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Discussion Starter · #1 ·
I'm still wondering what you all think about Lotronex and/or Caltrate for those of us that don't get D everyday. I kinda wish they could be used on a weekly basis {for those that get D about once a week] or whatever. I'm not sure about getting C like I did IS the way it should be. Do all of you that said you got C and pain in the beginning with Lotronex say that it eventually went away and now you feel "normal"? Just trying to figure it all out, cause I'm afraid to try it again. Thanks for listening!------------------Deb
 

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Hi Debbie, I've been on Lotronex for five weeks now. My ibs didn't produce D every day. My problem was urgencey, when I had to go, I HAD to go! One minute I'm fine, the next I'm in a panic looking for a bathroom. Lotronex has greatly improved this condition, along with caltrate, probiotics, and fiber. I have trouble with fiber supplements. Most have sugar or worse, nutrisweet, which worsens my ibs. So I eased fiber into my diet from whole foods. At first I has alot of gas and bloating, but that decreased over time. As far as the C goes, this is a new experience for me. Before, if I didn't have three BM's before noon, I thought I was constipated. When you're used to being empty, it feels weird not to be. But I hung in there and I'm glad I did. I'm having more good days than bad, and the bad days are more managable. I see light at the end of the tunnel. If you're taking Lotronex, and it's not making you real sick, try to stick with it a while longer. Good luck!
 
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Discussion Starter · #3 ·
Bill56; Thanks alot for the reply! I'm so glad that you're having success with the Lotronex!!! When you say there was gas and bloating at first,did you have pain with that too? And also did you have much day to day pain to deal with before you started taking it? Take care Bill------------------Deb
 

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No, I did have day to day pain before starting on Lotronex. Now I do get some painful cramps some days. I mean "double over with pain" kind of cramps. Especially when I first started the meds. But in the last few weeks, almost no pain. And today, no BM. But I don't feel bloated or crampy. And I'm not so nervous about it either. Maybe I'm starting to get used to feeling normal! I hope so. I've been waiting a Loooooong time.
 
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Discussion Starter · #5 ·
Bill; I'm so glad for you!!! You've inspired me to try it again, but I think I'll do it when there are no events coming up just in case. Thanks, I'm sure we'll discuss this again!------------------Deb
 
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Discussion Starter · #7 ·
Debbie, I am starting my second week on Lotronex. It is working wonders for me. I too did not have D every single day but had the problem with urgency when I do have it. My Dr. prescribed me to take 2 pills per day but I thought that was a little much so I'm taking one. He also said to prevent the C from ever happening, drink one glass of metimucel(sorry,I have no clue how that's spelled,and don't feel like going and looking). Anyway, drinking that has really worked for me. I have had no cramping that some say they get from the lotronex and I think that is due to the metimucel, it also comes in sugar free for those that sugar bothers. Try drinking that,it will make you feel a lot better. I read on another post where someone said that maybe we just don't know what "normal" feels like so we automatically think it's C. Hang in there, I hope the Lotronex works for you as it is for me, let's pray it keeps working!! Dixie
 
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