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Silicol Gel. Wow!


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#1 elenacs

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Posted 13 February 2018 - 07:34 PM

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I'm here trying to get insight into my daughter's chronic condition. She's 13 has had GI issues her whole life...since infancy. Been through nearly every test/procedure all to find normal results.  She was scheduled for another endoscopy (has had 2 before) and a colonoscopy (never had one done) yesterday but we all came down with the flu last week and we had to cancel it. 

 

She has always struggled with fullness, IBS-A, GERD but has done ok in terms of school and getting on with life the best she can.  She's seen at Children's Hospital in Boston by one of the top pediatric Motility docs in the country. We're lucky to live close to the city. 

 

Summer 2016 after a trip to Mexico she came down with a horrible bout of God knows what.  Looking back it was probably gastritis, dysbiosis in the gut causing loose bowel movements numerous times a day, etc....She did a 3 week course of Rifaximin  which constipated her and took away maybe 50% of her symptoms but after 2 days of stopping the loose stool and pain came back. Did low Fodmap Diet for 4 weeks which was amazing for her in everyday.....But then after the 4 weeks she and I caught and AWFUL GI bug.  She's never been the same. Chronic loose stool.  Doc put her on Pepto Bismol which helped her so much.  Constipated her a bit but it she was eating well, no pain, doing terrific. Yet every time she went off the Pepto the loose stool and pain would come roaring back. Even a tiny bit of Pepto would calm it all down (¼ dose a day!).  This is why she was scheduled for the colonoscopy..to see if there was something else going on.  

 

Last week she caught the flu, so she took no Pepto. After 3 days the cramping started and the stool starting to loosening up.  For whatever reason I purchased Silicol Gel a month ago because I was searching for an alternative to Pepto as it isn't a good long-term solution.   I started to give her 1-2 doses a day (3 is standard). Within a day her symptoms settled down and she's actually more constipated, but not pain.  I'm going to cut her back to once a day and see if that will help counter the constipation. It's only been 5 days but I can't believe this supplement actually is helping her.  I think it proves that there are toxins in her gut causing all of her symptoms.  I haven't told her GI or dietician yet because I want a good 2-3 weeks before I inform them of how the SIlicol is working.  

 

Anyone have thoughts on Silicol Gel? Enterosorb is a similar type of product that I might purchase for her to try instead if this is too constpiating.  

 

Any input would be greatly appreciated. 

 

 



#2 RubyinMD

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Posted 15 February 2018 - 06:34 PM

Can you tell me the brand you bought and what dosage your daughter is taking?



#3 Akn1965

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Posted 15 February 2018 - 09:09 PM

Yes,please update.I see it expensive.

#4 elenacs

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Posted 17 February 2018 - 08:06 AM

Saguna Silicol Gel (not the topical version).

 

I purchased it on Amazon out of desperation.  Read about a million reviews from the UK and decided to give it a go.  She is 13 and can take adult dosages.  

 

The bottle says adults 1TBSP 3x/day.  I started with 1 TBSP and went up to 1 TBSP 2x/day.  Every other day I only give 1TBSP. If she gets too backed up I have sometimes given 2tsp a day.  I play with the dosage but haven't gone over 2 TBSP a day. 

 

For all the aggravation and pain she has gone through...all the various supplements, probiotics and testing she's gone through I will be happy to shell out the $ for this stuff if it is helpful to her.  She has had no cramping of bloating with its usage.   In the past 2 weeks she has had the flu and now another awful sore throat congestion virus going around her school and it is still keeping her IBS-D in check. All my fingers are crossed!

 

I am going to reach out to her nutritionist Kate S. and let her know my finding.  I am certain she has toxins in her GI tract causing her IBS-D. It's not all 'in her head.' This is just validating my belief. 

 

Best,

Elena



#5 Max Zorin

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Posted 19 February 2018 - 05:17 AM

Just to add something to the Silicol topic and to try to understand better how it benefits to some people, I've read a study this week end (http://mbio.asm.org/...300-15.abstract) talking about how most of us are lacking of Faecalibacterium prausnitzii strain in our guts. This particular bacteria is an anti-inflammatory one and it's difficult to make it grow, pack, sell etc... as it dies in contact to O2 and only prosper in an CO2 environment, so you won't find a probiotic with this particular strain.

Nevertheless, as it prosper in a CO2 environment, it's possible to "feed it" with a prebiotic and if I understand this well, Silicol Gel and salycilic acid plays that role and nurture Faecalibacterium prausnitzii in patient gut.

 

So I dont' know if people around here having success with Silicol Gel had the opportunity to have a test of their microbiome to know what type of strains they are lacking ? And if Faecalibacterium prausnitzii were one of them ?

 

I didn't had this particular test myself but I bought a bottle of Silicol Gel, I will let you know if it improves my condition !


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#6 dekkalife

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Posted 26 February 2018 - 08:43 PM

I tried silica gel many years ago for acne, and don't remember it helping my bowels. I noticed the other day however that there are a few brands that are marketed specifically for gastrointestinal health, rather than skin, hair and nails.

 

I've ordered a bottle of Silicol Gel to try, and have also emailed Saguna and Hubner to find out if their silica gel actually differs from those marketed for skin, hair and nails.



#7 dekkalife

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Posted 27 February 2018 - 01:33 PM

I got a quick response from both companies.

Saguna (Silicol Gel) was brief, but said Silicol Gel is thicker than silica gel for hair, skin and nails, and therefore acts on soothing the bowel instead of absorbing into your bloodstream.

Hubner's response was more detailed.

"Both products differ in their active ingredient content which leads to two different basic modes of action: Silicea Gastro-Intestinal Gel contains a higher content of silicic acid and forms huge molecule complexes which the human body cannot absorb. That means the mode of action of Silicea Gastro-Intestinal Gel is just physical. This mode of action is needed and used to support the binding of pathogens thus treating acute gastrointestinal complaints associated with abdominal pain, nausea, vomiting, flatulence and diarrhea.

The gel for hair and nails and connective tissue contains less silicic acid which makes the gel very easy to absorb by the body but this gel has not the strong binding capacity that Silicea Gastro-Intestinal Gel provides."
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#8 elenacs

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Posted 27 February 2018 - 08:40 PM

Thank you for that information. 

 

It's been nearly 3 weeks on Silicol Gel and she's only taking about 1 TBSP a day.  The packaging says 1 TBSP 3x/day so she's on the low-end. Sometimes she's a bit constipated and then other days she has a near perfect stool. It's crazy. No IBS symptoms except one day of minor nausea that passed after a minute. 

 

I totally now believe her IBS is caused by toxins from some bad bacteria.  

 

I hope whomever decides to give it a go gets similar results.  And I hope the effects remain. It's been the most effective thing she's every tried and she's tried alot. 



#9 Max Zorin

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Posted 28 February 2018 - 02:07 AM

I'm on Silicol gel for 5 days now, 3 tblspn/day, improving my condition but still experiencing bloating and urgencies.



#10 elenacs

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Posted 07 March 2018 - 02:16 PM

UPDATE:

 

It's been a month on Silocol and my teenage daughter has had no cramping, bloating, or loose stool.  If anything it makes her a bit constipated so I lessen the dose.  She takes one dose a day (bottle says to take 3/day) and sometimes ¾ dose a day if she tells me she hasn't had a BM.  She has suffered from suspected SIBO/IBS since she was very little.  A bad GI bug (norovirus) a year and a half ago caused her IBS to spiral out of control and was deemed IBS-PI.  The Silicol gel has made a tremendous impact thus far.   After another month on it, I will have her take some days off of it and see what happens.  


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#11 jleek

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Posted 31 July 2018 - 11:49 AM

Hi there.  Wondering if the Silicol Gel is still working for your daughter since a few months have passed.  Would you please give an update?  Thank you.



#12 PD85

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Posted 02 August 2018 - 01:55 PM

The mechanism of action reminds me of Bentonite Clay or Activated Charcoal.

 

I may try this!


"I could be wrong about everything." -Me


#13 njstomach3

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Posted 11 August 2018 - 09:11 AM

just purchased my first bottle of silicol gel by saguna. Today is my first day on it, i will report any improvements. Anyone else having continued success with it?


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#14 PD85

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Posted 16 August 2018 - 11:42 PM

just purchased my first bottle of silicol gel by saguna. Today is my first day on it, i will report any improvements. Anyone else having continued success with it?

 

Any updates on your trial?


"I could be wrong about everything." -Me


#15 njstomach3

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Posted 17 August 2018 - 12:31 PM

as of today all is well. I cant say im 100% free of any symptoms but there is a huge improvement in quieting of the gut. Its only been a week so its hard to be certain though. I think its worth the investment of $30 from amazon. 


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#16 elenacs

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Posted 30 August 2018 - 08:02 PM

Sorry, it's been a while since I first posted this.  My daughter has been taking Silicol for 6 months now and has been about 90-95%% cured from her horrible IBS.  She will have an odd random day (like yesterday...her first day of 8th grade) where she had gas bubbles and then loose stool and so I give her two doses of Silicol that day instead of the one dose she usually takes (sometimes she only takes ¾ of a dose). When she has that odd day like yesterday I also give her one Pepto Tablet (which is considered ½ dose) to additionally stabilize things...then she continues to use Silicol 2x day for three days...and then back down to once a day to keep her back in 'remission.'  Interestingly, our dog has IBD/Crohns and I started him on 1 dose of Enterosgel (similar to Silicone Gel...different brand)  a day to firm up his stools and it's slowly working for him.  This brand is used by vets in Europe and now Australia.   I truly believe these type of adsorbent are going to be part of the future of GI treatment. For us, the money spent has been worth it, because she has finally has a great quality of life. I pray it continues to work for her and anyone willing to give it a try.  It was our last resort before more heavy-duty medications which probably would have done nothing except cause side effects.  At her annual GI appnt at Boston Children's, I brought the bottle for him to see.  He was impressed and thrilled at the results and will be looking into it more. 



#17 PD85

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Posted 02 September 2018 - 01:20 AM

Awesome to hear of your results. Thank you so much for sharing everything in such detail for everyone. I truly hope that people read your experience and are able to help themselves because of it!!


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"I could be wrong about everything." -Me


#18 elenacs

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Posted 26 September 2018 - 07:32 AM

Another update: One dose of Saguna oral Silicol Gel a day and my daughter has been doing well (knock on wood...we have hit the 7 month mark). Hardly any symptoms at all. Whenever we get a minor hiccup  (one small cramp or one loose stool) she  takes two doses a day for two days and then back down to one a day.  She can still eat whatever she wants will no symptoms.  I encourage anyone who feels they have tried nearly everything to at least give it a try.  We were about to go on more antibiotics and stronger GI medications before trying this product. 



#19 mellosphere

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Posted 26 September 2018 - 08:49 AM

I am interested to try this. I have tried diatomaceous earth in the past which is like a dried silica that I drank in water. Any idea if these are similar or like the same thing?



#20 mellosphere

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Posted 26 September 2018 - 08:49 AM

as of today all is well. I cant say im 100% free of any symptoms but there is a huge improvement in quieting of the gut. Its only been a week so its hard to be certain though. I think its worth the investment of $30 from amazon. 

Do you have an update nj? Still doing well on this gel?







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