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Discussion Starter · #1 ·
I am new to this site. My 14 year old son was just diagnosed this week with IBS. He got the stomach flu last september and never really got over it. He has always been very athletic and sports minded. Nothing has ever slowed him down till November. That was when he stopped going to school because his stomach was in so much pain in the morning and then ok or at least tolerable by noon and then the pain again in the late evening. He has done the scopes from the top to the bottom and all in between too. Everything came out normal so the pediatric GI ### Boston's Children's Hospital said this wk that he has IBS and needs to go to school on Monday no matter that he is in pain. My question is, what drugs will help with this major pain that he is in. It is enough to reduce this kid into tears ( he has always played sports in pain, so this is much worse than anything else he has had). Any help would be greatly appreciated. I have spent all of today looking for pedatric IBS info and have found none. Thanks
 

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Hi Maine Mom, I'm so sorry for your son! How awful for him to have to go through this at such a young age. I'm suprised the Doctors did not offer him medication. There are so many different kinds, what works for one does nothing for another. There is a lot of trial and error. I take it the main symptom for your son is pain? Does he have diarreha or constipation? I'm not sure what to tell you if it is just pain, but there are others who have this and I am sure you will here from them soon with some good advice.sickofsick
 
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Discussion Starter · #3 ·
Thanks for the reply sickofsick. Yes mainly he is in pain, but does have the loose stools and regular bowel movevements. I do hope to hear from others that were or are kids themselves to find out what they do to survive this syndrome. Thanks again.
 

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Welcome to the board and I'm sorry to hear about your son.The antispasmodic drugs really do help along with watching the diet. I take Bentyl for pain and now that I watch my fat intake, I don't need it very often.Have him keep a daily journal of what he eats and how he feels. It's really a process of elimination. (I'm sure that's misspelled)
 

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I am so sorry to hear about your son. It is rough to be so sick at such a young age. Is your son just having pain or does he get bloated as well? If it is both pain and bloating GAS-X works wonders. The GAS-X will help relieve the bloating, there by relieving some of the pain.You may want to see your doctor about pain control because there are medications that can help.
 

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Discussion Starter · #8 ·
My son is also 14 years old and has had IBS since he was in fourth grade and caught giardia and camphylobacter. He also has GERD. His symptoms are remarkably like your son�s, even the times of day that are the problems (morning and evening) He has a pediatric gastroenterologist who believes in prescribing medication to kids. Some doctors will not, and your son�s may be one of those. The only things that have helped are drugs and dietary changes. Right now, he takes Levsin for painful spasms and Elavil at bedtime for pain. He also takes Culturelle, at his doctor�s suggestion, and stool softeners to counteract any constipation form the Levsin. He cannot eat any dairy products, beef, fatty foods, spicy foods, and we are checking to see if he has a fructose intolerance, as well. My daughter, who is now 18, had IBS from the time she was 8 until she was 13, also brought on by giardia and a Blastocystitis hominis infection. Note: all these wonderful parasitic infections were caught from drinking well water at my in-laws farm. NEVER drink well water!! I don�t know if she is �cured�, but she rarely has any problems now. What was the miracle for her was, again, Elavil. She took it for about 6 months, stopped, and has been just about normal since then. She just has to watch greasy food. Because of her miracle �cure�, I hope that my son will see substantial improvement someday.My heart goes out to you. This has truly been the most difficult thing that I have gone through as a parent. Please try to find a doctor who will prescribe appropriate medications for your son. Track everything that he eats and drinks and look for patterns. And be endlessly patient and loving. If this is hell for us as parents, it is a million times worse for our boys, who want nothing more than to be normal kids.Missing school is a problem for us as well, especially as my son just had a bad flare-up. I will not send him to school in pain. We get his homework and I teach him at home if he can�t make it to school. He got straight As last report period, despite missing 15 days of school in that nine week period. He's probably missed 40 days so far this year. I see myself as my son�s advocate with the school. Talk to someone there, preferably the nurse, who understands about IBS and can be a liaison with the school for your son. Good luck. There is hope that things will get better.
 

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I am so sorry to hear about your son. And it burns me up to hear yet again some blowhard doctor say to go on living a normal life with IBS. To think that your son could go to school on Monday, pain or not, is ridiculous.Do yourself, and your son, a huge favor and go see another doctor. An IBS/GI specialist perhaps. How utterly insensitive to say 'send him to school Monday no matter what kind of pain he is in'. (I am furious with this)I have had IBS since I was 8, am now 33. Keep reading here for ideas, tips and diet help for your son.I take levsin sl for my cramps, and imodium for the diarrhea. I also take caltrate plus a couple of times a day and that usually takes away the cramping, bloating and diarrhea (its a miracle, don't know exactly how it occurs but it does!!)
 
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Discussion Starter · #10 ·
Oh my! I finally do not feel alone in this plight! Thank you all for the information. I am especially thankful to Mobes as this is the first time that I have heard from another human being that they have the same symptoms as my son. For the last 4 months I thought I was crazy and maybe even my son too. I felt like I had been a bad parent for letting my son stay home because he was / is in pain. So thank you for telling your story too. Now all I have to do is convince my ex-husband what our son has and the doctor in Boston(6 hours away) to give us drugs for pain. So please keep the tips coming as I am just learning all of this now. Thank you all soooo much!
 

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Is there any way for you to find a doctor closer than Boston? I am not sure where in maine you live, but I can suggest a doctor in the Ellsworth area (my parents live in Brooksville) that has wonderful GI experience (he is just an internist). Seems just awful to drive 6 hours to a doctor who doesn'rt believe in the illness.Erin
 
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Discussion Starter · #12 ·
Erin that would be good to have another name of a doctor. Ellsworth is only just an hour away. The reason we went to Boston this week is because we saw the only pediatric GI in the entire state of Maine and after what he had tested and given for meds did not work he sent us to Children's Hospital in Boston to see a motility pediatric GI specialist. I am not expecting to have to go to Boston again really soon and he said that we would discuss meds on the phone and with the doctor in Portland. So yeah I would love the name of the doctor up this way even if it is just another reference. Thanks for the info.
 

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Maine Mom, I would continue with a doctor who can make sure the tests rule everything else out. The link I posted above is FAQ on IBS.If your son was like me at that age which it sure sounds like,they will probably put him on Librax or bentyl and will probably stay clear of major pain medications because of addition and because your son is so young.A diary of his diet would be good,an understanding MOM which he has, an understanding doctor(preferably one who specializes in IBS)and can do the right tests.At this point there is no total cure for IBS, there are a lot of things you can do to help relieve his symptoms though.He is suffering from pain, but what are his other symptoms?------------------ http://webpotential.com/ericibs/index.htm
 

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Dear Maine Mom:Welcome to the Board. I'm terribly sorry your son has IBS at such a young age. It's so hard to watch them suffer and not know what to do about it. My daughter is 21 but it still kills me when she gets sickYou've already gotten lots of good advice from the people here, and I'm sure you'll find ways to help your son. Hang in there, and post as much as you want to.
JeanG
 
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Discussion Starter · #15 ·
Dear MaineMom,I fully empathize with you and your son. Here is how we handle absences from chronic illness at our school. ( I am a middle and high school nurse).We have the student's doctor write a "cover letter" explaining that there may be some days that the student misses due to a chronic health problem,e.g. migraines, asthma, dysmenorrhea. That student's absence is then excused so it doesn't add to the number of unexcused days, thus preventing moving to the next grade. Our district allows only 12 unexcused days. Only religious holidays, bereavements and doctors notes are excused. We try to halp the parent and student when there is a chronic pain problem. Sometimes a student may need to come in late and that can be covered in the letter. It sounds as though your son's doctor is trying to prevent your son from developing a chronic fear of attending school in pain. There must be a better way. Maybe he would write a prescription so that your son can have some medicine available in the nurse's office. That way he would feel that all is not lost if he is in pain. It is our goal as school nurses to help a child be healthy and fit to learn. No one can learn while in pain. Please do as was suggested and call your school nurse. She can be someone your son could go to in need ( for pain meds, a short rest, or even private bathroom time).Best wishes to you both. If all else fails, there are many good pediatric GIs who realize that there is a psychological aspect to this disease. How can you not be fearful when you know pain is coming? Home becomes the "safe place" for all of us with IBS.wpmom
 
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Discussion Starter · #16 ·
MaineMom,Welcome to the board.....I'm so sorry to hear that your young son has this terrible disorder (as they call it)......Seems you have gotten good info and advice......Keep us posted as to how he is doing.------------------LET'S ALL PRAY FOR A CURE TO THIS IBS SOON!BETTIE
 
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Discussion Starter · #17 ·
thanks for the info. His sympotms are that his lower right side of his stomach is tender to the touch. so much so that in the beginning everyone was thinking an appendixcitis(spelling wrong) is what he had. He does have gas but not too bad. He has always "tooted" some but that was no big deal. When he flares up (every monrning, evening and late in the night) his stomach cramps up sometimes to the doubling over point
We have found nothing that works for those pains. by the afternoon he is feeling better and more normal( whatever that is now) and then it starts again around 8 to 10 pm. If he gets to sleep sometimes he can sleep through the night(not oftern though). Other times it has woken him up the pain.He has the loose stools or normal stools never the same scenario. His main problem seems to be the very real pain. Now you know all.
Thanks for th websites everyone and the encouragement. I really do feel as if I am not alone now.
 

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Mobes, I don't know that I would go so far as to say never drink well water. I have in the past lived on a farm with well water, and MANY municiple water supplies are well water. I would however recommend boiling it, which kills most bacteria and parasites, then refridgerating it after. Maggie
 
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Discussion Starter · #20 ·
Maine Mom,A friend of mine has a 12 year old daughter who has just been diagnosed with IBS. She has the same symptoms as your son and has been going to school in that condition. Her mom said that she lays accross the back seat in the car going to and from school and is exhausted at the end of the day. She is taking Levsin sl for the pain and it has given her some relief. I feel so sorry for these children who are getting this terrible disorder. I can hardly take it at 39, so I feel for those young ones. I have a 13 year old son and don't know what I would do if he were in that situation. Good luck to you.
 
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