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Newbie - What in the heck do I have?

IBD IBS Crohns

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#1 Michaelsmoment

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Posted 31 January 2017 - 02:39 PM

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Hi everyone - I am 47 years old and have had symptoms of something - IBD/IBS/Crohns/AngryGuts -  for about the last five years - although never formally diagnosed. I alternate between periods of extreme constipation and longer periods of intense, very little warning diarrhea. About three years I had my first "Michaelsmoment" in the craft store Michaels. While walking around with my daughter I felt some slight cramping that quickly became painful enough for me to have to stop walking and grip the cart until the wave passed. I headed back toward the bathrooms in the rear of the store (no pun intended) and it became very evident I was not going to make it. so started the horrible journey of 1000 steps with uncontrolled bursts of poop and I made it to the stall - more mortified than I have ever been in my life. Thank goodness my daughter was with me and could go next door to Walmart to purchase me a new pair of pants - because mine were not salvageable. Add to that having to clean my own rear, back, thighs and legs with paper thin toilet paper - getting poop everywhere and having people come in and out of the bathroom gagging and saying some very unkind things. I went to the doctor after that episode and was told to keep my meals small and frequent - no high fat foods - limit processed foods. I am also a type II diabetic so that wasn't a stretch for me. Fast forwarding through the last few years, no more 'Michaels moments' however several incidents of not being able to make it to the bathroom at home - whether in bed sleeping and waking up with a start - or just puttering around the house. (no pun intended). However this last weekend I had a "michaels moment" from hell at the Imax theatre at the Grand Canyon. We had stayed at a hotel in Grand Canyon Village and between checking out and my incident we had stopped at a Wendy's, a Circle K, and a liquor store for me to run in and use the bathroom. each time was close - but I made it. However almost to the park - we had to pull into the Imax Theatre and sure enough, I didn't make it to the bathroom - had not grabbed my phone - and the place was completely full of tourists. Once in the stall - I had a horrible mess that was worse than the first time - no way to call my daughter in the car - and I was helpless, in my shirt only - standing in the stall. I was so mortified and tried asking through the stall door for help, a phone, paper towels, anything. No one helped for almost twenty minutes. Finally I stuck my head out and saw a worker cleaning the sinks and said "please help me" and she came over - all the while exclaiming in spanish and saying "oh my god" Finally got her to see what had happened and she went out to the parking lot to search for my daughter. Never a kind look or word - only disgust and anger at me. There really has to be a way to educate the public more than it is now - I know there are 'gotta go' cards, but not everywhere - and people look at you like you are subhuman and shouldn't be out in public. Horrifying and humbling. So here I am - I looked up statistics and found out how many millions of people suffer from IBD/IBS/Crohns/etc. related problems and I couldn't believe it!!



#2 Hatemybowels!

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Posted 31 January 2017 - 03:56 PM

I'm so sorry to hear of your horror stories!! Bless your heart! I would say see a GI doc ASAP and go from there. I would hope the would do stool tests, blood work, scopes, etc., until you have a diagnosis. This is a horrible way to have to live! Have you tried Imodium? Are you on Metformin for your diabetes? I've heard that can cause diarrhea. So just a thought.
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#3 PD85

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Posted 31 January 2017 - 07:34 PM

Yes you need to run all the standard parasite/bacterial infections and please let your doctor know that you are waking in the middle of the night to not go. This is NOT normally a symptom of IBS and is usually a symptom of something else. 


"I could be wrong about everything." -Me


#4 gommerkrinkle

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Posted 01 February 2017 - 04:06 AM

If you had an infection would not you have a temp ? I am a 61 yr old paraplegic & have been in a wheelchair 40 years, had an operation 2 yrs ago & since then the old digestive track has had a bit of a hard time. In October last year had bowel pain from gas & new GP scripted me anti spasmodic which really is not something you should give to someone with neurogenic bowel. I had explained that I was on Senna as well which I took as usual that night at 9pm, but at 2am was in so much pain you reach for whatever will give you a break & I took the anti spasmodic. The Senna takes 8 to 12 hours to work so had one thing which is a stimulant & another doing the opposite, this really screwed things up for a while. About 2 wks ago had lunch at a breakfast bar & thought the pie might have been a bit off as the heating unit had broken & they may have been reheating out back, tummy was a bit upset for two days & then started to take some digestive bitters (5ml 3 times a day) which I only took for one day as again it screwed with my guts. Ever since then have been getting a gripping burning pain lower right tummy & wonder if this is IBS ? Today it has been constant and annoying & also not sure if it is gas or something else but will see GI doctor on the 19th. I know that Senna itself is hard on the guts & wish I had never started using it but was not aware of the issues until I had been on it for 12 months (heaps of people in the SCI community appear to be using it)



#5 Missi

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Posted 01 February 2017 - 12:35 PM

Michaelsmoment ~

I am sorry to hear about your horrible experience at Michaels and the IMAX. I have been diagnosed with IBS C&D and with spastic colon. Like you, I could not believe all of the people suffering with IBS problems and yes, some of our friends here do have severe D issues like you just described. I agree with the other members that have replied to your post that you need to go see a GI doc sooner than later. It may take several weeks to get in to a doc, so make your appointment today. In the meantime, try to remain calm. I know it's so hard but our anxiety makes it all the worse. Try to stay away from Dr. Google as most of us have experienced worsened fear and anxiety by reading the worst of the worse scenarios. This group is a good place to come to for support and to learn different ways to manage IBS but you gotta get on with getting a diagnosis. Try to think positive and keep us posted!

Missi

 

"In the end it is love that wins the heart."


#6 JulieK

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Posted 01 February 2017 - 12:49 PM

If there's one thing I've noticed since becoming a member, it's the frank and open honesty here, the lack of judgement, the understanding and support.  I have not experienced what you have, Michaelsmoment, although many 'close' moments that had the potential for disaster. But I do know you're far from alone and the people here are great.  Thank you for sharing your story, you have much empathy from us, and I hope you can get some answers and start feeling better :)







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