It's interesting for me to read this because I literally just messaged my GI regarding severe constipation and hoping he has some insight and suggestion.
Nothing...absolutely nothing I do seems to affect it. Low FODMAP, increasing FODMAPS, gluten-free, reduced-gluten, lactose free, caffeine-free, try small regular coffee in morning, very active, water, prunes....ugh. The list is endless, up to and including Miralax, Benefiber, Senna, Dulcolax. Regular journaling with no new insight.
I have mixed IBS and it IS literal hell. Can't plan anything for fear that the constipation has reached tipping point and will result in abrupt diarrhea.
I have had IBS for most of my 56 years and it keeps shifting, but moving more to constipation recently. I remember being about 8 years old and parents having to stop the car in the middle of the boonies because I had a "tummy ache" again. No school activities due to inability to predict when a flare-up may occur. Can't be in marching band, no theater, nothing that demands full attention without ability to dash to the toilet, getting in trouble with hall monitor for leaving class to run to bathroom without the required "hall pass". Field trips on a bus? 100% terrifying. Don't know how I managed to work at the bedside in an ICU for 20 years with the constant threat of needing to "excuse myself' every minute of every shift. Thankfully, I now have a job that mostly allows flexibility, if needed.
Just looking for some stability in this miserable IBS existence so that I can actually enjoy doing SOMETHING with my family and friends and not have to keep cancelling plans for everything enjoyable. Anxiety? Real. Causes symptoms? Maybe sometimes. But, have a condition that requires the presence of a bathroom, sometimes within seconds and know it's not there. Yeah...
My husband thinks this doesn't affect him, but when he keep suggesting I see a nutritionist, "specialist", and hear him trying to help brainstorm how I can control things, it hurts to hear because it is affecting him and always has. If I could, I would have control of this. It's not a situation of "just don't eat this". He suggests things because he's truly frustrated and concerned. I feel like if I don't send that next pleading message to the GI or don't seek out just one more person to try to address the problem, like I am not doing enough to try to control it. I am so defeated, yet understand the sentiment he shares.
Truly, I am not seeking an ounce of pity or sympathy...just reflective feelings of someone who just can't bust out of this prison. It damages one, not just physically, but emotionally.
I am sure some of you may feel the same way. Here's hoping that today is better than yesterday for all.