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Discussion Starter · #1 ·
I am having a endoscopy on Monday to take some biopsy to rule out Celiac. My new doc just got my records from my other doc and it shows I have a high possibility of having Celiac. If this is true Iwill be sent to a dietician to start on my new eating plan. I wish my other doc would have told me about this, all he said was I might have a slight intolerance to wheat and left me to my own to deal with it. At least now I am getting the right testing done to rule it out. Anyone here have celiac? Anyone have an endoscopy? I'm not to nervouse just glad I didn't have to do another colonoscopy. My doc said this could be why I am never able to get stable. Like some people with ibs they have stable times and then flareups. Mine is an everyday issue. Without lomotil I wouldn't be able to go anywhere.
 

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My severe ibs is with me all day every day and night so you are not alone,and it is difficult to cope with but one does but try.I have had two endoscopies,as Kathleen i was sedated for both,makes it more comfortable,well i think so anyway.I have also seen a Dietician,which i think would be of help to you also,i would get a referral.Hope you get on okay.Take care.
 

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I was gluten free for a year because it was thought that I had celiac. My symptoms seemed to go away but I still had about seven severe pain and sickness episodes. I had the blood work and endoscopy to look for Celiac but they did that after I was gluten free. Have you tried cutting out gluten?Having an endoscopy is really easy, there is no need to worry.
 

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I had an EGD and it was absolutely no trouble. Love that there's no prep for it, like the colonoscopy.I know it sounds weird, but do not cut out gluten before your endoscopy. If enough time passes between you giving it up and having the test, the bowel heals itself, making it look like you don't have celiac disease, even if you actually do.
 

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Mrae:My experience (I have severe gluten intolerance) was that I had to find a dietician who actually knew something about celiac disease and the gluten free diet. My first dietician wanted me to start eating wheat to see how well I handled it - nonsense.If you end up on a gluten free diet (and as one person here already said, do NOT stop eating gluten until all of your tests are done since you need gluten in your diet in order to make the diagnosis), try one of the really first-rate celiac websites. Delphi Forum has a celiac discussion group under Medical Conditions that is excellent - a great source of accurate information.Good luck with your endo. I've had 4 of them so far and all were a breeze except for the first one The first one, about 40 years ago was with a fixed scope (think broom handle) with NO sedation. The procedure now, with the flexible endo and sedation is easier than getting your teeth cleaned!
 

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Discussion Starter · #7 ·
Well it ended up being very easy to get through the endo. Love it compared to the colonoscopy. They found that I have a slight hernia and gastritis. I will get my results on the 18th for the celiac. I did the endo and blood work so we will have both back by then. I didn't go gluten free before and if it comes back positive he is referring me to a dietician. Does anyone else have a hernia or gastritis? I was suprised when he told me about the hernia.
 
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