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Discussion Starter · #1 ·
Hi,I have only just found this site after weeksof trying...I am having trouble getting any doctors to realize I actually have a problem.I always thought I was normal, until I got married and my husband told me I need help.I am constipated all the time..I have real-alized over the past few years what I can eatand what I cant. When I get really bad that I cant walk, the doctors tell me to vary my diet and send me on my way...I want to be able to interact with society instead of hiding at home in pain...what else can I tell my doctor to get him to help me..!!I get so upset when I go to see anyone aboutmy problem that I cant talk about it...I feellike they think it is all in my head...Nobody seems to understand...!
 
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Discussion Starter · #3 ·
Clancy,Thanks for he reply. Seems like there are more type D's than type C's that post messages here. I only go to the doctor when I really have to , thats when I say "oh , by the way ..." the only time I remember getting relief was after I had my second child, but that only lasted about three weeks.The doctors here dont seem to think that IBS is very serious...!!! Anyway, I will make an appointment with a new doctor on Monday I think and see how I go...Maybe a day out in public will do me good.Even if I do walk funny, I will have to put up with it if I am going to get any help ey?Tassybell
 

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Get the help that you need! You don't want to remain cooped up in the house for the rest of your life! That's got to be boring after awhile!John
 
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Discussion Starter · #5 ·
Dear Tassy,Sorry to hear you are ill. But welcome.My rather opinionated opinion is not "ask" for help, but INSIST on help. Do not be intimidated by doctors. I've said it before and I'll say it again- They are working for you- you are paying them, not the other way around. I hope you feel better really soon.Let us know,Peace,Karly
 

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Hi Tassybell:I'm sorry to hear that you are in so much pain. I alternate C&D, and it's pretty much under control by eating a high fiber diet and drinking plenty of water. I also take a fiber supplement, Perdiem, once a day. I've also done hypnotherapy tapes that have helped me a great deal.Have they ever done any tests? It doesn't really sound like they've done much. Have they given you any antispasmodics? That can help the pain that's due spasaming.I sure hope you can find some relief soon.JeanG
 
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Discussion Starter · #7 ·
Hi tassy Its not all your head !!!!!!You need to get to see a good Gi dr and they will understand what your going through (if they are good !) and do thier best to help !try and get reffered to a good one though !I agree with Karly in that they are there to help you and you are the 'boss' - write down all your symptoms and make them discuss everyone with you !good luck and keep us posted - and if you feel you can't talk to anyone come here and type instead - always willing to listen (read
!)Remeber - when you reach the end of your rope ...... tie a knot and hold on ! ------------------Worry never robs tomorrow of it's sorrow; it only saps today of it's strength"
 

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Hi Tassybell: I sympathize with you. When I first started with constipation (15 years ago) I believed all the hype about fiber so I ate a ton of it and got so bad I wound up taking enemas which stopped working and then I got hooked on Milk of Magnesia which after 10 years made me very very sick. I got hooked on the notion of "cleaning myself out" and this wasn't a good idea. You need to find a good physician who can tailor a treatment plan to fit YOUR NEEDS, not some hypothetical plan that is supposed to work for everyone. I really feel for you; I am trying to retrain my bowels and sometimes I have so much gas I try and run out of a room before--well, you know what I mean-- take care of this problem before it takes on a life of its ownGood luck
 

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Tassey - I am a C person used to not go for 2-3 weeks at a time. I found a bread - Ezekiel 4:9 Sprouted Grain Bread made by Food For Life. This bread has made me 100% regular. There are a lot of postings about it, but they are burried deep within the 30 pages of posts. Here is one where a guy is having a hard time believing that the bread is helping him, but it is. I also copied other success storys to that post so he could see those too. It has been helping both C and D people. Here is the link to that post: http://www.ibsgroup.org/ubb/Forum1/HTML/012798.html Just so you know, I do not work for the bread company - because I was talking so much about how well the bread works I was accussed of working there. I am a computer geek for a living. The bread is purchased at most healthfood stores. You will have to go to their website and find a retailer in your area. The site address is www.food-for-life.com. The bread is around $2.50 per loaf, it's worth the investment to try and see if it helps you. I have to say it is cheaper then all the fiber supplements, stool softeners, etc. Plus this could be your breakfast every morning.
 
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Discussion Starter · #11 ·
Hi everyone...Thank you all for your replies. I didnt really expect to receive any.! I still have not been able to get into my doctor as he has gone on a two week break. I know a lot of people have told me to change doctors but I have a problem in trusting doctors at all and have been going to this one for two years.It is too much of a hassel for me to start again with another doctor as I am a victim of child abuse , so, I would have to go through all the history and learn to trust a new doctor before I could even touch on the subject of my IBS. The bread that everyone raves about sounds wonderful and I would not have a worry about trying new things, but,I am afraid where I live we havnt even heard of it. A lot of people here in our group have suggested for me to try this bread..but I live in Tasmania, Australia. The closest place that would get it is on the mainland in Melbourne, which would cost extra freight. Being a fresh food it would not be a good idea to buy ib bulk ! There are not many foods that agree with me, so any other suggestions would be helpful. I ask everyone I meet, what foods are new etc..thanks again for the replies...I am not sure what time the group has the online discussion on Sunday nights because I am on a queer time here..!Anyway...I shall keep a look out this week and see if I can find everyone....Tassybell
 

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Tassey - I found this on another bread post...A fellow Aussie on the board posted this:SharonWJunior Member posted 09-07-2000 11:56 PM --------------------------------------------------------------------------------Australia - Any Aussies out there?. We can't get this bread here, but I have had success with Country Life's Gluten Free Bread. There is plain and multi-grain. Multi-grain is the best. I am a C-type mainly, sometimes D.The bread does not contain any gluten and therefore no wheat. I have two slices a day and my IBS symptoms have really improved. I have a good BM every day. Unfortunately it is a very small loaf and it costs $3.80 I think, (from Coles, Safeway or Healthfood stores). But I don't care what it costs. I can't live without it now.Their website is: www.hawley.com.au Sharon
 
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Discussion Starter · #13 ·
Dear Tassy,Just a note on the abuse and doctor issue.I was also abused as a child. there is a thread somewhere on here with my name on it.It's about sexual child abuse link to IBsI don't know if that was your case but anyway, if you want I will find it and bump it. What I really started to say was that explaining your history to a dr. is a royal pain. literally. It's like defining something so personall and traumatic in these listed aphbetically questions.But DARN-IT you are worth the VERY BEST. I went to a new doc. today and my first question was have you ever treated a trauma survivor with PTSD(an anxiety disorder)She looked puzzeled momentarily and then she said she would do the very best she could and was sweet and kind and understanding.Now It took me years to become that blunt and straightforward, however, I believe that it is worth it. I refuse to give any credence to any doc. that thinks that they can after one meeting summize that it is "all in my head" good-bye and good ridance to you dear doctor!To conclude this longwinded tirade-like narrative. I have one more suggestion. Write a letter to your new. doc. prior to going and specifically outline your symptoms, your concerns and any history you feel it is nessecary to share. Also include info. you already know. Give it to him/her when you get into the exam room and explain that it was easier to write it all down at home.If this makes no sense, I'm sorry, but I have done it and it makes things far more simple. Esp. with a "history"I'll stop now and sorry to go on. E-mail me anytime.Best of luck,Love and Peace,Karly
 
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Discussion Starter · #14 ·
Hi Tassy,I am "C" type mostly also, and three things dramatically improved my regularity: 1)exercising every morning right when I get up 2) drinking water (as much as I can stomach) right after the exercise, and 3) making sure that I drink at least 64 oz. of water a day. I have been doing this for two years straight, and I have at least one bowel movement every day (always one in the morning), and pain is not an issue (only very seldom). I have been doing other things, but I don't know for sure whether they made any difference.Also, in reference to the bread, I couldn't find any around where I lived, so I ordered it off the internet. (I have not received it yet). I figure if they sell it on the internet, they must feel that it will still be good when it gets to you. Hope I'm right about that. Hope it helps, also.Good luck.
 
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Discussion Starter · #15 ·
Hi Tassybell, I'm a fellow Aussie IBS-C living in Victoria. I was at the end of my rope approx 2 years ago and I made an effort to retrain my bowel setting a routine where I went to the BR for 15 mins each morning and whether the time was productive or not, I refused to think about going until the next morning which relieved alot of the daily stress. Before too long, the visits became much more productive which made me much happier. I have been coping much better since setting up the routine but of course there is always room for improvement and the latest improvement came from drinking evian water. I object to buying water usually because Australia has great drinking water but the Evian seems to be helping. I'm not cured but I'm certainly not at the end of my tether now. I'm going to look for the bread everyone is talking about.Good luck
 
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