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Mental or Physical?

fbo body odor

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#1 pocketfullofposies

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Posted 23 July 2013 - 04:46 PM

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I had been dealing with this (fecal body odor) issue for almost five years now, but i can say i am finally seeing the bright side of things. But not after so many trials and tribulations, mixed with depression and anger.

 

After attending a family wedding and having a horrible time there due to severe anxiety and nearly fainting from starvation (which at the time seemed reasonable. i guess we do the craziest things when dealing with the worst), i finally went to a doctor (again). This being the third time, i assumed things would be different and it was in some ways.

 

Previous visits with a doctor always ended with a loss of hope. They would say there was never "anything wrong" or "that's not possible" and i had decided i couldn't trust any medical professional at the time, but this last time was different. My last doctor had given me the idea that maybe it was some sort of body dismorphic disorder but i didnt believe him. i couldnt. When you believe something so strongly there is no way for anyone but yourself to change your mind. And so i was convinced that i needed tests done and i had asked him for them and/or a referral to a specialist but he recommended that i see social behaviorist, that he would contact for me, for my odor issue and for some other issues that we had discussed.

 

And so i went. And she to said that she didnt notice anything and recommended that i follow up with a psychologist. Needless to say i didnt, not right away anyway. i was fed up with everyone. i was finally reaching out and telling people about this embarrassing problem and i felt i was being lied to. i had spent the next few months sulking. keeping to myself like i had for the past few years. But things were different. I was ready to figure things out. Find out what it was exactly that i was dealing with and start from there. i had finally started talking about this with certain family members and it helped but i stilll didnt know where to begin. i kept expecting an answer to pop up out of thin air. And sometimes they do.

 

My cousin, while taking a psychology class had discovered many psychological disorders. mainly this link that she had sent in a text, taijin kyofusho. I thought it was interesting, but i was a little hurt as i felt this wasnt what i was dealing with, and that she really thought that all this could be in my head. so i dismissed that. and still tried to find out out what could physically be causing these sytmptoms.

 

Then things changed. i had met someone online and things progressed from there. Then came the time that they wanted to meet up but i coulndt do it. Not yet, i wasnt ready. I was still broken and needed to fix myself before i could let someone new into this humiliating life that i had dealt with. But now i was inspired, i had something to keeep me going. And so I was ready to start a new life for myself. Finally.

 

So i went back to the link then found this subcategory called Jikoshu-kyofu, also known as Olfactory Reference Syndrome.

psychiatric condition in which the affected person is excessively preoccupied by the concern that one's body odor is foul or unpleasant. This disorder is often accompanied by shameembarrassment, significant distress,avoidance behaviorsocial phobia and social isolation.[1][2] ORS is not currently recognised by the Diagnostic and Statistical Manual of Mental Disorders(fourth edition), and is currently considered by many to be a sub-type of Body dysmorphic disorder.

 

 

So i gave this a chance and called the psychologist that i was recommended to many months ago. I felt i had to rule this out. But to be honest i was hoping it was this because if its in our head then that would be easier to deal with, i figured, or at least i would deal with this and only have to convince myself, and not anyone else, that there was no odor. But either i was dealing with a medical condition or i wasnt. I felt this was a good place to start.

 

Long story short (lol sorry for the long post =/) i am currently in a relationship and now ready to move on and find out what i am meant to do with my life. Things are definitely looking up. Although i never got a clear answer as to why this happened. And i am effing sure this issue had not always been a mental issue.  But like the doctor said sometimes our minds put up walls trying to protect us from (further) harm.

 

I really hope this helps some people as it did for me. And i know we all suffer from different symptoms, but its best to rule things out before we commit to an idea that we're not completely sure of. We're all a work in progress. We just cant give up.



#2 Intothewild

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Posted 23 July 2013 - 06:24 PM

You've without question in the minority here but good for you man. What were your symptoms?  Also did you have people actually tell you that you smelled?

 

I think there is a marked difference between people with olfactory R.S and people who actually suffer from this in that with olfactory it seems to be mental to the point that no-one ever tells them that they smell or whatever and also that they never actually smell an odor, they just think they do. Those of us who suffer from fbo smell the odor(occasionally) have been told we smell numerous times and have specific symptoms that relate to it like wetness around anus, ibs, sticky bowel movements etc.


"We are not enemies, but friends. We must not be enemies. Though passion may have strength, it must not break our bonds of affection. The mystic chords of memory will swell when again touched, as surely they will be, by the better angels of our nature." - Abraham Lincoln


#3 j123

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Posted 24 July 2013 - 04:45 AM

It is an interesting subject. And I was most intriged when you said this issue had not always been a mental issue. I know for a fact that I do smell when I get LG (it's very, very rarely a fecal odor(I believe fecal body odor is strongly linked to incomplete evac)) as I have been told I smell and have confirmed it with people.

 

Also, grats on your progress man!



#4 pocketfullofposies

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Posted 25 July 2013 - 03:49 PM

You've without question in the minority here but good for you man. What were your symptoms?  Also did you have people actually tell you that you smelled?

 

I think there is a marked difference between people with olfactory R.S and people who actually suffer from this in that with olfactory it seems to be mental to the point that no-one ever tells them that they smell or whatever and also that they never actually smell an odor, they just think they do. Those of us who suffer from fbo smell the odor(occasionally) have been told we smell numerous times and have specific symptoms that relate to it like wetness around anus, ibs, sticky bowel movements etc.

 

 

It is an interesting subject. And I was most intriged when you said this issue had not always been a mental issue. I know for a fact that I do smell when I get LG (it's very, very rarely a fecal odor(I believe fecal body odor is strongly linked to incomplete evac)) as I have been told I smell and have confirmed it with people.

 

Also, grats on your progress man!

 

Thanks guys. Well here's the thing... whenever i received comments they were never direct accusations. But when this first started there were multiple, clear cut examples of people being offended of an odor. Including one of my friends during class telling me that it smelled like "###### in here". but i was totally unaware of it and the girl next to me making a face of disgust as well. Another time I was waiting in line for a restaurant and the people behind me were making comments directed toward me and even checking their shoes. But there was never anyone to tell me something directly like "hey you smell."

 

But during those times i would almost never smell it. And i f I did it would be a whiff. But for some reason I knew it was me. I always got this feeling, I dont know how to explain it, but like i needed to shower; i felt dirty but it wasn't exactly a "I didn't wipe right dirty". I don't know if anyone can relate to that really vague sort of experience lol. But i dont know how else to explain it. Eventually I felt it everyday and I forgot what it was like to not feel that way. Maybe it was some sort of leakage but whenever i would wipe it would come out clean >.>

 

And as for symptoms, I cant be much help there. I guess there were no perpetual symptoms that would cause me to take notice or to associate with something else.

 

And now that I think about it, i guess that's what scares me. I know i had some type of odor issue, maybe if only at the beginning. But it was there. And maybe it came out of nowhere and went away the same way...

 

I changed my diet and treated a fungal issue. Which, for sure, has been something that caused really bad odors but I'm not sure it would have caused a fecal odor.

 

Sorry if that wasn't much help guys. I've spent much of that time in a daze.



#5 tds2n

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Posted 25 July 2013 - 11:22 PM

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#6 j123

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Posted 26 July 2013 - 03:26 AM

When my LG first satrted I did feel as if I had pooped my pants a little. I used to check all the time and NEVER found anything on my jocks or on my arse. I used to wipe so much too, like even if I wasn't having a BM I would wipe with wet toilet paper and then dry tp. The only thing was if I relate to my first post, is that I would only ever get the fecal odor if I was constipated, had an incomplete bowel movement or ate something really, really bad (like a mcdonalds beef burger or a crappy processed pie). Other than that I experienced the rotten odor, the really, really [email protected]#$ing bad fart odor, the rotten garbage/egg odor and the sewerage odor.

 

The difference with my case is that I can almost always smell my LG, so I know when I smell. Then seeing the reaction on peoples faces and peoples comments gave me severe anxiety knowing it was me.



#7 Maria Slan

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Posted 26 July 2013 - 04:59 AM

this is not mental process. in case of Candida, the stress contribute to raise hormones that feed the Candida. thus, stop telling us that is the problem of our head, ok? Actually, this point is stupid. Sorry, for being gross. But it is.


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#8 pocketfullofposies

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Posted 29 July 2013 - 09:26 PM

this is not mental process. in case of Candida, the stress contribute to raise hormones that feed the Candida. thus, stop telling us that is the problem of our head, ok? Actually, this point is stupid. Sorry, for being gross. But it is.

 

i'm not telling anyone anything, to be honest. And im 100% sure this doesn't apply to everyone. I just wanted to get my experience with this out there in the hopes that this might help someone else. While trying to figure out what was wrong with me, this was one of the first sites that came up. that is why i am posting it on this ibs site. I cant even explain what i was going through as all of this has been super confusing. But that's how my experience with this has gone. Even I was pissed that there was even a remote possibility of this being a mental thing. But after 5 years it turned out to be just that, for me.

 

From being on here over the past year, i've come to the realization that not everyone's case is the same on this site. So its not fair either to assume that everyone has candida. I mean i just read how someone was cured from taking anti-inflammatory medication because he was suffering from mild rectal inflammation (if im not mistaken). So its best for everyone to do more research before anyone commits themselves to an assumed cause before you start experimenting with treatments that could potentially harm your body.

 

Everyone's case is different and i'm not assuming this to be everyone's case. And that's my fault for not making that clear. I apologize.

 

Really, this is for those that are questioning whether or not they are really affected by this,  like i was. I would have hated it if i had struggled with this for many more years had i not received this information. I just hoped that maybe i could have helped even just one person by making this post.

 

I wish everyone good luck. I may not have been dealing with the same causes as everyone but i understand the process of going through this and trying to deal with it all. so if anyone who reads this ever feels like talking to someone feel free to message me. this ###### can really suck sometimes (and thats putting it really mildly).


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#9 Maria Slan

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Posted 30 July 2013 - 12:59 AM

well, pocketfullofposies. I'm sorry for saying those heavy words. I was just angry with the point, not you.

However, I did not make any assumption anyway. I have read all most cases in here and the other sites also. I read and compared them to possible theories. think about it for days and tried to make connections. But many hypotheses from me, which did not prove by experiments, can not be written so simply.

Come on. Don't believe in what people say about your head. It's normal. You should know many people here cured by stop stress. Stress raised your hormones and weaken your immune system. I agreed with you maybe it is not Candida. But the reason I only mention about Candida because it is the things I have and did research, I tried to give you an example not assumptions. Maybe your reason is different, but I bet it is not your head, guy.



#10 luckyhope

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Posted 27 March 2014 - 01:28 AM

I can only speak for myself but I have this. I don't smell but I think I do. I'm going to a therapist and am on medication for it. I suffered for 7 years with it. I now go out all the time and get no reactions. Before I looked for reactions but now I don't. I still think I smell but I know I don't. It's hard to believe but for some people it's all in their minds. By the way in america they call it somatic delusions. That's what I was diagnosed with. I'm schizophrenic so I hallucinate smells too. 


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#11 BQ

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Posted 27 March 2014 - 12:25 PM

Good for you Lucky & Pocket!  May your success continue!


Please remember this is a group of folks seeking support on how to live with and manage IBS. THESE ARE ONLY MY OWN THOUGHTS. IF YOU WANT AN EXPERT OPINION, ASK A MEDICAL PROFESSIONAL.

#12 luckyhope

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Posted 27 March 2014 - 02:07 PM

Thanks a lot BQ. It's been 7 months and it's like I'm living a new life. I went to a support group for mental disorders and had to ride in a little van with 6 other people. It was great. They didn't open any windows or do anything out of the ordinary. I also went and got my hair done and the lady said my conditioner smelled like cake. She was so nice to me. I would have never believed when I was at my worst that I could do that. But I did and nothing happened. 


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#13 pocketfullofposies

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Posted 27 March 2014 - 02:20 PM

I can only speak for myself but I have this. I don't smell but I think I do. I'm going to a therapist and am on medication for it. I suffered for 7 years with it. I now go out all the time and get no reactions. Before I looked for reactions but now I don't. I still think I smell but I know I don't. It's hard to believe but for some people it's all in their minds. By the way in america they call it somatic delusions. That's what I was diagnosed with. I'm schizophrenic so I hallucinate smells too. 

 

Hey, luckyhope, it's good to hear you're making progress with this issue! It's definitely a day-to-day thing and I really admire your strength at overcoming this. I too started seeing a therapist and it has helped a lot, and i would recommend that to everyone on here that are lucky enough to have such outlets, regardless of where this odor is stemming from; going through this there are times where you can easily give up believing that the world is nothing but cruel, but there are definitely people out there that are willing to help should you choose to seek it. I wish you well, luckyhope! smile.png

 

Good for you Lucky & Pocket!  May your success continue!

 

Thanks BQ!



#14 luckyhope

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Posted 27 March 2014 - 02:45 PM

Thanks a lot pocketfullofposies. I've been through it all because of this. The seclusion, rejection or at least perceived rejection. I even tried to commit suicide more times than I can name. But its all looking up from here. 

 

Therapy is a god send. Whether you have an odor or not it can build up your self esteem and help change your thinking patterns. It helps to know that there is someone that you can trust either than family. They're out for your best interest. Even if you have body odor they'll help you learn to accept it. And if you don't they'll help you figure out why your thinking is flawed. So its always worth a shot. 



#15 lone_paladin

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Posted 27 March 2014 - 03:55 PM

this is not mental process. in case of Candida, the stress contribute to raise hormones that feed the Candida. thus, stop telling us that is the problem of our head, ok? Actually, this point is stupid. Sorry, for being gross. But it is.

I had no idea that stress fees Candida!! This makes things more understandable. Thanks for this info.



#16 horizonzero

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Posted 27 March 2014 - 10:17 PM

It gets worse with anxiety but the physical symptoms are still there having a wet anus 24/7 and ODS is not a psychological symptom 


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#17 luckyhope

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Posted 28 March 2014 - 07:37 PM

I know I shouldn't be asking this but would someone wear you clothes, lay on you and fall asleep, stand close enough for your clothes to be rubbing on theirs, hug you if you smelled even a little? Like if it wasn't bad enough to cause reactions but there was still a smell.



#18 westr

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Posted 29 March 2014 - 06:53 PM

there is a strong chance you have a physical issue, there is a stong chance to diagnose this costs a lot of money, there is a strong chance your doctor wants to diagnose this by spending as little money as possible, there is a strong chance your doctor has never heard of this and an even stronger chance he has never once fixed this issue. ORS is a real thing and there is a chance you have this also.

 

my closest friends have never smelt anything from me, I've ( tmi ) smashed several pasties since this happened with no complaints, and yet get comments at work. so when a doctor drums it in to you that your problem is ORS, there is a moderate chance that you may still have a physical ( or anything other than mental ) problem, but there may still be enough doubt in you due to your 3rd party reactions and variance in symptoms due to varying environmental factors that the ORS diagnosis may stick.1

 

my advice is to continue trying things like ACV, diet, probiotic, physical observations. and keep screaming for a defecography.


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#19 horizonzero

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Posted 29 March 2014 - 08:07 PM

there is a strong chance you have a physical issue, there is a stong chance to diagnose this costs a lot of money, there is a strong chance your doctor wants to diagnose this by spending as little money as possible, there is a strong chance your doctor has never heard of this and an even stronger chance he has never once fixed this issue. ORS is a real thing and there is a chance you have this also.

 

my closest friends have never smelt anything from me, I've ( tmi ) smashed several pasties since this happened with no complaints, and yet get comments at work. so when a doctor drums it in to you that your problem is ORS, there is a moderate chance that you may still have a physical ( or anything other than mental ) problem, but there may still be enough doubt in you due to your 3rd party reactions and variance in symptoms due to varying environmental factors that the ORS diagnosis may stick.1

 

my advice is to continue trying things like ACV, diet, probiotic, physical observations. and keep screaming for a defecography.

 

 

What he said part and partial , Some of us may have three main reasons - Physical problems with rectal/anus area , Mental issues ie social anxiety , constantly checking if you smell but also The overgrowth of candida and Leaky gut through poor diet. All Three play a major part and act coherently together.



#20 tummyrumbles

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Posted 30 March 2014 - 07:31 AM

Leaky Gas is caused by gas in the colon, and most gas is from malabsorbed stool. Too much gas is painful to hold in which is why we leak it out. All leaky gas is caused by food intolerance. The reason why Leaky Gas is hard to cure is because until you get your diet right complete evacuation might take a while. Also getting your diet right isn’t easy either as the problem foods like wheat and starches tend to be the most satisfying. People are generally tactful and very few people find it easy to tell someone to their face that they smell but keep it up and they’ll let you know one way or another.

 

If you have constant gas and difficult and long bowel evacuations think seriously about giving up all grains and high FODMAPs. You can fill up on non-starchy nut based and coconut based breads.


My Wordpress blog: http://ibsnaturalcure.wordpress.com

 

 

 

 

 

 






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