Hi, I know this is a very old topic, but I have been watching this thread for a long time, and decided to pitch in a little information that may help someone. My son, Collin has been dealing with GI issues for the past 2-3 years without even a diagnosis. He was "diagnosed" with crohn's, then "undiagnosed", then a "possible rediagnosis, he was diagnosed then undiagnosed with SIBO, then IBS, then.... on & on, you all know how that goes, he has been on too many diets, meds, treatments to list. We have gone across the country in search of GI docs, etc etc, you all know the drill. Well, we found a naturalpath Dr. who wouldn't give up on him like all the other Docs did. She dug and dug to find out what was wrong. His symptoms were very simular to a lot of you on this page. She tested him for a rare genetic blood disease call Porphyria. It is found in 1-5 per 100,000 people.And lo and behold, he tested positive! It isn't even a GI problem, but some of the symptoms present themselves like GI symptoms. Look it up. I know it is a long shot, but I know how devestating it is to be out there feeling so alone and wondering if this is as good as life is going to get. Don't give up!