D settled for 1/2 day yesterday now back with vengence on cancellation list

Denise, Sorry I meant to reply earlier, but duty called. And I've been busy trying to find you a link for scleroderma support. Please forgive me if you've visited all these already, I just feel so awful for ya I HAD to DO something. So here goes....This link looks like a bulletin board or something, didn't have time to check it out; http://www.ihavescleroderma.com/pages/postit Irish Raynauds & Scleroderma Society: http://www.mdimedia.com/irss/links.html Scleroderma Foundation: http://www.scleroderma.org/ Scleroderma Resources: http://www.edae.gr/scleroderma.html Canadian Support Groups: http://www.sclero.org/support/groups/canada/a-to-z.html Click on Scleroderma: We're Not AloneThen click on GREAT LINKSThere is a chat link towards the bottom of the page.Whew! Hope they help. Hang in there hon. ((HUG)) Give the Lomotil some time to kick in & also maybe the "knocking you out" side effect will wane. Don't give up! Do every stress reliever you can think of & be gentle w/yourself. Better days ARE coming. Hope you get that cancellation & glad someone is finally taking this somewhat seriously.Also seemed like alot of good info on Thrive On line try searching there too. I wish I could put you in touch with others that have this because I think you'd feel better knowing you are not alone. Attack this like you attacked the IBS. Get ALL the education you can about it & make a pest of yourself w/the Drs.Hoping tomorrow is better for you & the day after that & the day after that ..........BQ

Denise,Have you tried the Caltrate Plus D calcium supplement that everyone is talking about? It's been helping a lot of people with the D from IBS. I'm with the Lotronex Action Group, we are working on trying to get this drug back on the market so that people like yourself do not suffer any more. I am assuming you had not tried it before it was pulled? Well, we're hopeful that it will come back, if not, something similar will. Ask your doctor about Zofran. It's used to treat nausea in Chemo patients and in pregnant women. However, there are some people who have been asking for it, although it is expensive, to replace the Lotronex in the interim. From every remedy out there that I've been hearing others talk about, I think the Caltrate Plus D and the Zofran are the best scenarios right now. That's just my opinion based on what I've been reading. Good luck, and let me know if you try any of these.Maria Z