto bismol, anaspaz...and several documents from the previous 4 gastro docs. he looked at me and said "please put all that stuff away and lets talk about how i felt now." He said i had IBD and I got upset and told him to not give me that general #### about IBS! he said that all those other doctors were just giving me "placebo' meds because they all only worked 2-3 weeks then stopped. Dr. Ball said, yes I may have had heartburn issues in the past but the nexium was actually keeping acid reduced, he said the swelling "glubus sensation" i was feeling in my neck, the attacks of gas not escaping properly was all caused by two things: 1. irritable bowels 2. my mind/brain not allowing my stomach/bowels to relax and work properly. I thought this man was saying I was causing this in my head and thought this was ######! He said I also had "AeroPhagia" which is when someone swallows too much needed air when they eat, drink or speak. He prescribed me Librax or CHLORDIAZEPOXIDE/CLIDINIUM CAPS. This medicine has antispasmatic meds and also anti-psychotic meds in it to relax a person mind (like taking a Zanax). I have been taking this twice a day, after breakfast and after dinner. I would also take 1 of my old prescribed Nexium 40mg during lunchtime at work to get me through work. AND OH MY GOD, THE LIBRAX OR CHLORDIAZEPOXIDE/CLIDINIUM meds works! I now only take this meds after I eat something and feel like my body is having the gas/bloat/stiff neck/headaches/seizures symptoms and it would go away within 10 mins! However this medicine makes you VERY SLEEPY which I think is what my body needed. I guess years of stress, weightlifting, drinking, and putting my stomach thru months of acid reducers, maybe my inside of my stomach (Gastritis and Esophagitis) has healed and now I just needed meds to control my IBD issue which caused my gas/bloat/stiff neck/headaches and occcassional chest pains during stress.
My depression is going away and I am gaining back weight. I was a 187pound sexy buff looking black male but I have lost 15 pounds of muscle/weight and everyone keep asking me why I lost soo much weight in my body and face!
Being on Librax, I started to go back to the gym 10-15mins and lift very light weights. I would be light headed after the first 2 times but went home and relaxed and take my Librax. Now I go in the gym and work on mechanic work on my old cars and only feel a little bit to non of dizzyness and chest pain but not life-threatening anymore. As of today June 2, 2013 I only take 1 Librax a day and ocassionally 1 Nexium 40mg. I never prayed soo much over a year in my life feeling like I was dying at 38 yrs old and in good shape.
People, stress really does destroy your insides, I am a witness.  
July 2013:
Was doing pretty good since my last update but now allergy season and dry grass has rolled in and my sinus has been acting up. I have been having constant post-nasal drip and the drip has been burning my chest in one spot. Then here we go again, I have had trouble sleeping because the neck pain/stiffness is coming back, flushing or rushing feeling in my head and feeling like a seizure/stroke is about to come on 1-2-3 hrs after I eat! These episodes started to happen like numbness in my hands, neck swelling, shooting pains in my fingers and feet and need to deficate but nothing comes out, once every other day and I am scared to be alone but I press on. I read online that an ENT doctor is good to go see. I went to an ENT doctor in Katy, Tx named Dr. Sycamore and he put a small throat-scope with a camera and light thru my nose and down in my throat. He noticed my voice-box had edema (mucus and a lil inflammation), and he said the inside of my nose was purple and inflammed and said that was chronic rhinitis. He prescribed Veramyst nasal spray. I told him about my GERD and he said that I maybe developing Laryngopharyngeal reflux (LPR) which is when stomach ACID is coming up in my throat and kinda into my nasal areas. He said only a Gastro doctor can test for that or even better a Laryngology doctor can monitor acid coming in the throat. The Veramyst was very expensive so I got generic Fluticasone which I have been using but it burns my throat when I first use it, so I have to drink lots of water to wash it from my chest. I went online and found the connection to sinus/drip and GERD in a website from a doctor Kurt Barrett in Michigan. He is very good and says the ACID silently comes up in GERD patience called atypical GERD or SNERD. Dr. Kurt Barrett recommends increasing your PPI intake to keep acid down in the stomach. He says its the acid that is causing numerous heart palpitations, sinus, post nasal drip, vagus nerve response and many more. I have started taking Nexium 40mg morning and night and 1 Omeprazole 40mg at lunch. I have been a little better but now I also have been trying a ADVIL SINUS ALLERGY pill that helps with 'nasal swelling' and it works but is also kinda hard on my stomach. So now I will be taking more PPI's and allergy/sinus pills. I will also contact Dr Kurt Barrett in Michigan and I think you can pay online to have a personal consultation. I will also be going to my Gastro Doctor, Dr. Ball of Houston tomorrow show him my new ENT info and see if he says 'my new connection of sinus/post-nasal drip and GERD' is bullcrap. Lol. If he does, then I will be dropping him also! Lets see. 
Update July 15, 2013:
I told my current doctor about my ENT discovery and he totally disregarded that notion about Post-Nasal Drip bothering my IBS or inflamming my throat. I am still having symptoms of bloating, a permanent burn sensation around my heart area, numbness in my left hand, and shooting pains in my gut and neck. Gastro Dr. Ball now prescribed me Amitriptyline 50mg because he keeps reinterating that it is IBS and stress causing all my symptoms. I asked him about also doing something about keeping the ACID from coming up in my throat area and he didnt seem too concerned about that but I begged him to at least give me a RX for Dexilant 60mg which he reluctantly did.
I tried the Amitriptyline 50mg that night and I was soo sleepy in the morning I missed work! The second night I took it, I woke up at 2am shivering cold and shivering soo bad I thought I was going to have a SEIZURE! My blood pressure was either very high or very low and I had to simply calm down in bed and sit up and watch TV until I fell asleep.
I vowed never to take that meds again, so now I just take 1 Librax (anti-spasm/ anti-anxiety) in the morning to keep me calm, 1 dexilant 60mg for lunch and 1 Librax at night to help me sleep. Now I have noticed my speech is becoming slurred and my left side face is numb like a stroke but I dont think it is that.
Update July 18, 2013:
I was still feeling these weird IBS discomforts, my jaw and side of face started to feel numb and have some night chills. I took my blood pressure one night when it happened and noticed my blood pressure was 150/100 (medium high) then I calmed downed and checked it again, 142/83 medium high. I went to my basic Primary doctor and he said YES IBS causes all those symtoms and because I was having allot of stress in my life (spousal problems, selling my home, I maybe loosing my job and looking for another one, and a court case I am fighting), he explained to me that my internals are HIGHLY stressed even though I appeared fine in the face because I am a STOIC/military like person. He demanded I go on vacation so I took 4 days off and drove out of town. He also prescribed me a mild High Blood Pressure/Anti-Anxiety RX but I never got it filled because I am taking way too many meds now. I went on vacation and did fine until the 3hr drive home. I had soo much discomfort and chest pain/heartburn around the heart area and neck shooting pains, my wife had to do all the driving as I took a Librax to calm my stomach and anxiety and 1 Dexilant to keep the acid down. I was miserable the whole way.
Now I am also using Gaviscon liquid heartburn medicine after breakfast or lunch and a sip going to bed. I read it coats the whole esopahgus and stomach and calms the inflammation/soreness in those areas. It actually have been helping allot!
I also tried 1 session of yoga and 1 session of Accupuncture because I am at my WITS END with getting rid of this problem. I have been calming myself down, not stressing for anything and reading the bible often to keep destressed. It all have been helping a little bit. The Accupunturist also told me to try Enzymes (Beano) and it has helped me burp really good to relieve pressure. But all the IBS pains comes back after it dissolves. Also they told me to eat only fish and chicken, no red meat and cooked vegetables and now heavy food. My bloats have become soo bad, i have to eat my food only 1 spoonful every 2-3 minutes to not put too much inside my stomach. Regardless, 2-3 hours later after anything in my stomach begin digest, I have blood rush in my neck, arms, hands, feet, numbness in the side of my face like a stroke and feeling to use the toilet/deficate but really dont have too. I feel my head get dizzy, brain gets foggy and blood pressure rise, so I have to drink tons of water and try to keep calm.
I dont understand within 1 year how I went from benchpressing 315lbs, ran a marathon years ago, worked on numerous home projects, built classic cars, drank hard liquor/beer, ate good food, to almost feeling like I am slowing dying or becoming a sickly person!?
Someone Please help.
Update August 1, 2013
I did my research and went to see the Chief Gastro Doctor with Kelsey Seybold with 43 yrs experience name Dr. Ned Snyder. I sent him this entire post to read and all my EGD and meds and results in advance and he actually read them and thanked me. This is the first of 5 Gastro doctors that have done that. He is going to look at 2 different areas: 1.Angio Neurological Oedema testing (blood test) 2. Migraine issues. He thinks that I may have a neurological issue and they did a blood test for the Angio Oedema. if that comes back negative, then he will be sending me to a Neurologist.
My issues have subsided...I only feel shooting pain in my neck or chest when I have to poop or when I get hungry. In the middle of the night, my stomach grumbles and I start to get bad heartburn right over my heart, I get dull headaches and neck dull pains and my throat feels like it is closing up a lil, so I get up and drink water and sit up in the bed and watch tv until it all calms down and I fall back asleep.
Sept, 2013.
The numbness in my arms and face got worst. Usually it is in my left arm and mostly during the night but one night my right arm feel completely dead and I had to use my left arm to move the dead right arm from the bed and place it in my lap, then circulation came back. I got really scared as I never felt complete paralysis in my arm like that before. I thought about my heart but I have a very healthy heart and circulation. Also I have a burn in the same spot right over my heart. It feels like a constant heart attack all day long! I drink 1 bottle of Gaviscon every time I feel heartburn, like 3 times a day. Also my blood pressure for the first time is a little high, average 130/80, so I think it maybe because I do not work out 3 X a week anymore or maybe its the damn PPI drugs. I do not ever want high blood pressure so I have been eating lots of Cheerios.
Oct, 1, 2013.
I ran 1 1/2 miles 3 X in the last 2 weeks and I feel a little light headed when I get home but it goes away. Also 1/3 the way into my run, my chest starts to burn and feel like I am having a heart attack but i tell myself it is just the acid splashing in my chest, because I am very healthy and have ran 2 marathons. 
I keep thinking its H Pylori but i have been tested negative twice and I tried meds for gastroParesis and it didnt work. Also I have slept on 3 tall pillows every night for the last 12 months and I sleep no other way, to answer all the previous posts from you folks.
I had went to my new Gastro Doc and begged him to start all over and see why I have been feeling like I am having a stroke, numb limbs and bad bloating and burning in the chest.
They did an MRI of my Brain and Neck. My Gastro doctor said my Brain looked good and that I have Spondylosis and Arthritis in my neck. (I had a bad car accident 2 years ago and a small accident 5 months ago which I was in therapy for. They found a 5mm disk herniation in my lower back and 1mm disk herniation in my neck, which all the doctors from this accident and my personal doc said the damage is not touching any where near my spine. But they are sending me to get a second opinion to look to see if they are maybe pinching nerves in my neck that may be causing my face and arms feeling numb sometimes).
I had my new gastro doc to do a 3rd MRI and the results: A 1cmm Hiatal Hernia in my stomach and the same Esophagitis. (That finally explains why I feel like blacking-out when the gas/bloat gets soo bad. I read a hiatal hernia sometimes get soo bad it causes suffocation and causes acid to constantly splash in the throat. The doctor took biopsies and I am waiting for my follow up visit to discuss everything, but the nurse told me they do not do any type of surgery to a Hiatal Hernias normally because of the fail rate and complications. However I feel my problem is bad enough for surgery. 
My face and arms are not as numb any more. I notice I kinda get the stroke like symptoms when I stress or fuss and my chest gets painful so I learned to calm down and think about something else. 
Will see in a week if I am getting more/new meds or surgery?
November 1, 2013,
I started having some of the same symptoms with bloating going all the way up into my neck and head, periodically during the day. Also I was getting a very bad constant BURN in one spot right near my HEART everyday and all day long. I was going thru 1 bottle of Gaviscon liquid every week, so because of the high price of it, I started using the Walmart brand liquids for ACID reducing. These liquids helped a little. I was fed up with the constant burn in that one spot in my chest and one day after a long day at work, I was preparing some food to put on the bbq grill when I felt the worse BURNING sensation around my liver area that made me feel like I was going to pass out!
I then started to try to relax and drink water like every time these attacks happen. I also am still sort of scared throughout the day worrying something worse is in me.
I went back to my Gastro Dr. Snyder and he said my EGD only show inflammation and the hiatal hernia could not cause these terrible attacks. He told me to change the times of my medicine, one Dexilant 60mg in the morning before breakfast, Take 10ml of Sulcrafate(Carafate) liquid 4X a day before or after meals and 1 Ranitidine before bed. Halejuah! 
This stuff worked! I am able to sleep good at night and be comfortable at work and even start exercising again! The Sulcrafate(Carafate) liquid coats the esophagus, the burning/ulcer feel in my chest and settles my stomach. However I developed a little constipation the first 2 weeks of drinking the Carafate and developed a small start of a hemmrrhoid. I also have developed a worsening cluster headaches when I turn my head or neck in certain positions. I do have arthritis in my neck from an accident and weight lifting. The headaches feel like mini shocks going thru my frontal lobe scalp.
November 15, 2013,
I am doing much much better. One thing also I can tell you is that I ran out of Dexilant the other day and really did not want to go and buy another bottle of this $58 medicine so I bought a 14-day supply of Prilosec from Walgreens. I took 1 Prilosec in the morning and drink the Carafate as needed now. I have even slacked-off on taking the RANITIDINE before going to bed mostly. I am doing much better and have started to run 1 1/2-2 miles 2x a week and go to the gym and do light weight lifting. When I go to the gym, I make sure and stop drinking water or eat at least 30 mins before because it causes the acid to swish around and possibly come up in the throat. I went to see a Neurologist about the neck and head pain and took some recent Brain MRIs cd I had. The Dr. Bhat the Neurologist told me that I was not having a stroke or aneurysm. She said if the shooting pain is around the frontal lobe and improves every so often, then they are 'Transient Neurological pains' or Paroxysmal shooting pain and are caused by STRESS! She said I may appear like a stoic person but I may be bottling up stress inside and not show it. She examined my head and neck and said my Neck was very stiff and that I need a massage.  
I went for a 1hr massage and they worked on mostly my neck /shoulder area and I have had the shooting headaches pain reduced but not all the way so I will get theses massages from AVALON MASSAGE school here in Houston for $40.
I have come to a conclusion that I may have a problem with Anxiety and Stress and learned that my stomach issues have created 'Health Anxiety'. WTF, and what next! I have been reading some articles on google on how to treat this and I am doing some worksheets now that will help. It states that Health Anxiety causes a person to: constantly schedule doctors appointments to resolve a health problem that is not that life-threatening, fear of dying, always be checking your body for blemishes, bruises or differences, or noticing every little pain in my body and become on alert to run to the emergency room. I have every one of these symptoms!  Also this creates your body to produce other pain/ issues because of the stress......I have a long road ahead of me to healing but its getting resolved..............
February 2, 2014
I have made a decision to train for a marathon 1 year from now and I have been running several miles a day and amazingly my Gerd,Heartburn, Bloat, etc has improved. WHen I started training 2 months ago, I would get up to 1-2 miles and the acid from my stomach would creep up and hurt my chest very very bad that I had to stop running and end whatever day I was training and try it again a few days after. I learned to not EAT anything 1-2 hrs before working out and slow down drinking water 30 mins before also to prevent acid from splashing around during workouts. It WORKS! Now I am up to 6 mile runs and I have No to minimal acid, GERD, BLOAT, Gastritis problems during workouts and after. However I do get these Burps during running and if I do not BURP then my chest hurts and it gets Very hard to Breathe. I actually have not had to take my Prilosec or Dexilant or Ranitidine first thing in the morning for the last 3 weeks! The running has helped for some reason with my Acid issues. However, I do get the Bad Burn in the middle of my heart and would drink some Carafate to aleviate the pain and it helps. Matter of fact, when I get very stressed, my anxiety kicks and I have learned to try and calm down and think about something else and drink a little bit of Sulcrafate/Carafate in my work bag and the Bloat, chest burn kinda goes away. 
Guys besides taking your meds and eating more fruits and veges and drinking lots of water, also focus on the Anxiety. When I have been doing 4-6 mile runs, my chest would start to hurt and I am thinking I am about to have a Heart Attack out on a lonely jogging trail! However, I keep remembering that my Neuro and Gastro doctors told me Heart Problems and Strokes do not IMPROVE or GO AWAY and come back a few days later, they get worse and you will be hospitalized within a day! 
Its hard for us Gastro sufferers to deal with the Gerd, Heartburn, Silent GERD, Bloat, Esophagitis and Gastritis, Gastroparesis etc and not have ANXIETY! But trying to control the symptoms and Anxiety driven thoughts will start us on the Road to recovery.

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Posted by TheOutlookChild on 05 April 2012 - 07:04 PM

I wanted to start a comprehensive list of food, herbal, medical, and physical remedies that have helped people in the past. Anything that has worked for IBS-C. I am in a really bad bout right now and that is what I am looking for. Many people come to this site looking for information that can help when everything else fails so I thought this might be a good idea. I will start the list. Things that have worked for me at some point: Herbal: Senna Leaf. Medical: Lactulose, polyglycol 3350, Ducolax, copious amounts of sea salt water. Food: Hemp Hearts, Spinach, Licorice, Prunes, strawberries, watermelon. Physical: Extended walks.Stuff that did not work: Chlorella. Colostrum.
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#749365 Frequently Asked Questions

Posted by Jeffrey Roberts on 18 June 2009 - 03:55 PM

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Posted by MajaSol on 12 July 2012 - 02:52 PM

I really want to share my story with people out there suffering with IBS. Maybe I can help some of you.I have been suffering since I was I little girl with IBS: pain, going from almost being totally constipated, to having lot of pain and diarea. The pain was the worst, going to the toilet is not the worst I think. The doctors have tested me for everything through the years, no test was positive and I was told I have IBS. It was horrible timing my activities to where the nearest toilet is and so on…Not many doctors know this, but you can be reacting to all of the starches and sugars in your diet.Since I started a low carb diet 1,5 years ago, I stopped eating flour and sugar - I noticed my stomach problems being less and less. And now they are totally GONE. I have never tested positive for any coeliacia/coeliac disease… And I am not allergic to wheat...And now about 40 pounds of weight is gone as well..At the same time I have been eating low carb I have increased my intake of fibers, they help, but removing flour and sugar has helped the most. Eating fibers like acacia fibers, chia seeds, and psyllium husks… (they are easy to include in low carb recipies)Humans (some of us) are not built to take in flours and sugars, and our gut are screaming that we are hurting our guts.. (that’s how I see it) Now my gut are not constantly irritated – they are relaxed - and it can stand things I could not eat before, like some seeds and youghurt(sugar free). For sweetening I use stevia or erythritol… (they don’t effect blood sugars)I couldn’t begin to describe how good it feels to finally have a normal stomach!!! I still find it strange to be this normal! Not a single flare up for about one year! (Used to have problems from 1 a week to 2-3 a month – ups and down periods)Maybe this is not a cure for everybody, but at least you should know about it!!And if any of you out there tries this and have good/bad experiences let me know!Hugs from me in Norway! Wanted to spread the word! :)
  • TheOutlookChild, Dreamcatcher32, Luna93 and 1 other like this

#1431265 FDA accepts New Drug Application for Prucalopride for CIC

Posted by annie7 on 30 March 2018 - 07:26 AM




thanks so much to one of our members, wgbutler, for posting this information  yesterday on the  "drugs against C in the pipeline"  thread. i thought i would start a topic on it  here just to help make sure everybody sees it.


this is such good news!  finally--it's about time!   prucalopride has been available in other countries for several years now. 


what makes prucalopride special is that it's a high affinity selective serotonin type 4 (5-HT4)  receptor agonist--a  prokinetic med that stimulates colonic peristalsis, increasing bowel motility.  it's much different than amitiza, linzess and trulance.   for those of us who remember zelnorm,  it's similar to zelnom, but with a better safety profile. 

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#1381042 22 Yrs of IBS-D Halted with First Dose of Kratom

Posted by Green Floyd on 08 August 2017 - 10:26 AM

Edit: 28 month update - Still working very well on the IBS-D, working very well on the fibromyalgia, neuralgia, and neuropathy. Not a full 100% with the back pain, but helps. 4 out of 5 ain't bad! I feel no dependency other than enjoying freedom from IBS-D.


Hello, I'll try to keep this as clear and concise as possible, and try to answer any questions later. I just couldn't keep this to myself knowing there are many like me searching for an answer. Could find only one reference to Kratom in this forum, so I felt I should post. Hope it's not a word that gets me banned, if there's no interest or it's taboo, I'll let it go.


IBS-D since April 8, 1995. A back pain sufferer for 35 years, fibromyalgia maybe 20 years, widespread, intense thoracic pain for at least the past 2 years, headaches since Dec 2016 and almost every day since March 2017. A lot of neuralgia too. I've been through the mill with meds and treatments, along with some mistreatment.


A week ago, I finally tried Kratom for the pain, which was wiped out with the first dose, all except the headaches which are reduced and not so persistent. At the same time, I noticed the IBS-D was gone. For the past week I have functioned better than I have for four years, I am on my feet and out of the house, taking care of business again.


Before now, my daily routine has mostly been, 8am-1pm (sometimes all day) - repeated trips to the bathroom, lots of pain, dinner, try to sleep. Most days so far, it's one trip to the bathroom in the morning. Had one day on which I went twice in a half hour, but I also had two of those red-letter days when the BM was completely normal, something not seen for years. I can now eat regular meals without fear of making 30 trips to the bathroom the following day!


I can share what I've learned later if there are questions. This is truly a miracle for me, so much pain and IBS-D wiped out so quick, so easy, and very cheap! Ran into a lot of confusing and sometimes inaccurate info about Kratom when I began researching it. I'm not getting high on it like opiates, though some strains can cause some drowsiness, those red strains I'll reserve for evening. My sleep has never been better.


In brief to close: Pain and IBS-D relief, better mood, higher energy, better sleep. That's me now! I can be more active, exercise and get some strength back, eat three meals a day, and not remain in 20ft of the bathroom. I'm taking no other meds.


The only prescription drug interaction I recall seeing was with an MAO inhibitor, but of course that should be double checked before trying Kratom.


Advisory: Kratom can make you constipated. Watch for the signs and take a laxative before getting into a serious blockage.

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#1071762 Female, 34, obstructed defecation, leaky gas/odor, pelvic dysfunction

Posted by serenity now on 31 March 2015 - 02:48 PM

Hi everyone,


I've been lurking in these forums and now it's time to share my story, since things have gotten baaaaaaaaaad.  Life-altering, earth-shatteringly bad. Haven't been to work in months and don't know when I can ever be in a social situation again bad. Depressingly almost suicidally bad. Just hit the height of my career and life when it all came crashing down bad.


You feel me?  smile.png


I'm 34, female, never had children, been struggling with constipation my whole life but have been managing with diet, exercise and my go-to "laxatives": Benefiber and coffee. But these don't work for me anymore. Tried Linzess but that was a mess and just gave me watery diarrhea. 


A few months ago, people at work started commenting on a strange smell that persisted in our area of the office. Of course, I couldn't smell it at all, but when I entered conference rooms for meetings, immediately people would cover their mouths and noses with their hands or their sweaters or scarves. In conversations with people, they would rub their noses and sneeze.


I was horrified. I could not smell anything myself and ran to the bathroom smelling my armpits and my feet and my underwear and could never figure it out. The smells were definitely coming from me, based on other people's reactions, but I was BAFFLED. 


The symptoms started getting worse and worse, and then one day after a long day of work I peeled off my jeans and sniffed in the butt area of my underwear and jeans and there was a definite odor. I wouldn't say it smelled like fecal material but it definitely smelled like something off. 


I was devastated.


I took some time off of work and started reading these IBS forums and changed my diet (no meat, no gluten, cut back on dairy) and started Kegeling. Symptoms seemed to improve, but then in the last few weeks, symptoms worsened significantly.


ACTUAL SYMPTOMS (Last few weeks/months)

  • Odor and discharge - THE. WORST. THING. ABOUT. THIS.
    • Bad odor - sometimes sour smell, sometimes fecal smell - usually smell it right before I need to have bowel movement, other times shows up randomly. 
    • Wetness/moisture in anal area - usually worse at night and when I wake up, some days are better than others
    • Gas incontinence - was just on the subway yesterday and smelled a very bad gas and realized it was me... I didn't even feel it all coming out!!  Feels like my anal sphincter is just gaping wide open and letting things out. 
    • Slight fecal incontinence - if I'm taking a stool softener laxative like Miralax and have diahhrea it's hard to tell if I'm passing gas or passing stool, and sometimes that makes for little accidents. I have stopped laxatives like Miralax and use Dulcolax instead. 
  • Obstructed Defecation Sudden change in bowel movements got worse - and then better
    • First, the BMs became softer and softer (soft-serve cow pie), then pencil-thin, then squashed like they had to around a kink/curve, then they stopped completely
    • For over 30 days, the only bowel movement I passed was complete liquid water - it got so bad I ended up in the Emergency Room,
    • FINALLY after 30 days of being miserable, I used a few enemas, Dulcolax, cleared out the system and I seem to be back to "normal" - at least stool is going through, but it has to be soft and I have to contort myself into weird positions over the toilet and press on my anal area to get it out (of course it doesn't all come out, it's incomplete)
    • Difficult to pass soft/liquid stool - difficult to even pass gas!
    • Rectal presure/Always feels like something is in my rectum but there's not - countless doctors (and myself) have put their finger in my bum and could not feel any stool - stool is not coming down into the rectum - feels like there is a kink further up in the system
    • Open/gaping anus - feels like my anus is wide open sometimes, and other times it feels clamped shut
  • Sudden onset of pelvic pain - never had this in my life and it's the most miserable thing ever:
    • Shooting pains in my rectum, vagina, and clitoris (all areas directly connected to the pudendal nerve) - relieved slightly with warm compress and prescription Valium - this was intense at first and happened frequently, but have lessened in intensity and frequency over time. Perhaps the constipation was irritating it.
    • Pelvic pressure/congestion/menstrual-like cramps - like my vagina and anus are spasming all the time - confirmed by urogynocologist who said I have tight pelvic floor and should seek physical therapy
    • Suspected pelvic organ prolapse - it feels like my uterus (which is retroverted) and bladder and urethra and basically all my organs are squishing each other, but at least 3 urogynocologists claim that nothing is prolapsed
    • Pudendal nerve irritation/damage:  Decreased sensitivity in vagina, anus, and clitoris - probably due to pudendal nerve damage Tingly feelings and sweating in my arms, hands, legs, feet - also related to pudendal nerve
    • Heaviness/dragging in pelvic area, makes it hard to stand and walk for long periods of time
    • Bladder/urethral weirdness- tingling sensation in bladder area, I'm able to pee normally, but seems to gush out sometimes, and the urge to pee feels more "muffled" and not as strong
    • Lower back pain 
    • Very tender and sore in butt pads/levator ani - even hips


WHAT I SUSPECT IS GOING ON [Self-Diagnosis, Nothing Confirmed]:

  • Rectal prolapse - probably mucosal at this point since I don't detect anything coming out of me yet, or it's hard to tell because of my large internal hemorrhoids 
  • Rectocele
  • Enterocele
  • Pouch of Douglas hernia  - which can mimic rectocele/enterocele
  • Intussusception 

These are all just fancy medical terms for what is happening. These things are hard to diagnose and harder to treat. No matter what they call it, the everyday pain is the same. It's a more complex case for women because we have all sorts of pelvic organs that can move around dynamically and shift based on time of day, time of month, etc. Here's a great article tries to explain some of it: http://www.pelvicorg...tocele-or-both/



  • Dynamic Pelvic MRI (they put gel in your vagina and rectum and you expel it - while flat on your back in an MRI tube - results coming in this week)
  • Anascopy (colorectal surgeon put a flashlight in my rectum and said I have larger than average hemorrhoids)
  • Abdominal CT Scan with contrast - revealed no abnormalities or obstruction, did detect air in vagina

DOCTORS I'VE SEEN (None of them have answers for me)

  • 1 gynecologist
  • 2 urogynecologists
  • 2 colorectal surgeons 
  • 2 gastroenterologists

I'm only 34 for crying out loud!  Seem to have the bowels and pelvis of an 80 year old. It's miserable and frustrating and painful but the SMELL/ODOR on top of everything else is what kills me. I can't even spend time with friends because of the odor. Thank god I have a loving and supportive partner who claims not to smell anything.


I am DETERMINED to find a solution to this issue through a combination of diet, constipation management, enemas, laxatives, natural foods and herbs, pelvic exercise, pelvic phyisotherapy and massage, breathing exercises, posture - and MAYBE surgery if needed. Want to be very conservative first because these are complex surgeries with high rates of failure.


If you have read this far and have similar symptoms please add to the thread and let's keep sharing insights as we continue this journey. I believe that life does NOT have to be miserable, it is unfortunate we have this condition to manage, but I have faith in our body's ability to heal itself if we listen to its signals and respond accordingly.


Take care everyone- one day at a time-





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