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Discussion Starter · #1 ·
I have never felt so alone!Any time I mention IBS people roll thier eyes like it's not a real condition.The pain and discomfort I feel is real! But people as well as docs act as though I'm exadurating the symptoms I have or am some type of hypo.Has anyone else ever experienced the same thing??
. It makes me cry
 

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yep i know exactly what your saying, ppl act like oh it cant be that bad its only when you suffer with ibs you know how bad it can be,i find when i am going to the doctor she is only half listening to me,like i should not be complaining,so your not alone,i hope your okcaroline.
 

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Discussion Starter · #3 ·
:rolleyes:Thankyou for writing back. I am greatful.I really feel alone at times as u do. But I'm glad there is somebody out there who feels the same way I do.Do u mind if we can still chat on this site?I don't know anyone else w/ IBS.any how thankyou again for your reply
Katee B
 

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Hey Katee, Your not alone at all on this one and I think all of us have people in our lives that dont respect or even try to understand how difficult living with IBS actually is. I know it is hard but try not to let it get to you, and if possible surround yourself with supportive people
 

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Discussion Starter · #5 ·
Thankyou for writing to me I don't feel so aloneanymore.for some time I was feeling as if "heymaybe I am a hypo or maybe the pain I feel isn't real at all maybe it really is all in my head like peoplesay."I feel that the great pain I feel is very realthe constipation makes me feel nauseated and itis also very painful!!! The other way makes me cramplike crazy and on occations I've had accidentsas bad as that may sound and embarassing that isas well! Ihave felt sick to my stomach as well and verysore from frequently going.Thankyou to all of you who respond in a supportive way!I really need that right now!!!If u just want to chat that's cool too! Luv Katee B sore from going so frequentlydoes anyone else have the same symptoms aswell?Thanks a whole bunch to everone who comments ina supportive way
 

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I can definitely relate. I refuse to go back to the same doctor again. The looks he gave were like he thought I was crazy. He shook his head and said we have done all the tests and he said he can't understand what is bothering me. It was as if I was bothering him. He seemed to question me when I would tell him different symptoms like I was making them up.
 

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Hi Katee.I am also new and know how you feel.i have not "officially been diagnosed with IBS yet - but was told with my colonscopy results that I have a spastic colon (googled it and it pretty much is IBS) I've been going through these tests... and one of my first appts, I had taken a small list of days/symptoms/foods eaten. My dr didn't even want to know about the food, because he made it sound like it's not food relatedobviously everything I'm reading is opposite... I'm hoping his comment was just since I had not gone through testingnow that i've been through weeks of tests... I'm hoping my next appt he will give me more information, maybe even an official diagnosis, and clarify his previous comment (in case I didn't understand him correctly) - you bet your sweet buns I'll have IBS books in hand for that appt - that are full of info on controlling IBS with diet - I have drugs that are helping, but prefer not to live on drugs if not neededI'm sorry... i got off on a tangent...It can be frustrating when people either know what IBS is and act like it's no big deal... or they are not familiar, and trying to explain it (talking colons and bowels... no thanks!)i am new enough to this site to not know if there is more of a "chat area" than these threads...anyone?feel free to talk to me anytime!!!!!
 

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Hey there.Nope you are not alone.Docs get frustrated cas they dont know what is wrong with you.Also it doesnt help that we do get lumped in with all the people who sometimes have the occasional tummy trouble and they jump on the IBS band wagon.People with horrible ongoing IBS know the score.So dont panic.Dont let people who dont have the facts make you feel like its your fault.No doctor has ever dared suggest that its in my head. I got ill after food poisoning 5 years ago. I didnt suddenly wake up more stressed than usual or develop psycological problems. But its prob easier to pick on a young girl rather than a 35year old ex kick boxer !!!So keep your chin up girl.This forum is a great thing.
 

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Sometimes I feel like my friends just don't understand what "the big deal" is but they act sympathetic and try to diagnose me and tell me what I need to do. As for my doctors, I think they just all wish I would go away. My Internist has tried to be helpful, my GI doctor barely tolerated me, and my "so called" specialist seems to have run out of suggestions to help me. I also see a Psychiatrist who just wants to try more and more medications that usually end up making me feel worse or giving me added problems that I didn't have already. I also see a nutritionist who has me trying a gluten/dairy free diet......not helping much so far. My husband has been very patient and understanding but I'm sure he wishes that this would just all go away so that we could have a normal life again. Sometimes I get so discouraged and depressed that I just want to give up. And then somehow I find a way to keep fighting.....for now. You're not alone.
 

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Discussion Starter · #10 ·
Geez ... I wish I could reach thru and hug u!It's just so much of a life sucking condition!I've heard everything from stomach pain to nausea&vomiting ,fatigue,weakness,const.and dia.duh......so many symptoms!!! No wonder we feelso frstrated most meds and diets seem to not workfor sooooo many of us it feels like there us no light at th end of the tunnel! I guess I joined this site because I've felt so alone so misunderstoodnow I've finally found a place I can talk to peoplewho know exactly how I feel....even if I don't find relief from my symptoms right away I know there's people on this site that can help me thru this ....and hopefully I will be ableto help somebody else in return!
 
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