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Discussion Starter · #1 ·
I was recently discharged by my NHS consultant who said he couldn't do anymore for me in terms of tests.I recently had a gallbladder test called a HIDA scan which came back at the absolute lower limit of normal ... a 35% ejection fraction rate. Any lower it would have been classed as abnormal (and by this i mean 34%!).The NHS guy for some reason thinks it can't be my gallbladder. Why he thinks this i've no idea as i have all the symptoms...nausea and diarrhoea after food, burping and reflux, right upper quadrant pain......all are symptoms of a dodgy gallbladder. It's not rocket science.I am not at all happy with my NHS experience so far...especially when every other test has come back normal. To me that indicates it probably is my gallbladder. For this reason i have sought a second opinion and also the opinion of a gallbladder surgeon.Why are some GI docs so stubborn. He was completely non-commital on the gallbladder when questioned but refused point blank to do anymore tests on it.The more i think about it the angrier i am becoming...i have been poorly for well over 12 months now and the NHS has basically abandoned me.If the surgeon advises me to have my gallbladder removed and it turns out to be dysfunctional when examined i am seriously considering suing the NHS GI consultant for negligence/dereliction of duty and certainly the costs of the surgery. It shouldn't have to come to this....going private in England but i have been left with no other choice.
 

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Discussion Starter · #2 ·
I feel so depressed. My nausea is back and i feel very unwell. I've just taken double dose of motillium. This nausea seems to be never ending and i feel i am going to be in for a long uncomfortable night. More time off work looms tomorrow and i was due an appt with the occupational health Dr...it's just a tick box exercise as he won't be able to do anything for me other than offer words of encouragement.I don't know if i have IBS or not. My gut feeling is all around my gallbladder because of my symptoms and test results for the gallbladder. Things work so slowly here in the UK. The NHS works so slowly......for over a year i have been having tests. In an ideal world i'd be rich and just get this sorted in a matter of weeks!
 

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I don't know if i have IBS or not.
Riddick what diagnosis did the NHS guy give you then?
 

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Discussion Starter · #4 ·
He didn't!He said i just had "one of those stomachs"......brilliant hey?I have worked out from my symptoms and my HIDA scan result that i probably have billiary dyskinesia (malfunctioning gallbladder).It's not an easy thing to diagnose but a low functioning gallbladder (which mine is) accompanied by my symptoms points to it like a shining beacon in my opinion....especially when every other test has come back normal.I'll get to the bottom of it eventually through my private consultations.
 

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Well I think he owes you a diagnosis at the least! See what the other Doc has to say. Try NOT to get worked up over this as you know it will only make you feel worse. So try focus on more positive things like maybe being grateful that you can afford a private consult and it isn't that far off is it? When is your appointment?
 

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Discussion Starter · #6 ·
I can only just afford to see the private dr.If he recommends surgery i'll have to take a loan for about £3500!!!!!!! That will take me 3 or more years to pay off.And if it is my gallbladder afterall that will have been surgery i should have had for free on the NHS!!!!! It's what we pay taxes for in the UK.I will definately seek legal advice if it is so.
 

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Well at least you still can afford the visit with the specialist.If this specialist tests your GB and finds it needs to come out.. I would make no apologies and take the test results back to the NHS guy or a NHS surgeon and have them take it out.
 

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I have been dealing with the NHS for almost 20 years with my ongoing problem and I've had ups and downs myself but I don't blame the NHS just one or two doctors in general.Our US friends have the same problems with their private health doctors too I'm sure.Why can't you get a second opinion with another NHS consultant? I would have thought you could.
 

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Discussion Starter · #10 ·
I am seeing a second NHS GI consultant soon i hope.I saw my occupational health dr at work today and he agrees my gallbladder needs further investigation. He said it would make sense to inlight of everything else coming back normal on all the other tests.
 

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Hi mateI really feel for you mate, i know how hard it is when the nausea never seems to end. is the motilium still working for you? when is yuor second oppinion due?CheersIan
 

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riddick so sorry you're feeling so poorly again and are still having all these problems with the nhs doc. "one of those stomachs" indeed--what a truly thoughtless response--that's an outrage.glad you have a second nhs opinion coming up--soon i hope.and i do so agree with your occupational health dr---your gallbladder definitely needs more checking out--especially since it tested out already at such a low level of functioning. i honestly don't understand why the nhs doc still refuses to do that..good luck to you..you've been suffering so long with all this.hope tomorrow is a better day for you and sure do hope the second opinion doc is proactive about helping you.
 

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Exactly the same in my case finally found out i had 4 different diagnoses by the consultant i was under he retired was not happy at all asked my GP for a letter to go private read the notes thats how i found out the consultant i am under now finally did a HIDA scan and it came back as hyperkinitec gallbladder or dumps the bile to fast. Waiting 2 go back and see him some days r agony other days not 2 bad on Mirt the same as yourself refuse 2 go 2 A and E again they r useless just say i am constipated which then goes to overflow d and take lactolose oh whoopee i would never have guessed goes bewteen c and d. I hope this 1 will come up with some answers now diagnosed with GAD no flaming wonder when the gallbladder plays up the anxiety goes sky high as am in so much pain. Funny thing is they offered me CBT thought i will try anything once my counsellor has just been diagnosed with IBS must b catching wouldnt wish it on any 1.
 

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Discussion Starter · #14 ·
Hi allThanks for your sympathy and concern. I am still taking motillium 10mg tds (i sometimes double up). I have also started now with acid reflux (another gallbladder symptom!)...being taking gaviscon for that and it's doing the trick.Hopefully my second opinion is coming up soon as i just can't take this much longer.
 

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Riddick can you get a second opinion from a Dr within NHS, as someone above here suggested? Just curious... maybe that might be quicker for you?? I am sorry.. I do not know how NHS works. So please consider this as just an idea.
 

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If Riddick is being treated the same as me the consultants in the NHS dont like being questioned they seem 2 think they r always right thats y i paid privately for a second opinion its the only way 2 get 1. Just lucky that the guy i am seeing after initial payment is putting it all through the NHS as he said it would cost a fortune to pay 4 all of it privately. Hope urs is as thoughtful Riddick as the 1 i have and good luck when u c him
 

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Thanks Mouth...Well I can certainly understand why people are hesitant to seek other opinions within NHS then. What a shame... I too hope that Riddicks' Dr is kind enough to put whatever he needs through NHS too.
 

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Discussion Starter · #18 ·
The guy i saw as a private patient has referred me for a second opinion via NHS gastroenterologist and surgeon. This is good of him i think.Dr's do hate to be quetioned. When i asked mine about my HIDA scan result he just gave me a blank look and said it was within the normal range......by 1%!!Thats all that mattered to him.....nothing more...not my symptoms and continued misery.Nope Sireeee! Your HIDA scan is normal at 35%.I have done plenty of research in to this matter and such a low score with obvious gallbladder symptoms should be investigated further......most surgeons would probably say that i would in all likelihood benefit by having it removed.I honestly regard the gastroenterologist who dissmisses this as negligent, un-professional and deeply uncaring.
 

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The guy i saw as a private patient has referred me for a second opinion via NHS gastroenterologist and surgeon. This is good of him i think.
Yes, from what you all are saying I would think so! Good on him! Hope the rest of the professionals you see are more like he was!All the best
 

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Hi mate.. Long time no speak! ive also been very up and dwn the longest stint ive done is 2 n half weeks then the nausea and acid reflux and occaasional vomiting occurs again! I been looking up our symptoms again..have you had a gastric emptying scan? has gasteroparasis been considered? i also came up with gallbladder my self and possible hatial hernia and ulcers.... im on omeprazole for my reflux it doesnt always help though... i get a croaky throat because of it too =[ hope you get more answers soon mate im currently on the cancellation list to see a gasterointerologist...my actual appointment isnt until april 13th...i cannot deal with this on off feeling one min im fine the next im not!
 
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