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Fecal bacteriotherapy for IBS-D : Success

Fecal bacteriotherapy fecal transplant IBS-D recovery success bacteria human probiotic infusion Crazy stuff

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#41 TheFreeman

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Posted 26 October 2013 - 04:34 PM

Day 83

 

Strangely, a 18 years old condition of mine (keratosis pilaris) is slowly improving lately.

 

My overall energy level is also improving, a little every day. Given the quantity of fruits and vegetables (onions included) that I am eating, I'm pretty sure that my GI system is now permanently back on track.

 

There is not much more to be said : my digestion is nearly perfect and the rest of my body is slowly healing.

 

This is most likely one of my last posts on this forum.

 

I wish you good luck.

 

TheFreeman



#42 Shade711

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Posted 28 October 2013 - 09:00 AM

Godspeed freeman!

 

Do check in once in a while? Those who have come out of suffering for a long while have a lot of hope to offer those in the midst of it.

 

Anyways, thanks for all your updates thus far.



#43 KeenAble

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Posted 07 November 2013 - 12:31 AM

Hi TheFreeman,

 

I am planning to go ahead with FMT, having tried many other treatments without success. I have been suffering from IBS-A for about 5 years now and am convinced that bacterial dysbiosis is the culprit. I will be following "TheFreeman protocol" but was wondering if a lavage with PEG a day before would be helpful by clearing out fecal matter, reducing the existing bacteria and giving the transplanted bacteria a more conducive growth friendly environment to colonize.



#44 jstezelecki

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Posted 07 November 2013 - 12:37 PM

For those who are considering a FMT, I'm wondering if it would be advisable to do the same preparation that you would for a colonoscopy. Maybe having the colon completely cleansed of older fecal matter it would allow or give  the new fecal bacteria that is being injected into the colon a better chance to colonize quicker and completely? Thank You,

                                                                                                                                                                                                 John



#45 John2001

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Posted 12 November 2013 - 09:13 AM

Very interesting, TheFreeman. I was wondering how you selected the donor. There seems to be a relationship between the gemetic makeup of an individual and the gut bacteria. So perhaps it is best to select a family member. Any advice on this?



#46 jennvmail

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Posted 17 November 2013 - 02:36 AM

Hey John2001,

The Freeman's spouse was his donor. Someone with good health no diseases and no history of GI problems. Plus easy access to the stool and someone that's mature enough to understand and willing to help.
Family is best but not if they have history of GI problems or have struggled with other health problems.

#47 legbuh

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Posted 07 December 2013 - 10:33 PM

I believe this (FMT) is the cure for not only IBS, but lactose, fructose, gluten, etc intolerance.    Maybe many other ailments.
 
Over the past 20 years with IBS-D and going from lactose to fructose to darn near glucose intolerance (shoot, how about food intolerance)  I have theories from my tests.  Note, Im not a doctor, so I think outside the box.  smile.png  I take Imodium every day and have tried meds to make me "forget" I have IBS.  But it doesn't work because I believe it's physical, and biological.  A real and "living" problem.
 
I first got IBS after a severe sickness while in Canada.  At an outdoor concert with friends from college, in the rain in 40 degree weather.  We drank beer (as normal), smoke cigarettes (thank you Derek for lighting mine when my hands were too cold to even flick a lighter), ate pizza and drank milk and that night back at the hotel I got so sick.. puking and crapping for hours all night.  
 
Even on the drive home the next day I made my buddy stop every 30 minutes so I could empty out.  I believe I got some sort of bug that disrupted in a BIG WAY my flora.  Before this I didn't even remember ever taking a ######.  (Well, once in Jr. high but that's because I didn't flush because I knew the cooler older guys were in the bathroom smoking and I didn't want them to know I pooped, and when I came out they were like "gross!  flush man!".. haha.. that stuck with me).
 
After this sickness in Canada (and I don't blame Canada or Canadian beer or women), I  was lactose intolerant, but didn't know it.  
 
One day (before this ordeal) I was fine and could eat or drink anything.  
 
The next day (after this sickness in Canada) I can't drink milk.  It makes no sense unless you think of the flora in your gut.  
 
Some of that flora digests milk was gone (well, with how sick I was, probably all the flora.. lol). 
 
I had no idea what was going on.  I would drink a glass of milk for breakfast, like I normally did, and and hour or two later was blowing out my rear until it hurt.  
 
I remember mentioning this to my mom who was a manager at a health food place.  She had my try peppermint pills to sooth my stomach.  So I drank my milk, with the peppermint pill, and 2 hours later at work again I totally emptied my bowels.  I could smell peppermint. So could my boss who went to take a piss a little while later and wondered why the hell the bathroom smells like peppermint.  I just kept my mouth shut.
 
Then someone (well, my future wife!) told me about lactose intolerance.  I had never heard of it.  I quit drinking milk and eating cheese and things got a little better.... not perfect, but better.  It made sense so I was VERY cautious about eating or drinking anything with milk in it.
 
Later, maybe about 3-5 years, I became fructose intolerant.   By then I was used to using a food diary to figure out what was causing my intestinal distress.  Tomatoes (they were still vegetables then, and Pluto was a planet... lol), honeydew, muskmelon... ugh... just like drinking milk.. 1-2 hours later and I was punishing the porcelain for hours.  (Kudos to the Ace Man for that adjective... and be nice to Matt.. he may have IBS!)
 
I went through a Colonoscopy, etc....  they told me to avoid foods that bothered me.  I though to myself "no ######" (haha.. funny pun).  It's like a doctor telling you if it hurts when you do that, don't do it!  And I was diagnosed with IBS-D. 
 
By the way, my Colonoscopy was the most horrific thing I've ever been through.  The drugs must have worn off or something because every time they blew up that balloon it was like someone stuck a rusted rail road tie into my lower abdomen.  "Just relax" is what I heard from the GI.  "Squeeze my hand if it hurts" is what I heard from the nurse.  Rumor has it she still can't write cursive.
 
Over the past 20+ years I have always been looking for something.  Now that I have kids it's harder to explain why I don't want to go on vacation with mom and them and it kills me.   I want to, but I can't.  
 
Then recently my sister, who also had IBS-D (maybe hereditary...) got C diff.  She dropped a ton of weight.  This wasn't just IBS... so she was diagnosed with c.diff.  She researched cures and found fecal transplants.  Her GI said he would do it.  She found a donor, did it, and within 24 hours not only was her c diff cured, but her IBS was too as well as her food allergies.
 
This made me think.  Why...  how...
 
I drink kefir all the time.  Why doesn't it give me D?  It has bacteria specifically that eats lactose.  So I looked further into the fermented foods.  I now drink kombucha (home made) after every meal.  I can now eat an apple, a pear, and an orange and drink a few swigs of kombucha and have no d.  In fact, pretty decent solid BMs.. not perfect, but WAY better than before.  When 1/2 an apple or 3-4 grapes would have me on the can for hours.
 
Why?  The bacteria in the kombucha eats the fructose (and more). Something my gut flora can't do.  The downside?  The kombucha doesn't replenish my flora.    It's simply a supplement.  
 
That's the key here.  It works, but it's just temporary.  The bacteria in kombucha is different but does the same thing as the bacteria that SHOULD be in our gut flora.  
 
It's hard to try to explain what I mean, but I believe a healthy person's flora contains the bacteria required to digest the lactose, fructose, glucose, gluten, etc.. etc.. that some of us are missing.   It also can replicate itself.  But it also can be wiped out.  Just like an endangered species visiting Canada introduced to the wrong virus.  :)
 
Blame it on a bad flu or processed food that ruins our flora.  But I do think this fecal transplantation is the key to many of the GI problems we're experiencing.   If you have no idea what I'm talking about, consider yourself lucky, and a possible donor.  :)
 
Now, to find a donor that is someone in the jungles of Africa that's never seen an antibiotic would be a dream.  smile.png  Think about it.... it make sense.  Biology 101 would tell us this.  But to try to express what I'm thinking is hard to do.  It's outside the realm of normal medicine where we think we need a drug to fix our problems.  When in reality, we need nature.


#48 DeanG

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Posted 30 December 2013 - 02:15 PM

I have had IBS for over 2 years now and have explored several alternatives.  It was about 4 months ago that I worked with my wife as the donor to do a Fecal transplant.  Over the course of about 10 days, I actually did about 4 transplants, total.  However, I was not sure what to do about the medications I was on to help control it.  Most of the time, the medications have had side effects worse than the problem they were trying to fix.  After the first transplant, i cut off all meds.  After about a month, i started to get symptoms coming back so i went back on booked an appointment with my GI doc and they altered my meds, but i'm still on them.  I'm convinced that Fecal Transplant is the cure, but I don't know how to come off the meds yet.  Does anyone have anything on what to do with meds during the Transplant / before / after?



#49 cben

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Posted 10 January 2014 - 10:30 AM

I've had on and off again intense IBS-D type symptoms for six years (I believe caused by antibiotic use followed by a gut infection). I thought I had cured my IBS two years ago using a combination of VSL#3, Activia Yogurt, Pepto Bismol and bone stock soup but my symptoms returned with a vengeance three months ago.

 

Last week I completed two Fecal Transplants over three days (first time I ever tried this) using the stool of a friend of mine who has excellent digestion (I followed theFreeman Protocol - used Quaker instant oatmeal). Within a day of completing the treatments my symptoms entirely disappeared and I've been able to eat anything without issue - its quite remarkable and I wanted to share my success with the treatment. Thank you TheFreeman!!


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#50 andyh87

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Posted 09 February 2014 - 04:15 PM

Hi

 

Does anyone have the three protocols that are mentioned on page 1? As the links no longer seem to work.

 

Also I wanted to ask TheFreeman, if you are still here, did you take any measures to help you hold the mixture for 48 hours (I also have IBS-D and I'm not sure I could avoid going to the toilet for that long).

 

Thanks



#51 mr120

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Posted 12 February 2014 - 04:50 AM

Hi Andy,

 

I can't help with the three protocols, I looked at them when he first posted them but that is all forgotten now :(

 

The protocol he uses is really simple so I would just follow that.

 

I was worrying about holding it in,  my advise take 1-2 Imodium 1h or so before starting then take more if needed.

 

For the first 40mins I had to hold on tight but I got through it, after that it stopped being an issue, I think 3-4 hours is an OK holding time, but any less is just not long enough.

48 hours is just boasting - you definitely don't NEED to hold it that long.

Hold it as long as possible, I found after 4 hours were up I didn't need to go for a good 36 hours.

 

 

I did the positions wrong so blame it not working on that (didn't let it propagate through my gut), and plan to try again once I have time.



#52 jennvmail

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Posted 12 February 2014 - 08:16 PM

Hi
 
Does anyone have the three protocols that are mentioned on page 1? As the links no longer seem to work.
 
Also I wanted to ask TheFreeman, if you are still here, did you take any measures to help you hold the mixture for 48 hours (I also have IBS-D and I'm not sure I could avoid going to the toilet for that long).
 
Thanks



#53 jennvmail

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Posted 12 February 2014 - 08:17 PM

You cant unread this, proceed at your own risk.


I kept a copy, here it is.

Fecal bacteriotherapy Protocol

Objective: Maximize the colonization of the gut with foreign bacteria

Quick explanation: A normal healthy guts contain at least 500 hundred families of bacteria, most from the bacteroide family. This particular family of bacteria cannot survive in the presence of air and are, unless someone eat rocks and contaminated stuffs on the ground, about impossible to obtain as an adult. This pretty much mean that if you had a heavy round of antibiotic after childhood, youre most probably missing those extremely important guys. Figure your gut like a forest where every living thing keeps every other in check: balance is obtained by diversification. If you start removing specific life form, you remove balance and create havoc in the ecosystem.
The cereal mix serve as a growing ground for the new bacteria. To avoid osmosis pressure on the bacteria, a mix of 9g NaCl per liter of water is used. A healthy donor is defined as someone without any kind of illnesses of any kind: you should definitely have them tested (I didnt and couldnt care less at the time). Things can go wrong, proceed in your bathroom. Have faith in nature.

Material
Cheap blender (at least 500ml)
Turkey baster (good quality, serviceable)
Dishes glove X 2
Lube
100 ml cereal mix (wheat, almond, oat, raisin, etc)
Bowl
Sea salt (NacL)
Water 300 ml
Healthy donor
Bath tub
Soap
Bed
A good dose of despair (optional)
Method
Assure that the turkey baster tip is soft, use sand paper if necessary
Push your bed on a wall, make sure it wont move away easily
Rinse the cereal mix in tap water to remove excess sugar
Remove excess water from the cereal mix
Pour 300 ml of mild water in the blender
Add 3g of salt in the blender
Add the cereal mix in the blender
Blend the solution (now called solution A)
Apply lube on the turkey baster tip
Collect healthy human feces (now called The Stuff)
Add about 75 ml of The Stuff in the solution A
Blend the solution (now called solution B )
Bring to smoothie like texture
Go in the bath tub with Solution B and the turkey baster
Fill the turkey baster with solution B
Gently (your preference) insert the turkey baster
Slowly push the liquid inside your rectum
Repeat step 13 to 15 until the blender is empty
Take a quick shower if required
Steps 9 to 16 must be performed in less than 30 minutes

Do not wait for too long before getting in the bed, you WILL have an urge if you stay straight up for too long.
Proceed to your bed
Lay down on your left side with your back on the wall (this will eliminate the urge) for 20 min
Shake your belly energetically with your hand to allow propagation
While keeping your shoulder in the same area, move your butt up the wall for 20 min
Shake your belly energetically with your hand to allow propagation
Lay down on your stomach for 20 min
Shake your belly energetically with your hand to allow propagation
Get up for 20 min
Shake your belly energetically with your hand to allow propagation
A thousand nations of the bacteria empire descend upon you.
Lay on your left side (watch movies) and keep the solution as long as you can
When you no longer feel an urge (recommend more than 2h), go clean the equipment
Enjoy life


NOTES
I used three existing protocols to create my own.
http://www.filedropp...splantprotocols
http://www.filedropp...nfusionprotocol
http://www.filedropp...transplantation

Have fun

TheFreeman

#54 aguyinpain2

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Posted 19 February 2014 - 02:02 PM

Hi TheFreeman,
 
I am considering doing a fecal transplant and was wondering, since in your first post you said u used a healthy donor, did you test you donor for anything?
 
Or did you assume, because of healthy appereance and no ilness background, the donor was healthy?
 
Would be great to know.
 
Thanks in advance from the netherlands,
 
aguyinpain2


#55 refuse to live this way

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Posted 19 February 2014 - 05:04 PM

aguyinpain2:  I recently had a FMT in the hospital done by a nurse with orders from my Infectious Disease doctor who diagnosed me with C-diff after having been told I had IBS by several doctors and specialists.  So, either I never had IBS and the FMT cured my C-diff, or it works for both because all of my symptoms have vanished.  My procedure was done though a tube down my nose into my stomach.  My doner was my live-in boyfriend so I didn't have to have him screened because the doctor said if he had anything to give me he would have already have given it to me by now.  Since the FDA in the U.S. has put the procedure on hold except for experimental purposes, I didn't have to pay for the procedure at all.  So, I would say if you can't find a doctor or nurse to administer this procedure, good luck doing yourself.  And as far as a doner is concerned, if you have an intimate partner, they are your best bet for a doner.  Best of luck to you.



#56 Josh7

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Posted 27 February 2014 - 05:30 PM

Hi, I'm just wondering if the stool can be kept and stored outside overnight in some sort of sealed container? As when planning to perform this doesn't always fit in with when the doner can produce... Haha. Storing it overnight won't affect the procedure in any way will it? The sample won't lose any of the important properties it contains? Thanks.

#57 refuse to live this way

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Posted 28 February 2014 - 08:59 AM

I was told by the hospital that they need the donor specimin within 2-6 hours for best results, and do not refrigerate.


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#58 seljo

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Posted 02 March 2014 - 06:23 AM

Hello. Can you tell us the procedure of your FMT in hospital? How they made the mixture? Jst the sample mixed with the salted water and than sieve it? How much of the semple mixed with salin did they give you in your stomach?

Im thinking, is that possible to do at home...without tube...to drink the...you know what:) it is disgusting but if helps...

 

Sry for bad english...



#59 Josh7

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Posted 04 March 2014 - 02:45 PM

Thanks, problem is I'd probably have to store it overnight but I'll try to make sure it's between 2-6 hours.

#60 mr120

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Posted 04 March 2014 - 06:56 PM

There are some that refrigerate it, i think I heard that can be OK for a few hours, but don't simply leave it out, it would be useless to you after a short time like that.







Also tagged with one or more of these keywords: Fecal bacteriotherapy, fecal transplant, IBS-D, recovery, success, bacteria, human probiotic infusion, Crazy stuff


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