Posted 04 February 2018 - 10:20 AM
Hi, I am after some advice and general understanding from anyone who has gone through similar. I am new to the forum having trawled the internet for help while undergoing continued tests from a nhs gynaecologist. I was first diagnosed with IBS around 2-3 yrs ago after finding that I suddenly needed to keep going to the toilet even if Indidn't pass anything. Before this I would go once a day only in the morning. Now I found I needed to go 5-6 times but rarely passed anything after midday. To cut a long story short the situation got worse around 7 months ago when My weight loss started to increase suddenly and my straining getting to the point where I was red in the face and needing a lie down from exhaustion s afterwards. I am a 42 yr old male and before IBS I was already slim at 10.5 stone but am now 8.7 stone and still losing weight. I have developed a flat toned stomach that is rock hard from the straining (at least there's some benefit!). However I have also got a rectal prolapse which I have now had for 7 mths and is getting worse. It is so painful and more of the colon is coming out as it continues without being corrected. I am borderline amnemic with folate score of 4.9 at last test and so am constantly exhausted. The gynaecologist has no idea what is causing it and is baffled as to how Inhave developed a prolapse (rare in men, rarer still in young men apparently) and I have had two conolocsopy's and a CT scan but nothing is coming up as an issue. I am waiting on a Procotmoy appointment. The problem I am having trouble understanding is my symptoms which seem inconsistent:
I am on the toilet for an hour in the morning and can't stop. And yet I have to strain hard to get it out. If I then stand up or lie down I need to go again. It means I go to the toilet for an hour, have a shower, rush to the toilet again, get dressed, have breakfast, and rush to the toilet again. Get to work, go to the toilet but now little comes out. Every two hours I need to go through the day but only mucus and blood comes out. Because of the prolapse sometimes my hand is covered in blood and I have blood in my stools and on the tissue every time. Cancer, celiac, crones have all been ruled out. I can't work out if I am constipated or have diarrahia as I have both?! I also have never had bloating which seems to be a common IBS sympton. I am so confused have tried so much. I am in so much pain and can't focus on anything during the day and feel exhausted.
I would really like to know if anyone has similar bowel habits and any advice as to whether this is classed as constipation or Diaharia or both. My stools differ, sometimes pellets ( especially if I have gluten free food), solid, semi solid, to semi runny. I have to strain to make it come out really hard whichever and yet it doesn't stop coming in the morning and if I didn't I would be on the toilet even more so feel I have to get it all out. I have to crouch off them toilet and stick tissue up my colon to get it out.
I know this sounds like a lot of info and not very nice but I am just so depressed about the situation and frustrated at how long it is taken to get any answers I though someone might have gone through similar or offer advice. The gynaecologist won't operate until he knows what has caused the prolapse but everyday is a harder struggle to get through and I am worried about the longer term impacts of my colon coming out more and more. It will pop out as soon as I strain a little now as well.
Thinman (getting thinner!)
Posted 04 February 2018 - 02:43 PM
It sounds like you might be constipated and the diarrhea is the only way your body can get waste out because of the prolapse, but I'm not certain about the constipation. Until you get your rectal prolapse fixed or it goes away, it will most likely be very hard to have BM's. I have IBS-C and had 4th degree prolapsing hemorrhoids and until I got surgery on them it was hard to go. As I always say, "The runway (your rectum) needs to be clear!"
If I were you? I would perhaps try fasting for about a week on nothing but water to see if your rectal prolapse goes away. If it goes away afterwards? Fantastic. Then I would just drink 100% vegetable juice for day or two, then slowly go back on regular foods. If you feel the slightest bit of constipation and there is still no prolapse? Start taking something EVERY DAY to help you go. I use and recommend Dr. Schulze's Intestinal Formula # 1.
If you can't get rid of the prolapse or don't want try fasting, surgery sounds like something you just may very well have to get.
If you think you might want to try fasting, here is a good book (free to read!) to start out with:
It was written over a hundred years ago, which I think is really cool.
Good luck Thinman and please keep us posted.
Posted 06 February 2018 - 03:06 PM
Thanks for the reply Flossy. Because I have lost so much weight and continue to (and am so tired all of the time), taking a fasting route would not be right for me. I am also borderline amnemic because of the issues and so I fear this would only make that worse. My rectal proplapse is external and so not eating won't make it stop popping out - I seem to have lost all muscle support in that area as it pops out now just by sitting on the toilet.
Having read through more on the forums and google since posting I am wondering if I have DFD and so researching bio feedback therapy
Posted 06 February 2018 - 03:50 PM
I am not sure of the types of certifications for dietitians in the UK, but it sounds like you need a clinical dietician, or one who works in hospitals- someone who understands how food could be helping/hurting your condition. Dietitians with proper training understand surgeries and common gastrointestinal disease and can help you feel better and regulate your bowel movements. They often work in conjunction with doctors, but their speciality is how food impacts how you feel.
Can you get access to someone like that in the UK?