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Discussion Starter · #1 ·
Do you ever wake up in the middle of the night with terrible cramping that is the worst pain of your life?I get this problem probably once every so month. I wake up at about 3am in terrible pain. My bowels make the loudest noises ever and I have to sit on the toilet for the rest of the night/morning. Sometimes its so bad that I can't poop and the cramping is the worst. It takes about an hour of me sitting on the toilet trying and trying to go until finally everything comes out.Sunday while on vacation I woke myself up at 3am going, "Ow ow ow". The severe cramps were back. I tried to massage my stomach but then I found a hard spot. I pressed on it and heard the loudest bowel noise ever and then it softened and I heard something rushing through my bowels. I then ran to the bathroom and proceeded to #### out my insides. It was pretty nasty. I asked my GI doc if it was just coincidence when I pressed on the hard spot that it did that and he said no. Something about having severe IBS that makes my intestines do that. These episodes last for hours and they are so painful. Bleh...So what about you guys? Do you ever have that happen to you?
 

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always happens to me first thing in the morning after i have eaten breakfast hard lump right hand side lopsided lower intestines and gurgling noises then have 2 rush 2 the loo, after that cramps, bloating, nausea and heartburn. anyone else suffer the same?
 

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Discussion Starter · #4 ·
Do you have a lot of night symptoms? Have you ever had a colonoscopy?
Most of my terrible symptoms happen at night and wake me up. I had a colonscopy last month and they took some biopsies for Crohn's. Everything came back with no significant inflammation or anything else.
 

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The no symptoms at night thing with IBS is not really no symptoms during sleep ever in any person with IBS ever you must absoluletly have something else.Really.I found the data set in a paper where they looked at IBSers, people with IBD, people with GERD and some other GI illnesses and looked at what was more common among who (and compared to healthy people).People without any GI illness at all can sometimes have abdominal pain that wakes them up at night, but it is rare.People with GERD or other GI illnesses (but a lot with GERD) are most likely to have pain that wakes them up from a sound sleep.People with IBS are somewhere in between. Since it is more common in other illnesses you may need more testing (so the biopsies for crohn's was a very good idea. But it doesn't by itself mean you cannot have IBS.This pain at night and pooping at night isn't the most common IBS pattern, but it can happen, and most of when it happened to me was long before I had IBS and usually after I ate certain kinds of foods. I think seafood usually is the issue for me, and sometimes if certain seafood isn't handled correctly it can have more histamine than usual in it, and that can set off the bowels at any time of day or night (I've had it in the afternoon if I have eaten tuna at lunch, but usually it is after bedtime if I had seafood for dinner).So I'd track this and see if it relates to certain foods as bad food will make anyone sick at any time of day or night.
 

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Discussion Starter · #6 ·
I can't seem to find anything that causes those terrible night flare ups. I've tried duplicating the same activities to see if that was the case and nothing happened. It seemed to be completely random.I am having a small bowel follow through done so maybe that will show something.I'm really not satisfied with the IBS diagnoses the GI doc gave me because it just doesn't fit. He said that it's the most severe case of IBS he has seen or heard of which makes me wonder if it really is an IBD. I mean...I've been to the hospital before because my symptoms have been so severe and he said normally patients with IBS don't get that severe.My symptoms are so close to Crohn's but the biopsies were negative. I'm just really confused. I just started hyoscyamine which seems to be helping.
 

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A colonoscopy can miss Crohn's disease even with biopsies - Crohn's can occur anywhere from mouth to anus, so if you had disease in your small intestine or above, the colonoscopy might miss it - Colonoscopies only enter the last part of the small intestines, and sometimes doctors are not able to get the scopes that far. It's possible that this could still be IBS, but you might want to bring up this point to your GI.
 

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Discussion Starter · #8 ·
I am going in for a small bowel follow through to check to see if the colonoscopy missed any Crohn's, just to be safe. Hopefully it will come back okay.
 
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