Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 20 of 26 Posts

·
Registered
Joined
·
24 Posts
Discussion Starter · #1 ·
I have posted once before about emitting a foul sewage odor i can't feel or have the urge of passing.I'll try not to go into a long story but this problem has been going on for over 16yrs i am in my early 30s.Last year went to gastro doc.Had a sigmoidscopy test came up normal.Explained my symptoms to a gastro specialist i said in plan english the odor i am emitting can be smelt by not just myself but by other ple.She wote me a letter saying she's heard a cas were someone is smelling a odor other ple can't smell and refered me to the Neurology dept to have an EEG which reacords hte brain's activity.I'm in tears when i read this because the dr's do'nt listen.The odor is real.I went any way this was in december.Told Neuro dr my probs he said your story is different to what the Gastro Dr said.I replied this odor is real i have asked my work collegues if they have noticed an odor coming from me and they have said yes.Dr then refered me to the dermatolodgy dept because i convinced him it's real and not some brain activity going on making me smell an odor that does'nt exist.Today i go to the derm dept.Now from some of the post i have read Dr's don't believe such a thing exist and some ple have said their dr's suggested psychiatric help.I asked the Dr can she please listen i even brought my mum along to confirm i have that bad odor sometimes.Dr smelt my armpitts and said she can't smell any odors and said something about the mind.I'm thinking Please don't let her say it's in the mind.My mum explained again she has smelt the odor i have been complaining of but has only noticed from last yr.I told the Dr i have prove my work collegues can vouch that my odor is real.But the Dr's already made up her mind she thinks it's something in the mind that i think im hearing ple say i smell,she made an appointment for me to see a psychiatrist becaus she can't smell any thing and won't take me and my mums word for it.I said how do you explain my mum and other ple telling they have smelt me,she said talk to the psychiatrist.I am so distressed.I go to Dr's for Help and not only do i have this problem I have a rougth time trying to convince them.If you just happen to not smell at the time How do you convince them even if you bring someone as proof.Sorry it was long
 

·
Registered
Joined
·
66 Posts
Many of us have experienced the same treatment from doctors. We talk and plead, but most doctors just don't seem to want to listen. Probably because they know nothing about our problem and don't want to deal with it. I wish I had an answer for you. Perhaps if you try a new doctor, you will get lucky. It's rare, but there are a few that seem to really care. You just have to find them.Maybe seeing the psychiatrist isn't a bad idea. Not because you're imagining this problem!! We all know it definitely exists. But maybe the psychiatrist will be open minded and give you a little help in dealing with everything. Hey, it's worth a try! If it doesn't work out, at least you gave it a shot!I wish you luck. Hang in there! You most certainly are not alone!Take care!!
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #3 ·
I'm writing a letter of complaint.They are taking the p**s,when i have told them ple told me directly or i hear it loud and clear about this odor Dr says i'm hearing things What a joke
 

·
Registered
Joined
·
373 Posts
I feel your frustration.What if we were all to print some of these posts, and posts from many of the other forums on the internet where all kinds of different people talk of having this problem.Does anyone think that their doctor would take the time to read it and maybe get a better idea what we are talking about?What does everyone think?
 

·
Registered
Joined
·
77 Posts
I completely understand what you are going through. I have gone through the same things. I feel bad being around people, beccause I don't want to kill them with the smell. This makes my life very lonely. Anyway, I come here for support. It does help.
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #7 ·
I have shown my GP a few post from here,but one said their family and friends claim they can't smell it.My dr was quick to point that part out,he said see family can't smell it.Other ple post that they see other ple coughing and rubbing their nose.To me that is'nt evident enougth Dr's will think it's your being paranoid.I haven't seen anyone post here that at least one good friend or family member acually confirmed that they have noticed odors emitting from you.I have confronted two work collegues if they have noticed sometimes a gassy odor coming from me,they answered yes, my manager,suppervisor,collegues in my deptpartment have been very supportive and care about me they would not lie to me about this sensitive subject.
 

·
Registered
Joined
·
744 Posts
I never really had LG at home because I could just go somewhere and release the gas naturally, so it didn’t seep out all the time like at work. If you did have it at home, it would be really hard for your family members to say this.People do feel lonely with this. I remember how I felt, and how glad I was to find this board. I think everything’s been suggested that can be suggested. Maybe next time you go to the doctor tell them that you may not be completely evacuating (if this is the case for you) and ask if there’s any natural way of speeding things up. I’m thinking of having a virtual colonoscopy done.
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #9 ·
you've mentioned that having a complete evacuation may help reduce your odor,whether my bowels is fully evacuated or not, even later afer i have taken something to clear my bowels. When that odor is ready to come there is no stopping it.I cant understand if my bowel is empty then why do I still occasionly emit this odor,and it is definetly coming through my anus not my skin
 

·
Registered
Joined
·
744 Posts
When you have leaky gas, do you get an uncomfortable feeling in your anus, like you’re trying to hold gas in? If you get this, then your bowel isn’t empty. Maybe you haven’t fully evacuated, it’s hard to tell sometimes. Some people need to re-train their colon so that they completely go after breakfast. On the week-ends when you have more time, do you keep going back to the toilet until you’re finished? However long this takes, this is your evacuation time and you need to allow this time on week-days before work.
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #11 ·
I give myself plenty of time in the morning to go toilet.Where i have a complete bowel movement and i feel empty i can still give off a odor during the day.I have no sensation.Is there anyone here from the uk that has been tested for trimethylaminuria the Dr i went to see said she does'nt know of any test here
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #13 ·
i feel that i am empty because there is no more urge or to go toilet i feel like my bowels has had a good empty.I don't have any symptoms associated with ibs i very rarely even pass gas,i'll get a few comments about me passing gas,i can live with that but on some occasion it's like a foul sewage odor that lingers.The gas leak can go on for hours,i feel nothing.I haven't heard anything about tmau only what i have read on body odor forums
 

·
Registered
Joined
·
744 Posts
I have heard other people say what you say, so you’re not alone with this type of leaky gas.Once you’ve gone a few times in the morning, is that it for the day? You don’t go again until the next morning? I’m wondering whether your sphincters have a tight seal. Maybe a doctor could test this. It sounds odd when you say you don’t suffer much from gas because you’d be the only person on the board saying this. Maybe if your sphincters are partially open all the time, then the gas you do have is being constantly released without your knowing it.
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #16 ·
I'm not that good at explaining myself.This condition is a mystery to me.All i know is i don't suffer with constant gas.Once i've emptied my bowels i don't need to go until the next morning.My gastro Dr said everythings fine when i went in for a sigmoidscopy or what ever it's called.I asked her to check to see anyhting wrong with my anal sphincter.She said there's nothing wrong.I'll repeat again i am emitting this odor from my anus,well at least the sewer one anyway.If my bm is pungent i am guaranteed to leak that stench during the day.If i've experienced this being seated it can be smelt right where i have been seated.That sewer smell is'nt coming from any other part of my body.I Emit another odor i myself can't discribe been told its smells acidy.My mum has said it's not pungent like the sewer odor she has smelt.May be that one is coming through my skin i just don't know.My Dr does'nt know anywhere that test in the uk for tmau
 

·
Registered
Joined
·
744 Posts
You must be feeling very frustrated with this. If it smells where you’ve been sitting it wouldn’t be TMAU. You mentioned before that you take something to help clear your bowels – is this every morning and what do you use? Does it take you several goes to completely evacuate? If you regularly use something to help, your colon will become more inefficient because of this, which is why I’m questioning whether you do completely evacuate.I’m guessing you get the usual digestion gas after eating, especially after veges etc, and that this digestion gas is fairly robust, and that it doesn’t seep out quietly.Are you able to hold in digestion gas, if you need to?
 

·
Registered
Joined
·
24 Posts
Discussion Starter · #19 ·
I have taken aherbal tea called puritee which supposed to detox the system you drink it in the evenings.Only if i'm slightly constipated have i drank this.I have good bms without the need of any help.The tea did'nt make a difference in reducing any odors.Like i have said empty or not when that odor is ready there's no stopping it.I can hold in digestion gas.I have'nt tried clearing my rectum my self
 
1 - 20 of 26 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top