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Discussion Starter · #1 ·
Well I thought I was over the rough spot Monday I actually had a half day with no D. Well that hope is dashed I woke up with big time presure and boom I was off and running. I called the arthrithis specialist and they now have me on the cancelation list althought its rare that they get a cancellation for first visits. I told the nurse about the meds my ibs and the arthritis is going override the last couple of days she said she would do everything possible although she dosn't seem to think its all the meds and neither does the pharmacist. They both figure that stress is factoring into this. they say I should take it easy and rest. [This message has been edited by denise.bradley (edited 03-13-2001).]
 

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Discussion Starter · #2 ·
Well the box cut me off how do you guys get bigger space. Any way here I am the maintance guys are here working in my house hence I live in public housing and I just said to Tom just do what you have to and shut the door when you leave I'm going back to bed. I am getting so depressed from this and I am trying not to show my hubby. This is not the way i want to live my life the doctor has given me a couple of lomiltil (5) they are just knocking me out. I hate my life and I hate the government for putting me in this position and IHATE THIS ARTHRITHIS for the pain, fear and sickness it has given me. If there is any one out there that has schleroderma please give advice.Denise
 

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Denise, Sorry I meant to reply earlier, but duty called. And I've been busy trying to find you a link for scleroderma support. Please forgive me if you've visited all these already, I just feel so awful for ya I HAD to DO something. So here goes....This link looks like a bulletin board or something, didn't have time to check it out; http://www.ihavescleroderma.com/pages/postit Irish Raynauds & Scleroderma Society: http://www.mdimedia.com/irss/links.html Scleroderma Foundation: http://www.scleroderma.org/ Scleroderma Resources: http://www.edae.gr/scleroderma.html Canadian Support Groups: http://www.sclero.org/support/groups/canada/a-to-z.html Click on Scleroderma: We're Not AloneThen click on GREAT LINKSThere is a chat link towards the bottom of the page.Whew! Hope they help. Hang in there hon. ((HUG)) Give the Lomotil some time to kick in & also maybe the "knocking you out" side effect will wane. Don't give up! Do every stress reliever you can think of & be gentle w/yourself. Better days ARE coming. Hope you get that cancellation & glad someone is finally taking this somewhat seriously.Also seemed like alot of good info on Thrive On line try searching there too. I wish I could put you in touch with others that have this because I think you'd feel better knowing you are not alone. Attack this like you attacked the IBS. Get ALL the education you can about it & make a pest of yourself w/the Drs.Hoping tomorrow is better for you & the day after that & the day after that ..........BQ
 

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Denise, I know it's after 1am in Nfld. right now, so I hope you're feeling better today. Let the Lomotil knock you out if that's what it wants to do. You need some rest. I hope you're managing to get enough fluids in...you don't want to end up hooked to an IV again. I hope you get in on that cancellation list and soon!
 

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Bump for Denise
 

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Denise,Have you tried the Caltrate Plus D calcium supplement that everyone is talking about? It's been helping a lot of people with the D from IBS. I'm with the Lotronex Action Group, we are working on trying to get this drug back on the market so that people like yourself do not suffer any more. I am assuming you had not tried it before it was pulled? Well, we're hopeful that it will come back, if not, something similar will. Ask your doctor about Zofran. It's used to treat nausea in Chemo patients and in pregnant women. However, there are some people who have been asking for it, although it is expensive, to replace the Lotronex in the interim. From every remedy out there that I've been hearing others talk about, I think the Caltrate Plus D and the Zofran are the best scenarios right now. That's just my opinion based on what I've been reading. Good luck, and let me know if you try any of these.Maria Z
 
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