Irritable Bowel Syndrome and Digestive Health Support Forum banner
1 - 10 of 10 Posts

·
Registered
Joined
·
11 Posts
Discussion Starter · #1 ·
Hello,

I've been trying to get my diet down to something as simple as possible but I'm still struggling with extreme gas (noxious) to the point where it keeps me up at night. Bowel movements are very inconsistent: Once a day it might be normal, but then rest of the day it's running (not completely liquid but definitely not solid) and slightly painful to pass, and I've noticed that some food passes undigested when this happens.

I've had tests done by Gojiman that show slightly elevated levels of histamine, and yeast in my stool. No parasites, SIBO negative.

My diet consists of:
- Eggs (I'm confident this isn't a problem)
- Fresh white fish and some shellfish
- Vegetables: Carrots, Potatoes, Mushrooms, Bell Pepper (sometimes)
- Fruits: Apples, Oranges, Blueberries, Melons, Bananas, Mango, Cucumber, Zucchini, Avocado
- Grains: Basmati Rice, crunchy stuff made of either corn or buckwheat
- Nuts: Pistachios
- Drinks: One black tea in AM, Green tea in afternoon, and water

Everything I eat is organic, and I try to eat raw (not fish) but often cook with olive or coconut oil. I'm taking digestive enzymes with all meals.

I'm now considering cutting out:
- Shellfish
- Vegetables: Bell Pepper
- Grains: Everything but rice
- Black tea (but I don't want to!!)
- Fruit: Mango, Melon, Bananas, Oranges
- All cooking oils (but I don't want to, otherwise avocado is my only source of fat)

What do you think of this plan or do you have any suggestions?

I've been trying to avoid taking rifaximin to solve this but I feel like I'm backed into a corner. I'm starting to get into a serious funk and feel the depression coming on as it's hard to leave the house these days.

Thank you for listening.
 

·
Registered
Joined
·
661 Posts
Everyone is different but I have found that diet is not the answer. There are a few things that bother me immediately, but I have found that in general changing my diet has done nothing to help.
 

·
Registered
Joined
·
661 Posts
Unfortunately the only things that works for me are medications. I have tried all the diets and even cognitive behavior therapy. Right now Motofen works best. That or Lomotil. Trouble is they can't always be depended on. Generally I use them as a preventative if I'm going to be in stressful situations....which is pretty much everytime I leave the house.
 

·
Registered
Joined
·
11 Posts
Discussion Starter · #5 ·
I just got some results back: Blood test shows signs of malnutrition and stool analysis shows exocrine pancreatic insufficiency (Elastase at 54g, where normal range is > 200g).

I visit the doctor today to see what the next steps are.
 

·
Registered
Joined
·
205 Posts
Everyone is different but I have found that diet is not the answer. There are a few things that bother me immediately, but I have found that in general changing my diet has done nothing to help.
I've tried dairy-free, gluten-free, low-carb, paleo, fodmap, and custom food intolerance diets and none have helped me either. It never made sense to me anyway how something I could be consuming my whole life would suddenly give me chronic IBS in my late-30's anyway. Personally I think my issue is a failure of of the peristalsis function due to some biochemical or nervous system problem.
 

·
Registered
Joined
·
214 Posts
It will vary be individual. I was diagnosed with SIBO-C about 5 years ago. I tried elimination diets (primarily low FODMAP) multiple times, with little success. It helps to relieve the bloating but not the constipation. I would lose a lot of weight and be tired while doing it, so it just wasn't worth it for minimal results. My gastroenterologist told me that my methane levels were so high that it was not surprising that changes to my diet had little effect. I use medication daily to relieve the constipation (Linzess), and she said that is probably my best option for now. Just keeping my fingers crossed for an actual cure one day.
 

·
Registered
Joined
·
11 Posts
Discussion Starter · #8 ·
Thank you all for your support. I got some results back from a fecal elastase test and it showed very abnormal results. Doctor suspects exocrine pancreatic insufficiency. He put me on CREON and within a few days I was having normal bowel movements. Over the last month I've had about 5 bad days, compared to more than 50% bad days over the last few years. On one hand I'm happy that the problem appears to be identified. On the other, I'm not looking forward to taking meds for the rest of my life, although it beats the alternative.
 

·
Registered
Joined
·
2 Posts
Understand, you can eliminate everything, up to all carbohydrates, but that won't fix the problem. I'm sure your problem lies in something else, and that's why you need quality help from a doctor. Btw, have you seen a doctor or do you want to try to fix it yourself? Nutrition control is very important for you having this problem, but it should be done by a specialist. There`re different approaches to nutrition, I`m going through Reverse Health now and can recommend it to you as well, since I see test results. Another reason is genetic predisposition, but you should discuss it with your doctor if this`s your case.
 

·
Registered
Joined
·
10 Posts
Hello,

I've been trying to get my diet down to something as simple as possible but I'm still struggling with extreme gas (noxious) to the point where it keeps me up at night. Bowel movements are very inconsistent: Once a day it might be normal, but then rest of the day it's running (not completely liquid but definitely not solid) and slightly painful to pass, and I've noticed that some food passes undigested when this happens.

I've had tests done by Gojiman that show slightly elevated levels of histamine, and yeast in my stool. No parasites, SIBO negative.

My diet consists of:
  • Eggs (I'm confident this isn't a problem)
  • Fresh white fish and some shellfish
  • Vegetables: Carrots, Potatoes, Mushrooms, Bell Pepper (sometimes)
  • Fruits: Apples, Oranges, Blueberries, Melons, Bananas, Mango, Cucumber, Zucchini, Avocado
  • Grains: Basmati Rice, crunchy stuff made of either corn or buckwheat
  • Nuts: Pistachios
  • Drinks: One black tea in AM, Green tea in afternoon, and water

Everything I eat is organic, and I try to eat raw (not fish) but often cook with olive or coconut oil. I'm taking digestive enzymes with all meals.

I'm now considering cutting out:
  • Shellfish
  • Vegetables: Bell Pepper
  • Grains: Everything but rice
  • Black tea (but I don't want to!!)
  • Fruit: Mango, Melon, Bananas, Oranges
  • All cooking oils (but I don't want to, otherwise avocado is my only source of fat)

What do you think of this plan or do you have any suggestions?

I've been trying to avoid taking rifaximin to solve this but I feel like I'm backed into a corner. I'm starting to get into a serious funk and feel the depression coming on as it's hard to leave the house these days.

Thank you for listening.
You need to go on the low Fodmap elimination diet. It looks like you are eating a lot of fructose, gluten and fructans, things that irritate my bowel and cause IBS. Eliminate those and eat more GOS foods but be sure to take Alpha Galactosidase with them to help digest. Your passing of food in your waste is concerning. Have you been tested for Chronic Pancreatitis?
 
1 - 10 of 10 Posts
Top