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undiagnosed abdominal and pelvic pain suffering daily

abdominal pain pelvic pain bloating gas urinary pain fatigue

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#1 Sydney Rose

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Posted 18 July 2016 - 09:28 PM

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Hello, my name is Sydney, I am 20 years old, and suffer from chronic abdominal and pelvic pain. I have been through the ringer with abdominal medical testing (colonoscopy, endoscopy, gastric emptying, colon biopsy, barium enema, manometry, and so on...) which has still left me with no answers because all the tests showed up normal. I am just now seeing a gynecologist and they are going to do further testing, but I am very skeptical that they can help me at all because I have had no luck with doctors. Here is what happens: I have abdominal pain, fullness, tightness, and trapped gas most or almost every second of my life. I have dealt with my constipation by taking OxyPowder and using a SquattyPotty, but I still experience pain. I experience pelvic and urinary pain often. The pelvic pain is hell for about 10 days before my period, eases up slightly, and then returns halfway through my period, where an occasional trip to the ER is made because the pain leaves me screaming/crying. I have pain in my pelvis when I defecate, so thank god for the squatty potty or I wouldn't be able to push anything out at all. I have pain in my pelvis most times after intercourse. When ever I have a BM, I experience cramping, incomplete movement, and pain afterwards. I feel fatigued and just plain tired all the time (not how a 20 year old who is overall very healthy, should feel). I had a cyst on my ovary when I was younger, and started my cycle very late. Don't know if that factors in at all. Living in pain everyday makes it very difficult to be happy, but I manage because I have support. Eating is almost 85-90% of the time accompanied with pain. Before you ask, yes, I have been through the ringer with food allergies, and have avoided foods throughout my life. Done the fodmaps, went paleo/whole food, I take vitamins, do yoga, walk/jog, and was a vegetarian for years but had to add meat in my diet to help me go and have some energy. If anyone has any suggestions, I really appreciate it. 

 

P.S. I also have extreme fatigue and weakness as well as urinary issues. 

 

Thank you,

 

Sydney 



#2 annie7

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Posted 19 July 2016 - 07:40 AM

so sorry about all your pain.   living with chronic pain like that can be very difficult.

 

i don't know if this will be of any help to you but you mentioned incomplete bowel movements. have you been tested for pelvic floor dysfunction?   with pfd, the pelvic floor muscles do not  coordinate and/or relax properly to allow easy passage of stool. ineffective pelvic floor muscle coordination results in inadequate relaxation of the pelvic floor while attempting to have a BM. the puborectalis muscle tightens and contracts when it is supposed to relax to allow passage of stool.  

 

      http://my.clevelandc...oor_dysfunction

 
a defecatory proctogram  (defecography)  test will show if you have pfd as well as reveal if you have any other outlet problems like a rectocele, vaginal prolapse, rectal prolapse, etc. an anal manometry also helps diagnose pelvic floor problems.
 
biofeedback and physical therapy can be effective in correcting pfd.
 
      there is also a book called "  A Headache in the Pelvis" by David Wise and Rodney Anderson which i hear is an excellent book for  those with pelvic pain.  it's available on amazon and elsewhere.
 
 
                     https://www.amazon.c...d/dp/0972775552
             
 
i do hope that somehow you can find some relief. take care,

these are just my own thoughts. for expert medical advice please contact a health care professional.


#3 MaroonGirl

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Posted 21 July 2016 - 12:57 PM

Hello, my name is Sydney, I am 20 years old, and suffer from chronic abdominal and pelvic pain. I have been through the ringer with abdominal medical testing (colonoscopy, endoscopy, gastric emptying, colon biopsy, barium enema, manometry, and so on...) which has still left me with no answers because all the tests showed up normal. I am just now seeing a gynecologist and they are going to do further testing, but I am very skeptical that they can help me at all because I have had no luck with doctors. Here is what happens: I have abdominal pain, fullness, tightness, and trapped gas most or almost every second of my life. I have dealt with my constipation by taking OxyPowder and using a SquattyPotty, but I still experience pain. I experience pelvic and urinary pain often. The pelvic pain is hell for about 10 days before my period, eases up slightly, and then returns halfway through my period, where an occasional trip to the ER is made because the pain leaves me screaming/crying. I have pain in my pelvis when I defecate, so thank god for the squatty potty or I wouldn't be able to push anything out at all. I have pain in my pelvis most times after intercourse. When ever I have a BM, I experience cramping, incomplete movement, and pain afterwards. I feel fatigued and just plain tired all the time (not how a 20 year old who is overall very healthy, should feel). I had a cyst on my ovary when I was younger, and started my cycle very late. Don't know if that factors in at all. Living in pain everyday makes it very difficult to be happy, but I manage because I have support. Eating is almost 85-90% of the time accompanied with pain. Before you ask, yes, I have been through the ringer with food allergies, and have avoided foods throughout my life. Done the fodmaps, went paleo/whole food, I take vitamins, do yoga, walk/jog, and was a vegetarian for years but had to add meat in my diet to help me go and have some energy. If anyone has any suggestions, I really appreciate it. 

 

P.S. I also have extreme fatigue and weakness as well as urinary issues. 

 

Thank you,

 

Sydney 

Definitely get tested for UTI and STDs( I am talking urine and swab tests).Request a transvaginal ultrasound for endo if possible. Any of those things can be contributing to your pain. You said that you are seeing a gyno. I hope you find some leads there.

Keep us posted and hang in there! xx



#4 Sydney Rose

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Posted 31 July 2016 - 05:24 PM

 

so sorry about all your pain.   living with chronic pain like that can be very difficult.

 

i don't know if this will be of any help to you but you mentioned incomplete bowel movements. have you been tested for pelvic floor dysfunction?   with pfd, the pelvic floor muscles do not  coordinate and/or relax properly to allow easy passage of stool. ineffective pelvic floor muscle coordination results in inadequate relaxation of the pelvic floor while attempting to have a BM. the puborectalis muscle tightens and contracts when it is supposed to relax to allow passage of stool.  

 

      http://my.clevelandc...oor_dysfunction

 
a defecatory proctogram  (defecography)  test will show if you have pfd as well as reveal if you have any other outlet problems like a rectocele, vaginal prolapse, rectal prolapse, etc. an anal manometry also helps diagnose pelvic floor problems.
 
biofeedback and physical therapy can be effective in correcting pfd.
 
      there is also a book called "  A Headache in the Pelvis" by David Wise and Rodney Anderson which i hear is an excellent book for  those with pelvic pain.  it's available on amazon and elsewhere.
 
 
                     https://www.amazon.c...d/dp/0972775552
             
 
i do hope that somehow you can find some relief. take care,

 

Thank you so much for your suggestions. I am going to check it out. I had the manometry test done and I actually could not push out the applicator at the end. I had great difficulty. I cannot go to the bathroom without my squatty potty. They were looking for Hirschsprung's disease, which came back negative, and totally overlooked the fact that I had issues with the manometry but labeled it as normal. 



#5 annie7

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Posted 01 August 2016 - 05:33 AM

i had the manometry test done also--twice actually. both times i too was unable to push out the applicator (balloon).  my gastroenterologist told me that being unable to push it out is definitely a sign of pelvic floor dysfunction.  what a shame that in your case your issues with the manometry were overlooked!

 

   here is a link explaining the anal manometry. scroll down to where it says "balloon expulsion test".  that's where it says that problems  with this part of the test suggests anorectal dysfunction.

 

 

      https://www.bladderh...-manometry.html

 

yes do follow up on all this with your doctor.  the doctor really should give you a defecogram (defecatory proctogram) in order to see if you have pelvic floor dysfunction as well as any other outlet problems. biofeedback and balloon expulsion therapy with a properly trained physical therapist can help you with pfd and can teach you how to properly relax and coordinate your pelvic floor muscles so as to have a more complete bowel movement. 


these are just my own thoughts. for expert medical advice please contact a health care professional.


#6 jaumeb

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Posted 01 August 2016 - 05:43 AM

Afaik there is not a quick fix for this condition. I have also tried several diets over the years. That doesn't mean that diet doesn't matter! It means that a good diet might not be enough.

#7 ChrisB85

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Posted 19 August 2016 - 10:58 AM

Has anyone considered going to the 6 Day Anderson Wise Clinic for Pelvic Floor Dysfunction? I have improved my symptoms with botox and PT but it is still lingering.... I can now expel a balloon and do internal trigger points but I was told the 6 Day clinic is the ultimate treatment.

 

I am also considering prolotherapy: http://www.caringmed...or-dysfunction/



#8 jaumeb

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Posted 19 August 2016 - 12:53 PM

I have read stories of people that has been in the clinic. I think you should try to contact people that has attended the clinic that can tell you what to expect.

#9 whyworryac

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Posted 01 September 2016 - 02:18 PM

Reading about your symptoms makes me think possibly Endo. I'm looking into that myself a little, wondering if it's worth getting the exploratory laproscopic procedure to really see...







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