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Discussion Starter · #1 ·
Hi, I am new here and so far am finding the site very helpful. I have had severe gastrointestinal issues for about 15yrs and have been labeled as IBS and GERD. After years of testing and being told there's nothing seriously wrong, except for the acid reflux, bloodwork came back positive for Crohn's. The doctors said bloodwork for this is not very accurate, but after me bothering them for a year about the constant pain, rectal bleeding, and having to use the bathroom up to 10x a day they gave in and wrote me a prescription for a Crohn's steroid called Entocort.It's a newer drug and VERY expensive, cost me $700/mth and I do have insurance. It's a 3mth treatment in which you have to slowly come off of it so your body adjusts to cutting out the sterioid. It worked great for a week and now kind of on and off, which I guess is not supposed to happen.Has anybody else given this drug a try for any IBS related issue? Did it work for you? Any side effects? I really didn't get any side effects even though it's almost a given you'll get something from taking such a high dose of any kind of steroid. I've been on it for 6 wks.
 

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Generally not used for IBS, so I don't know if you find many here who have tried it, but you could post over on the IBD section of the board as I think some of those folks have used it.
 

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Entocort is the only thing that has helped me with chronic D for 3 years now. Problem is, doctors will not prescribe it long term and after the several weeks of dosage I have to taper off and the D returns.
 

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Discussion Starter · #5 ·
On Edge: have you been officially diagnosed with Crohn's? I have not, they just wanted to see what would happen if I took this for awhile. Wasn't sure if there were other people out there who were put on this as kind of an "experiment."
 

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With me it was a kind of experiment and it worked. The doc who originally prescribed it retired and the new one refuses to prescribe it long term. I have no sign of crohn's and generally good scopes for ulcerative colitis. What I have is chronic D.
 
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