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Discussion Starter · #1 ·
Hi all,Like many others in here I have suffered from FBO for many, many years (guaranteed) untill recently. How did it go away? Well, I used to have Ulcerative Colitis untill 1 and a half month ago when I went in for surgery because it wasnt possible to live with it and this seems to have taken my FBO with it somehow... Now, having surgery for Colitis isnt a small one. I wont go in to details but the entire colon is taken out and your either given a temporary or permanent illeostomi. In my case temporary (look up J pouch surgery) so its not an easy fix (and i cant even guarantee that its what has taken away the fbo). After the surgery I still wasnt sure of course and I was too embarassed to ask anyone in the hospital if the smell was still there. At home still worried over my FBO I discovered this (free) e - book about a guy with FBO just like many of us have had/still have.... http://somethingsmells.wordpress.com/ I read it and decided that I didnt have anything to lose so I went to the dentist like him but he couldnt smell anything on me and told me to go to a regular doctor so i did (im just back from seeing him actually) and he too couldnt smell anything. Infact he thought i was nuts and I really mean nuts. He wanted to send me a shrink and all that. It was actually worse sitting in his office listening to him not really beliving a word I was saying than hearing the comments outside.I know this isnt the greatest of all (possible) FBO cure threads because it doesnt really offer a valid solution to the problem but if you read the e - book and his problems along with me removing my colon then then atleast the problems are probably either a dental one or as many of you say leeky gas or similar.I always hoped I could come on here and write a thread with the ultimate solution but unfortunatly this is all I can offer. I will stop by here once in a while and answer any questions if you have any. I may atleast have narrowed the problems down in a way no doctor seems to be able to...
 

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Hi. It sounds reasonable that you FBO is gone now as the FBO probably comes from a combo of feces in the rectum and a partially opened anal sphincter. It is very logical that having your colon removed and small intestine connected to a stomy would address this problem efficiently. I understand that your ileostomy is temporary. If the small intestine later on is connected to your anus (ileoanal anastomosis - IAA sugergy), then I am a little worried that the FBO perhaps will return. It's very hard to tell, though. After all, none of these operations will affect the anal spincter ... which probably is a part of the problem. If the anal sphinter's default position/regulation is still too open after the IAA, then u might thoretically get FBO from your small intestine. However, you might also turn out to just fine. It would be interesting to know, though, what happens after the IAA. Anyways, I am very happy on you behalf that you currently don't have this problem any more.
 

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I dont thing its any of the causes stated above. I think it might be hormonal related. Ive tried alot of supplements like digestive enzymes, acidophiles, lecithin, garlic oil, vitamins, chlorophyll, milk thistle and fiber pills. They all worked to some extent but none of them did anything. Until a short time ago I thought it was liver related and although taking supplements for the liver has helped somewhat they have not ended it. Just a few days ago I bought a Kelp supplement which provides iodine and its worked. The kelp supplement is intended to improve Thyroid gland function and im happily to say that today I was on the subway and nothing happened. No smell at all. I bought a bar of Caramilk because of its processed ingredients and its refined sugar content and unlike before it only produced a very light smell. And when I took more Kelp pills it went away. So I think FBO is hormonal related, in particular to the Thyroid gland.P.S. If anyone has seen an endocrinologist about FBO, can you please post how it went and if anything that was discovered.Ow I forgot to add that 15 min after taking 2 Kelp pills my stomach went from swollen/looking like Im pregnant (Im a guy) to a just a flat stomach.Can more people with FBO please investigate this plz. Thank you.
 

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Im saying that this might be a hormonal problem caused by the thyroid because i have seen a huge difference when I took Kelp supplement pills which supply iodine. Plus up to now I have not been able to find any scientific documentation of FBO except one mention from 1972 which wasn't even accurate because it blamed it on carotene digesting bacteria or insanity. Pretty much were on our own because simply doctors are not aware of this problem, let alone what to do about it. Regrading the small intestine removal, I dont know how that might help. Keep us posted Meh 123.
 

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congratulationdon't worry,if you don't smell when your bowels are open to world then you won't smell if you have a barrier(anal sphincter),unless the cause of FBO was ulcerative colitis,ask your doctor to take a biopsy from your anus to see if U.C. was extended to it or not.
 

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Hi Guys ! I have had leaky gas for 20 years . Now I'm 33 . I have tried everything I could. Enzymes , probiotics ,all the food supplements have been tried , but nothing has worked so far .
Anyhow I don't think that our problem is related to bacterial origin . We all have been examined , I myself have had stool samples taken about 4 times . So if the problem was caused by bacteria a few of us should have recovered from this sh*t . I think our sickness is a damage of the sympathetic nervous system that cannot be managed . I have to say none of the anxiety pills has worked for me either . Or it might be a hormonally problem . If someone has tried Kelp capsules or iodine tablets please let me know if they have worked . Get better everyone !!
 
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Discussion Starter · #11 · (Edited)
congratulationdon't worry,if you don't smell when your bowels are open to world then you won't smell if you have a barrier(anal sphincter),unless the cause of FBO was ulcerative colitis,ask your doctor to take a biopsy from your anus to see if U.C. was extended to it or not.
I had FBO before colitis though. My FBO has disappeared along with my colon being removed and thats the interesting part.
 

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glad to hear it's gone, i've had this ibs since november 2008 and it's wrecking my life
too paranoid to head up the town cause i have to keep going to the toilet when upi don't get the body odour that other people get but i would get the gas that keeps leaking out and the growling soundsthen i think in my head that there's a smell off me even though there isn't, i've even asked people if there's a shite smell in night clubs with drink in me and they just laugh and ask what am i talking about
 

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It might have just been the heavy antibotics... tons and I mean tons of people who think they have leaky gas are just suffering from a very severe form of Halitosis, TMAU or in some rare cases a Candida infection of their throat or mouth.
 
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Discussion Starter · #18 · (Edited)
It might have just been the heavy antibotics... tons and I mean tons of people who think they have leaky gas are just suffering from a very severe form of Halitosis, TMAU or in some rare cases a Candida infection of their throat or mouth.
If it is (i highly doubt it) ill have to call my surgeon and see what he says about it because iv done the second surgery now (stool coming out the normal way instead of ileostomi) and im not so sure im smell free anymore. I have to go see a nurse on saturday to change some bandages so ill just ask her if she can notice a smell. I was given antibiotics this time too but not as much as last time so im not so sure its them. Il post again on saturday.EDIT: To be honest i think its got something to do with smells leeking out of my anus that i cant control for some reason like many other people here. It makes sense considering when i didnt have anything coming out that way i was smell free.
 

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Hi Meh123,my first thought when I read your post was that the antibiotics associated with the surgery would have at least HELPED to reduce the smell. Antibiotics are used to try and manage a lot of smelly conditions, like aprevious poster said, TMAU etc, just because they reduce the amount of bacteria so there is less smelly gas produced in guts. Its usually only temporary though. People say that after afew months they notice the smell coming back as the bacteria numbers increase again.
 
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Discussion Starter · #20 ·
Hi Meh123,my first thought when I read your post was that the antibiotics associated with the surgery would have at least HELPED to reduce the smell. Antibiotics are used to try and manage a lot of smelly conditions, like aprevious poster said, TMAU etc, just because they reduce the amount of bacteria so there is less smelly gas produced in guts. Its usually only temporary though. People say that after afew months they notice the smell coming back as the bacteria numbers increase again.
It may be. In one week i will be going to the surgeon so then ill probably found out if i still have the problem or not.
 
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