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Discussion Starter · #1 ·
The doctor she works for is into doing more research in order to try to help treat his patients more effectively as he thinks that IBS, in some cases, is too often handed out as a diagnosis without exploring any other things like possible infections further. She wants to get people with similar symptoms and would like to find some more information that you might be able to bring to the table, so to speak. I think this would be a good thing.
 
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i'm a 33 year old female who is being treated for ibs, pain started around right rib cage dr thought i had a tumor on my liver ordered an ultra sound showed nothing sent me to a surgeon who ordered a hilda scan it showed my gallbladder wasn't workin so had that removed in feb2000. still had pain so i had a ct scan done only thing it showed was my uterus had inlarged (have alway had trouble with constipation since i was a baby)until i had my gallbladder out. i think in august i started having trouble going again and started having pain up under my rib cage that would rotate to left side also have lots of pressure like someone got a vise there just turnin sometimes thats worse then the pain. it starts in my back sometimes i've had everytest except a colon test, debating if i should have it done i'm tired of test and doc can you give any advice , i'm takin 3 diff meds nothing seems to help except the pain med but it puts me to sleep. ha ha thats thetime i think i like the most but husband said i still moan like i'm in pain
 
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I have a diagnosis of inflammatory bowel.I will be delighted to answer any questionsabout it. I am in remission right now.But the Ds do come back, from time to time.Glad to help in any study.
------------------Jim
 

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I also had the DX of IBS, for about a year now..2 weeks ago had another colonoscopy this time with biopsy, and found out I have this rare thing called Collangenous Colitis. Symptoms mimic Ibs, but I understand that this actually might be curable.Started meds. yest. and will see how it goes..Man I just wish they would have done a biopsy last year when I had my first colonoscopy..linda
 

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Discussion Starter · #9 ·
Thanks Bud,
I had clipped the link to my clipboard, and then forgot to paste it here. Duh! Good thing there are buds on the bulletin board ready to pick up the slack!
 

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Moldie; gosh you do turn up some interesting things.I know people sometimes question the relevance of articles and links that I post, but I believe an open minded broad based overview is necessary in dealing with this darn thing.Oddly, the more research I do, the more I'm convinced that one base thing, is the root cause of all these different diseases and conditions.Why do most autoimmune disorders, seem to be treatable with a gluten free diet, and why does Vitamin D (fish oil) in the form of Cod Liver Oil, seem to slow the progression of all these things.imho Same Cure = Same SourceGenetics is probably a secondary factor in determining who will get autism, bipolar disorder, lupus, ms, etc.etc.I have often wondered if my shyness, feeling out of step with society, rebelliousness, was some sort of mild form of autism.My advice to the readership, is to not have a narrow view focusing only on IBS or IBD, but to research the wide range of autoimmune disorders.What works for one, will probably work for another.If you go to other web sites (about other conditions), you'll probably find people talking about the same herbs and vitamin supplements that we use here.So I visited the post that you made Moldie, and came across "Necrotizing Enterocolitis", a word I had never run across before.I used the ABOUT.COM search engine (the sponsor of Jeff's board, and an excellent search engine) to track down more information about it. This is what came back...Necrotizing Enterocolitis http://www.pediatrics.wisc.edu/childrensho...ent_Sp/nec.html Enterocolitis in Children With Developmental Disorders (autism) http://www.mercola.com/2000/oct/8/autism_enterocolitis.htm Measles Persistence Confirmed in Some Patients With IBD, Autistic EnterocolitisJapanese and UK-based scientists have detected measles virus sequences in peripheral blood mononuclear cells (PBMCs) from patients with Crohn's disease, ulcerative colitis and autistic enterocolitis--the recently described syndrome purportedly assoc http://www.ncbi.nlm.nih.gov/entrez/query.f...2&dopt=Abstract Some interesting thoughts wouldn't you agree?Regrettably, I think this researcher will be doomed to failure, ridicule, and be made a poster boy for the Quackwatch board. The incredibly simple idea of a "one size fits all" causative agent will be derided as to upsetting to the status quo of the industry, which seems to be more interested in treating symptoms, rather than find a solution or cure.
 

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Discussion Starter · #11 ·
Well NickT, I would hope I would know by now if my intestines were dead. Too scary. Didn't mean to throw anyone in a panic. In med articles they often include/cover a number of possibilities, so some of the things posted in them may be pertinent, and some not. I'll let the good doctors sort it all out. JudyKaye in her post wanted some articles that might include some information that might be helpful in her GI doc bosses quest. I just provided a whole menagerie for her to choose from. Hopefully in the end any information he receives through her requests will be used in a responsible fashion.
 
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