So great to hear I'm not alone! Unfortunately, this condition appears to be as elusive to you as it has been for me. The last five years have been miserable. I gave up a very public and active life, including my work because I can't make any commitments until I can control the gas and pain resulting from the BM.
I've stumped scores of medical specialists and have tried the same options as this group.
A recent development though is giving me some hope that relief might be in sight. Parasites! I was grossed out and couldn't believe I could be a host. Like most of the doctors I've suggested parasites as a cause, I believed parasites only presented themselves in 3rd world countries with poor sanitation. Couldn't be me, I am very clean!
Surprise, maybe not. I live on a ranch that is visited daily by scavengers like coyotes that scamper past my doorstep and vultures picking over the remains of rabbits, snakes or other critters; raccoons search for food on my patio; my cats eat squirrels, mice, moles, lizards, birds; my dog eats my neighbor's horse poop; our housekeeper keeps a six foot iguana she found in Mexico free roaming in her home; my neighbor imports rare birds from around the world with huge aviaries less that 1/4 mile from my house; the San Diego Zoo Safari Park is a couple miles from my home; a recent development created a stagnant runoff pond closely; and I'm surrounded by recent immigrants and their cultural habits - how could I not be exposed to parasites?
I have a hard time not obsessing about knowing that I have worms crawling around me, but if that's the cause of all the mucous and blood in my stool, the gas and bloating, the pain and misery - I'm ecstatic because getting rid of parasites should be an easy fix. Of course, if they are the cause, I'm going to be pissed off at all the doctors that only considered acid reflux and simethicone as solutions!
Last month I accidently discovered a small worm that looked like a piece of thread, but on further close-up examination clearly saw the head and backbone defining it as a worm. Close by were several more that would have been missed if I hadn't zoomed out the image. (I use my iPhone camera).
After researching parasites, I discovered I have had tapeworm segments (that carry eggs) for a long time. Could be years, but I've never really examined my poop before so don't know. They look like little sesame seeds or rice.
Ironically, I had two separate stool tests and both returned negative for parasites! Apparently that is very common. I started eating pumpkin seeds and about 10 days ago I added a tsp. up to a tblsp. of FOOD GRADE diatomaceous earth to my diet (and my pets too). The result has been hundreds of tapeworm 'eggs', lengths of tapeworms up to 6" long, and what appears to be lots of smaller worms and maybe flukes too. (I'm not an expert by any means, but the images match those I've googled).
So now, my GI has ordered more parasite tests and admitted that many of the symptoms I've had could be parasite related. Hopefully, I'll know more by Friday or Monday.
Here's what I've learned so far:
Parasites love mucous.
Bleeding could occur when they are irritated and detach from the intestinal wall.
They excrete ammonia and ethanol gas among a bunch of other toxins.
These toxins can cause food and chemical sensitivities (I'm scared to eat almost everything and almost stop breathing when perfume is sprayed).
Some parasites take your digestive enzymes before your body gets to use them resulting in decaying food fermenting in your intestines (gas & bloating).
etc. etc. etc,
My postulated theory at this point for the pain after a BM is that they get irritated and upset during the final peristaltic throws of the bowel movement and excrete a bunch of gases and toxins because they are pissed off about being disturbed causing us a lot of pain. They also bury farther into intestinal walls when disturbed causing pain.
Please, let this nightmare be over.