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Now the drugs don't work. They just make you worse.

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#1 twonK

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Posted 15 September 2015 - 11:40 AM

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Hi,

 

I'm pretty much at the end of my tether with abdominal pain & discomfort.  I can't get any relief from it.  In a nutshell I'm diagnosed IBS-C - which I definitely have - but there's also something else going on.  These are the meds I've tried (that I can remember) that haven't helped:

  • Amitiza, Zelnorm, Linzess
  • Rifaximin 
  • Hyoscyamine (Levbid), Dicyclomine
  • Oxycodone, Fenatyl patches (both opiates)
  • Botox injections into back and into belly button (where pain is most severe)
  • Marinol (synthetic marijuana)
  • All laxatives
  • Peppermint oil capsules
  • Tons of anti-depressants, all classes including Effexor, Nortriptyline, Nardil, Lexapro, Wellbutrin, the list goes on
  • Neurontin, Lyrica
  • Benadryl
  • various Pro and Pre biotics
  • Kefir and other like *biotic foodstuffs

So is that it?  Anything else to try?  That's all that modern medicine has?  How ducking depressing.

 

Pete


Meds: Provigil, Lexapro, Wellbutrin, others

Current: IBS-C, OCD, Refractory Depression for 20+ years

Fixed: Hydronephrosis, Bilateral compartment syndrome


#2 jaumeb

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Posted 15 September 2015 - 12:58 PM

I used to listen to that song. How appropriate!
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#3 jaumeb

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Posted 16 September 2015 - 09:21 AM

I am not sure if I have mentioned this before: have you checked the scd constipation protocol?

#4 twonK

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Posted 17 September 2015 - 10:03 AM

I am not sure if I have mentioned this before: have you checked the scd constipation protocol?

 

not specifically but I have done the caveman/exclusion diet, which is even stricter at the outset and didn't find consistent relief.  Thanks for the suggestion though - nice to know someone out there is having a think!


Meds: Provigil, Lexapro, Wellbutrin, others

Current: IBS-C, OCD, Refractory Depression for 20+ years

Fixed: Hydronephrosis, Bilateral compartment syndrome


#5 jaumeb

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Posted 17 September 2015 - 01:32 PM

The constipation protocol is not the diet. I copy-paste for you:
The first step is to get up one hour earlier in the morning if you usually have to go to work. The morning is the normal time for people to have a bowel movement - right after breakfast and the regimen I am giving you is based on this principle. Start this regimen on the weekend when you do not have to go out as it may cause urgency.

Get on the introductory diet for two days. Then introduce the muffins, one per day, along with COOKED AND PEELED vegetables and fruits. Raw fruit and vegetables (with the exception of the ripe banana) can aggravate both diarrhea and constipation. When you are adjusted to the diet, we can then start the treatment for constipation altho the diet alone may do the trick. Introduce a few stewed prunes with your breakfast - about 3-4 for about one week. See if that helps along with the SCD.

If the diet and stewed prune do not make you go to the bathroom after a week to ten days, do the following:

1) Go to the market and look for PRUNE NECTAR (legal, without sugar). If you cannot find prune nectar, buy prune juice (legal) in a jar. Simmer the contents of the jar to half the volume. In other words, if you start with one quart, simmer it down to one pint. Refrigerate.

2) At breakfast, mix three tablespoons of the prune nectar with 1/2 cup Tropicana or freshly squeeze orange juice.

3) Start your breakfast with this mixture. Then eat your regular specific carbohydrate breakfast but make sure you have a large cup of something hot. Either your coffee or tea. Then go to the washroom and see if anything happens. Read and relax. If this does not work the first day, repeat for two or three days. On the fourth day if this does not work, then insert a glycerin suppository (get in drugstore) while you are sitting on the toilet and hold it in for one minute. If it still doesn't work, do the same thing the next day. It would not hurt on the first day you try the glycerin suppository after breakfast to use another one before going to bed. I am trying to establish a normal pattern of defecation for you and it may take almost a month. However, the children responded in a short time without the suppository.

#6 twonK

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Posted 19 September 2015 - 09:05 AM

The constipation protocol is not the diet. I copy-paste for you:
The first step is to get up one hour earlier in the morning if you usually have to go to work. The morning is the normal time for people to have a bowel movement - right after breakfast and the regimen I am giving you is based on this principle. Start this regimen on the weekend when you do not have to go out as it may cause urgency.

Get on the introductory diet for two days. Then introduce the muffins, one per day, along with COOKED AND PEELED vegetables and fruits. Raw fruit and vegetables (with the exception of the ripe banana) can aggravate both diarrhea and constipation. When you are adjusted to the diet, we can then start the treatment for constipation altho the diet alone may do the trick. Introduce a few stewed prunes with your breakfast - about 3-4 for about one week. See if that helps along with the SCD.

If the diet and stewed prune do not make you go to the bathroom after a week to ten days, do the following:

1) Go to the market and look for PRUNE NECTAR (legal, without sugar). If you cannot find prune nectar, buy prune juice (legal) in a jar. Simmer the contents of the jar to half the volume. In other words, if you start with one quart, simmer it down to one pint. Refrigerate.

2) At breakfast, mix three tablespoons of the prune nectar with 1/2 cup Tropicana or freshly squeeze orange juice.

3) Start your breakfast with this mixture. Then eat your regular specific carbohydrate breakfast but make sure you have a large cup of something hot. Either your coffee or tea. Then go to the washroom and see if anything happens. Read and relax. If this does not work the first day, repeat for two or three days. On the fourth day if this does not work, then insert a glycerin suppository (get in drugstore) while you are sitting on the toilet and hold it in for one minute. If it still doesn't work, do the same thing the next day. It would not hurt on the first day you try the glycerin suppository after breakfast to use another one before going to bed. I am trying to establish a normal pattern of defecation for you and it may take almost a month. However, the children responded in a short time without the suppository.

 

nice one.  I haven't tried that approach.  Given that exactly zero diets have helped me in the past it's highly unlikely to work but I'll give it a go.  Thanks.


Meds: Provigil, Lexapro, Wellbutrin, others

Current: IBS-C, OCD, Refractory Depression for 20+ years

Fixed: Hydronephrosis, Bilateral compartment syndrome


#7 jaumeb

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Posted 19 September 2015 - 11:06 AM

It's meant to work in combination with the "intro" scd diet.

I haven't tried myself as my problems are D and pain.





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