I am just like you!
I have been struggling with my weight for about 8 years now due to ibs-c and being afraid to eat anything or just having no appetite. A few years ago it reached its worst and my weight dropped to 90 lbs (I am 5'6"). Doctors never took me seriously and just called me anorexic, even though I have never had an eating disorder. people who don't actually deal with it just can't understand. Then I caught a really bad virus and had nonstop diarrhea for 2 days and had to be in the hospital for a few days. After that they sent me to a treatment center for people with eating disorders, but at that point I was very scared and was willing to do it to get better. At the treatment center everyone was assigned a doctor that controlled what medications took and a nutritionist who you met with every day. I told them about the ibs and that if they could make me poop, I would eat as much as I could. They put my on miralax twice a day and colace along with a truck load of other vitamins and gave you gas-x and antacids whenever you needed to, and it worked! I ate everything they served me and was going to the bathroom A LOT every day. It was still the most uncomfortable thing to go through, my meal plan every day was something like:
Breakfast = 3 servings of carbs, 2 of proteins, 2 of fruits, and 2 of fats
Lunch = 3 of proteins, 2 of carbs, 2 fruits/vegs, and 3 fats and a boost drink
Afternoon snack = 2 carbs, 1 fruit, 1 protein, and 2 fats and a boost
Dinner = 3 protein, 2 carbs, 1 fruit/veg, 3 fats, and a dessert and a boost
Night snack = 2 carbs, 1 protein , 2 fats, and a boost
(I still can't believe I ate all that)
My assigned doctor said that in the seven years she had worked there she had never had a patient like me who really tried to get better and wasn't like the other people there who really had eating disorders. She was the first person to believe me that I wanted to get better and that I would eat if I could go to the bathroom. She told me to keep taking miralax as much as I needed to, and I still do. I spent a month and a half at the treatment center and weighed about 107 when I left. My doctors at home and my family took me a little more seriously after that too. But even after leaving there it has been a struggle to maintain my weight. I still take miralax twice a day so I can go to the bathroom every day. I also take beano with most meals and gas-x as needed. I always walk a couple of miles every day, it really helps with the bloating, anxiety, appetite, etc. and I get 8 hours of sleep every night. I am extremely careful about what I eat, I don't follow any special diet, I just eat what works for me - I know what I can eat and what I can't and I stick to it. Even though I have 2 college degrees, I moved back to my hometown near my family and just work a low paying job at a small local store. It is a low stress job where they treat me well and give me the evening shift that I want (so I can give myself time to go to the bathroom in the morning) and it has really good health insurance. It is a priority for me to make my life as comfortable and stress free as I can.
Sorry to give you half my life story, but it is so reassuring to hear someone else struggling with the same problem when the rest of the world doesn't get and just make judgments and assumptions, and I wanted you to know that you are not alone. It will definitely be a life long struggle for me. Have you tried taking miralax? It is safe to take every day. Liquid calories is a good idea, like the other post says. I stopped drinking boost because it is so filling and nauseating for me, but it is good for gaining weight. Steamed sweet potato and green beans helps me have a good bm without making me bloated and I eat whole grain crackers and toast a lot as they are settling for my stomach. Everyone is so different, so just finds foods that you can eat and tolerate and stick to that. I hope your family is supportive because that is important, but just know that you are not alone!
Take care and please keep us updated