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5 Years Going

IBS Bloating

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#1 Bliss

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Posted 04 November 2018 - 04:29 AM

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Have seen 3 different gastroenterologist, 2 different naturopaths, numerous diets, medications and tests spanning months to years and still no answers.

Reaching out here to see if anyone else has similar conditions/experience or advise.

Will try to keep this as short as possible so omitting all the emotional baggage from my story and staying focus on facts and data.

 

Summary

Consistent bloating & abdominal distension since 2013, bloating worsens when haven’t eaten (empty stomach). Bloating results in constant ‘deep’ belching and significant abdominal pain.

Eating or sitting down subsides the pain.  Minor flatulence.  Daily occurrence consistently for the last 5years, progressively worsening and significantly impacting well being. Unknown root cause.

Bowl movements are OK when balancing diet with high fiber foods, however tend to be more on the constipation end. No experiences with diarrhea.  

 

Medical History

  • Spinal fracture (car accident)

  • Acne – ongoing

  • Varicocele Embolization

 

Tests & Medications

Oct, 2013            

Gastroscopy + Biopsy from Antrum and Duodenum & Intrapyloric duodenal cap 

Oesophagus was normal, z-line was at 40cms

Stomach was normal

Duodenum was normal to the second part

 

Dec, 2013            

Colon Irrigation (x6 sessions)     

 

Sep, 2014            

Gastroscopy + Biopsy from Antrum and Duodenum          Oesophagus was normal,

Stomach was normal

Mild bulbar duodenitis was evident

 

Nov, 2014           

Colonoscopy     

No Findings

 

July, 2015            

3-day stool test Elevated Valerate-Butyrate may indicate protein maldigestion (arising from hypochlorhydria or pancreatic insufficiency), malabsorption (especially if other markers of malabsorption present) or bowl bacterial overgrowth (SIBO).

The absence of Bifidobacterium species indicates microbial imbalance. Probiotic therapy is recommended. Elevated N-Butyrate may indicate low (acidic Ph), rapid transit time, diarrhoea, carbohydrate intolerance, a diet high in refined carbohydrates or SIBO.

Faecal cholesterol is derived from both dietary sources & mucosal epithelial cell breakdown. Levels tend to remain constant despite fluctuating dietary intake. Elevated cholesterol may indicate malabsorption & rapid cell turnover. Presence of fat globules present in the stool may indicate fat maldigestion. Elevated triglycerides may indicate hypochlorhryia, pancreatic insufficiency or bile sale insufficiency.

 

Feb, 2017

Lactulose Hydrogen Breath Test Results indicate no evidence of SIBO

H2 PPM:

0min: 5

30min: 3

60min: 2

90min: 3

120 min: 18

150min: 30

180min: 29

 

Feb, 2017            

Helicobacter Breath Test              

Results were negative

 

Mar, 2017           

Antibiotics Treatment (Vancomycin)      

No change in symptoms

 

 

Mar, 2017           

Antibiotics Treatment (Rifaximin)            

No change in symptoms

 

Apr, 2017            

Blood tests        

Results for Helicobacter were negative

Results for Parasites were negative

 

Apr, 2017            

Capsule Endoscopy        

Results showed inflammation

 

Jun, 2017            

Abdominal CT Scan with Contract Dye    

No abnormalities

 

Jun, 2017            

Stool Test for Chrons & Parasites             

Calprotectin mildly elevated - 59

Results for parasites were negative

 

Aug, 2017           

Antigen Stool test for H. Pylori   

Positive Results

 

Aug, 2017           

Triple antibiotic therapy (Nexium 7)  to treat H.Pyrlori      

No change in symptoms

 

Oct, 2017            

Antigen Stool test for H. Pylori   

Results were negative

 

Nov, 2017           

Gastroscopy & Biopsy    Gastric box sections show gastric body mucosa with mld lamina propria congestion but no other significant abnormality. Inflammation cells are not significantly increased. There are no atrophic changes. No Helicobacter like bacteria are seen in specially stained sections. There is no epithelial metaplasia or dysplasia and there is no evidence of malignancy.

Small bowel box sections show essentially normal small intestinal mucosa, with normal villus height and crypt architecture. There is no intraepithelial lymphocytosis and lamina propria inflammatory cells are not increased. No Giardia are seen. There is no evidence of neoplasia.

 

Dec, 2017            

SIBO Breath Test             

Results - Negative but 'Borderline'

 

Apr, 2018            

Elemental Diet (3 week fast)      

No change in symptoms

 

Jun, 2018            

Comprehensive Stool Test          

Results show high triglycerides, indicating inability to digest fats, high Bacteroides indicating too much protein and animal fats.  High E-Coli and low Roseburia and Ruminococcus. 

No parasites or yeast overgrowth

 

Oct, 2018

Refaxmin & Neomycin 2 week antibiotics

No change in symptoms though helped with bowl movements, made it easier while I was on it.  

 

Diets

 

GAPS: Elimination of all sugars, grains, fruit, dairy and processed foods  

2years  

No change

 

FODMAPS: Elimination of short chain oligo-saccharide polymers of fructose, galactooligosaccharides, disaccharides, monosaccharides, and sugar alcohol       

3months             

No change

 

Paleo: Elimination of all sugars, grains, dairy and processed foods            

3years  

No change

 

Vegan: No meats, vegetables fruit and some rice

2 Months

No Change

 

Elemental Diet: Fasting 

3 weeks              

No Change

 

Supplements

 

BioKult Probiotics

Bioceuticals Ultra 500

Bioceuticals Ultra 45

Fish Oil

Hydrozyme

Parex

S.Bifido Biotic - Saccharomyces cerevisae

Brocolli sprout powder

Manuka Honey

Mastic Gum

Allimax

Biofilm

Phylix

Sunfibre

Green Tea Tablets

Green Banana Flour

Lecithin

 

 

Thanks for reading my post people and appreciate any advise, thoughts and comments.

 



#2 julien514

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Posted 12 November 2018 - 03:45 PM

Holy ###### man.. woaw good job writing all this down.

 

It's been 7 years for me (27 yo male) and I tried everything and did all the test that you did.

 

I've been on a zero carb (almost) diet for a month and a half coupled with drinking sauerkraut juice (only meat/fish/eggs and low carb veggies), I had good stools for a bout 2-3 weeks  so I tought  I found the cure and now it came back, I've no idea why I would have near perfect stool under this diet and then it comes back full force like the last 7 years. So hard to understand, Good luck with that.

 

Right now I'm trying 1 tsp of psyllium after each meal see what happens. Still on this diet.



#3 Bliss

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Posted 12 November 2018 - 05:57 PM

Holy ###### man.. woaw good job writing all this down.

 

It's been 7 years for me (27 yo male) and I tried everything and did all the test that you did.

 

I've been on a zero carb (almost) diet for a month and a half coupled with drinking sauerkraut juice (only meat/fish/eggs and low carb veggies), I had good stools for a bout 2-3 weeks  so I tought  I found the cure and now it came back, I've no idea why I would have near perfect stool under this diet and then it comes back full force like the last 7 years. So hard to understand, Good luck with that.

 

Right now I'm trying 1 tsp of psyllium after each meal see what happens. Still on this diet.

 

Thanks for the reply mate,

 

It's interesting you mention zero carb as I am now on the carnivore diet for 2 weeks an am struggling to have bowl motions.  I might try including psylium but i really want to restrict all carbs.

1st week was painful, 2nd week minimal difference in symptons - I really want to try it for a month but if I can't have a bowl motion I may need to quit early :(

 

Sorry to hear you almost cured yourself and then it came back! maybe try zero carb for a good 6months to starve out the unwanted bacteria?



#4 julien514

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Posted 13 November 2018 - 01:30 PM

Yes I will aim for 6 months and see what happens.

 

Maybe add prokinetic like iberogast, might help for bowel movements.

 

I experience a lot of constipation on this diet too.



#5 julien514

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Posted 13 November 2018 - 02:21 PM

But haven`t you tried zero carb for1 or 2 years already? or meat + veggies?



#6 julien514

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Posted 13 November 2018 - 03:01 PM

And also, have you tried intermittent fasting? with 2 meals a day, I might try that too. Will keep you posted



#7 Bliss

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Posted 13 November 2018 - 06:15 PM

But haven`t you tried zero carb for1 or 2 years already? or meat + veggies?

 

Nope, was on meat + veggies.

 

And also, have you tried intermittent fasting? with 2 meals a day, I might try that too. Will keep you posted

 

I have not tried intermittent fasting, but have done a 3 week 'elemental' diet fast.

 

Very interested to hear your results, so please do keep me posted mate.

Also any advise on constipation on ZC would be much appreciated, I feel like its helping a little bit but the constipation is a major problem








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