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#1 ohioisforlovers

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Posted 02 July 2014 - 09:14 AM

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Hi there! I'm Sarah and I'm 27 (soon to be 28). Over the last two years my stomach has become more sensitive. Last summer it got so bad that I could barely stand it. I was having intense stomach cramping and burning, foul gas and BM's, diarrhea, weight loss, nausea and anxiety. After having a colonoscopy, blood work, stool tests, and an ultrasound, the doctor found nothing wrong with me. I was tested for Celiac-negative. However at that time I was not consuming gluten on a daily basis. 

 

One doctor recommended a food elimination diet. I tried dairy first and saw no results. I tried gluten-free last October and I was 100% better in one month's time. I was so beyond happy. I have been gluten free since then, but my symptoms have started to creep back over the last 4 months. I gave up dairy and it only helped a small amount. 

 

This year I had an endoscopy, blood work, stool testing, and an h. pylori breath test. All were normal. 

 

At this point I am depressed, anxious, and in pain every single day. I have given up all processed foods (I still eat rice because it tends to help me) and have noticed that my pain isn't AS severe but now I am more constipated along with my cramping. My stools are still foul but they are easier to flush now, but they still leave me wiping myself a lot. Like I can't get clean. 

 

This has affected my life so much. I'm not nearly as social anymore and I'm afraid to go out anywhere unless I know where the bathroom is located. I'm scared to eat food that I didn't cook. And to top it off, I'm getting married in September. I'm so so scared that I will be hurting and rushing to the bathroom on my big day. 

 

After doing my own research, I've decided to order a few supplements. I've been taking L-Glutamine for one week, as well as a daily women's vitamin. I ordered digestive enzymes and inulin prebiotics. I also ordered NAG (N-Acetyl Glucosamine) today. i'm still waiting to receive the last three items.

 

At this point I don't know what else to do as far as doctors go. Has anyone had any results with the supplements listed above? Any other suggestions? Thank you!

 

EDITED: I have tried prescription cramping medication and it doesn't help, but it makes me constipated. 



#2 JuneBloom

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Posted 03 July 2014 - 08:29 AM

Sometimes it helps to seek out a new GI doc. It took me 2 years (and over 50 lbs. of weight lost) to finally get a correct diagnosis and treatment. I still have about 20 lbs. to gain to reach my ideal weight, but it's so much easier to do without the horrible IBS-D symptoms ruling my every thought. Sometimes it just takes a different "eye" to look at your health situation. 

In the meantime, if you haven't already, check out the low FODMAP diet. I got on it and within 24 hours I was having formed stools. 3 weeks later and I actually feel "normal" again. To my surprise, even though I was eating healthy, I was eating mostly high FODMAP foods (applesauce, watermelon, cherries, asparagus, broccoli, beans, gatoraid to combat the diarrhea, etc.) 

Just don't give up! And don't feel bad about changing doctors, even a GI specialist can't know everything about every persons' gut.



#3 Leaningonjesus

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Posted 03 July 2014 - 09:03 AM

Wow... My name is Sarah as well and I'm 27. I am suffering pretty much the same symptoms as you. Every time I feel like my health is back I slip up and eat junk food or processed food and my stomach cramps up again and I get hit with diarrhea and weight loss, nausea and anxiety etc. I've played around with eliminating gluten as well and it seemed to help a lot. At one point I was only eating veggies and limited fruit and probiotic yogurt along with lean meats like chicken and fish (not battered). Rice is also good on my stomach. Anyways I am sorry to say I don't have much advice just sympathy. I feel your pain! :( also I have noticed the last couple flare ups have happened just after I've had my period. Not sure if there's a correlation? Have you noticed?

#4 ohioisforlovers

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Posted 09 July 2014 - 09:17 AM

Sometimes it helps to seek out a new GI doc. It took me 2 years (and over 50 lbs. of weight lost) to finally get a correct diagnosis and treatment. I still have about 20 lbs. to gain to reach my ideal weight, but it's so much easier to do without the horrible IBS-D symptoms ruling my every thought. Sometimes it just takes a different "eye" to look at your health situation. 

In the meantime, if you haven't already, check out the low FODMAP diet. I got on it and within 24 hours I was having formed stools. 3 weeks later and I actually feel "normal" again. To my surprise, even though I was eating healthy, I was eating mostly high FODMAP foods (applesauce, watermelon, cherries, asparagus, broccoli, beans, gatoraid to combat the diarrhea, etc.) 

Just don't give up! And don't feel bad about changing doctors, even a GI specialist can't know everything about every persons' gut.

 

I've seen three GI doctors now. None of them can figure this out. :( I definitely notice that when I have certain veggies like broccoli, it hurts so bad it might as well be gluten. I had broccoli on Monday night (cooked) and was sick all morning on Tuesday. Sigh.

 

Wow... My name is Sarah as well and I'm 27. I am suffering pretty much the same symptoms as you. Every time I feel like my health is back I slip up and eat junk food or processed food and my stomach cramps up again and I get hit with diarrhea and weight loss, nausea and anxiety etc. I've played around with eliminating gluten as well and it seemed to help a lot. At one point I was only eating veggies and limited fruit and probiotic yogurt along with lean meats like chicken and fish (not battered). Rice is also good on my stomach. Anyways I am sorry to say I don't have much advice just sympathy. I feel your pain! sad.png also I have noticed the last couple flare ups have happened just after I've had my period. Not sure if there's a correlation? Have you noticed?

 

Wow Sarah, we sound like twins! I have terrible periods and I am sick with diarrhea and terrible cramping the entire week I am on my period. I've also wondered if it's related or maybe my gastro issues are just making my periods worse? Right now I do okay with lean meats, fruits, certain veggies, almonds, and rice. If I try different sauces (even gluten free ones) or try fattier meats like beef... I'm doomed. I made my own healthy fried rice on Monday night with lots of veggies and I was dying on Tuesday morning. Even now I'm sitting here in pain even though I already had a BM at 9:30. :(



#5 ohioisforlovers

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Posted 09 July 2014 - 09:37 AM

I should add that there are tons of items on the FODMAP "good" list that I can't eat. Such as dairy and cold cuts. And anything high in fat. Sigh.



#6 Kathleen M.

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Posted 09 July 2014 - 10:55 AM

A lot depends on what part of the how food interacts with the gut you have issues with.

 

Some people tolerate the gas from fodmaps OK, but do not tolerate fat at all; so, unforutnately, there isn't any one size fits all diet for IBS.

 

Sometimes eliminating gluten means you eliminate some of the fodmaps (the ones from wheat) but you may still have problems with high fodmap veggies or fruits.  Broccoli and other cabbage family veggies are high in fodmaps.


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#7 ohioisforlovers

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Posted 14 July 2014 - 02:56 PM

As of Sunday morning, no food is safe. Everything I tried to eat yesterday and today have all backfired. Within 2 hours of eating anything I get stabbing stomach pains (so bad that I'm gripping something like my shirt or the couch) and diarrhea. I had to cancel a side job yesterday because it was so bad. Sigh. I'm going to call my doctor tomorrow, although I'm not sure what good that will do as she has already sent me for every test under the sun. 







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