So I was contacting a lot of people on reddit who also suffer from this horrible disease, and it was strange how many symptoms we all had in common. Besides not being able to detect this odor ourselves (and our family & friends immune) a lot of them mentioned when they got blood tests it showed extremely low vitamin B12 and D levels.
The most people who are affected by B12 deficiencies are elderly and vegans. A healthy person should not have such low levels because it's found in all meats, seafood, and dairy. So how can this be possible? Something is causing us to not digest foods properly and absorb the nutrients we need.
https://health.usnews.com/health-news/blogs/eat-run/articles/2018-05-21/4-overlooked-causes-of-vitamin-b12-deficiency
People with autoimmune disease, SIBO, celiac, etc. are an overlooked group for having this deficiency. Even though we might get injections at the doctor's office, the odor/gas can still persist because the root of the problem was not being addressed. People with these sorts of health conditions have to go on diets to stop the digestive problems and malabsorption.
On top of the gastrointestinal symptoms for those conditions - it turns out a deficiency in B12 can cause excessive and malodorous gas and sweating [https://www.livestrong.com/article/494839-body-odor-vitamin-deficiency/].
Anyways... that's my theory. I've been on a gluten free diet for the past 3 months and reactions have gone down considerably! The only times I do end up getting reactions is when I accidentally ingest gluten, and then the reactions will last for at least 3 days afterwards.
The most people who are affected by B12 deficiencies are elderly and vegans. A healthy person should not have such low levels because it's found in all meats, seafood, and dairy. So how can this be possible? Something is causing us to not digest foods properly and absorb the nutrients we need.
https://health.usnews.com/health-news/blogs/eat-run/articles/2018-05-21/4-overlooked-causes-of-vitamin-b12-deficiency
People with autoimmune disease, SIBO, celiac, etc. are an overlooked group for having this deficiency. Even though we might get injections at the doctor's office, the odor/gas can still persist because the root of the problem was not being addressed. People with these sorts of health conditions have to go on diets to stop the digestive problems and malabsorption.
On top of the gastrointestinal symptoms for those conditions - it turns out a deficiency in B12 can cause excessive and malodorous gas and sweating [https://www.livestrong.com/article/494839-body-odor-vitamin-deficiency/].
Anyways... that's my theory. I've been on a gluten free diet for the past 3 months and reactions have gone down considerably! The only times I do end up getting reactions is when I accidentally ingest gluten, and then the reactions will last for at least 3 days afterwards.