Discussion Starter · #1 ·
Please refer the the bottom post for what has been going on so far. It was from a few days ago before today's appointment.Today the doctor said that he would like to test me for Crohn's. When I went home and looked it up, I found that I have ALL of the symptoms and I am wondering why this didn't happen sooner?!!"Okay, so some of you guys know me, some not. So I'm gonna give a little background. I'm 20, I have ALWAYS had stomach issues. As long as I can remember. But it really started getting bad when I turned around 13 or 14. I suffer from IBS-D. I had a HIDA Scan on my gallbladder a few years back and it came back that my gallbladder was only functioning 7%. But my Gastro voted NO to removing it because I had no stones. I also had a colonoscopy which showed NOTHING and an edoscopy that showed minor acid reflux.2 years later here I am. Another HIDA scan and endoscopy later, I find that my gallbladder is functioning at 17% and I am suffering from what is called "biliary dyskensia." I then spoke with a surgeon that told me that biliary dyskensia generally just means, for reasons unknown, my gallbladder just doesn't work. He said since I experienced pain during the HIDA, it's a good indication I should be CURED of my IBS-D if I got my gallbladder out.So I did it. Oct. 1st. I was not warned about bile salt diarrhea and here I am now. I have diarrhea WORSE than I did BEFORE the surgery. They put me on Lomotil which simply slowed the process down but did not change the...*ahem* END result of diarrhea. Just made it "wait" longer. The diarrhea I am experiencing now is MORE painful in my lower intestines than it has EVER EVER EVER been.So then they put me on Questran which DOES work, but I am still feeling horrible cramping pain, nausea, and LOTS of gas.I am so depressed because I really did believe this to be a "cure-all". I am eating nothing but chicken, rice and low fat EVERYTHING. I can't even eat beef. Not even LEAN beef.So now I'm left with these questions:It's been a few weeks will the diarrhea ever go away?Will the effects of Questran lessen?Will I ALWAYS need the Questran now?I don't know what to do. When I'm on the Questran, I'm miserable, when I'm off it, I'm in an UNIMAGINABLE amount of pain.Not to get too graphic but when I am having D now when not taking Questran, I am literally in SO MUCH PAIN during the D, that it makes me scream and throw up because the pain is so dizzying.I hate this. I don't know what to do now. I'm so tired of waiting. This has been my WHOLE life.I had to drop out of college, quit my job, and I lost my boyfriend.Please, anyone, anywhere, ANYTHING... give me some relief."